The following lists palliative care research primarily conducted by Australian research groups. The list is based on application of the CareSearch search filter for palliative care to identify articles held within the PubMed database and corresponding to the strongest evidence. Articles have been selected based on relevance and new articles are added on a weekly basis.
Whilst not an exhaustive list, the aim is to keep the community informed by providing a snapshot of recent research findings and planned studies in the Australian setting.
Fogarty S, Moore R, Cates C.
Background: Serious illness "is a health condition that carries a high risk of mortality and either negatively impacts a person's daily function or quality of life or excessively strains their caregivers."
Purpose: The aim of this review was to explore the contribution of massage and massage therapy to the mental health and well-being of individuals living with a serious and potentially life-limiting illness.
Methods: A scoping review was conducted following Arksey and O'Malley's six-step scoping review framework and the PRISMA-ScR guidelines. The electronic databases PubMed, CINAHL, MEDLINE (OVID), PsychINFO, CENTRAL, Web of Science, PROQUEST Dissertations and Theses, and Scopus were searched to identify qualitative or mixed-methods studies. The qualitative data were coded from the studies and themes emerged. For the final stage of analysis, a thematic synthesis was utilized.
Findings: Sixteen papers were included from eight countries. The overarching theme was "the effable and ineffable impacts of massage" informed by the following themes: massage as a transcendent experience, existential respite, massage helping to preserve dignity, increased inner resources, well-being and relaxation as part of the individualized and personalized vocabulary for massage for the seriously ill, and varied outcomes of the effect of massage on physical symptoms.
Conclusion: Good mental health and well-being are important aspects of living well with serious illness. The review found there is a considerable body of research which points to the value and impact of massage on outcomes of well-being and mental health and, broadly, on patient experience.
Jonescu EE, Farrell B, Ramanayaka CE, Delaney L, Litton E, Uylaki TJ, et al.
Environmental design in palliative care settings receives increasing attention, yet methodologies for studying such environments often lack interdisciplinary integration. Traditional research designs may overlook the lived expertise of clinicians and designers.
Objectives: This article describes a collaborative, cross-disciplinary communities-of-practice model developed as a methodological framework to enable effective environmental evaluation and design processes in healthcare settings. Its application is illustrated through a case study in a palliative care unit.
Methods: A co-designed, multi-methods approach was developed by a team of clinicians, facility managers, and academic researchers. The methodology included a scoping review, site-specific environmental data logging (sound, temperature, lighting), and co-created survey tools for staff and patients or proxies. Data were collected over two phases, following ethically approved protocols to protect privacy and support data validity.
Results: The communities-of-practice model successfully integrated cross-sector expertise, improved the contextual relevance of study instruments, and enabled real-time, context-sensitive data collection in a high-acuity clinical setting. The method supported context-aware adaptations that would not have emerged from conventional top-down research approaches, effectively bridging academic inquiry and practical clinical application.
Conclusion: The communities-of-practice model offers a replicable, interdisciplinary method for researching complex healthcare environments. Its case study in a palliative care unit demonstrates its capacity to generate actionable insights aligned with patient-centred outcomes. As health architecture increasingly intersects with evidence-based care delivery, such methodological approaches are vital for aligning design decisions with clinical and human-centred goals.
Luckett T, Razmovski-Naumovski V, Garcia M, Phillips J, Chye R, Noble B, et al.
Background: Clinical trials are underway of medicinal cannabis for cancer-related anorexia, using various formulations and modes of administration.
Objectives: To explore the benefits and burdens of vaporized medicinal cannabis flower bud for anorexia from the perspectives of trial participants with advanced cancer and their carers.
Design: People with advanced cancer enrolled as inpatients in a Phase I/IIb clinical trial, and their carers participated in face-to-face semi-structured interviews. Analysis used the framework method.
Setting: Inpatient specialist palliative care.
Results: Ten out of 12 trial participants and 6 carers were interviewed. All perceived benefits to eating but, in two cases, this arose from reduced nausea rather than appetite stimulation. Carers sometimes perceive more benefit than patients. Psychoactive effects were well-tolerated and even enjoyed. Burdens included throat irritation and adverse smell and taste, but these were transient.
Conclusion: Vaporized flower bud warrants comparison with other formulations/modes of medicinal cannabis for cancer-related anorexia.
White D, Barham D, McEniery J, Mherekumombe M, Bridge D.
Background: Spiritual pain and distress are commonly unrecognised among patients receiving palliative care, yet engaging with a person's spirituality can allow healing to occur even amid suffering. Palliative care clinicians lack training in assessing and managing spiritual distress among patients.
Objectives: Development of a virtually delivered spirituality workshop to improve clinicians' understanding of their own spirituality and confidence in addressing the spiritual dimension of patients' experience.
Method: 32 palliative care clinicians across Australia and New Zealand attended four 1.5-hour sessions across consecutive weeks, with additional pre-session and post-session written and audiovisual content. Participants completed a pre-post evaluation survey, rating their confidence in knowledge and skills relating to the provision of spiritual care.
Results: All participants completed at least three of the four workshop sessions, and 19 responded to the pre-post evaluation survey. Confidence ratings across all skills significantly improved following the workshop. Most participants reported improved confidence in taking a spiritual history, assessing patients for spiritual issues and managing patients experiencing spiritual pain. All reported that they would recommend the workshop to a colleague, and most (11/19) felt virtual delivery of the workshop was appropriate for the content and activities.
Conclusions: Spirituality training can be safely and effectively delivered through a virtual workshop for palliative care clinicians. The training was highly valued and deepened participants' understanding of their own spirituality. Further exploration of how virtual and face-to-face learning can be combined may identify a flexible and engaging experience for learners.
Grove GL, Lovell MR, Butow P, Hughes I, Best M.
Objectives: This study explored Australian palliative care clinicians' perspectives on the legalization of voluntary assisted dying (VAD), aiming to identify variables associated with clinicians' views and understand challenges of its implementation.
Methods: An online survey exploring support for legalization of VAD was sent to palliative care clinicians in Queensland and New South Wales and followed up with semi-structured interviews. Support was categorized as positive, uncertain, or negative. An ordinal logistic regression model was used to identify variables independently predictive of euthanasia support. Interviews were analyzed using grounded theory to understand key concepts shaping views on VAD.
Results: Of 142 respondents, 53% supported, 10% were uncertain, and 37% opposed legalizing euthanasia for terminal illness with severe symptoms. Support was lower for patients with chronic illness (34%), severe disability (24%), depression (9%), severe dementia (5%), and for any adult with capacity (4%). The model showed lower support among doctors than nurses (38% vs. 69%, p = 0.0001), those in New South Wales compared with Queensland (44% vs. 69%, p = 0.0002), the highly religious versus least religious (24% vs. 79%, p = 0.00002), those politically conservative versus progressive (39% vs. 60%, p = 0.04), and those with more healthcare experience (p = 0.03). Seventeen interviews revealed 2 distinct groups: one focused on the event of death and the need to relieve suffering, providing comfort in the final moments; the second on the journey of dying and the possibility of discovering peace despite suffering. Those in the first group supported legal VAD, while those in the second opposed it. Despite opposing views, compassion was a unifying foundation common to both groups.
Significance of results: There are 2 fundamentally different orientations toward VAD among palliative care clinicians, which will likely contribute to tensions within teams. Acknowledging that both perspectives are rooted in compassion may provide a constructive basis for navigating disagreements and supporting team cohesion.
Last updated 30 April 2024