Shared decision-making in palliative care is where a healthcare professional and a person work together to reach a decision(s) about care. If the person requires specific support to be able to contribute then this is referred to as supported decision-making.
In either case, ideally it involves choosing investigations and treatments based on the person's preferences, beliefs, and values, and the best available evidence.
Visit ACQSHC for more on shared decision-making
Shared decision-making empowers people to make decisions about the treatment and care that is right for them at that time. This includes choosing to continue with their current treatment, change their treatment or choose no treatment at all. This can include the risks, benefits, and possible consequences of different options, and practical implications of each option (e.g. cost, time, travel etc.)
Video - Shared decision making an overview from Bond University
It also allows people the opportunity to choose to what degree they want to participate in decision-making. Some people prefer not to take an active role in making decisions with their healthcare professionals; they may choose to have the healthcare professionals lead the decision-making process or choose someone (e.g. a family member) to make decisions on their behalf.
Nurses are well placed to work with and support patients to make care decisions that reflect their needs and preferences.
Patient decision aids are tools designed to help people take part in decision-making. They provide information on the healthcare options and help people to think about, clarify and communicate the value of each option to them personally. Patient decision aids do not advise people to choose one option over another, nor are they meant to replace healthcare professional consultation. Instead, they support people to make informed, values-based decisions with their healthcare professional.
Video - Shared decision making patient decision aids from Bond University
There are situations where a person has capacity but needs help in making a decision. For example, a person with dementia, an intellectual disability, a communication disability, or a mental illness.
Visit the Sydney University Cognitive Decline Partnership Centre - Supported decision-making
Supported decision-making is where a person is supported or assisted to make and/or communicate and/or act on their own decision(s). The decision-making is supported, but the decision is theirs.
Supported decision-making can include:
This information was drawn from the following resources:
Read Supported decision-making in the context for people living with dementia
Visit Finding your way, a shared decision-making model created to help Aboriginal people
Access more Shared decision-making Resources
Page created 15 August 2022