Patients

Review collection - Patients

251 reviews

2024

Abu-Odah H, Su JJ, Wang M, Sheffield D, Molassiotis A. Systematic review and meta-analysis of the effectiveness of expressive writing disclosure on cancer and palliative care patients’ health-related outcomes. Support Care Cancer. 2024;32(1):1-31.

Goodrich J, Watson C, Gaczkowska I, Harding R, Evans C, Firth A, et al. Understanding patient and family utilisation of community-based palliative care services out-of-hours: Additional analysis of systematic review evidence using narrative synthesis. PLoS One. 2024;19(2):e0296405.

Pinto S, Lopes S, de Sousa AB, Delalibera M, Gomes B. Patient and family preferences about place of end-of-life care and death: An umbrella review. J Pain Symptom Manage. 2024 Jan 17.

2023

Batista S, Sapeta P. The care process between informal caregivers and patients with palliative care needs at home: Meta-synthesis. Rev Enf Ref. 2023 Jun 20;6(2):1-10. doi: 10.12707/RVI22074

Beresford CJ, Gelling L, Baron S, Thompson L. The experiences of people with liver disease of palliative and end-of-life care in the United Kingdom-A systematic literature review and metasynthesis. Health Expect. 2023 Oct 19.

Cappucci SP, Smith WS, Schwartzstein R, White DB, Mitchell SL, Fehnel CR. End-Of-Life Care in the Potential Donor after Circulatory Death: A Systematic Review. Neurohospitalist. 2023 Jan;13(1):61-68. doi: 10.1177/19418744221123194. Epub 2022 Oct 9.

Chan LML, Yan OY, Lee JJJ, Lam WWT, Lin CC, Auyeung M, Bloem BR, Kwok JYY. Effects of Palliative Care for Progressive Neurologic Diseases: A Systematic Review and Meta-Analysis. J Am Med Dir Assoc. 2023 Feb;24(2):171-184. doi: 10.1016/j.jamda.2022.11.001. Epub 2022 Dec 5.

Chen Y, Qiao C, Zhang X, Li W, Yang H. The Effect of Tele-palliative Care on Patient and Caregiver Outcomes: A Systematic Review. Am J Hosp Palliat Care. 2023 Aug;40(8):907-925. doi: 10.1177/10499091221123566. Epub 2022 Sep 14.

Cheng G, Chen C. End-of-life needs of dying patients and their families in mainland China: A Systematic Review. Omega (Westport). 2023 Feb;86(3):1019-1045. doi: 10.1177/0030222821997340. Epub 2021 Feb 24.

da Silva MAP, Corradi-Perini C. The mapping of influencing factors in the decision-making of end-of-life care patients: A systematic scoping review. Indian J Palliat Care. 2023 Jul-Sep;29(3):234-242.

Daudt HM, Spargo EL. Challenges and facilitators for psychosocial support when aging and dying in place: A rapid review of the literature. Can J Aging. 2023 Mar;42(1):135-153. doi: 10.1017/S071498082200023X. Epub 2022 Jun 28.

de Vries S, Verhoef MJ, Vervoort SCJM, van der Linden YM, Teunissen SCCM, de Graaf E. Barriers and facilitators that hospital clinicians perceive to discuss the personal values, wishes, and needs of patients in palliative care: A mixed-methods systematic review. Palliat Care Soc Pract. 2023;17.

Edwards M, Holland-Hart D, Mann M, Seddon K, Buckle P, Longo M, Byrne A, Nelson A. Understanding how shared decision-making approaches and patient aids influence patients with advanced cancer when deciding on palliative treatments and care: A realist review. Health Expect. 2023 Jul 13. doi: 10.1111/hex.13822. Epub ahead of print.

Hammond L, Chakraborty A, Thorpe C, O'Loughlin M, Allcroft P, Phelan C. Relieving perception of thirst and Xerostomia in patients with palliative and end-of-life care needs: A rapid review. J Pain Symptom Manage. 2023 Jul;66(1):e45-e68. doi: 10.1016/j.jpainsymman.2023.02.315. Epub 2023 Feb 23.

Hayes Bauer E, Schultz A, Brandt F, Smith AC, Bollig G, Dieperink KB. Patient and families' perspectives on telepalliative care: A systematic integrative review. Palliat Med. 2023:2692163231217146.

Ho KHM, Yang C, Ng MSN, Tao A, Chan HYL. Loneliness at end-of-life: A scoping review. J Clin Nurs. 2023 May 6. doi: 10.1111/jocn.16748. Epub ahead of print.

Joost K, Washington K, Faurot M, Alexander RL, Craig KW, Tuller ER. Identifying the palliative care needs of patients and families in gynecologic surgical oncology: A scoping review. J Psychosoc Oncol. 2023 Feb 8:1-12. doi: 10.1080/07347332.2023.2174474. Epub ahead of print.

Madiraca J, Lindell K, Coyne P, Miller S. Palliative care interventions in Advanced Chronic Obstructive Pulmonary Disease: An integrative review. J Palliat Med. 2023 Mar 1. doi: 10.1089/jpm.2022.0356. Epub ahead of print.

Masoud B, Imane B, Naiire S. Patient awareness of palliative care: systematic review. BMJ Support Palliat Care. 2023 Jun;13(2):136-142. doi: 10.1136/bmjspcare-2021-003072. Epub 2021 Oct 11.

Nankundwa E, Mukeshimana M, Kanazayire C, Margaret F. Experiences of patients with advanced chronic disease transitioning to palliative care in low-and middle-income countries: A scoping review. Rwanda J Med Health Sci. 2023;6(3):411-422.

Perea-Bello AH, Trapero-Bertran M, Dürsteler C. Palliative care costs in different ambulatory-based settings: A systematic review. Pharmacoeconomics. 2023 Dec 27.

Quah ELY, Chua KZY, Lin CKR, Vijayan AV, Abdul Hamid NAB, Owyong JLJ, et al. The role of patients' stories in medicine: A systematic scoping review. BMC Palliat Care. 2023;22(1).

Quah ELY, Chua KZY, Lua JK, Wan DWJ, Chong CS, Lim YX, Krishna L. A systematic review of stakeholder perspectives of dignity and assisted dying. J Pain Symptom Manage. 2023 Feb;65(2):e123-e136. doi: 10.1016/j.jpainsymman.2022.10.004. Epub 2022 Oct 14.

Rajeswaran T, Wong HCY, Zhang E, Kennedy SKF, Gojsevic M, Soliman H, et al. Quality of life issues in patients with bone metastases: A systematic review. Support Care Cancer. 2023;32(1):18.

Sikhosana N, Whitehead D, Moxham L, Karacsony S, Namasivayam P, Fernandez R. Voice of persons with a life-limiting illness in conversation with healthcare professionals: systematic review and meta-synthesis. BMJ Support Palliat Care. 2023 May 17:spcare-2022-003855. doi: 10.1136/spcare-2022-003855. Epub ahead of print.

Toohey K, Chapman M, Rushby AM, Urban K, Ingham G, Singh B. The effects of physical exercise in the palliative care phase for people with advanced cancer: a systematic review with meta-analysis. J Cancer Surviv. 2023 Apr;17(2):399-415. doi: 10.1007/s11764-021-01153-0. Epub 2022 Jan 18.

Velić S, Qama E, Diviani N, Rubinelli S. Patients' perception of hope in palliative care: A systematic review and narrative synthesis. Patient Educ Couns. 2023 Jun 30;115:107879. doi: 10.1016/j.pec.2023.107879. Epub ahead of print.

Virdun C, Garcia M, Phillips JL, Luckett T. Description of patient reported experience measures (PREMs) for hospitalised patients with palliative care needs and their families, and how these map to noted areas of importance for quality care: A systematic review. Palliat Med. 2023 Apr 24:2692163231169319. doi: 10.1177/02692163231169319. Epub ahead of print.

Walker W, Efstathiou N, Jones J, Collins P, Jennens H. Family experiences of in-hospital end-of-life care for adults: A systematic review of qualitative evidence. J Clin Nurs. 2023 May;32(9-10):2252-2269. doi: 10.1111/jocn.16268. Epub 2022 Mar 24.

Wang G, Xiao J, Chen Z, Huang C, Deng Y, Tang S. Good death from cancer-the patient view: systematic review of qualitative studies. BMJ Support Palliat Care. 2023 Jun 23:spcare-2022-004146. doi: 10.1136/spcare-2022-004146. Epub ahead of print.

2022

Alnaeem MM, Bawadi HA. Systematic Review and Meta-Synthesis about Patients with Hematological Malignancy and Palliative Care. Asian Pac J Cancer Prev. 2022 Sep 1;23(9):2881-2890. doi: 10.31557/APJCP.2022.23.9.2881.

Araujo MCR, da Silva DA, Wilson AMMM. Nursing interventions in palliative care in the intensive care unit: A systematic review. Enferm. Intensiva. 2022 Aug 2. doi: 10.1016/j.enfi.2022.04.001.

Baddeley E, Mann M, Bravington A, Johnson MJ, Currow D, Murtagh FEM, Boland EG, Obita G, Oliver A, Seddon K, Nelson A, Boland JW, Noble SIR. Symptom burden and lived experiences of patients, caregivers and healthcare professionals on the management of malignant bowel obstruction: A qualitative systematic review. Palliat Med. 2022 Mar 8:2692163221081331. doi: 10.1177/02692163221081331. Epub ahead of print.

Barbosa MG, Garcia GT, Sarin LM, Jackowski AP. Efficacy and safety of ketamine for the treatment of depressive symptoms in palliative care: A systematic review. Braz J Psychiatry. 2022 Dec 27. doi: 10.47626/1516-4446-2022-2876. Epub ahead of print.

Battat MMK, Marie M. Rehabilitation interventions for depression symptoms among cancer patients in Palestine: A systematic review. Front Rehabil Sci. 2022 Dec 5;3:978844. doi: 10.3389/fresc.2022.978844.

Belar A, Arantzamendi M, Menten J, Payne S, Hasselaar J, Centeno C. The Decision-Making Process for Palliative Sedation for Patients with Advanced Cancer-Analysis from a Systematic Review of Prospective Studies. Cancers (Basel). 2022 Jan 8;14(2):301. doi: 10.3390/cancers14020301.

Bolton LE, Seymour J, Gardiner C. Existential suffering in the day to day lives of those living with palliative care needs arising from chronic obstructive pulmonary disease (COPD): A systematic integrative literature review. Palliat Med. 2022 Feb 17:2692163221074539. doi: 10.1177/02692163221074539. Epub ahead of print.

Bowers SP, Chin M, O'Riordan M, Carduff E. The end of life experiences of people living with socio-economic deprivation in the developed world: an integrative review. BMC Palliat Care. 2022 Nov 5;21(1):193. doi: 10.1186/s12904-022-01080-6.

Butler C, Wilson P, Abrahamson V, Mikelyte R, Gage H, Williams P, Brigden C, Swash B, Rees-Roberts M, Silsbury G, Goodwin M, Greene K, Wee B, Barclay S. Optimum models of hospice at home services for end-of-life care in England: a realist-informed mixed-methods evaluation. Southampton (UK): National Institute for Health and Care Research; 2022 Aug.

Candy B, Jones L, Vickerstaff V, Larkin PJ, Stone P. Mu-opioid antagonists for opioid-induced bowel dysfunction in people with cancer and people receiving palliative care. Cochrane Database Syst Rev. 2022 Sep 15;9(9):CD006332. doi: 10.1002/14651858.CD006332.pub4.

Chyr LC, Sauers EG, Dy SM, Waldfogel JM. The Application of Minimal Clinically Important Differences in Palliative Research: Interpretation of Results of a Systematic Review. J Pain Symptom Manage. 2022 Aug 21:S0885-3924(22)00861-2. doi: 10.1016/j.jpainsymman.2022.08.008. Epub ahead of print.

Carmont H, McIlfatrick S. Using virtual reality in palliative care: a systematic integrative review. Int J Palliat Nurs. 2022 Mar 2;28(3):132-144. doi: 10.12968/ijpn.2022.28.3.132.

Coffey M, Edwards D, Anstey S, Gill P, Mann M, Meudell A, Hannigan B. End-of-life care for people with severe mental illness: mixed methods systematic review and thematic synthesis of published case studies (the MENLOC study). BMJ Open. 2022 Feb 22;12(2):e053223. doi: 10.1136/bmjopen-2021-053223.

Cook O, Doran J, Crosbie K, Sweeney P, Millard I, O'Connor M. Palliative care needs and models of care for people who use drugs and/or alcohol: A mixed methods systematic review. Palliat Med. 2022 Feb 20:2692163211061994. doi: 10.1177/02692163211061994. Epub ahead of print.

Chua KZY, Quah ELY, Lim YX, Goh CK, Lim J, Wan DWJ, Ong SM, Chong CS, Yeo KZG, Goh LSH, See RM, Lee ASI, Ong YT, Chiam M, Ong EK, Zhou JX, Lim C, Ong SYK, Krishna L. A systematic scoping review on patients' perceptions of dignity. BMC Palliat Care. 2022 Jul 4;21(1):118. doi: 10.1186/s12904-022-01004-4.

Davies H, Waduud MA, Laloo R, Wyld L, Wallace T, de Siqueira JR, Bennett MI, Scott DJA. Palliative Care Interventions for Peripheral Artery Disease: A Systematic Review and Narrative Synthesis. J Palliat Med. 2022 Feb;25(2):319-326. doi: 10.1089/jpm.2021.0393. Epub 2021 Dec 2.

Dhaliwal JS, Talip T, Rajam DT, Dhaliwal SKS, Murang ZR, Ming LC, Venkatasalu MR. A systematic review of interventional studies on oral care of palliative patients. Ann Palliat Med. 2022 Sep;11(9):2980-3000. doi: 10.21037/apm-22-215. Epub 2022 Aug 31.

Diegelmann S, Bidmon S, Terlutter R. Promoting advance care planning via mediated health resources: A systematic mixed studies review. Patient Educ Couns. 2022 Jan;105(1):15-29. doi: 10.1016/j.pec.2021.06.008. Epub 2021 Jun 9.

Dos Santos FC, Macieira TGR, Yao Y, Hunter S, Madandola OO, Cho H, Bjarnadottir RI, Dunn Lopez K, Wilkie DJ, Keenan GM. Spiritual Interventions Delivered by Nurses to Address Patients' Needs in Hospitals or Long-Term Care Facilities: A Systematic Review. J Palliat Med. 2022 Jan 26. doi: 10.1089/jpm.2021.0578. Epub ahead of print.

Fernandes Pedro J, Reis-Pina P. Palliative Care in Patients with Advanced Heart Failure: A Systematic Review. Acta Med Port. 2022 Feb 1;35(2):111-118. doi: 10.20344/amp.15963. Epub 2022 Feb 1.

Gagnon Mailhot M, Léonard G, Gadoury-Sansfaçon GP, Stout D, Ellefsen É. A Scoping Review on the Experience of Participating in Dignity Therapy for Adults at the End of Life. J Palliat Med. 2022 Jul;25(7):1143-1150. doi: 10.1089/jpm.2021.0498. Epub 2022 May 20.

García-Sanjuán S, Fernández-Alcántara M, Clement-Carbonell V, Campos-Calderón CP, Orts-Beneito N, Cabañero-Martínez MJ. Levels and Determinants of Place-Of-Death Congruence in Palliative Patients: A Systematic Review. Front Psychol. 2022 Jan 13;12:807869. doi: 10.3389/fpsyg.2021.807869.

Gomes-Ferraz CA, Rezende G, Fagundes AA, De Carlo MMRDP. Assessment of total pain in people in oncologic palliative care: integrative literature review. Palliat Care Soc Pract. 2022 Sep 22;16:26323524221125244. doi: 10.1177/26323524221125244.

Hasdenteufel M, Quintard B. Dyadic Experiences and Psychosocial Management of Couples Facing Advanced Cancer: A Systematic Review of the Literature. Front Psychol. 2022 Jun 8;13:827947. doi: 10.3389/fpsyg.2022.827947.

Hession A, Luckett T, Chang S, Currow D, Barbato M. End-of-life dreams and visions: A systematic integrative review. Palliat Support Care. 2022 Aug 1:1-10. doi: 10.1017/S1478951522000876. Epub ahead of print.

Hicks S, Davidson M, Efstathiou N, Guo P. Effectiveness and cost effectiveness of palliative care interventions in people with chronic heart failure and their caregivers: a systematic review. BMC Palliat Care. 2022 Nov 23;21(1):205. doi: 10.1186/s12904-022-01092-2.

Hoomani Majdabadi F, Ashktorab T, Ilkhani M. Impact of palliative care on quality of life in advanced cancer: A meta-analysis of randomised controlled trials. Eur J Cancer Care (Engl). 2022 Jul 13:e13647. doi: 10.1111/ecc.13647. Epub ahead of print.

Hosokawa M, Ito M, Kyota A, Hirai K, Yamakawa M, Miyashita M. Non-pharmacological interventions for cancer-related fatigue in terminal cancer patients: a systematic review and meta-analysis. Ann Palliat Med. 2022 Nov 10:apm-22-655. doi: 10.21037/apm-22-655. Epub ahead of print.

Hu SQ, Tang W, Zhang WQ, Chen HL, Shen WQ. Incidence of Death Anxiety in Palliative Care: A Systematic Review and Meta-Analysis. Omega (Westport). 2022 May 24:302228221104298. doi: 10.1177/00302228221104298. Epub ahead of print.

Huo B, Song Y, Chang L, Tan B. Effects of early palliative care on patients with incurable cancer: A meta-analysis and systematic review. Eur J Cancer Care (Engl). 2022 May 25:e13620. doi: 10.1111/ecc.13620. Epub ahead of print.

Jones JA, Chavarri-Guerra Y, Corrêa LBC, Dean DR, Epstein JB, Fregnani ER, Lee J, Matsuda Y, Mercadante V, Monsen RE, Rajimakers NJH, Saunders D, Soto-Perez-de-Celis E, Sousa MS, Tonkaboni A, Vissink A, Yeoh KS, Davies AN. MASCC/ISOO expert opinion on the management of oral problems in patients with advanced cancer. Support Care Cancer. 2022 Jun 18. doi: 10.1007/s00520-022-07211-2. Epub ahead of print.

Kim C, Kim S, Lee K, Choi J, Kim S. Palliative Care for Patients With Heart Failure: An Integrative Review. J Hosp Palliat Nurs. 2022 Mar 31. doi: 10.1097/NJH.0000000000000869. Epub ahead of print.

Kirkland SW, Yang EH, Garrido Clua M, Kruhlak M, Campbell S, Villa-Roel C, Rowe BH. Screening tools to identify patients with unmet palliative care needs in the emergency department: a systematic review. Acad Emerg Med. 2022 Mar 28. doi: 10.1111/acem.14492. Epub ahead of print.

Koekkoek JAF, van der Meer PB, Pace A, Hertler C, Harrison R, Leeper HE, Forst DA, Jalali R, Oliver K, Philip J, Taphoorn MJB, Dirven L, Walbert T. Palliative care and end-of-life care in adults with malignant brain tumors. Neuro Oncol. 2022 Oct 22:noac216. doi: 10.1093/neuonc/noac216. Epub ahead of print.

Kopecky K, Monton O, Rosman L, Johnston F. Palliative interventions for patients with advanced gastric cancer: a systematic review. Chin Clin Oncol. 2022 Dec;11(6):47. doi: 10.21037/cco-22-102.

Llop-Medina L, Fu Y, Garcés-Ferrer J, Doñate-Martínez A. Palliative Care in Older People with Multimorbidities: A Scoping Review on the Palliative Care Needs of Patients, Carers, and Health Professionals. Int J Environ Res Public Health. 2022 Mar 8;19(6):3195. doi: 10.3390/ijerph19063195.

Lo UC, Musa H, Li J, Gaon J, Hibbs DE, Ong JA. Patient beliefs associated with medication hesitancy in palliative care: A systematic review using the theory of planned behavior. Palliat Support Care. 2022 Dec 12:1-13. doi: 10.1017/S1478951522001547. Epub ahead of print.

Louise Forrow H, Lhussier M, Scott J, Atkinson J. Why patients in specialist palliative care in-patient settings are at high risk of falls and falls-related harm: A realist synthesis. Palliat Med. 2022 Nov 2:2692163221127808. doi: 10.1177/02692163221127808. Epub ahead of print.

Low C, Namasivayam P, Barnett T. Co-designing Community Out-of-hours Palliative Care Services: A systematic literature search and review. Palliat Med. 2022 Nov 9:2692163221132089. doi: 10.1177/02692163221132089. Epub ahead of print.

Miller EM, Porter JE, Barbagallo MS. The Physical Hospital Environment and Its Effects on Palliative Patients and Their Families: A Qualitative Meta-Synthesis. HERD. 2022 Jan;15(1):268-291. doi: 10.1177/19375867211032931. Epub 2021 Aug 6.

Mulcahy Symmons S, Ryan K, Aoun SM, Selman LE, Davies AN, Cornally N, Lombard J, McQuilllan R, Guerin S, O'Leary N, Connolly M, Rabbitte M, Mockler D, Foley G. Decision-making in palliative care: patient and family caregiver concordance and discordance-systematic review and narrative synthesis. BMJ Support Palliat Care. 2022 Mar 22:bmjspcare-2022-003525. doi: 10.1136/bmjspcare-2022-003525. Epub ahead of print.

Narvaez RA, Canaria A, Nifras SR, Listones N, Topacio R, Baua ME. The role of telehealth on quality of life of palliative care patients during the COVID-19 pandemic: an integrative review. Int J Palliat Nurs. 2022 Dec 2;28(12):583-589. doi: 10.12968/ijpn.2022.28.12.583.

O'Brien J, Dingle M. A dual realist review: Compression for leg swelling at the end of life has potential quality of life benefit. J Adv Nurs. 2022 Dec;78(12):4003-4018. doi: 10.1111/jan.15458. Epub 2022 Oct 13.

O'Connor T, Paterson C, Gibson J, Strickland K. The conscious state of the dying patient: An integrative review. Palliat Support Care. 2022 Oct;20(5):731-45. doi: 10.1017/S1478951521001541.

Ohinata H, Aoyama M, Miyashita M. Complexity in the context of palliative care: a systematic review. Ann Palliat Med. 2022 Sep 30:apm-22-623. doi: 10.21037/apm-22-623. Epub ahead of print.

Paolucci A, Nielssen I, Tang KL, Sinnarajah A, Simon JE, Santana MJ. The impacts of partnering with cancer patients in palliative care research: a systematic review and meta-synthesis. Palliat Care Soc Pract. 2022 Oct 18;16:26323524221131581. doi: 10.1177/26323524221131581.

Patinadan PV, Tan-Ho G, Choo PY, Ho AHY. Resolving anticipatory grief and enhancing dignity at the end-of life: A systematic review of palliative interventions. Death Stud. 2022;46(2):337-350. doi: 10.1080/07481187.2020.1728426. Epub 2020 Feb 21.

Qama E, Diviani N, Grignoli N, Rubinelli S. Health professionals' view on the role of hope and communication challenges with patients in palliative care: A systematic narrative review. Patient Educ Couns. 2022 Jun;105(6):1470-1487. doi: 10.1016/j.pec.2021.09.025. Epub 2021 Sep 21.

Quinn KL, Krahn M, Stukel TA, Grossman Y, Goldman R, Cram P, Detsky AS, Bell CM. No Time to Waste: An Appraisal of Value at the End of Life. Value Health. 2022 Jun 8:S1098-3015(22)01966-0. doi: 10.1016/j.jval.2022.05.004. Epub ahead of print.

Raepsaet C, Blomberg K, Falk-Brynhildsen K, Gethin G, Beeckman D. Promoting and Maintaining Skin Integrity in End-of-Life Care: A Systematic Review. Adv Skin Wound Care. 2022 Jul 2. doi: 10.1097/01.ASW.0000833616.40632.40. Epub ahead of print.

Rezende G, Gomes-Ferraz CA, Bacon IGFI, De Carlo MMRDP. The importance of a continuum of rehabilitation from diagnosis of advanced cancer to palliative care. Disabil Rehabil. 2022 Nov 20:1-11. doi: 10.1080/09638288.2022.2140456. Epub ahead of print.

Riley K, Hupcey JE, Kowalchik K. Palliative Care in Severe and Persistent Mental Illness: A Systematic Review. J Hosp Palliat Nurs. 2022 Mar 10. doi: 10.1097/NJH.0000000000000855. Epub ahead of print.

Roikjaer SG, Gärtner HS, Timm H. Use of narrative methods in rehabilitation and palliative care in Scandinavian countries: A scoping review. Scand J Caring Sci. 2022 Jun;36(2):346-381. doi: 10.1111/scs.13050. Epub 2021 Dec 9.

Rosa WE, Roberts KE, Braybrook D, Harding R, Godwin K, Mahoney C, Mathew S, Atkinson TM, Banerjee SC, Haviland K, Hughes TL, Walters CB, Parker PA. Palliative and end-of-life care needs, experiences, and preferences of LGBTQ+ individuals with serious illness: A systematic mixed-methods review. Palliat Med. 2022 Dec 7:2692163221124426. doi: 10.1177/02692163221124426. Epub ahead of print.

Ryan RE, Connolly M, Bradford NK, Henderson S, Herbert A, Schonfeld L, Young J, Bothroyd JI, Henderson A. Interventions for interpersonal communication about end of life care between health practitioners and affected people. Cochrane Database Syst Rev. 2022 Jul 8;7(7):CD013116. doi: 10.1002/14651858.CD013116.pub2.

Shakeri B, Abdi K, Bagi M, Dalvand S, Shahriari H, Sadeghi S, Ghanei Gheshlagh R. A Systematic Review and Meta-analysis of Death Anxiety Among Iranian Patients With Cancer. Omega (Westport). 2022 Feb 6:302228211070400. doi: 10.1177/00302228211070400. Epub ahead of print.

Shih HH, Chang HJ, Huang TW. Effects of Early Palliative Care in Advanced Cancer Patients: A Meta-Analysis. Am J Hosp Palliat Care. 2022 Nov;39(11):1350-1357. doi: 10.1177/10499091221075570. Epub 2022 Mar 1.

Wenzel D, Bleazard L, Pepper CJ, Wilson E, Faull C. Non-invasive advanced respiratory support in end-of-life care and symptom management: systematic review. BMJ Support Palliat Care. 2022 Oct 13:spcare-2022-003905. doi: 10.1136/spcare-2022-003905. Epub ahead of print.

Wong AD, Phillips SP. Gender Disparities in End of Life Care: A Scoping Review. J Palliat Care. 2023 Jan;38(1):78-96. doi: 10.1177/08258597221120707. Epub 2022 Aug 22.

2021

Alderman B, Allan L, Amano K, Bouleuc C, Davis M, Lister-Flynn S, Mukhopadhyay S, Davies A. Multinational Association of Supportive Care in Cancer (MASCC) expert opinion/guidance on the use of clinically assisted nutrition in patients with advanced cancer. Support Care Cancer. 2021 Oct 19. doi: 10.1007/s00520-021-06613-y. Epub ahead of print.

Alshammari B, Noble H, McAneney H, Alshammari F, O'Halloran P. Factors Associated with Burden in Caregivers of Patients with End-Stage Kidney Disease (A Systematic Review). Healthcare (Basel). 2021 Sep 14;9(9):1212. doi: 10.3390/healthcare9091212.

Boje J, Madsen JK, Finderup J. Palliative care needs experienced by Danish patients with end-stage kidney disease. J Ren Care. 2021 Sep;47(3):169-183. doi: 10.1111/jorc.12347. Epub 2020 Aug 31.

Butcher B, Hutchings E, Fazekas B, Clark K, Rowett D, Currow D. Opioid-sparing effects of ketorolac in palliative care patients receiving opioids for chronic cancer-related pain: A systematic literature review. Palliat Med. 2021 Oct 11:2692163211045310. doi: 10.1177/02692163211045310. Epub ahead of print.

Cadogan CA, Murphy M, Boland M, Bennett K, McLean S, Hughes C. Prescribing practices, patterns, and potential harms in patients receiving palliative care: A systematic scoping review. Explor Res Clin Soc Pharm. 2021 Jul 23;3:100050. doi: 10.1016/j.rcsop.2021.100050.

Chatland LE, Harvey C, Kelly K, Paradine S, Bhagat M, Hudson BF. Research participation in palliative medicine-benefits and barriers for patients and families: rapid review and thematic synthesis. BMJ Support Palliat Care. 2021 Aug 17:bmjspcare-2021-003093. doi: 10.1136/bmjspcare-2021-003093. Epub ahead of print.

Connolly T, Coats H, DeSanto K, Jones J. The experience of uncertainty for patients, families and healthcare providers in post-stroke palliative and end-of-life care: a qualitative meta-synthesis. Age Ageing. 2021 Feb 26;50(2):534-545. doi: 10.1093/ageing/afaa229.

Cuevas PE, Davidson P, Mejilla J, Rodney T. Dignity Therapy for End-of-Life Care Patients: A Literature Review. J Patient Exp. 2021 Feb 25;8:2374373521996951. doi: 10.1177/2374373521996951.

Dakessian Sailian S, Salifu Y, Saad R, Preston N. Dignity of patients with palliative needs in the Middle East: an integrative review. BMC Palliat Care. 2021 Jul 16;20(1):112. doi: 10.1186/s12904-021-00791-6.

Das D, Ali M, Hussain IA, Ingram JTN, Johnstone RS, Lopes JJ, Wadee T, Chakraborty N. What do we know about patients' perspectives and expectations relating to palliative and end-of-life care in advanced liver disease? A systematic review of qualitative literature using ENTREQ guidelines. BMJ Support Palliat Care. 2021 Jul 7:bmjspcare-2021-003057. doi: 10.1136/bmjspcare-2021-003057. Epub ahead of print.

Delgado MB, Plessas A, Burns L, Neilens H, Griffiths S, Latour J. Oral care experiences of palliative care patients, their relatives/carers and healthcare professionals. Int J Palliat Nurs. 2021 Dec 2;27(10):504-514. doi: 10.12968/ijpn.2021.27.10.504.

Dewhurst F, Hanratty B, Frew K, Paes P, Walker R, Barnes C, Maddock H, Elverson J, Byrne-Davis L. Palliative medicine trainees be should learn about frailty: meta-synthesis and Delphi study to establish curriculum content. BMJ Support Palliat Care. 2021 Nov 23:bmjspcare-2021-003013. doi: 10.1136/bmjspcare-2021-003013. Epub ahead of print.

Dittborn M, Turrillas P, Maddocks M, Leniz J. Attitudes and preferences towards palliative and end of life care in patients with advanced illness and their family caregivers in Latin America: A mixed studies systematic review. Palliat Med. 2021 Aug 2:2692163211029514. doi: 10.1177/02692163211029514. Epub ahead of print.

Ekberg S, Parry R, Land V, Ekberg K, Pino M, Antaki C, Jenkins L, Whittaker B. Communicating with patients and families about illness progression and end of life: a review of studies using direct observation of clinical practice. BMC Palliat Care. 2021 Dec 8;20(1):186. doi: 10.1186/s12904-021-00876-2.

Featherstone I, Sheldon T, Johnson M, Woodhouse R, Boland JW, Hosie A, Lawlor P, Russell G, Bush S, Siddiqi N. Risk factors for delirium in adult patients receiving specialist palliative care: A systematic review and meta-analysis. Palliat Med. 2021 Dec 20:2692163211065278. doi: 10.1177/02692163211065278. Epub ahead of print.

Featherstone I, Hosie A, Siddiqi N, Grassau P, Bush SH, Taylor J, Sheldon T, Johnson MJ. The experience of delirium in palliative care settings for patients, family, clinicians and volunteers: A qualitative systematic review and thematic synthesis. Palliat Med. 2021 Mar 30:2692163211006313. doi: 10.1177/02692163211006313. Epub ahead of print.

Flyum IR, Mahic S, Grov EK, Joranger P. Health-related quality of life in patients with colorectal cancer in the palliative phase: a systematic review and meta-analysis. BMC Palliat Care. 2021 Sep 16;20(1):144. doi: 10.1186/s12904-021-00837-9.

Genuis SK, Luth W, Campbell S, Bubela T, Johnston WS. Communication About End of Life for Patients Living With Amyotrophic Lateral Sclerosis: A Scoping Review of the Empirical Evidence. Front Neurol. 2021 Aug 4;12:683197. doi: 10.3389/fneur.2021.683197.

Grant M, de Graaf E, Teunissen S. A systematic review of classifications systems to determine complexity of patient care needs in palliative care. Palliat Med. 2021 Apr;35(4):636-650. doi: 10.1177/0269216321996983. Epub 2021 Mar 12.

Guo D, Lin T, Deng C, Zheng Y, Gao L, Yue J. Risk Factors for Delirium in the Palliative Care Population: A Systematic Review and Meta-Analysis. Front Psychiatry. 2021 Oct 21;12:772387. doi: 10.3389/fpsyt.2021.772387.

Hanna N, Quach B, Scott M, Qureshi D, Tanuseputro P, Webber C. Operationalizing Burdensome Transitions Among Adults at the End of Life: A Scoping Review. J Pain Symptom Manage. 2021 Jun;61(6):1261-1277.e10. doi: 10.1016/j.jpainsymman.2020.10.018. Epub 2020 Oct 21.

Hui D, Bohlke K, Bao T, Campbell TC, Coyne PJ, Currow DC, Gupta A, Leiser AL, Mori M, Nava S, Reinke LF, Roeland EJ, Seigel C, Walsh D, Campbell ML. Management of Dyspnea in Advanced Cancer: ASCO Guideline. J Clin Oncol. 2021 Feb 22:JCO2003465. doi: 10.1200/JCO.20.03465. Epub ahead of print.

Imamah NF, Lin HR. Palliative Care in Patients with End-Stage Renal Disease: A Meta Synthesis. Int J Environ Res Public Health. 2021 Oct 11;18(20):10651. doi: 10.3390/ijerph182010651.

Ingle MP, Valdovinos C, Ford KL, Zhou S, Bull S, Gornail S, Zhang X, Moore S, Portz J. Patient Portals to Support Palliative and End-of-Life Care: Scoping Review. J Med Internet Res. 2021 Sep 16;23(9):e28797. doi: 10.2196/28797.

James R, Flemming K, Hodson M, Oxley T. Palliative care for homeless and vulnerably housed people: scoping review and thematic synthesis. BMJ Support Palliat Care. 2021 May 3:bmjspcare-2021-003020. doi: 10.1136/bmjspcare-2021-003020. Epub ahead of print.

Kelly EP, Myers B, Henderson B, Sprik P, White KB, Pawlik TM. The Influence of Patient and Provider Religious and Spiritual Beliefs on Treatment Decision Making in the Cancer Care Context. Med Decis Making. 2021 Jul 1:272989X211022246. doi: 10.1177/0272989X211022246. Epub ahead of print.

Kuosmanen L, Hupli M, Ahtiluoto S, Haavisto E. Patient participation in shared decision-making in palliative care - an integrative review. J Clin Nurs. 2021 Dec;30(23-24):3415-3428. doi: 10.1111/jocn.15866. Epub 2021 May 24.

Lee JB, McIlfatrick S, Fitzpatrick L. Arts engagement facilitated by artists with individuals with life-limiting illness: A systematic integrative review of the literature. Palliat Med. 2021 Dec;35(10):1815-1831. doi: 10.1177/02692163211045895. Epub 2021 Nov 16.

Leeper H, Cooper D, Armstrong T. Palliative Care Intervention Trials for Adults Living With Progressive Central Nervous System Diseases and Their Caregivers: A Systematic Review. J Pain Symptom Manage. 2021 Jun 18:S0885-3924(21)00386-9. doi: 10.1016/j.jpainsymman.2021.06.010. Epub ahead of print.

Lormans T, de Graaf E, van de Geer J, van der Baan F, Leget C, Teunissen S. Toward a socio-spiritual approach? A mixed-methods systematic review on the social and spiritual needs of patients in the palliative phase of their illness. Palliat Med. 2021 Jun;35(6):1071-1098. doi: 10.1177/02692163211010384. Epub 2021 Apr 20.

Marra AR, Puig-Asensio M, Balkenende E, Livorsi DJ, Goto M, Perencevich EN. Antibiotic use during end-of-life care: A systematic literature review and meta-analysis. Infect Control Hosp Epidemiol. 2021 May;42(5):523-529. doi: 10.1017/ice.2020.1241. Epub 2020 Nov 11.

Martina D, Geerse OP, Lin CP, Kristanti MS, Bramer WM, Mori M, Korfage IJ, van der Heide A, Rietjens JA, van der Rijt CC. Asian patients' perspectives on advance care planning: A mixed-method systematic review and conceptual framework. Palliat Med. 2021 Sep 6:2692163211042530. doi: 10.1177/02692163211042530. Epub ahead of print.

McCauley R, McQuillan R, Ryan K, Foley G. Mutual support between patients and family caregivers in palliative care: A systematic review and narrative synthesis. Palliat Med. 2021 Apr 2:269216321999962. doi: 10.1177/0269216321999962. Epub ahead of print.

Metaxa V, Anagnostou D, Vlachos S, Arulkumaran N, Besemmane S, van Dusseldorp I, Aslakson RA, Davidson JE, Gerritsen RT, Hartog C, Curtis JR. Palliative care interventions in intensive care unit patients. Intensive Care Med. 2021 Oct 15. doi: 10.1007/s00134-021-06544-6. Epub ahead of print.

Miller EM, Porter JE, Barbagallo MS. The experiences of health professionals, patients, and families with truth disclosure when breaking bad news in palliative care: A qualitative meta-synthesis. Palliat Support Care. 2021:1-12. doi:10.1017/S1478951521001243.

North AS, Carson L, Sharp L, Patterson J, Hamilton DW. The unmet needs of patients with advanced incurable head and neck cancer and their carers: A systematic review and meta-ethnography of qualitative data. Eur J Cancer Care (Engl). 2021 Jun 4:e13474. doi: 10.1111/ecc.13474. Epub ahead of print.

Ora L, Mannix J, Morgan L, Gregory L, Luck L, Wilkes L. Chronic obstructive pulmonary disease and advance care planning: A synthesis of qualitative literature on patients' experiences. Chronic Illn. 2021 Feb 11:1742395321990109. doi: 10.1177/1742395321990109. Epub ahead of print.

Patton L, Avsar P, Nugent DL, O'Connor T, Patton D, Moore Z. What is the impact of specialist palliative care outpatient consultations on pain in adult patients with cancer? A systematic review. Eur J Oncol Nurs. 2021 Dec;55:102034. doi: 10.1016/j.ejon.2021.102034. Epub 2021 Sep 8.

Poveda-Moral S, Falcó-Pegueroles A, Ballesteros-Silva MP, Bosch-Alcaraz A. Barriers to Advance Care Planning Implementation in Health care: An Umbrella Review with Implications for Evidence-Based Practice. Worldviews Evid Based Nurs. 2021 Oct;18(5):254-263. doi: 10.1111/wvn.12530. Epub 2021 Sep 10.

Rattner M. Increasing our understanding of nonphysical suffering within palliative care: A scoping review. Palliat Support Care. 2021:1-16. doi:10.1017/S1478951521001127.

Rimmer B, Crowe L, Todd A, Sharp L. Assessing unmet needs in advanced cancer patients: a systematic review of the development, content, and quality of available instruments. J Cancer Surviv. 2021 Aug 6. doi: 10.1007/s11764-021-01088-6. Epub ahead of print.

Rumbold B, Aoun SM. Palliative and End-of-Life Care Service Models: To What Extent Are Consumer Perspectives Considered? Healthcare (Basel). 2021 Sep 28;9(10):1286. doi: 10.3390/healthcare9101286.

Sánchez-Sánchez E, Ruano-Álvarez MA, Díaz-Jiménez J, Díaz AJ, Ordonez FJ. Enteral Nutrition by Nasogastric Tube in Adult Patients under Palliative Care: A Systematic Review. Nutrients. 2021 May 6;13(5):1562. doi: 10.3390/nu13051562.

Sofronas M, Wright DK. Neuropalliative care: An integrative review of the nursing literature. Int J Nurs Stud. 2021 Jan 14;117:103879. doi: 10.1016/j.ijnurstu.2021.103879. Epub ahead of print.

Tark A, Song J, Parajuli J, Chae S, Stone PW. Are We Getting What We Really Want? A Systematic Review of Concordance Between Physician Orders for Life-Sustaining Treatment (POLST) Documentation and Subsequent Care Delivered at End-of-Life. Am J Hosp Palliat Care. 2021 Sep;38(9):1142-1158. doi: 10.1177/1049909120976319. Epub 2020 Nov 28.

Teike Lüthi F, MacDonald I, Rosselet Amoussou J, Bernard M, Borasio GD, Ramelet AS. Instruments for the identification of patients in need of palliative care in the hospital setting: a systematic review of measurement properties. JBI Evid Synth. 2021 Nov 22. doi: 10.11124/JBIES-20-00555. Epub ahead of print.

Tenesaca Cabrera PG, Ramírez-Coronel AA, Mesa-Cano IC, Jaya Vásquez LC. Perspective on assisted suicide and euthanasia: systematic review. Arch Venez Farmacol Ter. 2021;40(6):581-586.

Wallin V, Omerov P, Mattsson E, Klarare A. Experiences of food and mealtime from the perspective of patients with chronic life-limiting disease: A mixed-method systematic review. J Adv Nurs. 2021 Nov;77(11):4400-4413. doi: 10.1111/jan.14927. Epub 2021 Jun 16.

Wenzel F, Pralong A, Holtick U, Scheid C, Herling M, Simon ST. Burden and Needs of Patients with Severe GvHD from the Supportive and Palliative Care Perspective-A Literature Review. Cancers (Basel). 2021 May 30;13(11):2697. doi: 10.3390/cancers13112697.

Williamson LE, Evans CJ, Cripps RL, Leniz J, Yorganci E, Sleeman KE. Factors Associated With Emergency Department Visits by People With Dementia Near the End of Life: A Systematic Review. J Am Med Dir Assoc. 2021 Oct;22(10):2046-2055.e35. doi: 10.1016/j.jamda.2021.06.012. Epub 2021 Jul 14.

Wilson DM, Anafi F, Roh SJ, Errasti-Ibarrondo B. A Scoping Research Literature Review to Identify Contemporary Evidence on the Incidence, Causes, and Impacts of End-of-Life Intra-Family Conflict. Health Commun. 2021 Nov;36(13):1616-1622. doi: 10.1080/10410236.2020.1775448. Epub 2020 Jun 10.

Zheng Y, Cotton AC, He L, Wuest LG. Spirituality-Integrated Interventions for Caregivers of Patients with Terminal Illness: A Systematic Review of Quantitative Outcomes. J Relig Health. 2021 Aug;60(4):2939-2959. doi: 10.1007/s10943-021-01221-w. Epub 2021 Mar 8.

2020

Bennett F, OʼConner-Von S. Communication Interventions to Improve Goal-Concordant Care of Seriously Ill Patients: An Integrative Review. J Hosp Palliat Nurs. 2020 Feb;22(1):40-48. doi: 10.1097/NJH.0000000000000606.

Crawford R, Sully K, Conroy R, Johnson C, Doward L, Bell T, Welch V, Peloquin F, Gater A. Patient-Centered Insights on Treatment Decision Making and Living with Acute Myeloid Leukemia and Other Hematologic Cancers. Patient. 2020 Feb;13(1):83-102. doi: 10.1007/s40271-019-00384-9.

Cruz-Oliver DM, Pacheco Rueda A, Viera-Ortiz L, Washington KT, Oliver DP. The evidence supporting educational videos for patients and caregivers receiving hospice and palliative care: A systematic review. Patient Educ Couns. 2020 Mar 19:S0738-3991(20)30148-8. doi: 10.1016/j.pec.2020.03.014. Epub ahead of print.

Flemming K, Turner V, Bolsher S, Hulme B, McHugh E, Watt I. The experiences of, and need for, palliative care for people with motor neurone disease and their informal caregivers: A qualitative systematic review. Palliat Med. 2020 Apr 14:269216320908775. doi: 10.1177/0269216320908775. Epub ahead of print.

Hadian M, Jabbari A, Mazaheri E. What must Iran do for Palliative care? A systematized review. J Educ Health Promot. 2020 Oct 30;9:276. doi: 10.4103/jehp.jehp_107_20.

Mackintosh NJ, Davis RE, Easter A, Rayment-Jones H, Sevdalis N, Wilson S, Adams M, Sandall J. Interventions to increase patient and family involvement in escalation of care for acute life-threatening illness in community health and hospital settings. Cochrane Database Syst Rev. 2020 Dec 8;12:CD012829. doi: 10.1002/14651858.CD012829.pub2.

Oldenburger E, Oldenburger F, Coolbrandt A, Isebaert S, Neyens I, Sevenants A, Van Audenhove C, Haustermans K. The use of patient reported outcome measures (PROMs) in palliative radiotherapy: A topical review. Radiother Oncol. 2020 Apr 29;149:94-103. doi: 10.1016/j.radonc.2020.04.045. Epub ahead of print.

Patinadan PV, Tan-Ho G, Choo PY, Ho AHY. Resolving anticipatory grief and enhancing dignity at the end-of life: A systematic review of palliative interventions. Death Stud. 2020 Feb 21:1-14. doi: 10.1080/07481187.2020.1728426. Epub ahead of print.

Pedrosa Carrasco AJ, Volberg C, Pedrosa DJ, Berthold D. Patient Safety in Palliative and End-of-Life Care: A Text Mining Approach and Systematic Review of Definitions. Am J Hosp Palliat Care. 2020 Dec 3:1049909120971825. doi: 10.1177/1049909120971825. Epub ahead of print.

Quigley DD, McCleskey SG. Improving Care Experiences for Patients and Caregivers at End of Life: A Systematic Review. Am J Hosp Palliat Care. 2020 Jun 19:1049909120931468. doi: 10.1177/1049909120931468. Epub ahead of print.

Thompson JH, Moser D. Experiences with end-of-life care with a left ventricular assist device: An integrative review. Heart Lung. 2020 Mar 18:S0147-9563(20)30085-6. doi: 10.1016/j.hrtlng.2020.02.046. Epub ahead of print.

Widberg C, Wiklund B, Klarare A. Patients' experiences of eHealth in palliative care: an integrative review. BMC Palliat Care. 2020 Oct 14;19(1):158. doi: 10.1186/s12904-020-00667-1.

2019

Alyami HM, Chan RJ, New K. End-of-life care preferences for people with advanced cancer and their families in intensive care units: a systematic review. Support Care Cancer. 2019 May 17. doi: 10.1007/s00520-019-04844-8. [Epub ahead of print]

Chambers E, Gardiner C, Thompson J, Seymour J. Patient and carer involvement in palliative care research: An integrative qualitative evidence synthesis review. Palliat Med. 2019 Jun 28:269216319858247. doi: 10.1177/0269216319858247. [Epub ahead of print]

Hall A, Rowland C, Grande G. How Should End-of-Life Advance Care Planning Discussions Be Implemented According to Patients and Informal Carers? A Qualitative Review of Reviews. J Pain Symptom Manage. 2019 Apr 18. pii: S0885-3924(19)30181-2. doi: 10.1016/j.jpainsymman.2019.04.013. [Epub ahead of print]

Hemsley B, Meredith J, Bryant L, Wilson NJ, Higgins I, Georgiou A, Hill S, Balandin S, McCarthy S. An integrative review of stakeholder views on Advance Care Directives (ACD): Barriers and facilitators to initiation, documentation, storage, and implementation. Patient Educ Couns. 2019 Jan 11. pii: S0738-3991(18)30810-3. doi: 10.1016/j.pec.2019.01.007. [Epub ahead of print]

Hosie A, Siddiqi N, Featherstone I, Johnson M, Lawlor PG, Bush SH, Amgarth-Duff I, Edwards L, Cheah SL, Phillips J, Agar M. Inclusion, characteristics and outcomes of people requiring palliative care in studies of non-pharmacological interventions for delirium: A systematic review. Palliat Med. 2019 Jun 28:269216319853487. doi: 10.1177/0269216319853487. [Epub ahead of print]

Igai Y. End-of-life trajectory of coping and self-care of patients with idiopathic pulmonary fibrosis: A meta-synthesis using meta-ethnography. Jpn J Nurs Sci. 2019 Jan;16(1):47-61. doi: 10.1111/jjns.12213. Epub 2018 May 17.

Johnston L, Young J, Campbell K. The implementation and impact of Holistic Needs Assessments for people affected by cancer: A systematic review and thematic synthesis of the literature. Eur J Cancer Care (Engl). 2019 May;28(3):e13087. doi: 10.1111/ecc.13087. Epub 2019 May 14.

Krikorian A, Maldonado C, Pastrana T. Patient's Perspectives on the Notion of a Good Death: A Systematic Review of the Literature. J Pain Symptom Manage. 2019 Aug 9. pii: S0885-3924(19)30451-8. doi: 10.1016/j.jpainsymman.2019.07.033. [Epub ahead of print]

Levoy K, Salani DA, Buck H. A Systematic Review and Gap Analysis of Advance Care Planning Intervention Components and Outcomes Among Cancer Patients Using the Transtheoretical Model of Health Behavior Change. J Pain Symptom Manage. 2019 Jan;57(1):118-139.e6. doi: 10.1016/j.jpainsymman.2018.10.502. Epub 2018 Oct 26.

Meeker MA, McGinley JM, Jezewski MA. Metasynthesis: Dying adults’ transition process from cure‐focused to comfort‐focused care. J Adv Nurs. 2019 Feb 7. doi: 10.1111/jan.13970. [Epub ahead of print]

Procter S, Ooi M, Hopkins C, Moore G. A review of the literature on family decision-making at end of life precipitating hospital admission. Br J Nurs. 2019 Jul 11;28(13):878-884. doi: 10.12968/bjon.2019.28.13.878.

Rahemi Z, Williams CL. Does ethnicity matter-Cultural factors underlying older adults' end-of-life care preferences: A systematic review. Geriatr Nurs. 2019 Jul 15. pii: S0197-4572(19)30175-2. doi: 10.1016/j.gerinurse.2019.07.001. [Epub ahead of print]

Rees J, Tuijt R, Burton A, Walters K, Cooper C. Supporting self-care of long-term conditions in people with dementia: A systematic review. Int J Nurs Stud. 2019 Sep 25:103432. doi: 10.1016/j.ijnurstu.2019.103432. Epub ahead of print.

Sampaio SGDSM, Motta LBD, Caldas CP. Value-based medicine and palliative care: how do they converge? Expert Rev Pharmacoecon Outcomes Res. 2019 Oct;19(5):509-515. doi: 10.1080/14737167.2019.1651645. Epub 2019 Aug 7.

Saunders CH, Patel K, Kang H, Elwyn G, Kirkland K, Durand MA. Serious Choices: A Systematic Environmental Scan of Decision Aids and Their Use for Seriously Ill People Near Death. J Hosp Med. 2019 May;14(5):294-302. doi: 10.12788/jhm.3110.

2018

Braun A, Trivedi DP, Dickinson A, Hamilton L, Goodman C, Gage H, Ashaye K, Iliffe S, Manthorpe J. Managing behavioural and psychological symptoms in community dwelling older people with dementia: 2. A systematic review of qualitative studies. Dementia (London). 2018 Jan 1:1471301218762856. doi: 10.1177/1471301218762856. [Epub ahead of print]

Klimova B, Valis M, Kuca K. Exploring assistive technology as a potential beneficial intervention tool for people with Alzheimer's disease - a systematic review. Neuropsychiatr Dis Treat. 2018 Nov 16;14:3151-3158. doi: 10.2147/NDT.S181849. eCollection 2018.

Lim RH, Sharmeen T. Medicines management issues in dementia and coping strategies used by people living with dementia and family carers: A systematic review. Int J Geriatr Psychiatry. 2018 Sep 30. doi: 10.1002/gps.4985. [Epub ahead of print]

Low JTS, Rohde G, Pittordou K, Candy B, Davis S, Marshall A, Stone P. Supportive and palliative care in people with cirrhosis: International systematic review of the perspective of patients, family members and health professionals. J Hepatol. 2018 Dec;69(6):1260-1273. doi: 10.1016/j.jhep.2018.08.028. Epub 2018 Sep 20.

Spronk I, Burgers JS, Schellevis FG, van Vliet LM, Korevaar JC. The availability and effectiveness of tools supporting shared decision making in metastatic breast cancer care: a review. BMC Palliat Care. 2018 May 11;17(1):74. doi: 10.1186/s12904-018-0330-4.

Thomas R, Phillips M, Hamilton RJ. Pain Management in the Pediatric Palliative Care Population. J Nurs Scholarsh. 2018 May 5. doi: 10.1111/jnu.12389. [Epub ahead of print]

Timmins F, Pujol N. The Role of Healthcare Chaplains in Resuscitation: A Rapid Literature Review. J Relig Health. 2018 Jun;57(3):1183-1195. doi: 10.1007/s10943-018-0604-4.

Wakefield D, Bayly J, Selman LE, Firth AM, Higginson IJ, Murtagh FE. Patient empowerment, what does it mean for adults in the advanced stages of a life-limiting illness: A systematic review using critical interpretive synthesis. Palliat Med. 2018 Sep;32(8):1288-1304. doi: 10.1177/0269216318783919. Epub 2018 Jun 29.

Wang T, Molassiotis A, Chung BPM, Tan JY. Unmet care needs of advanced cancer patients and their informal caregivers: a systematic review. BMC Palliat Care. 2018 Jul 23;17(1):96. doi: 10.1186/s12904-018-0346-9.

Willig C, Wirth L. A Meta-Synthesis of Studies of Patients' Experience of Living With Terminal Cancer. Health Psychol. 2018 Mar;37(3):228-237. doi: 10.1037/hea0000581. Epub 2018 Jan 25.

2017

Cagle JG, Bunting M, Kelemen A, Lee J, Terry D, Harris R. Psychosocial needs and interventions for heart failure patients and families receiving palliative care support: a systematic review. Heart Fail Rev. 2017 Feb 20. [Epub ahead of print]

Guerrero-Torrelles M, Monforte-Royo C, Rodríguez-Prat A, Porta-Sales J, Balaguer A. Understanding meaning in life interventions in patients with advanced disease: A systematic review and realist synthesis. Palliat Med. 2017 Oct;31(9):798-813. doi: 10.1177/0269216316685235. Epub 2017 Feb 13.

Neo J, Fettes L, Gao W, Higginson IJ, Maddocks M. Disability in activities of daily living among adults with cancer: A systematic review and meta-analysis. Cancer Treat Rev. 2017 Dec;61:94-106. doi: 10.1016/j.ctrv.2017.10.006. Epub 2017 Oct 28.

Oh J, Kim JA. Supportive care needs of patients with amyotrophic lateral sclerosis/motor neuron disease and their caregivers: A scoping review. J Clin Nurs. 2017 Dec;26(23-24):4129-4152. doi: 10.1111/jocn.13945. Epub 2017 Aug 31.

Thomas T, Kuhn I, Barclay S. Inpatient transfer to a care home for end-of-life care: What are the views and experiences of patients and their relatives? A systematic review and narrative synthesis of the UK literature. Palliat Med. 2017 Feb;31(2):102-108. Epub 2016 Jul 28.

Thorn H, Uhrenfeldt L. Experiences of non-specialist nurses caring for patients and their significant others undergoing transitions during palliative end-of-life cancer care: A systematic review. JBI Database System Rev Implement Rep. 2017 Jun;15(6):1711-1746. doi: 10.11124/JBISRIR-2016-003026.

Virdun C, Luckett T, Lorenz K, Davidson PM, Phillips J. Dying in the hospital setting: A meta-synthesis identifying the elements of end-of-life care that patients and their families describe as being important. Palliat Med. 2017 Jul;31(7):587-601. doi: 10.1177/0269216316673547. Epub 2016 Dec 8.

2016

García-Rueda N, Carvajal Valcárcel A, Saracíbar-Razquin M, Arantzamendi Solabarrieta M. The experience of living with advanced-stage cancer: a thematic synthesis of the literature. Eur J Cancer Care (Engl). 2016 Jul;25(4):551-69.Epub 2016 Jun 14.

Kavalieratos D, Corbelli J, Zhang D, Dionne-Odom JN, Ernecoff NC, Hanmer J, Hoydich ZP, Ikejiani DZ, Klein-Fedyshin M, Zimmermann C, Morton SC, Arnold RM, Heller L, Schenker Y. Association Between Palliative Care and Patient and Caregiver Outcomes: A Systematic Review and Meta-analysis. JAMA. 2016 Nov 22;316(20):2104-2114.

Noome M, Beneken Genaamd Kolmer DM, van Leeuwen E, Dijkstra BM, Vloet LC. The nursing role during end-of-life care in the intensive care unit related to the interaction between patient, family and professional: an integrative review. Scand J Caring Sci. 2016 Dec;30(4):645-661. doi: 10.1111/scs.12315. Epub 2016 Mar 17.

Rodríguez-Prat A, Monforte-Royo C, Porta-Sales J, Escribano X, Balaguer A. Patient Perspectives of Dignity, Autonomy and Control at the End of Life: Systematic Review and Meta-Ethnography. PLoS One. 2016 Mar 24;11(3):e0151435.eCollection 2016.

Sheehan OC, Ritchie CS, Fathi R, Garrigues SK, Saliba D. Leff B. Development of Quality Indicators to Address Abuse and Neglect in Home-Based Primary Care and Palliative Care. J Am Geriatr Soc. 2016 Dec;64(12):2577-2584. Epub 2016 Oct 27.

Silva MD, Genoff M, Zaballa A, Jewell S, Stabler S, Gany FM, Diamond LC. Interpreting at the End of Life: A Systematic Review of the Impact of Interpreters on the Delivery of Palliative Care Services to Cancer Patients With Limited English Proficiency. J Pain Symptom Manage. 2016 Mar;51(3):569-80. Epub 2015 Nov 5.

Slev VN, Mistiaen P, Pasman HR, Verdonck-de Leeuw IM, van Uden-Kraan CF, Francke AL. Effects of eHealth for patients and informal caregivers confronted with cancer: A meta-review. Int J Med Inform. 2016 Mar;87:54-67. Epub 2015 Dec 24.

2015

Azzani M, Roslani AC, Su TT. The perceived cancer-related financial hardship among patients and their families: a systematic review. Support Care Cancer. 2015 Mar;23(3):889-98. Epub 2014 Oct 22.

Hill L, McIlfatrick S, Taylor B, Dixon L, Harbinson M, Fitzsimons D. Patients' perception of implantable cardioverter defibrillator deactivation at the end of life. Palliat Med. 2015 Apr;29(4):310-323.

Hussain JA, Flemming K, Murtagh FE, Johnson MJ. Patient and health care professional decision-making to commence and withdraw from renal dialysis: a systematic review of qualitative research. Clin J Am Soc Nephrol. 2015 Jul 7;10(7):1201-15. doi: 10.2215/CJN.11091114. Epub 2015 May 5.

Reed M, Harding K. Do Family Meetings Improve Measurable Outcomes for Patients, Carers, or Health Systems? A Systematic Review. Australian Social Work. 2015;68(2):244-258. [No abstract available]

Sandsdalen T, Hov R, Høye S, Rystedt I, Wilde-Larsson B. Patients' preferences in palliative care: A systematic mixed studies review. Palliat Med. 2015 May;29(5):399-419.Epub 2015 Feb 13.

2014

Beynon T, Radcliffe E, Child F, Orlowska D, Whittaker S, Lawson S, Selman L, Harding R. What are the supportive and palliative care needs of patients with cutaneous T-cell lymphoma and their caregivers? A systematic review of the evidence. Br J Dermatol. 2014 Mar;170(3):599-608.

Deckx L, van den Akker M, Buntinx F. Risk factors for loneliness in patients with cancer: a systematic literature review and meta-analysis. Eur J Oncol Nurs. 2014 Oct;18(5):466-77.Epub 2014 Jun 30.

Fosse A, Schaufel MA, Ruths S, Malterud K. End-of-life expectations and experiences among nursing home patients and their relatives-A synthesis of qualitative studies. Patient Educ Couns. 2014 Oct;97(1):3-9. doi: 10.1016/j.pec.2014.05.025. Epub 2014 Jun 12.

Tong A, Cheung KL, Nair SS, Kurella Tamura M, Craig JC, Winkelmayer WC. Thematic synthesis of qualitative studies on patient and caregiver perspectives on end-of-life care in CKD. Am J Kidney Dis. 2014 Jun;63(6):913-27.Epub 2014 Jan 7.

2013

Southall D. The patient's use of metaphor within a palliative care setting: theory, function and efficacy. A narrative literature review. Palliat Med. 2013 Apr;27(4):304-13. Epub 2012 Jul 24.

Sterckx W, Coolbrandt A, Dierckx de Casterlé B, Van den Heede K, Decruyenaere M, Borgenon S, Mees A, Clement P. The impact of a high-grade glioma on everyday life: a systematic review from the patient's and caregiver's perspective. Eur J Oncol Nurs. 2013 Feb;17(1):107-17. Epub 2012 May 31.

2012

Hansen BS, Rørtveit K, Leiknes I, Morken I, Testad I, Joa I, Severinsson E. Patient experiences of uncertainty - a synthesis to guide nursing practice and research. J Nurs Manag. 2012 Mar;20(2):266-77. doi: 10.1111/j.1365-2834.2011.01369.x. Epub 2012 Jan 23.

Koller A, Miaskowski C, De Geest S, Opitz O, Spichiger E. A systematic evaluation of content, structure, and efficacy of interventions to improve patients' self-management of cancer pain. J Pain Symptom Manage. 2012 Aug;44(2):264-84.

O'Brien MR, Clark D. Unsolicited written narratives as a methodological genre in terminal illness: challenges and limitations. Qual Health Res. 2012 Feb;22(2):274-84. Epub 2011 Aug 29.

Van Mechelen W, Aertgeerts B, De Ceulaer K, Thoonsen B, Vermandere M, Warmenhoven F, van Rijswijk E, Delepeleire J. Defining the palliative care patient: A systematic review. Palliat Med. 2012 Feb 6 [Epub ahead of print].

2011

Baik OM, Adams KB. Improving the well-being of couples facing cancer: a review of couples-based psychosocial interventions. J Marital Fam Ther. 2011 Apr;37(2):250-66. doi: 10.1111/j.1752-0606.2010.00217.x.

Bélanger L, Ducharme F. Patients' and nurses' experiences of delirium: a review of qualitative studies. Nurs Crit Care. 2011 Nov-Dec;16(6):303-15.

Bélanger E, Rodríguez C, Groleau D. Shared decision-making in palliative care: A systematic mixed studies review using narrative synthesis. Palliat Med. 2011 Apr;25(3):242-61. Epub 2011 Jan 27.

Black J. What are patients' priorities when facing the end of life? A critical review. Int J Palliat Nurs. 2011 Jun;17(6):294-300.

Bradley SE, Frizelle D, Johnson M. Patients' psychosocial experiences of attending Specialist Palliative Day Care: A systematic review. Palliat Med. 2011 Apr;25(3):210-28. Epub 2011 Jan 12.

Carey M, Lambert S, Smits R, Paul C, Sanson-Fisher R, Clinton-McHarg T. The unfulfilled promise: a systematic review of interventions to reduce the unmet supportive care needs of cancer patients. Support Care Cancer. 2012 Feb;20(2):207-19. Epub 2011 Nov 17.

Frost DW, Cook DJ, Heyland DK, Fowler RA. Patient and healthcare professional factors influencing end-of-life decision-making during critical illness: A systematic review. Crit Care Med. 2011 May;39(5):1174-89.

Graziottin A, Gardner-Nix J, Stumpf M, Berliner MN. Opioids: how to improve compliance and adherence. Pain Pract. 2011 Nov-Dec;11(6):574-81. doi: 10.1111/j.1533-2500.2011.00449.x. Epub 2011 Mar 16.

McCormack LA, Treiman K, Rupert D, Williams-Piehota P, Nadler E, Arora NK, Lawrence W, Street RL Jr. Measuring patient-centered communication in cancer care: a literature review and the development of a systematic approach. Soc Sci Med. 2011 Apr;72(7):1085-95. Epub 2011 Mar 4.

Shepperd S, Wee B, Straus SE. Hospital at home: home-based end of life care. Cochrane Database Syst Rev. 2011 Jul 6;(7):CD009231. [Updated 2016]

Slort W, Schweitzer BP, Blankenstein AH, Abarshi EA, Riphagen II, Echteld MA, Aaronson NK, van der Horst H, Deliens L. Perceived barriers and facilitators for general practitioner-patient communication in palliative care: a systematic review. Palliat Med. 2011 Sep;25(6):613-29. Epub 2011 Jan 27.

2010

Biedrzycki BA. Decision making for cancer clinical trial participation: a systematic review. Oncol Nurs Forum. 2010 Nov 1;37(6):E387-99.

Gardiner C, Gott M, Payne S, Small N, Barnes S, Halpin D, Ruse C, Seamark D. Exploring the care needs of patients with advanced COPD: an overview of the literature. Respir Med. 2010 Feb;104(2):159-65. Epub 2009 Oct 8.

Hopp FP, Thornton N, Martin L. The lived experience of heart failure at the end of life: a systematic literature review. Health Soc Work. 2010 May;35(2):109-17.

Ko H, Turner T, Jones C, Hill C. Patient-held medical records for patients with chronic disease: a systematic review. Qual Saf Health Care. 2010 Oct;19(5):e41. Epub 2010 May 28.

O'Connor M, Watts J, Bloomer M, Larkins K. Loss and grief in the workplace: What can we learn from the literature?  International Journal of Workplace Health Management. 2010;3(2):131-42.

Sepucha K, Ozanne EM. How to define and measure concordance between patients' preferences and medical treatments: a systematic review of approaches and recommendations for standardization. Patient Educ Couns. 2010 Jan;78(1):12-23. Epub 2009 Jun 30.

Thomsen TG, Rydahl-Hansen S, Wagner L. A review of potential factors relevant to coping in patients with advanced cancer. J Clin Nurs. 2010 Dec;19(23-24):3410-26.

White C, Hardy J. What do palliative care patients and their relatives think about research in palliative care?-a systematic review. Support Care Cancer. 2010 Aug;18(8):905-11. Epub 2009 Aug 25.

2009

Adams E, Boulton M, Watson E. The information needs of partners and family members of cancer patients: a systematic literature review. Patient Educ Couns. 2009 Nov;77(2):179-86. Epub 2009 Apr 29.

Hermanns M, Mastel-Smith B, Lilly ML, Deardorff K, Price C. Teaching theoretically based interventions: Use of life review. Int J Hum Caring. 2009;13(4):44-9. [No abstract Available]

Hughes N, Closs SJ, Clark D. Experiencing cancer in old age: a qualitative systematic review. Qual Health Res. 2009 Aug;19(8):1139-53.

Jacobsen R, Møldrup C, Christrup L, Sjøgren P. Patient-related barriers to cancer pain management: a systematic exploratory review. Scand J Caring Sci. 2009 Mar;23(1):190-208.

Johnston B, McGill M, Milligan S, McElroy D, Foster C, Kearney N. Self care and end of life care in advanced cancer: literature review. Eur J Oncol Nurs. 2009 Dec;13(5):386-98. Epub 2009 Jun 4.

Maddocks M, Mockett S, Wilcock A. Is exercise an acceptable and practical therapy for people with or cured of cancer? a systematic review. Cancer Treat Rev. 2009 Jun;35(4):383-90. Epub 2009 Jan 7.

Marsella A. Exploring the literature surrounding the transition into palliative care: a scoping review. Int J Palliat Nurs. 2009 Apr;15(4):186-9.

Rodin G, Mackay JA, Zimmermann C, Mayer C, Howell D, Katz M, Sussman J, Brouwers M. Clinician-patient communication: a systematic review. Support Care Cancer. 2009 Jun;17(6):627-44. Epub 2009 Mar 4.

Todd AM, Laird BJ, Boyle D, Boyd AC, Colvin LA, Fallon MT. A systematic review examining the literature on attitudes of patients with advanced cancer toward research. J Pain Symptom Manage. 2009 Jun;37(6):1078-85. Epub 2009 May 5.

Warren M. Metastatic breast cancer recurrence: a literature review of themes and issues arising from diagnosis. Int J Palliat Nurs. 2009 May;15(5):222-5.

2008

Bail K. Patient and professional dissatisfaction: a literature review of prognosis communication related to hospital settings. Contemp Nurse. 2008 Jun;29(2):135-46.

Brown JP, Tracy JK. Lesbians and cancer: an overlooked health disparity. Cancer Causes Control. 2008 Dec;19(10):1009-20. Epub 2008 Jun 13.

Harris FM, Kendall M, Bentley A, Maguire R, Worth A, Murray S, Boyd K, Brown D, Kearney N, Sheikh A. Researching experiences of terminal cancer: a systematic review of methodological issues and approaches. Eur J Cancer Care (Engl). 2008 Jul;17(4):377-86.

van der Meulen N, Jansen J, van Dulmen S, Bensing J, van Weert J. Interventions to improve recall of medical information in cancer patients: a systematic review of the literature. Psychooncology. 2008 Sep;17(9):857-68.

Wilson K, Amir Z. Cancer and disability benefits: a synthesis of qualitative findings on advice and support. Psychooncology. 2008 May;17(5):421-9.

2007

McPherson CJ, Wilson KG, Murray MA. Feeling like a burden to others: a systematic review focusing on the end of life. Palliat Med. 2007 Mar;21(2):115-28.

Parker SM, Clayton JM, Hancock K, Walder S, Butow PN, Carrick S, Currow D, Ghersi D, Glare P, Hagerty R, Tattersall TH. A systematic review of prognostic/end-of-life communication with adults in the advanced stages of a life-limiting illness: Patient/caregiver preferences for the content, style, and timing of information. J Pain Symptom Manage. 2007 Jul;34(1):81-93. Epub 2007 May 15.

2006

Bingley AF, McDermott E, Thomas C, Payne S, Seymour JE, Clark D. Making sense of dying: a review of narratives written since 1950 by people facing death from cancer and other diseases. Palliat Med. 2006 Apr;20(3):183-95.

McDermott E, Bingley AF, Thomas C, Payne S, Seymour J, Clark D. Viewing patient need through professional writings: a systematic ‘ethnographic’ review of palliative care professionals ‘experiences of caring for people with cancer at the end of life. Progr Palliat Care. 2006 Feb;14(1):9-18.

Mills EJ, Seely D, Rachlis B, Griffith L, Wu P, Wilson K, Ellis P, Wright JR. Barriers to participation in clinical trials of cancer: A meta-analysis and systematic review of patient-reported factors. Lancet Oncol. 2006 Feb;7(2):141-8.

Payne M. Social objectives in cancer care: the example of palliative day care. Eur J Cancer Care (Engl). 2006 Dec;15(5):440-7.

Steinhauser KE, Clipp EC, Hays JC, Olsen M, Arnold R, Christakis NA, Lindquist JH, Tulsky JA. Identifying, recruiting, and retaining seriously-ill patients and their caregivers in longitudinal research. Palliat Med. 2006 Dec;20(8):745-54
.

2005

Gaston CM, Mitchell G. Information giving and decision-making in patients with advanced cancer: a systematic review. Soc Sci Med. 2005 Nov;61(10):2252-64.

Howell D, Brazil K. Reaching common ground: a patient-family-based conceptual framework of quality EOL care. J Palliat Care. 2005 Spring;21(1):19-26.

Knops KM, Srinivasan M, Meyers FJ. Patient desires: A model for assessment of patient preferences for care of severe or terminal illness. Palliat Support Care. 2005 Dec;3(4):289-99.

Verhoef MJ, Balneaves LG, Boon HS, Vroegindewey A. Reasons for and characteristics associated with complementary and alternative medicine use among adult cancer patients: a systematic review. Integr Cancer Ther. 2005 Dec;4(4):274-86.

2001

McPherson CJ, Higginson IJ, Hearn J. Effective methods of giving information in cancer: a systematic literature review of randomized controlled trials. J Public Health Med. 2001 Sep;23(3):227-34.

2000

Osse B, Vernooij-Dassen M, de Vree B, Schade E, Grol RP. Assessment of the need for palliative care as perceived by individual cancer patients and their families: a review of instruments for improving patient participation in palliative care. Cancer. 2000 Feb 15;88(4):900-11.