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Kaltenbaugh DJ, Klem ML, Hu L, Turi E, Haines AJ, Hagerty Lingler J. Using web-based interventions to support caregivers of patients with cancer: a systematic review. Oncol Nurs Forum. 2015 Mar 1;42(2):156-64.
Lendon JP, Ahluwalia SC, Walling AM, Lorenz KA, Oluwatola OA, Anhang Price R, Quigley D, Teno JM. Measuring Experience With End-of-Life Care: A Systematic Literature Review. J Pain Symptom Manage. 2015 May;49(5):904-15.e1-3.
Morris SM, King C, Turner M, Payne S. Family carers providing support to a person dying in the home setting: A narrative literature review. Palliat Med. 2015 Jun;29(6):487-495. Epub 2015 Jan 29.
Reed M,Harding K. Do Family Meetings Improve Measurable Outcomes for Patients, Carers, or Health Systems? A Systematic Review. Australian Social Work. 2015;68(2):244-258. [No abstract available]
Woodman C, Baillie J, Sivell S. The preferences and perspectives of family caregivers towards place of care for their relatives at the end-of-life. A systematic review and thematic synthesis of the qualitative evidence. BMJ Support Palliat Care. 2015 May 19. pii: bmjspcare-2014-000794.[Epub ahead of print]
Coad J, Patel R, Murray S. Disclosing terminal diagnosis to children and their families: palliative professionals' communication barriers. Death Stud. 2014 May-Jun;38(5):302-7. Epub 2013 Sep 17.
Davies N, Maio L, Rait G, Iliffe S. Quality end-of-life care for dementia: What have family carers told us so far? A narrative synthesis. Palliat Med. 2014 Mar 13;28(7):919-930. [Epub ahead of print]
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Nevis I. Educational Intervention in End-of-Life Care: An Evidence-Based Analysis. Ont Health Technol Assess Ser. 2014 Dec 1;14(17):1-30. eCollection 2014.
Pottie CG, Burch KA, Thomas LP, Irwin SA. Informal caregiving of hospice patients. J Palliat Med. 2014 Jul;17(7):845-56.
Reigada C, Pais-Ribeiro JL, Novellas A. Educational programs for family caregivers in palliative care: A literature review. J Palliat Care Med. 2014;4:195. [No abstract available]
Stenberg U, Ekstedt M, Olsson M, Ruland CM. Living close to a person with cancer: a review of the international literature and implications for social work practice. J Gerontol Soc Work. 2014;57(6-7):531-55. Epub 2014 Jul 29.
Tong A, Cheung KL, Nair SS, Kurella Tamura M, Craig JC, Winkelmayer WC. Thematic synthesis of qualitative studies on patient and caregiver perspectives on end-of-life care in CKD. Am J Kidney Dis. 2014 Jun;63(6):913-27.Epub 2014 Jan 7.
Ventura AD, Burney S, Brooker J, Fletcher J, Ricciardelli L. Home-based palliative care: a systematic literature review of the self-reported unmet needs of patients and carers. Palliat Med. 2014 May;28(5):391-402. Epub 2013 Nov 29.
Wittenberg-Lyles E, Parker Oliver D, Demiris G, Swarz J, Rendo M. YouTube as a tool for pain management with informal caregivers of cancer patients: a systematic review. J Pain Symptom Manage. 2014 Dec;48(6):1200-10. doi: 10.1016/j.jpainsymman.2014.02.015. Epub 2014 Apr 30.
Applebaum AJ, Breitbart W. Care for the cancer caregiver: a systematic review. Palliat Support Care. 2013 Jun;11(3):231-52. Epub 2012 Oct 10.
Aoun SM, Bentley B, Funk L, Toye C, Grande G, Stajduhar KJ. A 10-year literature review of family caregiving for motor neurone disease: moving from caregiver burden studies to palliative care interventions. Palliat Med. 2013 May;27(5):437-46. Epub 2012 Aug 20.
Chan D, Livingston G, Jones L, Sampson EL. Grief reactions in dementia carers: a systematic review. Int J Geriatr Psychiatry. 2013 Jan;28(1):1-17. doi: 10.1002/gps.3795. Epub 2012 Mar 8.
Dikkers MF, Dunning T, Savage S. Information needs of family carers of people with diabetes at the end of life: a literature review. J Palliat Med. 2013 Dec;16(12):1617-23. Epub 2013 Nov 12.
Moore G, Collins A, Brand C, Gold M, Lethborg C, Murphy M, Sundararajan V, Philip J. Palliative and supportive care needs of patients with high-grade glioma and their carers: a systematic review of qualitative literature. Patient Educ Couns. 2013 May;91(2):141-53.
Parker Oliver D, Albright DL, Washington K, Wittenberg-Lyles E, Gage A, Mooney M, Demiris G. Hospice caregiver depression: the evidence surrounding the greatest pain of all. J Soc Work End Life Palliat Care. 2013;9(4):256-71.
Peacock SC. The experience of providing end-of-life care to a relative with advanced dementia: an integrative literature review. Palliat Support Care. 2013 Apr;11(2):155-68. Epub 2012 Oct 23.
Sterckx W, Coolbrandt A, Dierckx de Casterlé B, Van den Heede K, Decruyenaere M, Borgenon S, Mees A, Clement P. The impact of a high-grade glioma on everyday life: a systematic review from the patient's and caregiver's perspective. Eur J Oncol Nurs. 2013 Feb;17(1):107-17. Epub 2012 May 31
Whittingham K, Barnes S, Gardiner C. Tools to measure quality of life and carer burden in informal carers of heart failure patients:A narrative review. Palliat Med. 2013 Jul;27(7):596-607. Epub 2013 Feb 26
Harding R, List S, Epiphaniou E, Jones H. How can informal caregivers in cancer and palliative care be supported? An updated systematic literature review of interventions and their effectiveness. Palliat Med. 2012 Jan;26(1):7-22. Epub 2011 Jul 7.
Hopkinson JB, Brown JC, Okamoto I, Addington-Hall JM. The effectiveness of patient-family carer (couple) intervention for the management of symptoms and other health-related problems in people affected by cancer: a systematic literature search and narrative review. J Pain Symptom Manage. 2012 Jan;43(1):111-42.
Melin-Johansson C, Henoch I, Strang S, Browall M. Living in the presence of death: an integrative literature review of relatives' important existential concerns when caring for a severely ill family member. Open Nurs J. 2012;6:1-12. Epub 2012 Feb 10.
Candy B, Jones L, Drake R, Leurent B, King M. Interventions for supporting informal caregivers of patients in the terminal phase of a disease. Cochrane Database Syst Rev. 2011 Jun 15;6:CD007617. doi: 10.1002/14651858.CD007617.pub2.
Kang X, Li Z, Nolan MT. Informal caregivers' experiences of caring for patients with chronic heart failure: systematic review and metasynthesis of qualitative studies. J Cardiovasc Nurs. 2011 Sep-Oct;26(5):386-94.
Meeker MA, Finnell D, Othman AK. Family caregivers and cancer pain management: a review. J Fam Nurs. 2011 Feb;17(1):29-60.
Remedios C, Thomas K, Hudson P. Psychosocial and bereavement support for family caregivers of palliative care patients: A review of the empirical literature. (896kb pdf) Melbourne: Centre for Palliative Care; 2011 Jan. 71p.
Schildmann EK, Higginson IJ. Evaluating psycho-educational interventions for informal carers of patients receiving cancer care or palliative care: Strengths and limitations of different study designs. Palliat Med. 2011 Jun;25(4):345-56. Epub 2011 Jan 12.
Washington KT, Meadows SE, Elliott SG, Koopman RJ. Information needs of informal caregivers of older adults with chronic health conditions. Patient Educ Couns. 2011 Apr;83(1):37-44. Epub 2010 May 7.
Williams AL, McCorkle R. Cancer family caregivers during the palliative, hospice, and bereavement phases: a review of the descriptive psychosocial literature. Palliat Support Care. 2011 Sep;9(3):315-25.
Funk L, Stajduhar K, Toye C, Aoun S, Grande G, Todd C. Part 2: Home-based family caregiving at the end of life: a comprehensive review of published qualitative research (1998-2008). Palliat Med. 2010 Sep;24(6):594-607. Epub 2010 Jun 24.
Hennings J, Froggatt K, Keady J. Approaching the end of life and dying with dementia in care homes: the accounts of families. Rev Clin Geront 2010;20(2):114-27.
Hudson PL, Trauer T, Graham S, Grande G, Ewing G, Payne S, Stajduhar KI, Thomas K. A systematic review of instruments related to family caregivers of palliative care patients. Palliat Med. 2010 Oct;24(7):656-68. Epub 2010 Jul 6.
Hudson PL, Remedios C, Thomas K. A systematic review of psychosocial interventions for family carers of palliative care patients. BMC Palliat Care. 2010 Aug 5;9:17. (200kb pdf)
Northfield S, Nebauer M. The caregiving journey for family members of relatives with cancer: how do they cope? Clin J Oncol Nurs. 2010 Oct 1;14(5):567-77.
Northouse LL, Katapodi MC, Song L, Zhang L, Mood DW. Interventions with family caregivers of cancer patients: meta-analysis of randomized trials. CA Cancer J Clin. 2010 Sep-Oct;60(5):317-39. Epub 2010 Aug 13.
Stajduhar K, Funk L, Toye C, Grande G, Aoun S, Todd C. Part 1: Home-based family caregiving at the end of life: a comprehensive review of published quantitative research (1998-2008). Palliat Med. 2010 Sep;24(6):573-93. Epub 2010 Jun 18.
Stenberg U, Ruland CM, Miaskowski C. Review of the literature on the effects of caring for a patient with cancer. Psychooncology. 2010 Oct;19(10):1013-25.
Bee PE, Barnes P, Luker KA. A systematic review of informal caregivers' needs in providing home-based end-of-life care to people with cancer. J Clin Nurs. 2009 May;18(10):1379-93. Epub 2009 Apr 8.
Boyle AH. An integrative review of the impact of COPD on families (147kb pdf). South Online J Nurs Res. 2009;9(3):6pp.
Caress AL, Chalmers K, Luker K. A narrative review of interventions to support family carers who provide physical care to family members with cancer. Int J Nurs Stud. 2009 Nov;46(11):1516-27. Epub 2009 Apr 28.
Caress AL, Luker KA, Chalmers KI, Salmon MP. A review of the information and support needs of family carers of patients with chronic obstructive pulmonary disease. J Clin Nurs. 2009 Feb;18(4):479-91.
Corry M, While A. The needs of carers of people with multiple sclerosis: a literature review. Scand J Caring Sci. 2009 Sep;23(3):569-88.
Goins RT, Spencer SM, Byrd JC. Research on rural caregiving. J Appl Gerontol. 2009 Apr;28(2):139-70.
Whalen KJ, Buchholz SW. The reliability, validity and feasibility of tools used to screen for caregiver burden: a systematic review. JBI Libr Syst Rev. 2009;7(32):1372-1429.
Anderson A, Kralik D. Palliative care at home: nurses, carers and subcutaneous medication management: 2006-2008. RDNS Research Unit. Adelaide. 2008 Apr. No abstract available.
Convey V, Ede J, Sealey T. How are the carers being cared for? a review of the literature. Eur J Palliat Care. 2008;15(4):182-5.
Docherty A, Owens A, Asadi-Lari M, Petchey R, Williams J, Carter YH. Knowledge and information needs of informal caregivers in palliative care: a qualitative systematic review. Palliat Med. 2008 Mar;22(2):153-71.
Honea NJ, Brintnall R, Given B, Sherwood P, Colao DB, Somers SC, Northouse LL. Putting Evidence into Practice: nursing assessment and interventions to reduce family caregiver strain and burden. Clin J Oncol Nurs. 2008 Jun;12(3):507-16.
Kim Y, Given BA. Quality of life of family caregivers of cancer survivors: across the trajectory of the illness. Cancer. 2008 Jun 1;112(11 Suppl):2556-68.
Lowey, Susan E. Communication between the nurse and family caregiver in End-of-Life care: a review of the literature. J Hosp Palliat Nurs. 2008 Jan-Feb;10(1):35-45.
van der Meulen N, Jansen J, van Dulmen S, Bensing J, van Weert J. Interventions to improve recall of medical information in cancer patients: a systematic review of the literature. Psychooncology. 2008 Sep;17(9):857-68.
Burridge L, Winch S, Clavarino A. Reluctance to care: a systematic review and development of a conceptual framework. Cancer Nurs. 2007 Mar-Apr;30(2):E9-19.
Eagar K, Owen A, Williams K, Westera A, Marosszeky N, England R, Morris D. Effective Caring: a synthesis of the international evidence on carer needs and interventions. Centre for Health Service Development (CHSD), University of Wollongong. 2007;114pp.
Hanratty B, Holland P, Jacoby A, Whitehead M. Financial stress and strain associated with terminal cancer: a review of the evidence. Palliat Med. 2007 Oct;21(7):595-607.
Hearson B, McClement S. Sleep disturbance in family caregivers of patients with advanced cancer. Int J Palliat Nurs. 2007 Oct;13(10):495-501.
Klassen A, Raina P, Reineking S, Dix D, Pritchard S, O’Donnell M. Developing a literature base to understand the caregiving experience of parents of children with cancer: a systematic review of factors related to parental health and well-being. Support Care Cancer. 2007 Jul;15(7):807-818.
Mason A, Weatherly H, Spilsbury K, Aksey H, Golder S, Adamson J, Drummond M, Glendinning C. A systematic review of the effectiveness and cost-effectiveness of different models of community based respite care for frail older people and their carers. Health Technol Assess. 2007 Apr;11(15):1-157, iii.
Parker SM, Clayton JM, Hancock K, Walder S, Butow PN, Carrick S, Currow D, Ghersi D, Glare P, Hagerty R, Tattersall MH. A systematic review of prognostic/end-of-life communication with adults in the advanced stages of a life-limiting illness: patient/caregiver preferences for the content, style, and timing of information. J Pain Symptom Manage. 2007 Jul;34(1):81-93. Epub 2007 May 25.
Hebert RS, Weinstein E, Martire LM, Schulz R. Religion, spirituality and the well-being of informal caregivers: A review, critique and research prospectus. Aging Ment Health 2006 Sep;10(5):497-520.
Kitrungrote L, Cohen MZ. Quality of life of family caregivers of patients with cancer: a literature review. Oncol Nurs Forum. 2006 May 3;33(3):625-32.
Mockford C, Jenkinson C, Fitzpatrick R. A review: carers, MND and service provision. Amyotroph Lateral Scler. 2006 Sep;7(3):132-41.
Pinquart M, Sörensen S. Gender differences in caregiver stressors, social resources, and health: an updated meta-analysis. J Gerontol B Psychol Sci Soc Sci. 2006 Jan;61(1):P33-45.
Smith P, Payne S, Ramcharan P, Chapman A, Patterson M. Carers of the terminally ill and employment issues: a comprehensive literature review. Palliative and End-of-Life Research Group, University of Sheffield. 2006 Jan;31pp. [No abstract available].
Steinhauser KE, Clipp EC, Hays JC, Olsen M, Arnold R, Christakis NA, Lindquist JH, Tulsky JA. Identifying, recruiting, and retaining seriously-ill patients and their caregivers in longitudinal research. Palliat Med. 2006 Dec;20(8):745-54.
Dunbrack J. The information needs of informal caregivers involved in providing support to a critically ill loved one. Health Canada. 2005 Mar;19pp.
Hodges LJ, Humphris GM, Macfarlane G. A meta-analytic investigation of the relationship between the psychological distress of cancer patients and their carers. Soc Sci Med. 2005 Jan;60(1):1-12.
Dow B, Haralambous B, Giummarra M, Vrantsidis F, National Ageing Research Institute (NARI). What carers value – review of carer literature and practice Victorian Government Department of Human Services, Melbourne, Victoria, Australia. 2004 Nov;62pp.
Kadushin G. Home health care utilization: a review of the research for social work. Health Soc Work. 2004 Aug;29(3):219-44.
Lorenz K, Lynn J, Morton SC, Dy S, Mularski R, Shugarman L, Sun V, Wilkinson AM, Maglione M, Shekelle PG. End-of-life care and outcomes. Evid Rep Technol Assess (Summ). 2004 Dec;(110):1-6.
Martire LM, Lustig AP, Schulz R, Miller GE, Helgeson VS. Is it beneficial to involve a family member? a meta-analysis of psychosocial interventions for chronic illness. Health Psychol. 2004 Nov;23(6):599-611.
Palliative Care Australia. The hardest thing we have ever done - the social impact of caring for terminally ill people in Australia. Palliative Care Australia. 2004 May;72pp.
Deeken JF, Taylor KL, Mangan P, Yabroff KR, Ingham JM. Care for the caregivers: a review of self-report instruments developed to measure the burden, needs, and quality of life of informal caregivers. J Pain Symptom Manage. 2003 Oct;26(4):922-53.
Harding R, Higginson I. What is the best way to help caregivers in cancer and palliative care? A systematic literature review of interventions and their effectiveness. Palliat Med. 2003 Jan;17(1):63-74.
Hunt CK. Concepts in caregiver research. J Nurs Scholarsh. 2003;35(1):27-32.
Pinquart M, Sörensen S. Associations of stressors and uplifts of caregiving with caregiver burden and depressive mood: a meta-analysis. J Gerontol B Psychol Sci Soc Sci. 2003 Mar;58(2):P112-28.
Pinquart M, Sörensen S. Differences between caregivers and noncaregivers in psychological health and physical health: a meta-analysis. Psychol Aging. 2003 Jun;18(2):250-67.
Thome B, Dykes A, Hallberg I. Home care with regard to definition, care recipients, content and outcome: systematic literature review. J Clin Nurs. 2003 Nov;12(6):860-72.
Yin T, Zhou Q, Bashford C. Burden on family members: caring for frail elderly: a meta-analysis of interventions. Nurs Res. 2002 May-Jun;51(3):199-208.
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Last updated 29 March 2022