Patient Resources

Providing trustworthy information to patients and carers

Patients may need additional material to remind them of conversations or to help them manage issues at home. Information needs also change over time.

What is palliative care?
Information from Palliative Care Australia
Australian Charter of Health Care Rights (139kb pdf)
Brochure from the Australian Commission on Safety and Quality in Healthcare
Palliative care
A patient page from JAMA

Create your advance care plan (Select State or Territory of interest)
From Advance Care Planning Australia website

Patient summary of treatment recommendations near the end of life
From the American College of Physicians
Confusion and terminal restlessness (153kb pdf)
A brochure for caregivers from Palliative Care Victoria
The process of dying (2.33MB pdf)
A brochure for caregivers from Palliative Care Victoria
Nearing the End of Life
Web page produced by the American Cancer Society

Understanding grief
From Palliative Care Australia
Needing help after someone has died? Booklet (1.65MB pdf)
From CentreLink Summary of relevant services and other useful information

Resources for carers (1.40MB pdf)
A pamphlet from Palliative Care Victoria
A journey lived (1.44MB pdf)
A booklet of carers’ stories from Palliative Care Australia
Practical caring: At the end of life (222kb pdf)
Fact sheet for carers from CareSearch
Why information matters: At the end of life (273kb pdf)
Fact sheet for carers from CareSearch
Looking after yourself (1.39MB pdf)
A pamphlet from Palliative Care Victoria
How and why to get family to help with caring (56kb pdf)
Information sheet for carers from Carers Victoria

Asking questions can help
A question prompt list from Palliative Care Australia
How can I support my friend or family member? (615kb pdf)
An information brochure for families and friends from Palliative Care Australia
Finding the words - starting a conversation when your cancer has progressed
A guide from NBOCC to help women with secondary breast or ovarian cancer talk about how palliative care might help them.

Renal

Comprehensive Conservative Care
Information from Kidney Health Australia
Factsheets and Photosheets
Information from Kidney Health Australia
Withdrawing from dialysis treatment (1.81MB pdf)
A booklet from Renal Resource Centre, NSW

Overcoming Cancer Pain - A guide for people with cancer, their families and friends (314kb pdf)
Booklet from the Cancer Council of NSW
Facts about morphine and other opioid medicines in palliative care
Brochure from Palliative Care Australia
About pain and the help available (1.66MB pdf)
A brochure from Palliative Care Victoria
Sample pain diary (101kb pdf)
From the American Cancer Society and example of a pain diary. This is suitable for any person with pain, not just those with cancer

Nausea and vomiting (155kb pdf)
An information brochure from Palliative Care Victoria
Nutrition in palliative care (1.39MB pdf)
An information brochure for carers from Palliative Care Victoria
Anorexia in advanced illness (153kb pdf)
An information brochure from Palliative Care Victoria
Confusion and terminal restlessness (153kb pdf)
An information brochure for carers from Palliative Care Victoria

Last updated 24 August 2021