Review Collection: Outcome measures

70 reviews

2019

Friedel M, Aujoulat I, Dubois AC, Degryse JM. Instruments to Measure Outcomes in Pediatric Palliative Care: A Systematic Review. Pediatrics. 2019 Jan;143(1). pii: e20182379. doi: 10.1542/peds.2018-2379. Epub 2018 Dec 7.

Hudson BF, Best S, Stone P, Noble TB. Impact of informational and relational continuity for people with palliative care needs: a mixed methods rapid review. BMJ Open. 2019 May 29;9(5):e027323. doi: 10.1136/bmjopen-2018-027323.

Leniz J, Weil A, Higginson IJ, Sleeman KE. Electronic palliative care coordination systems (EPaCCS): a systematic review. BMJ Support Palliat Care. 2019 May 8. pii: bmjspcare-2018-001689. doi: 10.1136/bmjspcare-2018-001689. [Epub ahead of print]

Licqurish SM, Cook OY, Pattuwage LP, Saunders C, Jefford M, Koczwara B, Johnson CE, Emery JD. Tools to facilitate communication during physician-patient consultations in cancer care: An overview of systematic reviews. CA Cancer J Clin. 2019 Jul 24. doi: 10.3322/caac.21573. [Epub ahead of print]

Sampaio SGDSM, Motta LBD, Caldas CP. Value-based medicine and palliative care: how do they converge? Expert Rev Pharmacoecon Outcomes Res. 2019 Oct;19(5):509-515. doi: 10.1080/14737167.2019.1651645. Epub 2019 Aug 7.

Wilson DM, Errasti-Ibarrondo B, Rodríguez-Prat A. A Research Literature Review to Determine How Bereavement Programs Are Evaluated. Omega (Westport). 2019 Aug 20:30222819869492. doi: 10.1177/0030222819869492. [Epub ahead of print]

2018

Antunes B, Rodrigues PP, Higginson IJ, Ferreira PL. Outcome measurement-a scoping review of the literature and future developments in palliative care clinical practice. Ann Palliat Med. 2018 Oct;7(Suppl 3):S196-S206. doi: 10.21037/apm.2018.07.03. Epub 2018 Jul 26.

Azhar A, Bruera E. Outcome measurement and complex physical, psychosocial and spiritual experiences of death and dying. Ann Palliat Med. 2018 Oct;7(Suppl 3):S231-S243. doi: 10.21037/apm.2018.07.04. Epub 2018 Aug 9.

Bush RA, Pérez A, Baum T, Etland C, Connelly CD. A systematic review of the use of the electronic health record for patient identification, communication, and clinical support in palliative care. J Am Med Inform Assoc. 2018 July 06. doi: 10.1093/jamiaopen/ooy028. [Epub ahead of print].

Cohen-Mansfield J, Skornick-Bouchbinder M, Brill S. Trajectories of End of Life: A Systematic Review. J Gerontol B Psychol Sci Soc Sci. 2018 Apr 16;73(4):564-572. doi: 10.1093/geronb/gbx093.

Gutiérrez Sánchez D, Pérez Cruzado D, Cuesta-Vargas AI. The quality of dying and death measurement instruments: A systematic psychometric review. J Adv Nurs. 2018 Apr 19. doi: 10.1111/jan.13687. [Epub ahead of print]

Martins Pereira S, Hernández-Marrero P. Ethical challenges of outcome measurement in palliative care clinical practice: a systematic review of systematic reviews. Ann Palliat Med. 2018 Oct;7(Suppl 3):S207-S218. doi: 10.21037/apm.2018.06.05. Epub 2018 Jul 11.

Mason TM, Duffy AR. Complicated Grief and Cortisol Response: An Integrative Review of the Literature. J Am Psychiatr Nurses Assoc. 2018 Oct 25:1078390318807966. doi: 10.1177/1078390318807966. [Epub ahead of print]

Scherrens AL, Beernaert K, Robijn L, Deliens L, Pauwels NS, Cohen J, Deforche B. The use of behavioural theories in end-of-life care research: A systematic review. Palliat Med. 2018 Jun;32(6):1055-1077. doi: 10.1177/0269216318758212. Epub 2018 Mar 23.

2017

Holmes MM, Lewith G, Newell D, Field J, Bishop FL. The impact of patient-reported outcome measures in clinical practice for pain: a systematic review. Qual Life Res. 2017 Feb;26(2):245-257. Epub 2016 Nov 4.

Kearns T, Cornally N, Molloy W. Patient reported outcome measures of quality of end-of-life care: A systematic review. Maturitas. 2017 Feb;96:16-25. Epub 2016 Nov 11.

Roydhouse JK, Wilson IB. Systematic review of caregiver responses for patient health-related quality of life in adult cancer care. Qual Life Res. 2017 Aug;26(8):1925-1954. doi: 10.1007/s11136-017-1540-6. Epub 2017 Mar 14.

Selman LE, Brighton LJ, Hawkins A, McDonald C, O'Brien S, Robinson V, Khan SA, George R, Ramsenthaler C, Higginson IJ, Koffman J. The effect of communication skills training for generalist palliative care providers on patient-reported outcomes and clinician behaviours: a systematic review and meta-analysis. J Pain Symptom Manage. 2017 Sep;54(3):404-416.e5. doi: 10.1016/j.jpainsymman.2017.04.007. Epub 2017 Aug 1.

2016

Camuso N, Bajaj P, Dudgeon D, Mitera G. Engaging patients as partners in developing patient-reported outcome measures in cancer-A review of the literature. Support Care Cancer. 2016 Aug;24(8):3543-9. Epub 2016 Mar 28.

Chan RJ, Webster J, Bowers A. End-of-life care pathways for improving outcomes in caring for the dying. Cochrane Database Syst Rev. 2016 Feb 12;2:CD008006. [Update of 2013 article]

Coombes LH, Wiseman T, Lucas G, Sangha A, Murtagh FE. Health-related quality-of-life outcome measures in paediatric palliative care: A systematic review of psychometric properties and feasibility of use. Palliat Med. 2016 Dec;30(10):935-949. Epub 2016 May 31.

da Silva Soares D, Nunes CM, Gomes B. Effectiveness of Emergency Department Based Palliative Care for Adults with Advanced Disease: A Systematic Review. J Palliat Med. 2016 Jun;19(6):601-9. Epub 2016 Apr 26.

Kavalieratos D, Corbelli J, Zhang D, Dionne-Odom JN, Ernecoff NC, Hanmer J, Hoydich ZP, Ikejiani DZ, Klein-Fedyshin M, Zimmermann C, Morton SC, Arnold RM, Heller L, Schenker Y. Association Between Palliative Care and Patient and Caregiver Outcomes: A Systematic Review and Meta-analysis. JAMA. 2016 Nov 22;316(20):2104-2114.

Michels CT, Boulton M, Adams A, Wee B, Peters M. Psychometric properties of carer-reported outcome measures in palliative care: A systematic review. Palliat Med. 2016 Jan;30(1):23-44. Epub 2015 Sep 25.

Sallnow L, Richardson H, Murray SA, Kellehear A. The impact of a new public health approach to end-of-life care: A systematic review. Palliat Med. 2016 Mar;30(3):200-11. Epub 2015 Aug 12.

Weingärtner V, Dargatz N, Weber C, Mueller D, Stock S, Voltz R, Gaertner J. Patient reported outcomes in randomized controlled cancer trials in advanced disease: a structured literature review. Expert Rev Clin Pharmacol. 2016 Jun;9(6):821-9.  Epub 2016 Apr 7.

2015

Atkinson TM, Andreotti CF, Roberts KE, Saracino RM, Hernandez M, Basch E. The level of association between functional performance status measures and patient-reported outcomes in cancer patients: a systematic review. Support Care Cancer. 2015 Dec;23(12):3645-52.Epub 2015 Aug 28.

Blum D, Raj SX, Oberholzer R, Riphagen II, Strasser F, Kaasa S; EURO IMPACT, European Intersectorial Multidisciplinary Palliative Care Research Training. Computer-Based Clinical Decision Support Systems and Patient-Reported Outcomes: A Systematic Review. Patient. 2015 Oct;8(5):397-409.

Catania G, Beccaro M, Costantini M, Ugolini D, De Silvestri A, Bagnasco A, Sasso L. Effectiveness of complex interventions focused on quality-of-life assessment to improve palliative care patients' outcomes: a systematic review. Palliat Med. 2015 Jan;29(1):5-21.Epub 2014 Jun 17.

Davis MP, Temel JS, Balboni T, Glare P. A review of the trials which examine early integration of outpatient and home palliative care for patients with serious illnesses. Ann Palliat Med. 2015 Jul;4(3):99-121.

Etkind SN, Daveson BA, Kwok W, Witt J, Bausewein C, Higginson IJ, Murtagh FE. Capture, Transfer, and Feedback of Patient-Centered Outcomes Data in Palliative Care Populations: Does It Make a Difference? A Systematic Review. J Pain Symptom Manage. 2015 Mar;49(3):611-624. Epub 2014 Aug 15.

Reed M,Harding K.Do Family Meetings Improve Measurable Outcomes for Patients, Carers, or Health Systems? A Systematic Review. Australian Social Work. 2015;68(2):244-258. [No abstract available]

Singh T, Harding R. Palliative care in South Asia: a systematic review of the evidence for care models, interventions, and outcomes. BMC Res Notes. 2015 Apr 30;8:172.

van Riet Paap J, Vernooij-Dassen M, Sommerbakk R, Moyle W, Hjermstad MJ, Leppert W, Vissers K, Engels Y; IMPACT research team. Implementation of improvement strategies in palliative care: an integrative review. Implement Sci. 2015 Jul 26;10:103.

Yang M, Mehta HB, Bali V, Gupta P, Wang X, Johnson ML, Aparasu RR. Which risk-adjustment index performs better in predicting 30-day mortality? A systematic review and meta-analysis. J Eval Clin Pract. 2015 Apr;21(2):292-9.Epub 2015 Feb 6.

2014

Antunes B, Harding R, Higginson IJ; EUROIMPACT. Implementing patient-reported outcome measures in palliative care clinical practice: A systematic review of facilitators and barriers. Palliat Med. 2014 Feb;28(2):158-75.Epub 2013 Jun 25.

2013

Phillips JL, West PA, Davidson PM, Agar M.Phillips JL, West PA, Davidson PM, Agar M. Does case conferencing for people with advanced dementia living in nursing homes improve care outcomes: Evidence from an integrative review? Int J Nurs Stud. 2013 Aug;50(8):1122-35. Epub 2012 Nov 28.

2012

Granda-Cameron C, Houldin A.Concept Analysis of Good Death in Terminally Ill Patients.
Am J Hosp Palliat Care. 2012 Feb 23. [Epub ahead of print]

Lelorain S, Brédart A, Dolbeault S, Sultan S. A systematic review of the associations between empathy measures and patient outcomes in cancer care. Psychooncology. 2012 Dec;21(12):1255-64. doi: 10.1002/pon.2115. Epub 2012 Jan 11.

Raijmakers N, Galushko M, Domeisen F, Beccaro M, Lundh Hagelin C, Lindqvist O, Popa-Velea O, Romotzky V, Schuler S, Ellershaw J, Ostgathe C; OPCARE9. Quality indicators for care of cancer patients in their last days of life: literature update and experts' evaluation. J Palliat Med. 2012 Mar;15(3):308-16. Epub 2012 Feb 10.

Stiel S, Pastrana T, Balzer C, Elsner F, Ostgathe C, Radbruch L. Outcome assessment instruments in palliative and hospice care-a review of the literature. Support Care Cancer. 2012 Mar; 20: 2879-2893.

2011

Bausewein C, Le Grice C, Simon S, Higginson I; on behalf of PRISMA. The use of two common palliative outcome measures in clinical care and research: A systematic review of POS and STAS. Palliat Med. 2011 Jun;25(4):304-313. Epub 2011 Apr 4.

Brundage M, Bass B, Davidson J, Queenan J, Bezjak A, Ringash J, Wilkinson A, Feldman-Stewart D. Patterns of reporting health-related quality of life outcomes in randomized clinical trials: implications for clinicians and quality of life researchers. Qual Life Res. 2011 Jun;20(5):653-64. Epub 2010 Nov 26.

Garau M, Shah KK, Mason AR, Wang Q, Towse A, Drummond MF. Using QALYs in cancer: a review of the methodological limitations. Pharmacoeconomics. 2011 Aug;29(8):673-85.

Parker D, Hodgkinson B. A comparison of palliative care outcome measures used to assess the quality of palliative care provided in long-term care facilities: a systematic review. Palliat Med. 2011 Jan;25(1):5-20. Epub 2010 Sep 3.

2010

Colloca G, Venturino A, Checcaglini F. Patient-reported outcomes after cytotoxic chemotherapy in metastatic castration-resistant prostate cancer: a systematic review. Cancer Treat Rev. 2010 Oct;36(6):501-6. Epub 2010 Feb 23.

Hanson LC, Scheunemann LP, Zimmerman S, Rokoske FS, Schenck AP. The PEACE project review of clinical instruments for hospice and palliative care. J Palliat Med. 2010 Oct;13(10):1253-60.

Higginson IJ, Evans CJ. What is the evidence that palliative care teams improve outcomes for cancer patients and their families? Cancer J. 2010 Sep-Oct;16(5):423-35.

Mularski RA, Campbell ML, Asch SM, Reeve BB, Basch E, Maxwell TL, Hoverman JR, Cuny J, Clauser SB, Snyder C, Seow H, Wu AW, Dy S. A review of quality of care evaluation for the palliation of dyspnea. Am J Respir Crit Care Med. 2010 Mar 15;181(6):534-8. Epub 2010 Jan 7.

Parker D, Hodgkinson B. A comparison of palliative care outcome measures used to access the quality of palliative care provided in residential aged care facilities: a systematic review. JBI Library of Systematic Reviews. 2010;8(3):90-120. [No abstract available]

Uitterhoeve RJ, Bensing JM, Grol RP, Demulder PH, VAN Achterberg T. The effect of communication skills training on patient outcomes in cancer care: a systematic review of the literature. Eur J Cancer Care (Engl). 2010 Jul;19(4):442-57. Epub 2009 Dec 17.

2009

Jocham HR, Dassen T, Widdershoven G, Halfens R. Evaluating palliative care - a review of the literature. Palliative Care: Research and Treatment. 2009 Mar 20;3:5-12.

Pasman HR, Brandt HE, Deliens L, Francke AL. Quality indicators for palliative care: a systematic review. J Pain Symptom Manage. 2009 Jul;38(1):145-56.

2008

Dy SM, Shugarman LR, Lorenz KA, Mularski RA, Lynn J; RAND-Southern California Evidence-Based Practice Center. A systematic review of satisfaction with care at the end of life. J Am Geriatr Soc. 2008 Jan;56(1):124-9. Epub 2007 Nov 20.
 
Hales S, Zimmermann C, Rodin G. The quality of dying and death. Arch Intern Med. 2008 May 12;168(9):912-8.
 
Lorenz KA, Lynn J, Dy SM, Shugarman LR, Wilkinson A, Mularski RA, Morton SC, Hughes RG, Hilton LK, Maglione M, Rhodes SL, Rolon C, Sun VC, Shekelle PG. Evidence for improving palliative care at the end of life: a systematic review. Ann Intern Med. 2008 Jan 15;148(2):147-59.

2007

Lorenz KA, Rosenfeld K, Wenger N. Quality indicators for palliative and end-of-life care in vulnerable elders. J Am Geriatr Soc. 2007 Oct;55(Suppl 2):S318-26. 
 
Mularski RA, Dy SM, Shugarman LR, Wilkinson AM, Lynn J, Shekelle PG, Morton SC, Sun VC, Hughes RG, Hilton LK, Maglione M, Rhodes SL, Rolon C, Lorenz KA. A systematic review of measures of end-of-life care and its outcomes. Health Serv Res. 2007 Oct;42(5):1848-70.
 
Pearson EJ, Todd JG, Futcher JM. How can occupational therapists measure outcomes in palliative care? Palliat Med. 2007 Sep;21(6):477-85.

2006

de Kort SJ, Willemse PH, Habraken JM, de Haes HC, Willems DL, Richel DJ. Quality of life versus prolongation of life in patients treated with chemotherapy in advanced colorectal cancer: A review of randomized controlled clinical trials. Eur J Cancer. 2006 May;42(7):835-45. Epub 2006 Feb 14.

Lorenz K, Lynn J, Dy S, Hughes R, Mularski RA, Shugarman LR, Wilkinson AM. Cancer care quality measures: symptoms and end-of-life care. Evid Rep Technol Assess (Full Rep). 2006 May;(137):1-77.

2004

Earle CC. Outcomes research in lung cancer. J Natl Cancer Inst Monogr. 2004;(33):56-77.

Lorenz K, Lynn J, Morton SC, Dy S, Mularski R, Shugarman L, Sun V, Wilkinson AM, Maglione M, Shekelle PG. End-of-life care and outcomes. Evid Rep Technol Assess (Summ). 2004 Dec;(110):1-6. [No abstract available]

2003

Aspinal F, Addington-Hall J, Hughes R, Higginson IJ. Using satisfaction to measure the quality of palliative care: a review of the literature. J Adv Nurs. 2003 May;42(4):324-39.

2002

Higginson IJ, Finlay I, Goodwin DM, Cook AM, Hood K, Edwards AG, Douglas HR, Norman CE. Do hospital-based palliative teams improve care for patients or families at the end of life? J Pain Symptom Manage. 2002 Feb;23(2):96-106.

Poole K, Froggatt K. Loss of weight and loss of appetite in advanced cancer: a problem for the patient, the carer, or the health professional? Palliat Med. 2002 Nov;16(6):499-506.

1999

Dawson R, Currow D, Stevens G, Morgan G, Barton MB. Radiotherapy for bone metastases: a critical appraisal of outcome measures. J Pain Symptom Manage. 1999 Mar;17(3):208-18.

Hearn J, Higginson IJ. Development and validation of a core outcome measure for palliative care: the palliative care outcome scale. Qual Health Care. 1999 Dec;8(4):219-27.

1998

1997

Hearn J, Higginson I. Outcome measures in palliative care for advanced cancer patients: a review. J Public Health Med. 1997 Jun;19(2):193-9.

Last updated 05 September 2019