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Nicholas Dionne-Odom J, Hooker SA, Bekelman D, Ejem D, McGhan G, Kitko L, Strömberg A, Wells R, Astin M, Metin ZG, Mancarella G, Pamboukian SV, Evangelista L, Buck HG, Bakitas MA; IMPACT-HF National Workgroup. Family caregiving for persons with heart failure at the intersection of heart failure and palliative care: a state-of-the-science review.
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O'Toole MS, Zachariae R, Renna ME, Mennin DS, Applebaum A. Cognitive behavioral therapies for informal caregivers of patients with cancer and cancer survivors: A systematic review and meta-analysis.
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Rainsford S, MacLeod RD, Glasgow NJ, Phillips CB, Wiles RB, Wilson DM. Rural end-of-life care from the experiences and perspectives of patients and family caregivers: A systematic literature review.
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Roydhouse JK, Wilson IB. Systematic review of caregiver responses for patient health-related quality of life in adult cancer care.
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Sutanto LL, Ying FM, Agarwal A, Lam M, Chow E, Henry BA. A scoping review of psychosocial interventions for informal caregivers of palliative cancer patients.
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Tanco K, Park JC, Cerana A, Sisson A, Sobti N, Bruera E. A systematic review of instruments assessing dimensions of distress among caregivers of adult and pediatric cancer patients.
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Applebaum AJ, Kryza-Lacombe M, Buthorn J, DeRosa A, Corner G, Diamond EL. Presurgical assessment of cognitive function in pediatric brain tumor patients: feasibility and initial findings.
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Bergin S, Mockford C. Recommendations to support informal carers of people living with motor neurone disease.
Br J Community Nurs. 2016 Oct 2;21(10):518-524.
Bull MJ, Boaz L, Jermé M. Educating Family Caregivers for Older Adults About Delirium: A Systematic Review.
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Jaffray L. Bridgman H. Stephens M. Skinner T. Evaluating the effects of mindfulness-based interventions for informal palliative caregivers: A systematic literature review.
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Piil K, Juhler M, Jakobsen J, Jarden M. Controlled rehabilitative and supportive care intervention trials in patients with high-grade gliomas and their caregivers: a systematic review.
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Pozzebon M, Douglas J, Ames D. Spouses' experience of living with a partner diagnosed with a dementia: a synthesis of the qualitative research.
Int Psychogeriatr. 2016 Apr;28(4):537-56. Epub 2016 Jan 11.
Slev VN, Mistiaen P, Pasman HR, Verdonck-de Leeuw IM, van Uden-Kraan CF, Francke AL. Effects of eHealth for patients and informal caregivers confronted with cancer: A meta-review.
Int J Med Inform. 2016 Mar;87:54-67. Epub 2015 Dec 24.
Ussher Jane Maria, Perz, Janette, Hawkins Yasmin. Evaluating the efficacy of psycho-social interventions for informal carers of cancer patients: A systematic review of the research literature. Health Psychology Review. 2016 Mar;3(1):85-107. [No abstract available]
Wheelwright S, Darlington AS, Hopkinson JB, Fitzsimmons D, Johnson C. A systematic review and thematic synthesis of quality of life in the informal carers of cancer patients with cachexia.
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Griffin JM, Meis LA, Greer N, MacDonald R, Jensen A, Rutks I, Carlyle M, Wilt TJ. Effectiveness of Caregiver Interventions on Patient Outcomes in Adults With Dementia or Alzheimer's Disease: A Systematic Review.
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Kaltenbaugh DJ, Klem ML, Hu L, Turi E, Haines AJ, Hagerty Lingler J. Using web-based interventions to support caregivers of patients with cancer: a systematic review.
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Lendon JP, Ahluwalia SC, Walling AM, Lorenz KA, Oluwatola OA, Anhang Price R, Quigley D, Teno JM. Measuring Experience With End-of-Life Care: A Systematic Literature Review.
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Morris SM, King C, Turner M, Payne S. Family carers providing support to a person dying in the home setting: A narrative literature review.
Palliat Med. 2015 Jun;29(6):487-495. Epub 2015 Jan 29.
Reed M,Harding K. Do Family Meetings Improve Measurable Outcomes for Patients, Carers, or Health Systems? A Systematic Review. Australian Social Work. 2015;68(2):244-258. [No abstract available]
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Pottie CG, Burch KA, Thomas LP, Irwin SA. Informal caregiving of hospice patients.
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Stenberg U, Ekstedt M, Olsson M, Ruland CM. Living close to a person with cancer: a review of the international literature and implications for social work practice.
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Tong A, Cheung KL, Nair SS, Kurella Tamura M, Craig JC, Winkelmayer WC. Thematic synthesis of qualitative studies on patient and caregiver perspectives on end-of-life care in CKD.
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Wittenberg-Lyles E, Parker Oliver D, Demiris G, Swarz J, Rendo M. YouTube as a tool for pain management with informal caregivers of cancer patients: a systematic review.
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Aoun SM, Bentley B, Funk L, Toye C, Grande G, Stajduhar KJ. A 10-year literature review of family caregiving for motor neurone disease: moving from caregiver burden studies to palliative care interventions.
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Chan D, Livingston G, Jones L, Sampson EL. Grief reactions in dementia carers: a systematic review.
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Moore G, Collins A, Brand C, Gold M, Lethborg C, Murphy M, Sundararajan V, Philip J. Palliative and supportive care needs of patients with high-grade glioma and their carers: a systematic review of qualitative literature.
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Parker Oliver D, Albright DL, Washington K, Wittenberg-Lyles E, Gage A, Mooney M, Demiris G. Hospice caregiver depression: the evidence surrounding the greatest pain of all.
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Sterckx W, Coolbrandt A, Dierckx de Casterlé B, Van den Heede K, Decruyenaere M, Borgenon S, Mees A, Clement P. The impact of a high-grade glioma on everyday life: a systematic review from the patient's and caregiver's perspective.
Eur J Oncol Nurs. 2013 Feb;17(1):107-17. Epub 2012 May 31
Whittingham K, Barnes S, Gardiner C. Tools to measure quality of life and carer burden in informal carers of heart failure patients:A narrative review.
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Harding R, List S, Epiphaniou E, Jones H. How can informal caregivers in cancer and palliative care be supported? An updated systematic literature review of interventions and their effectiveness.
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Hopkinson JB, Brown JC, Okamoto I, Addington-Hall JM. The effectiveness of patient-family carer (couple) intervention for the management of symptoms and other health-related problems in people affected by cancer: a systematic literature search and narrative review.
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Candy B, Jones L, Drake R, Leurent B, King M. Interventions for supporting informal caregivers of patients in the terminal phase of a disease.
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Kang X, Li Z, Nolan MT. Informal caregivers' experiences of caring for patients with chronic heart failure: systematic review and metasynthesis of qualitative studies.
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Meeker MA, Finnell D, Othman AK. Family caregivers and cancer pain management: a review.
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Remedios C, Thomas K, Hudson P. Psychosocial and bereavement support for family caregivers of palliative care patients: A review of the empirical literature.
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Schildmann EK, Higginson IJ. Evaluating psycho-educational interventions for informal carers of patients receiving cancer care or palliative care: Strengths and limitations of different study designs.
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Anderson A, Kralik D. Palliative care at home: nurses, carers and subcutaneous medication management: 2006-2008. RDNS Research Unit. Adelaide. 2008 Apr. No abstract available.
Convey V, Ede J, Sealey T. How are the carers being cared for? a review of the literature.
Eur J Palliat Care. 2008;15(4):182-5.
Docherty A, Owens A, Asadi-Lari M, Petchey R, Williams J, Carter YH. Knowledge and information needs of informal caregivers in palliative care: a qualitative systematic review.
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Honea NJ, Brintnall R, Given B, Sherwood P, Colao DB, Somers SC, Northouse LL. Putting Evidence into Practice: nursing assessment and interventions to reduce family caregiver strain and burden.
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Kim Y, Given BA. Quality of life of family caregivers of cancer survivors: across the trajectory of the illness.
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Eagar K, Owen A, Williams K, Westera A, Marosszeky N, England R, Morris D. Effective Caring: a synthesis of the international evidence on carer needs and interventions.
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Hanratty B, Holland P, Jacoby A, Whitehead M. Financial stress and strain associated with terminal cancer: a review of the evidence.
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Klassen A, Raina P, Reineking S, Dix D, Pritchard S, O’Donnell M. Developing a literature base to understand the caregiving experience of parents of children with cancer: a systematic review of factors related to parental health and well-being.
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Mason A, Weatherly H, Spilsbury K, Aksey H, Golder S, Adamson J, Drummond M, Glendinning C. A systematic review of the effectiveness and cost-effectiveness of different models of community based respite care for frail older people and their carers.
Health Technol Assess. 2007 Apr;11(15):1-157, iii.
Parker SM, Clayton JM, Hancock K, Walder S, Butow PN, Carrick S, Currow D, Ghersi D, Glare P, Hagerty R, Tattersall MH. A systematic review of prognostic/end-of-life communication with adults in the advanced stages of a life-limiting illness: patient/caregiver preferences for the content, style, and timing of information.
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Hebert RS, Weinstein E, Martire LM, Schulz R. Religion, spirituality and the well-being of informal caregivers: A review, critique and research prospectus.
Aging Ment Health 2006 Sep;10(5):497-520.
Kitrungrote L, Cohen MZ. Quality of life of family caregivers of patients with cancer: a literature review.
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Mockford C, Jenkinson C, Fitzpatrick R. A review: carers, MND and service provision.
Amyotroph Lateral Scler. 2006 Sep;7(3):132-41.
Pinquart M, Sörensen S. Gender differences in caregiver stressors, social resources, and health: an updated meta-analysis.
J Gerontol B Psychol Sci Soc Sci. 2006 Jan;61(1):P33-45.
Smith P, Payne S, Ramcharan P, Chapman A, Patterson M. Carers of the terminally ill and employment issues: a comprehensive literature review. Palliative and End-of-Life Research Group, University of Sheffield. 2006 Jan;31pp. [No abstract available].
Steinhauser KE, Clipp EC, Hays JC, Olsen M, Arnold R, Christakis NA, Lindquist JH, Tulsky JA. Identifying, recruiting, and retaining seriously-ill patients and their caregivers in longitudinal research.
Palliat Med. 2006 Dec;20(8):745-54.
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Palliative Care Australia. The hardest thing we have ever done - the social impact of caring for terminally ill people in Australia. Palliative Care Australia. 2004 May;72pp.
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