Review Collection: Carers

220 reviews

2019

Akarsu NE, Prince M, Lawrence V, Das-Munshi J. Depression in carers of people with dementia from a minority ethnic background: Systematic review and meta-analysis of randomised-controlled trials of psychosocial interventions. Int J Geriatr Psychiatry. 2019 Feb 4. doi: 10.1002/gps.5070. [Epub ahead of print]

Becqué YN, Rietjens JAC, van Driel AG, van der Heide A, Witkamp E. Nursing interventions to support family caregivers in end-of-life care at home: A systematic narrative review. Int J Nurs Stud. 2019 Apr 23;97:28-39. doi: 10.1016/j.ijnurstu.2019.04.011. [Epub ahead of print]

Braun A, Trivedi DP, Dickinson A, Hamilton L, Goodman C, Gage H, Ashaye K, Iliffe S, Manthorpe J. Managing behavioural and psychological symptoms in community dwelling older people with dementia: 2. A systematic review of qualitative studies. Dementia (London). 2019 Oct-Nov;18(7-8):2950-2970. doi: 10.1177/1471301218762856. Epub 2018 Mar 20.

Cantarero-Prieto D, Leon PL, Blazquez-Fernandez C, Juan PS, Cobo CS. The economic cost of dementia: A systematic review. Dementia (London). 2019 Mar 25:1471301219837776. doi: 10.1177/1471301219837776. [Epub ahead of print]

Chambers E, Gardiner C, Thompson J, Seymour J. Patient and carer involvement in palliative care research: An integrative qualitative evidence synthesis review. Palliat Med. 2019 Jun 28:269216319858247. doi: 10.1177/0269216319858247. [Epub ahead of print]

Choi S, Seo J. Analysis of caregiver burden in palliative care: An integrated review. Nurs Forum. 2019 Feb 8. doi: 10.1111/nuf.12328. [Epub ahead of print]

Collins RN, Kishita N. The Effectiveness of Mindfulness- and Acceptance-Based Interventions for Informal Caregivers of People With Dementia: A Meta-Analysis. Gerontologist. 2019 Jul 16;59(4):e363-e379. doi: 10.1093/geront/gny024.

Engbers RA. Informal Caregivers' Perceptions of Needs From Hospice Providers: An Integrative Review. Am J Hosp Palliat Care. 2019 Apr 16:1049909119842365. doi: 10.1177/1049909119842365. [Epub ahead of print]

Gao C, Chapagain NY, Scullin MK. Sleep Duration and Sleep Quality in Caregivers of Patients With Dementia: A Systematic Review and Meta-analysis. JAMA Netw Open. 2019 Aug 2;2(8):e199891. doi: 10.1001/jamanetworkopen.2019.9891.

Gonella S, Basso I, De Marinis MG, Campagna S, Di Giulio P. Good end-of-life care in nursing home according to the family carers' perspective: A systematic review of qualitative findings. Palliat Med. 2019 Apr 10:269216319840275. doi: 10.1177/0269216319840275. [Epub ahead of print]

Hall A, Rowland C, Grande G. How Should End-of-Life Advance Care Planning Discussions Be Implemented According to Patients and Informal Carers? A Qualitative Review of Reviews. J Pain Symptom Manage. 2019 Apr 18. pii: S0885-3924(19)30181-2. doi: 10.1016/j.jpainsymman.2019.04.013. [Epub ahead of print]

Heckel L, Heynsbergh NL, Livingston PM. Are cancer helplines effective in supporting caregivers? A systematic review. Support Care Cancer. 2019 May 16. doi: 10.1007/s00520-019-04807-z. [Epub ahead of print]

Hughes NM, Noyes J, Eckley L, Pritchard T. What do patients and family-caregivers value from hospice care? A systematic mixed studies review. BMC Palliat Care. 2019 Feb 8;18(1):18. doi: 10.1186/s12904-019-0401-1.

Ingersoll-Dayton B, Kropf N, Campbell R, Parker M. A systematic review of dyadic approaches to reminiscence and life review among older adults. Aging Ment Health. 2019 Sep;23(9):1074-1085. doi: 10.1080/13607863.2018.1555696. Epub 2018 Dec 31.

Kaddour L, Kishita N. Anxiety in Informal Dementia Carers: A Meta-Analysis of Prevalence. J Geriatr Psychiatry Neurol. 2019 Aug 13:891988719868313. doi: 10.1177/0891988719868313. [Epub ahead of print]

Lee M, Ryoo JH, Chung M, Anderson JG, Rose K, Williams IC. Effective interventions for depressive symptoms among caregivers of people with dementia: A systematic review and meta-analysis. Dementia (London). 2019 Jan 12:1471301218822640. doi: 10.1177/1471301218822640. [Epub ahead of print]

Liew TM, Lee CS. Reappraising the Efficacy and Acceptability of Multicomponent Interventions for Caregiver Depression in Dementia: The Utility of Network Meta-Analysis. Gerontologist. 2019 Jul 16;59(4):e380-e392. doi: 10.1093/geront/gny061.

Levoy K, Salani DA, Buck H. A Systematic Review and Gap Analysis of Advance Care Planning Intervention Components and Outcomes Among Cancer Patients Using the Transtheoretical Model of Health Behavior Change. J Pain Symptom Manage. 2019 Jan;57(1):118-139.e6. doi: 10.1016/j.jpainsymman.2018.10.502. Epub 2018 Oct 26.

Lucero RJ, Fehlberg EA, Patel AGM, Bjarnardottir RI, Williams R, Lee K, Ansell M, Bakken S, Luchsinger JA, Mittelman M. The effects of information and communication technologies on informal caregivers of persons living with dementia: A systematic review. Alzheimers Dement (N Y). 2018 Dec 31;5:1-12. doi: 10.1016/j.trci.2018.11.003. eCollection 2019.

Marshall CA, Nalder E, Colquhoun H, Lenton E, Hansen M, Dawson DR, Zabjek K, Bottari C. Interventions to address burden among family caregivers of persons aging with TBI: A scoping review. Brain Inj. 2019;33(3):255-265. doi: 10.1080/02699052.2018.1553308. Epub 2018 Nov 30.

McKibben L, Brazil K, Hudson P, McLaughlin D. Informational needs of family caregivers of people with intellectual disability who require palliative care: a two-phase integrative review of the literature. Int J Palliat Nurs. 2019 Jan 2;25(1):4-18. doi: 10.12968/ijpn.2019.25.1.4.

Moore KJ, Lee CY, Sampson EL, Candy B. Do interventions that include education on dementia progression improve knowledge, mental health and burden of family carers? A systematic review. Dementia (London). 2019 Feb 20:1471301219831530. doi: 10.1177/1471301219831530. [Epub ahead of print]

Noonan MC, Wingham J, Dalal HM, Taylor RS. Involving caregivers in self-management interventions for patients with heart failure and chronic obstructive pulmonary disease. A systematic review and meta-analysis. J Adv Nurs. 2019 Aug 22. doi: 10.1111/jan.14172. [Epub ahead of print]

Pritty B, De Boos D, Moghaddam N. Factors influencing the transition experience of carers for persons with dementia, when the person with dementia moves into residential care: systematic review and meta-synthesis. Aging Ment Health. 2019 Apr 12:1-10. doi: 10.1080/13607863.2019.1602591. [Epub ahead of print]

Qiu D, Hu M, Yu Y, Tang B, Xiao S. Acceptability of psychosocial interventions for dementia caregivers: a systematic review. BMC Psychiatry. 2019 Jan 14;19(1):23. doi: 10.1186/s12888-018-1976-4.

Rice H, Howard R, Huntley J. Professional caregivers' knowledge, beliefs and attitudes about awareness in advanced dementia: a systematic review of qualitative studies. Int Psychogeriatr. 2019 Feb 21:1-11. doi: 10.1017/S1041610218002272. [Epub ahead of print]

Scott D, Hudson P, Charnley K, Payne C, Westcott G. Development of an eHealth information resource for family carers supporting a person receiving palliative care on the island of Ireland. BMC Palliat Care. 2019 Aug 30;18(1):74. doi: 10.1186/s12904-019-0457-y.

Ugalde A, Gaskin CJ, Rankin NM, Schofield P, Boltong A, Aranda S, Chambers S, Krishnasamy M, Livingston PM. A systematic review of cancer caregiver interventions: Appraising the potential for implementation of evidence into practice. Psychooncology. 2019 Feb 4. doi: 10.1002/pon.5018. [Epub ahead of print]

Xu XY, Kwan RYC, Leung AYM. Factors associated with the risk of cardiovascular disease in family caregivers of people with dementia: a systematic review. J Int Med Res. 2019 May 22:300060519845472. doi: 10.1177/0300060519845472. [Epub ahead of print]

2018

Abrahams R, Liu KPY, Bissett M, Fahey P, Cheung KSL, Bye R, Chaudhary K, Chu LW. Effectiveness of interventions for co-residing family caregivers of people with dementia: Systematic review and meta-analysis. Aust Occup Ther J. 2018 Jun;65(3):208-224. doi: 10.1111/1440-1630.12464. Epub 2018 Mar 12.

Al Daken LI, Ahmad MM. The implementation of mindfulness-based interventions and educational interventions to support family caregivers of patients with cancer: A systematic review. Perspect Psychiatr Care. 2018 May 10. doi: 10.1111/ppc.12286. [Epub ahead of print]

Anker-Hansen C, Skovdahl K, McCormack B, Tønnessen S. The third person in the room: The needs of care partners of older people in home care services-A systematic review from a person-centred perspective. J Clin Nurs. 2018 Apr;27(7-8):e1309-e1326. doi: 10.1111/jocn.14205. Epub 2018 Mar 26.

Appleton D, Robertson N, Mitchell L, Lesley R. Our disease: a qualitative meta-synthesis of the experiences of spousal/partner caregivers of people with multiple sclerosis. Scand J Caring Sci. 2018 Aug 24. doi: 10.1111/scs.12601. [Epub ahead of print]

Bosco A, Schneider J, Coleston-Shields DM, Sousa L, Orrell M. Dyadic construction of dementia: meta-ethnography and behaviour-process synthesis. Aging Ment Health. 2018 Mar 15:1-9. doi: 10.1080/13607863.2018.1450836. [Epub ahead of print]

Brooks D, Fielding E, Beattie E, Edwards H, Hines S. Effectiveness of psychosocial interventions on the psychological health and emotional well-being of family carers of people with dementia following residential care placement: a systematic review. JBI Database System Rev Implement Rep. 2018 May;16(5):1240-1268. doi: 10.11124/JBISRIR-2017-003634.

Christie HL, Bartels SL, Boots LMM, Tange HJ, Verhey FJJ. de Vugt ME. A systematic review on the implementation of eHealth interventions for informal caregivers of people with dementia. Internet Interv. 2018 Sept;13:51-9.

Chung A, Collier A, Gott M. Community-led and/or focused initiatives to support family carers within a palliative care context: An integrative review. Palliat Med. 2018 Dec 5:269216318813813. doi: 10.1177/0269216318813813. [Epub ahead of print]

Clarkson P, Hughes J, Roe B, Giebel CM, Jolley D, Poland F, Abendstern M, Chester H, Challis D; Members of the HoSt-D (Home Support in Dementia) Programme Management Group. Systematic review: Effective home support in dementia care, components and impacts - Stage 2, effectiveness of home support interventions. J Adv Nurs. 2018 Mar;74(3):507-527. doi: 10.1111/jan.13460. Epub 2017 Nov 17.

Cresp SJ, Lee SF, Moss C. Substitute decision makers' experiences of making decisions at end of life for older persons with dementia: A systematic review and qualitative meta-synthesis. Dementia (London). 2018 Sep 25:1471301218802127. doi: 10.1177/1471301218802127. [Epub ahead of print]

Cross AJ, Garip G, Sheffield D. The psychosocial impact of caregiving in dementia and quality of life: a systematic review and meta-synthesis of qualitative research. Psychol Health. 2018 Sep 27:1-22. doi: 10.1080/08870446.2018.1496250. [Epub ahead of print]

Cuthbert CA. The Role of Physical Activity in Supporting Health and Wellbeing in Family Caregivers to Cancer Patients. Dissertation abstracts international. B, The sciences and engineering. 2018;78(11-B(E)).

Dalton J, Thomas S, Harden M, Eastwood A, Parker G. Updated meta-review of evidence on support for carers. J Health Serv Res Policy. May 16, 2018, doi: 10.1177/1355819618766559

Del-Pino-Casado R, Frías-Osuna A, Palomino-Moral PA, Ruzafa-Martínez M, Ramos-Morcillo AJ. Social support and subjective burden in caregivers of adults and older adults: A meta-analysis. PLoS One. 2018 Jan 2;13(1):e0189874. doi: 10.1371/journal.pone.0189874. eCollection 2018.

de Wit J, Bakker LA, van Groenestijn AC, van den Berg LH, Schroder CD, Visser-Meily JM, Beelen A. Caregiver burden in amyotrophic lateral sclerosis: A systematic review. Palliat Med. 2018;32(1):231-45. doi: 10.1177/0269216317709965. Epub 2017 Jul 3.​

Dow J, Robinson J, Robalino S, Finch T, McColl E, Robinson L. How best to assess quality of life in informal carers of people with dementia; A systematic review of existing outcome measures. PLoS One. 2018 Mar 14;13(3):e0193398. doi: 10.1371/journal.pone.0193398. eCollection 2018.

Edwards HB, Ijaz S, Whiting PF, Leach V, Richards A, Cullum SJ, Cheston RI, Savović J. Quality of family relationships and outcomes of dementia: a systematic review. BMJ Open. 2018 Jan 21;8(1):e015538. doi: 10.1136/bmjopen-2016-015538.

Egan KJ, Pinto-Bruno ÁC, Bighelli I, Berg-Weger M, van Straten A, Albanese E, Pot AM. Online Training and Support Programs Designed to Improve Mental Health and Reduce Burden Among Caregivers of People With Dementia: A Systematic Review. J Am Med Dir Assoc. 2018 Mar;19(3):200-206.e1. doi: 10.1016/j.jamda.2017.10.023. Epub 2018 Jan 4.

Egilstrod B, Ravn MB, Petersen KS. Living with a partner with dementia: a systematic review and thematic synthesis of spouses' lived experiences of changes in their everyday lives. 2018 Feb 6:1-10. doi: 10.1080/13607863.2018.1433634. [Epub ahead of print]

Geng HM, Chuang DM, Yang F, Yang Y, Liu WM, Liu LH, Tian HM. Prevalence and determinants of depression in caregivers of cancer patients: A systematic review and meta-analysis. Medicine (Baltimore). 2018 Sep;97(39):e11863. doi: 10.1097/MD.0000000000011863.

Grant JS, Graven LJ. Problems experienced by informal caregivers of individuals with heart failure: An integrative review. Int J Nurs Stud. 2018 Apr;80:41-66. doi: 10.1016/j.ijnurstu.2017.12.016. Epub 2018 Jan 2.

Greenwood N, Mezey G, Smith R. Social exclusion in adult informal carers: A systematic narrative review of the experiences of informal carers of people with dementia and mental illness. Maturitas. 2018 Jun;112:39-45. doi: 10.1016/j.maturitas.2018.03.011. Epub 2018 Mar 29.

Hoang VL, Green T, Bonner A. Informal caregivers' experiences of caring for people receiving dialysis: A mixed-methods systematic review. J Ren Care. 2018 Jun;44(2):82-95. doi: 10.1111/jorc.12235. Epub 2018 Jan 22.

Hokanson L, Quinn MG, Schüz N, de Salas K, Scott J. A systematic review of Indigenous caregiver functioning and interventions. Qual Life Res. 2018 Aug;27(8):2007-2017. doi: 10.1007/s11136-018-1836-1. Epub 2018 Mar 21.

Hopwood J, Walker N, McDonagh L, Rait G, Walters K, Iliffe S, Ross J, Davies N. Internet-Based Interventions Aimed at Supporting Family Caregivers of People With Dementia: Systematic Review. J Med Internet Res. 2018 Jun 12;20(6):e216. doi: 10.2196/jmir.9548.

Hossain M, Crossland J, Stores R, Dewey A, Hakak Y. Awareness and understanding of dementia in South Asians: A synthesis of qualitative evidence. Dementia (London). 2018 Oct 8:1471301218800641. doi: 10.1177/1471301218800641. [Epub ahead of print]

Kaddour L, Kishita N, Schaller A. A meta-analysis of low-intensity cognitive behavioral therapy-based interventions for dementia caregivers. Int Psychogeriatr. 2018 Nov 12:1-16. doi: 10.1017/S1041610218001436. [Epub ahead of print]

Kim Y, Mitchell HR, Ting A. Application of psychological theories on the role of gender in caregiving to psycho-oncology research. Psychooncology. 2018 Nov 28. doi: 10.1002/pon.4953. [Epub ahead of print]

Kishita N, Hammond L, Dietrich CM, Mioshi E. Which interventions work for dementia family carers?: an updated systematic review of randomized controlled trials of carer interventions. Int Psychogeriatr. 2018 Jul 18:1-18. doi: 10.1017/S1041610218000947. [Epub ahead of print]

Klimova B, Valis M, Kuca K. Exploring assistive technology as a potential beneficial intervention tool for people with Alzheimer's disease - a systematic review. Neuropsychiatr Dis Treat. 2018 Nov 16;14:3151-3158. doi: 10.2147/NDT.S181849. eCollection 2018.

Lalani N, Duggleby W, Olson J. Spirituality among family caregivers in palliative care: an integrative literature review. Int J Palliat Nurs. 2018 Feb 2;24(2):80-91. doi: 10.12968/ijpn.2018.24.2.80.

Leocadie MC, Roy MH, Rothan-Tondeur M. Barriers and enablers in the use of respite interventions by caregivers of people with dementia: An integrative review. Arch Public Health. 2018 Nov 22;76:72. doi: 10.1186/s13690-018-0316-y. eCollection 2018.

Low JTS, Rohde G, Pittordou K, Candy B, Davis S, Marshall A, Stone P. Supportive and palliative care in people with cirrhosis: International systematic review of the perspective of patients, family members and health professionals. J Hepatol. 2018 Dec;69(6):1260-1273. doi: 10.1016/j.jhep.2018.08.028. Epub 2018 Sep 20.

​Ma M, Dorstyn D, Ward L, Prentice S. Alzheimers’ disease and caregiving: a meta-analytic review comparing the mental health of primary carers to controls. Aging Ment Health. 2018 Nov;22(11):1395-1405. doi: 10.1080/13607863.2017.1370689. Epub 2017 Sep 5.

Marzorati C, Renzi C, Russell-Edu SW, Pravettoni G. Telemedicine Use Among Caregivers of Cancer Patients: Systematic Review. J Med Internet Res. 2018 Jun 18;20(6):e223. doi: 10.2196/jmir.9812.

Monteiro AMF, Santos RL, Kimura N, Baptista MAT, Dourado MCN. Coping strategies among caregivers of people with Alzheimer disease: a systematic review. Trends Psychiatry Psychother. 2018 Jul-Sep;40(3):258-268. doi: 10.1590/2237-6089-2017-0065.

Morris L, Horne M, McEvoy P, Williamson T. Communication training interventions for family and professional carers of people living with dementia: a systematic review of effectiveness, acceptability and conceptual basis. Aging Ment Health. 2018 Jul;22(7):863-880. doi: 10.1080/13607863.2017.1399343. Epub 2017 Nov 10.

Nguyen H, Terry D, Phan H, Vickers J, McInerney F. Communication training and its effects on carer and care-receiver outcomes in dementia settings: A systematic review. J Clin Nurs. 2018 Oct 24. doi: 10.1111/jocn.14697. [Epub ahead of print]

Nickel F, Barth J, Kolominsky-Rabas PL. Health economic evaluations of non-pharmacological interventions for persons with dementia and their informal caregivers: a systematic review. BMC Geriatr. 2018 Mar 9;18(1):69. doi: 10.1186/s12877-018-0751-1.

Noonan MC, Wingham J, Taylor RS. 'Who Cares?' The experiences of caregivers of adults living with heart failure, chronic obstructive pulmonary disease and coronary artery disease: a mixed methods systematic review. BMJ Open. 2018 Jul 11;8(7):e020927. doi: 10.1136/bmjopen-2017-020927.

Nybakken S, Strandås M, Bondas T. Caregivers' perceptions of aggressive behaviour in nursing home residents living with dementia: A meta-ethnography. J Adv Nurs. 2018 Jul 17. doi: 10.1111/jan.13807. [Epub ahead of print]

Parekh R, Praetorius RT, Nordberg A. Carers’ Experiences in Families Impacted by Huntington’s Disease: A Qualitative Interpretive Meta-Synthesis. Br J Soc Work. 2018 Apr;48(3):675-92.

Piil K, Nordentoft S, Larsen A, Jarden M. Bereaved caregivers of patients with high-grade glioma: a systematic review. BMJ Support Palliat Care. 2018 Jan 23. pii: bmjspcare-2017-001386. doi: 10.1136/bmjspcare-2017-001386. [Epub ahead of print]

Pinquart M. Parenting stress in caregivers of children with chronic physical condition—A meta‐analysis. Stress Health. 2018 Apr;34(2):197-207. doi: 10.1002/smi.2780. Epub 2017 Aug 18.

Poyser CA, Tickle A. Exploring the experience of the disclosure of a dementia diagnosis from a clinician, patient and carer perspective: a systematic review and Meta-ethnographic synthesis. Aging Ment Health. 2018 Nov 15:1-11. doi: 10.1080/13607863.2018.1506747. [Epub ahead of print]

Quinn C, Toms G. Influence of Positive Aspects of Dementia Caregiving on Caregivers' Well-Being: A Systematic Review. Gerontologist. 2018 Dec 28. doi: 10.1093/geront/gny168. [Epub ahead of print]

Ruggiano N, Brown EL, Li J, Scaccianoce M. Rural Dementia Caregivers and Technology: What Is the Evidence? Res Gerontol Nurs. 2018 Jul 1;11(4):216-224. doi: 10.3928/19404921-20180628-04.

Sellars M, Chung O, Nolte L, Tong A, Pond D, Fetherstonhaugh D, McInerney F, Sinclair C, Detering KM. Perspectives of people with dementia and carers on advance care planning and end-of-life care: A systematic review and thematic synthesis of qualitative studies. Palliat Med. 2018 Nov 8:269216318809571. doi: 10.1177/0269216318809571. [Epub ahead of print]

Shea EO, Timmons S, Shea EO, Fox S, Irving K. Key stakeholders' experiences of respite services for people with dementia and their perspectives on respite service development: a qualitative systematic review. BMC Geriatr. 2017 Dec 7;17(1):282. doi: 10.1186/s12877-017-0676-0.

Sherifali D, Ali MU, Ploeg J, Markle-Reid M, Valaitis R, Bartholomew A, Fitzpatrick-Lewis D, McAiney C. Impact of Internet-Based Interventions on Caregiver Mental Health: Systematic Review and Meta-Analysis. J Med Internet Res. 2018 Jul 3;20(7):e10668. doi: 10.2196/10668.

Sin J, Henderson C, Spain D, Cornelius V, Chen T, Gillard S. eHealth interventions for family carers of people with long term illness: A promising approach? Clin Psychol Rev. 2018 Mar;60:109-125. doi: 10.1016/j.cpr.2018.01.008. Epub 2018 Feb 2.

Stansfeld J, Crellin N, Orrell M, Wenborn J, Charlesworth G, Vernooij-Dassen M. Factors related to sense of competence in family caregivers of people living with dementia in the community: a narrative synthesis. Int Psychogeriatr. 2018 Nov 23:1-15. doi: 10.1017/S1041610218001394. [Epub ahead of print]

Teahan Á, Lafferty A, McAuliffe E, Phelan A, O'Sullivan L, O'Shea D, Fealy G. Resilience in family caregiving for people with dementia: A systematic review. Int J Geriatr Psychiatry. 2018 Sep 19. doi: 10.1002/gps.4972. [Epub ahead of print]

Ullgren H, Tsitsi T, Papastavrou E, Charalambous A. How family caregivers of cancer patients manage symptoms at home: A systematic review. Int J Nurs Stud. 2018 May 29;85:68-79. doi: 10.1016/j.ijnurstu.2018.05.004. [Epub ahead of print]

Voutilainen A, Ruokostenpohja N, Välimäki T. Associations Across Caregiver and Care Recipient Symptoms: Self-Organizing Map and Meta-analysis. Gerontologist. 2018 Mar 19;58(2):e138-e149. doi: 10.1093/geront/gnw251.

Waligora KJ, Bahouth MN, Han HR. The Self-Care Needs and Behaviors of Dementia Informal Caregivers: A Systematic Review. Gerontologist. 2018 Jun 21. doi: 10.1093/geront/gny076. [Epub ahead of print]

Wang T, Molassiotis A, Chung BPM, Tan JY. Unmet care needs of advanced cancer patients and their informal caregivers: a systematic review. BMC Palliat Care. 2018 Jul 23;17(1):96. doi: 10.1186/s12904-018-0346-9.

Wilson E, Caswell G, Turner N, Pollock K. Managing medicines for patients dying at home: A review of family caregivers' experiences. J Pain Symptom Manage. 2018 Sep 11. pii: S0885-3924(18)30449-4. doi: 10.1016/j.jpainsymman.2018.08.019. [Epub ahead of print]

Wu B, Petrovsky DV, Wang J, Xu H, Zhu Z, Mcconnell ES, Corrazzini KN. Dementia Caregiver Interventions in Chinese Population: A Systematic Review. J Adv Nurs. 2018 Sep 27. doi: 10.1111/jan.13865. [Epub ahead of print]

Ying J, Wang Y, Zhang M, Wang S, Shi Y, Li H, Li Y, Xing Z, Sun J. Effect of multi-component interventions on competence of family caregivers of people with dementia: a systematic review. J Clin Nurs. 2018 Mar 1. doi: 10.1111/jocn.14326. [Epub ahead of print]

Zhu W, Jiang Y. A Meta-analytic Study of Predictors for Informal Caregiver Burden in Patients With Stroke. J Stroke Cerebrovasc Dis. 2018 Sep 26. pii: S1052-3057(18)30492-0. doi: 10.1016/j.jstrokecerebrovasdis.2018.08.037. [Epub ahead of print]

2017

Arruda EH, Paun O. Dementia Caregiver Grief and Bereavement: An Integrative Review. West J Nurs Res. 2017 Jun;39(6):825-851. Epub 2016 Jul 13.

Chi NC, Demiris G. Family Caregivers' Pain Management in End-of-Life Care: A Systematic Review. Am J Hosp Palliat Care. 2017 Jun;34(5):470-485. Epub 2016 Mar 14.

Duggleby W, Tycholiz J, Holtslander L, Hudson P, Nekolaichuk C, Mirhosseini M, Parmar J, Chambers T, Alook A, Swindle J. A metasynthesis study of family caregivers' transition experiences caring for community-dwelling persons with advanced cancer at the end of life. Palliat Med. 2017 Jul;31(7):602-616. doi: 10.1177/0269216316673548. Epub 2016 Oct 25.

Finucane AM, Lugton J, Kennedy C, Spiller JA. The experiences of caregivers of patients with delirium, and their role in its management in palliative care settings: an integrative literature review. Psychooncology. 2017 Mar;26(3):291-300. Epub 2016 May 1.

Fu F, Zhao H, Tong F, Chi I. A systematic review of psychosocial interventions to cancer caregivers. Front Psychol. 2017 May 23;8:834. doi: 10.3389/fpsyg.2017.00834. eCollection 2017.

Ge L, Mordiffi SZ. Factors associated with higher caregiver burden among family caregivers of elderly cancer patients: A systematic review. Cancer Nurs. 2017 Nov/Dec;40(6):471-478. doi: 10.1097/NCC.0000000000000445.

Große J, Treml J, Kersting A. Impact of caregiver burden on mental health in bereaved caregivers of cancer patients: A systematic review. Psychooncology. 2017 Aug 14. doi: 10.1002/pon.4529. [Epub ahead of print]

Holtslander L, Baxter S, Mills K, Bocking S, Dadgostari T, Duggleby W, Duncan V, Hudson P, Ogunkorode A, Peacock S. Honoring the voices of bereaved caregivers: A Metasummary of qualitative research. BMC Palliat Care. 2017 Sep 6;16(1):48. doi: 10.1186/s12904-017-0231-y.

Larkin M, Milne A. What do we know about older former carers? Key issues and themes. Health Soc Care Community. 2017 Jul;25(4):1396-1403. doi: 10.1111/hsc.12437. Epub 2017 Feb 22.

Maltby KF, Sanderson CR, Lobb EA, Phillips JL. Sleep disturbances in caregivers of patients with advanced cancer: A systematic review. Palliat Support Care. 2017 Feb;15(1):125-140.Epub 2017 Jan 18.

Mansfield E, Boyes AW, Bryant J, Sanson-Fisher R. Quantifying the unmet needs of caregivers of people with dementia: a critical review of the quality of measures. Int J Geriatr Psychiatry. 2017 Mar;32(3):274-287. Epub 2016 Dec 16.

Mathews G, Johnston B. Palliative and end-of-life care for adults with advanced chronic obstructive pulmonary disease: a rapid review focusing on patient and family caregiver perspectives. Curr Opin Support Palliat Care. 2017 Dec;11(4):315-327. doi: 10.1097/SPC.0000000000000303.

Nicholas Dionne-Odom J, Hooker SA, Bekelman D, Ejem D, McGhan G, Kitko L, Strömberg A, Wells R, Astin M, Metin ZG, Mancarella G, Pamboukian SV, Evangelista L, Buck HG, Bakitas MA; IMPACT-HF National Workgroup. Family caregiving for persons with heart failure at the intersection of heart failure and palliative care: a state-of-the-science review. Heart Fail Rev. 2017 Feb 4. doi: 10.1007/s10741-017-9597-4. [Epub ahead of print]

Oh J, Kim JA. Supportive care needs of patients with amyotrophic lateral sclerosis/motor neuron disease and their caregivers: A scoping review. J Clin Nurs. 2017 Dec;26(23-24):4129-4152. doi: 10.1111/jocn.13945. Epub 2017 Aug 31.

O'Toole  MS, Zachariae R, Renna ME, Mennin DS, Applebaum A. Cognitive behavioral therapies for informal caregivers of patients with cancer and cancer survivors: A systematic review and meta-analysis. Psychooncology. 2017 Apr;26(4):428-437. doi: 10.1002/pon.4144. Epub 2016 May 5.

Rainsford S, MacLeod RD, Glasgow NJ, Phillips CB, Wiles RB, Wilson DM. Rural end-of-life care from the experiences and perspectives of patients and family caregivers: A systematic literature review. Palliat Med. 2017 Dec;31(10):895-912. doi: 10.1177/0269216316685234. Epub 2017 Jan 20.

Roydhouse JK, Wilson IB. Systematic review of caregiver responses for patient health-related quality of life in adult cancer care. Qual Life Res. 2017 Aug;26(8):1925-1954. doi: 10.1007/s11136-017-1540-6. Epub 2017 Mar 14.

Sutanto LL, Ying FM, Agarwal A, Lam M, Chow E, Henry BA. A scoping review of psychosocial interventions for informal caregivers of palliative cancer patients. J Pain Manage. 2017;10(1):23-30.

Tanco K, Park JC, Cerana A, Sisson A, Sobti N, Bruera E. A systematic review of instruments assessing dimensions of distress among caregivers of adult and pediatric cancer patients. Palliat Support Care. 2017 Feb;15(1):110-124. Epub 2016 Mar 29.

Thomas T, Kuhn I, Barclay S. Inpatient transfer to a care home for end-of-life care: What are the views and experiences of patients and their relatives? A systematic review and narrative synthesis of the UK literature. Palliat Med. 2017 Feb;31(2):102-108. Epub 2016 Jul 28.

Wilson S, Toye C, Aoun S, Slatyer S, Moyle W, Beattie E. Effectiveness of psychosocial interventions in reducing grief experienced by family carers of people with dementia: a systematic review. JBI Database System Rev Implement Rep. 2017 Mar;15(3):809-839.

2016

Applebaum AJ, Kryza-Lacombe M, Buthorn J, DeRosa A, Corner G, Diamond EL. Presurgical assessment of cognitive function in pediatric brain tumor patients: feasibility and initial findings. Neurooncol Pract. 2016 Dec;3(4):232-244.

Bergin S, Mockford C. Recommendations to support informal carers of people living with motor neurone disease. Br J Community Nurs. 2016 Oct 2;21(10):518-524.

Bull MJ, Boaz L, Jermé M. Educating Family Caregivers for Older Adults About Delirium: A Systematic Review. Worldviews Evid Based Nurs. 2016 Jun;13(3):232-40. Epub 2016 Mar 10.

Chi NC, Demiris G. Family caregivers' pain management in end-of-life care: A systematic review. Am J Hosp Palliat Care. 2017 Jun;34(5):470-485. doi: 10.1177/1049909116637359. Epub 2016 Mar 14.

Chi NC, Demiris G, Lewis FM, Walker AJ, Langer SL. Behavioral and Educational Interventions to Support Family Caregivers in End-of-Life Care: A Systematic Review. Am J Hosp Palliat Care. 2016 Nov;33(9):894-908. Epub 2015 Jul 7.

Dharmawardene M, Givens J, Wachholtz A, Makowski S, Tjia J. A systematic review and meta-analysis of meditative interventions for informal caregivers and health professionals. BMJ Support Palliat Care. 2016 Jun;6(2):160-9. doi: 10.1136/bmjspcare-2014-000819. Epub 2015 Mar 26.

Doherty LC, Fitzsimons D, McIlfatrick SJ. Carers' needs in advanced heart failure: A systematic narrative review. Eur J Cardiovasc Nurs. 2016 Jun;15(4):203-12. doi: Epub 2015 Apr 28.

Feast A, Orrell M, Charlesworth G, Melunsky N, Poland F, Moniz-Cook E. Behavioural and psychological symptoms in dementia and the challenges for family carers: systematic review. Br J Psychiatry. 2016 May;208(5):429-34. Epub 2016 Mar 17.

Gardiner C, Brereton L, Frey R, Wilkinson-Meyers L, Gott M. Approaches to capturing the financial cost of family care-giving within a palliative care context: a systematic review. Health Soc Care Community. 2016 Sep;24(5):519-31. Epub 2015 Jun 22.

Jaffray L. Bridgman H. Stephens M. Skinner T. Evaluating the effects of mindfulness-based interventions for informal palliative caregivers: A systematic literature review. Palliat Med. 2016 Feb;30(2):117-31. doi: 10.1177/0269216315600331. Epub 2015 Aug 17.

Kavalieratos D, Corbelli J, Zhang D, Dionne-Odom JN, Ernecoff NC, Hanmer J, Hoydich ZP, Ikejiani DZ, Klein-Fedyshin M, Zimmermann C, Morton SC, Arnold RM, Heller L, Schenker Y. Association Between Palliative Care and Patient and Caregiver Outcomes: A Systematic Review and Meta-analysis. JAMA. 2016 Nov 22;316(20):2104-2114.

Latter S, Hopkinson JB, Richardson A, Hughes JA, Lowson E, Edwards D. How can we help family carers manage pain medicines for patients with advanced cancer? A systematic review of intervention studies. BMJ Support Palliat Care. 2016 Sep;6(3):263-75. Epub 2016 May 5.

Martín JM, Olano-Lizarraga M, Saracíbar-Razquin M. The experience of family caregivers caring for a terminal patient at home: A research review. Int J Nurs Stud. 2016 Dec;64:1-12. Epub 2016 Sep 14.

Michels CT, Boulton M, Adams A, Wee B, Peters M. Psychometric properties of carer-reported outcome measures in palliative care: A systematic review. Palliat Med. 2016 Jan;30(1):23-44. Epub 2015 Sep 25.

Morgan T, Ann Williams L, Trussardi G, Gott M. Gender and family caregiving at the end-of-life in the context of old age: A systematic review. Palliat Med. 2016 Epub 2016 Jan 26.

Petricone-Westwood D, Lebel S. Being a caregiver to patients with ovarian cancer: A scoping review of the literature. Gynecol Oncol. 2016 Oct;143(1):184-92. Epub 2016 Jul 25.

Piil K, Juhler M, Jakobsen J, Jarden M. Controlled rehabilitative and supportive care intervention trials in patients with high-grade gliomas and their caregivers: a systematic review. BMJ Support Palliat Care. 2016 Mar;6(1):27-34. Epub 2014 Jun 2.

Pozzebon M, Douglas J, Ames D. Spouses' experience of living with a partner diagnosed with a dementia: a synthesis of the qualitative research. Int Psychogeriatr. 2016 Apr;28(4):537-56. Epub 2016 Jan 11.

Slev VN, Mistiaen P, Pasman HR, Verdonck-de Leeuw IM, van Uden-Kraan CF, Francke AL. Effects of eHealth for patients and informal caregivers confronted with cancer: A meta-review. Int J Med Inform. 2016 Mar;87:54-67. Epub 2015 Dec 24.

Ussher Jane Maria, Perz, Janette, Hawkins Yasmin. Evaluating the efficacy of psycho-social interventions for informal carers of cancer patients: A systematic review of the research literature. Health Psychology Review. 2016 Mar;3(1):85-107. [No abstract available]

Wheelwright S, Darlington AS, Hopkinson JB, Fitzsimmons D, Johnson C. A systematic review and thematic synthesis of quality of life in the informal carers of cancer patients with cachexia. Palliat Med. 2016 Feb;30(2):149-60. doi: 10.1177/0269216315588743. Epub 2015 May 29.

Zheng Y, Head BA, Schapmire TJ. A Systematic Review of Telehealth in Palliative Care: Caregiver Outcomes. Telemed J E Health. 2016 Apr;22(4):288-94. Epub 2015 Sep 11.

2015

Chi NC, Demiris G. A systematic review of telehealth tools and interventions to support family caregivers. J Telemed Telecare. 2015 Jan;21(1):37-44. Epub 2014 Dec 4.

Dharmawardene M, Givens J, Wachholtz A, Makowski S, Tjia J. A systematic review and meta-analysis of meditative interventions for informal caregivers and health professionals. BMJ Support Palliat Care. 2015 Mar 26. pii: bmjspcare-2014-000819.

Griffin JM, Meis LA, Greer N, MacDonald R, Jensen A, Rutks I, Carlyle M, Wilt TJ. Effectiveness of Caregiver Interventions on Patient Outcomes in Adults With Dementia or Alzheimer's Disease: A Systematic Review. Gerontol Geriatr Med. 2015 Jul 21;1:2333721415595789. doi: 10.1177/2333721415595789. eCollection 2015 Jan-Dec.

Kaltenbaugh DJ, Klem ML, Hu L, Turi E, Haines AJ, Hagerty Lingler J. Using web-based interventions to support caregivers of patients with cancer: a systematic review. Oncol Nurs Forum. 2015 Mar 1;42(2):156-64.

Lendon JP, Ahluwalia SC, Walling AM, Lorenz KA, Oluwatola OA, Anhang Price R, Quigley D, Teno JM. Measuring Experience With End-of-Life Care: A Systematic Literature Review. J Pain Symptom Manage. 2015 May;49(5):904-15.e1-3.

Morris SM, King C, Turner M, Payne S. Family carers providing support to a person dying in the home setting: A narrative literature review. Palliat Med. 2015 Jun;29(6):487-495. Epub 2015 Jan 29.

Reed M,Harding K. Do Family Meetings Improve Measurable Outcomes for Patients, Carers, or Health Systems? A Systematic Review. Australian Social Work. 2015;68(2):244-258. [No abstract available]

Woodman C, Baillie J, Sivell S. The preferences and perspectives of family caregivers towards place of care for their relatives at the end-of-life. A systematic review and thematic synthesis of the qualitative evidence. BMJ Support Palliat Care. 2015 May 19. pii: bmjspcare-2014-000794.[Epub ahead of print]

2014

Coad J, Patel R, Murray S. Disclosing terminal diagnosis to children and their families: palliative professionals' communication barriers. Death Stud. 2014 May-Jun;38(5):302-7. Epub 2013 Sep 17.

Davies N, Maio L, Rait G, Iliffe S. Quality end-of-life care for dementia: What have family carers told us so far? A narrative synthesis. Palliat Med. 2014 Mar 13;28(7):919-930. [Epub ahead of print]

Griffin JM, Meis LA, MacDonald R, Greer N, Jensen A, Rutks I, Wilt TJ. Effectiveness of family and caregiver interventions on patient outcomes in adults with cancer: a systematic review. J Gen Intern Med. 2014 Sep;29(9):1274-82.Epub 2014 May 20.

Pottie CG, Burch KA, Thomas LP, Irwin SA. Informal caregiving of hospice patients. J Palliat Med. 2014 Jul;17(7):845-56.

Reigada C, Pais-Ribeiro JL, Novellas A. Educational programs for family caregivers in palliative care: A literature review. J Palliat Care Med. 2014;4:195. [No abstract available]

Stenberg U, Ekstedt M, Olsson M, Ruland CM. Living close to a person with cancer: a review of the international literature and implications for social work practice. J Gerontol Soc Work. 2014;57(6-7):531-55. Epub 2014 Jul 29.

Tong A, Cheung KL, Nair SS, Kurella Tamura M, Craig JC, Winkelmayer WC. Thematic synthesis of qualitative studies on patient and caregiver perspectives on end-of-life care in CKD.  Am J Kidney Dis. 2014 Jun;63(6):913-27.Epub 2014 Jan 7.

Ventura AD, Burney S, Brooker J, Fletcher J, Ricciardelli L. Home-based palliative care: a systematic literature review of the self-reported unmet needs of patients and carers. Palliat Med. 2014 May;28(5):391-402. Epub 2013 Nov 29.

Wittenberg-Lyles E, Parker Oliver D, Demiris G, Swarz J, Rendo M. YouTube as a tool for pain management with informal caregivers of cancer patients: a systematic review. J Pain Symptom Manage. 2014 Dec;48(6):1200-10. doi: 10.1016/j.jpainsymman.2014.02.015. Epub 2014 Apr 30.

2013

Applebaum AJ, Breitbart W. Care for the cancer caregiver: a systematic review. Palliat Support Care. 2013 Jun;11(3):231-52. Epub 2012 Oct 10.

Aoun SM, Bentley B, Funk L, Toye C, Grande G, Stajduhar KJ. A 10-year literature review of family caregiving for motor neurone disease: moving from caregiver burden studies to palliative care interventions. Palliat Med. 2013 May;27(5):437-46. Epub 2012 Aug 20.

Chan D, Livingston G, Jones L, Sampson EL. Grief reactions in dementia carers: a systematic review. Int J Geriatr Psychiatry. 2013 Jan;28(1):1-17. doi: 10.1002/gps.3795. Epub 2012 Mar 8.

Dikkers MF, Dunning T, Savage S. Information needs of family carers of people with diabetes at the end of life: a literature review. J Palliat Med. 2013 Dec;16(12):1617-23. Epub 2013 Nov 12.

Moore G, Collins A, Brand C, Gold M, Lethborg C, Murphy M, Sundararajan V, Philip J. Palliative and supportive care needs of patients with high-grade glioma and their carers: a systematic review of qualitative literature. Patient Educ Couns. 2013 May;91(2):141-53.

Parker Oliver D, Albright DL, Washington K, Wittenberg-Lyles E, Gage A, Mooney M, Demiris G. Hospice caregiver depression: the evidence surrounding the greatest pain of all. J Soc Work End Life Palliat Care. 2013;9(4):256-71.

Peacock SC. The experience of providing end-of-life care to a relative with advanced dementia: an integrative literature review. Palliat Support Care. 2013 Apr;11(2):155-68. Epub 2012 Oct 23.

Sterckx W, Coolbrandt A, Dierckx de Casterlé B, Van den Heede K, Decruyenaere M, Borgenon S, Mees A, Clement P. The impact of a high-grade glioma on everyday life: a systematic review from the patient's and caregiver's perspective. Eur J Oncol Nurs. 2013 Feb;17(1):107-17. Epub 2012 May 31

Whittingham K, Barnes S, Gardiner C. Tools to measure quality of life and carer burden in informal carers of heart failure patients:A narrative review. Palliat Med. 2013 Jul;27(7):596-607. Epub 2013 Feb 26

2012

Harding R, List S, Epiphaniou E, Jones H. How can informal caregivers in cancer and palliative care be supported? An updated systematic literature review of interventions and their effectiveness. Palliat Med. 2012 Jan;26(1):7-22. Epub 2011 Jul 7.

Hopkinson JB, Brown JC, Okamoto I, Addington-Hall JM. The effectiveness of patient-family carer (couple) intervention for the management of symptoms and other health-related problems in people affected by cancer: a systematic literature search and narrative review. J Pain Symptom Manage. 2012 Jan;43(1):111-42.

Melin-Johansson C, Henoch I, Strang S, Browall M. Living in the presence of death: an integrative literature review of relatives' important existential concerns when caring for a severely ill family member. Open Nurs J. 2012;6:1-12. Epub 2012 Feb 10.

2011

Candy B, Jones L, Drake R, Leurent B, King M. Interventions for supporting informal caregivers of patients in the terminal phase of a disease. Cochrane Database Syst Rev. 2011 Jun 15;6:CD007617. doi: 10.1002/14651858.CD007617.pub2.

Kang X, Li Z, Nolan MT. Informal caregivers' experiences of caring for patients with chronic heart failure: systematic review and metasynthesis of qualitative studies. J Cardiovasc Nurs. 2011 Sep-Oct;26(5):386-94.

Meeker MA, Finnell D, Othman AK. Family caregivers and cancer pain management: a review. J Fam Nurs. 2011 Feb;17(1):29-60.

Remedios C, Thomas K, Hudson P. Psychosocial and bereavement support for family caregivers of palliative care patients: A review of the empirical literature. Melbourne: Centre for Palliative Care; 2011 Jan. 71p. (896kb pdf)

Schildmann EK, Higginson IJ. Evaluating psycho-educational interventions for informal carers of patients receiving cancer care or palliative care: Strengths and limitations of different study designs. Palliat Med. 2011 Jun;25(4):345-56. Epub 2011 Jan 12.

Washington KT, Meadows SE, Elliott SG, Koopman RJ. Information needs of informal caregivers of older adults with chronic health conditions. Patient Educ Couns. 2011 Apr;83(1):37-44. Epub 2010 May 7.

Williams AL, McCorkle R. Cancer family caregivers during the palliative, hospice, and bereavement phases: a review of the descriptive psychosocial literature. Palliat Support Care. 2011 Sep;9(3):315-25.

2010

Funk L, Stajduhar K, Toye C, Aoun S, Grande G, Todd C. Part 2: Home-based family caregiving at the end of life: a comprehensive review of published qualitative research (1998-2008). Palliat Med. 2010 Sep;24(6):594-607. Epub 2010 Jun 24.

Hennings J, Froggatt K, Keady J. Approaching the end of life and dying with dementia in care homes: the accounts of families. Rev Clin Geront 2010;20(2):114-27.

Hudson PL, Trauer T, Graham S, Grande G, Ewing G, Payne S, Stajduhar KI, Thomas K. A systematic review of instruments related to family caregivers of palliative care patients. Palliat Med. 2010 Oct;24(7):656-68. Epub 2010 Jul 6.

Hudson PL, Remedios C, Thomas K. A systematic review of psychosocial interventions for family carers of palliative care patients. BMC Palliat Care. 2010 Aug 5;9:17. (200kb pdf)

Northfield S, Nebauer M. The caregiving journey for family members of relatives with cancer: how do they cope? Clin J Oncol Nurs. 2010 Oct 1;14(5):567-77.

Northouse LL, Katapodi MC, Song L, Zhang L, Mood DW. Interventions with family caregivers of cancer patients: meta-analysis of randomized trials. CA Cancer J Clin. 2010 Sep-Oct;60(5):317-39. Epub 2010 Aug 13.

Stajduhar K, Funk L, Toye C, Grande G, Aoun S, Todd C. Part 1: Home-based family caregiving at the end of life: a comprehensive review of published quantitative research (1998-2008). Palliat Med. 2010 Sep;24(6):573-93. Epub 2010 Jun 18.

Stenberg U, Ruland CM, Miaskowski C. Review of the literature on the effects of caring for a patient with cancer. Psychooncology. 2010 Oct;19(10):1013-25.

2009

Bee PE, Barnes P, Luker KA. A systematic review of informal caregivers' needs in providing home-based end-of-life care to people with cancer. J Clin Nurs. 2009 May;18(10):1379-93. Epub 2009 Apr 8.

Boyle AH. An integrative review of the impact of COPD on families (147kb pdf). South Online J Nurs Res. 2009;9(3):6pp.

Caress AL, Chalmers K, Luker K. A narrative review of interventions to support family carers who provide physical care to family members with cancer. Int J Nurs Stud. 2009 Nov;46(11):1516-27. Epub 2009 Apr 28.

Caress AL, Luker KA, Chalmers KI, Salmon MP. A review of the information and support needs of family carers of patients with chronic obstructive pulmonary disease. J Clin Nurs. 2009 Feb;18(4):479-91.

Corry M, While A. The needs of carers of people with multiple sclerosis: a literature review. Scand J Caring Sci. 2009 Sep;23(3):569-88.

Goins RT, Spencer SM, Byrd JC. Research on rural caregiving. J Appl Gerontol. 2009 Apr;28(2):139-70.

Whalen KJ, Buchholz SW. The reliability, validity and feasibility of tools used to screen for caregiver burden: a systematic review. JBI Libr Syst Rev. 2009;7(32):1372-1429.

2008

Anderson A, Kralik D. Palliative care at home: nurses, carers and subcutaneous medication management: 2006-2008. RDNS Research Unit. Adelaide. 2008 Apr. No abstract available.

Convey V, Ede J, Sealey T. How are the carers being cared for? a review of the literature. Eur J Palliat Care. 2008;15(4):182-5.

Docherty A, Owens A, Asadi-Lari M, Petchey R, Williams J, Carter YH. Knowledge and information needs of informal caregivers in palliative care: a qualitative systematic review. Palliat Med. 2008 Mar;22(2):153-71.

Honea NJ, Brintnall R, Given B, Sherwood P, Colao DB, Somers SC, Northouse LL. Putting Evidence into Practice: nursing assessment and interventions to reduce family caregiver strain and burden. Clin J Oncol Nurs. 2008 Jun;12(3):507-16.

Kim Y, Given BA. Quality of life of family caregivers of cancer survivors: across the trajectory of the illness. Cancer. 2008 Jun 1;112(11 Suppl):2556-68.

Lowey, Susan E. Communication between the nurse and family caregiver in End-of-Life care: a review of the literature. J Hosp Palliat Nurs. 2008 Jan-Feb;10(1):35-45.

van der Meulen N, Jansen J, van Dulmen S, Bensing J, van Weert J. Interventions to improve recall of medical information in cancer patients: a systematic review of the literature. Psychooncology. 2008 Sep;17(9):857-68.

2007

Burridge L, Winch S, Clavarino A. Reluctance to care: a systematic review and development of a conceptual framework. Cancer Nurs. 2007 Mar-Apr;30(2):E9-19.

Eagar K, Owen A,  Williams K, Westera A, Marosszeky N, England R, Morris D. Effective Caring: a synthesis of the international evidence on carer needs and interventions. Centre for Health Service Development (CHSD), University of Wollongong. 2007;114pp.

Hanratty B, Holland P, Jacoby A, Whitehead M. Financial stress and strain associated with terminal cancer: a review of the evidence. Palliat Med. 2007 Oct;21(7):595-607.

Hearson B, McClement S. Sleep disturbance in family caregivers of patients with advanced cancer. Int J Palliat Nurs. 2007 Oct;13(10):495-501.

Klassen A, Raina P, Reineking S, Dix D, Pritchard S, O’Donnell M. Developing a literature base to understand the caregiving experience of parents of children with cancer: a systematic review of factors related to parental health and well-being. Support Care Cancer. 2007 Jul;15(7):807-818.

Mason A, Weatherly H, Spilsbury K, Aksey H, Golder S, Adamson J, Drummond M, Glendinning C. A systematic review of the effectiveness and cost-effectiveness of different models of community based respite care for frail older people and their carers. Health Technol Assess. 2007 Apr;11(15):1-157, iii.

Parker SM, Clayton JM, Hancock K, Walder S, Butow PN, Carrick S, Currow D, Ghersi D, Glare P, Hagerty R, Tattersall MH. A systematic review of prognostic/end-of-life communication with adults in the advanced stages of a life-limiting illness: patient/caregiver preferences for the content, style, and timing of information. J Pain Symptom Manage. 2007 Jul;34(1):81-93. Epub 2007 May 25.

2006

Hebert RS, Weinstein E, Martire LM, Schulz R. Religion, spirituality and the well-being of informal caregivers: A review, critique and research prospectus. Aging Ment Health 2006 Sep;10(5):497-520.

Kitrungrote L, Cohen MZ. Quality of life of family caregivers of patients with cancer: a literature review. Oncol Nurs Forum. 2006 May 3;33(3):625-32.

Mockford C, Jenkinson C, Fitzpatrick R. A review: carers, MND and service provision. Amyotroph Lateral Scler. 2006 Sep;7(3):132-41.

Pinquart M, Sörensen S. Gender differences in caregiver stressors, social resources, and health: an updated meta-analysis. J Gerontol B Psychol Sci Soc Sci. 2006 Jan;61(1):P33-45.

Smith P, Payne S, Ramcharan P, Chapman A, Patterson M. Carers of the terminally ill and employment issues: a comprehensive literature review. Palliative and End-of-Life Research Group, University of Sheffield. 2006 Jan;31pp. [No abstract available].

Steinhauser KE, Clipp EC, Hays JC, Olsen M, Arnold R, Christakis NA, Lindquist JH, Tulsky JA. Identifying, recruiting, and retaining seriously-ill patients and their caregivers in longitudinal research. Palliat Med. 2006 Dec;20(8):745-54.

2005

Dunbrack J. The information needs of informal caregivers involved in providing support to a critically ill loved one. Health Canada. 2005 Mar;19pp.

Hodges LJ, Humphris GM, Macfarlane G. A meta-analytic investigation of the relationship between the psychological distress of cancer patients and their carers. Soc Sci Med. 2005 Jan;60(1):1-12.

2004

Dow B, Haralambous B, Giummarra M, Vrantsidis F, National Ageing Research Institute (NARI). What carers value – review of carer literature and practice Victorian Government Department of Human Services, Melbourne, Victoria, Australia. 2004 Nov;62pp.

Kadushin G. Home health care utilization: a review of the research for social work. Health Soc Work. 2004 Aug;29(3):219-44.

Lorenz K, Lynn J, Morton SC, Dy S, Mularski R, Shugarman L, Sun V, Wilkinson AM, Maglione M, Shekelle PG. End-of-life care and outcomes. Evid Rep Technol Assess (Summ). 2004 Dec;(110):1-6.

Martire LM, Lustig AP, Schulz R, Miller GE, Helgeson VS. Is it beneficial to involve a family member? a meta-analysis of psychosocial interventions for chronic illness. Health Psychol. 2004 Nov;23(6):599-611.

Palliative Care Australia. The hardest thing we have ever done - the social impact of caring for terminally ill people in Australia. Palliative Care Australia. 2004 May;72pp.

2003

Deeken JF, Taylor KL, Mangan P, Yabroff KR, Ingham JM. Care for the caregivers: a review of self-report instruments developed to measure the burden, needs, and quality of life of informal caregivers. J Pain Symptom Manage. 2003 Oct;26(4):922-53.

Harding R, Higginson I. What is the best way to help caregivers in cancer and palliative care? A systematic literature review of interventions and their effectiveness. Palliat Med. 2003 Jan;17(1):63-74.

Hunt CK. Concepts in caregiver research. J Nurs Scholarsh. 2003;35(1):27-32.

Pinquart M, Sörensen S. Associations of stressors and uplifts of caregiving with caregiver burden and depressive mood: a meta-analysis. J Gerontol B Psychol Sci Soc Sci. 2003 Mar;58(2):P112-28.

Pinquart M, Sörensen S. Differences between caregivers and noncaregivers in psychological health and physical health: a meta-analysis. Psychol Aging. 2003 Jun;18(2):250-67.

Thome B, Dykes A, Hallberg I. Home care with regard to definition, care recipients, content and outcome: systematic literature review. J Clin Nurs. 2003 Nov;12(6):860-72.

2002

Yin T, Zhou Q, Bashford C. Burden on family members: caring for frail elderly: a meta-analysis of interventions. Nurs Res. 2002 May-Jun;51(3):199-208.

1999

Low JTS, Payne S, Roderick P. The impact of stroke on informal carers: a literature review. Soc Sci Med. 1999 Sep;49(6):711-25.

Last updated 04 October 2019