Helping family carers to support a relative or friend with advanced disease: The Australian carer toolkit
for advanced disease’
The Centre for Palliative Care (CPC) has been funded by the Australian Government Department of Health as part of the Public Health and Chronic Disease program, to develop a carer toolkit. The purpose of the ‘Helping family carers to support a relative of friend with advance disease: The Australian carer toolkit for advanced disease’ (the toolkit) project is to help Australian family carers to support a person with advanced disease by providing free access to high quality information via a national e-health toolkit.
The CPC is partnering with Caresearch (Flinders University), The University of Technology (Sydney), and Carers’ Australia who bring their expertise in education and information technology, evaluation, and advocacy for the carer community.
The toolkit will:
- Provide access to information to enable family carers to support people with advanced disease.
- Offer a set of core learning modules as well as learning objectives for each topic.
- Provide vignettes, how-to videos, short interactive activities and written information with appealing visuals
- Links to other relevant resources as pertinent.
- Contain essential information and resources that are readily accessible on all common platforms (web, phone, desktop)
- Be developed with wide stakeholder engagement, and contain information based on best available evidence and relevant to palliative care standards
The key components of the project are:
- to establish a National Reference Group of key stakeholders to assist with guiding the development of the content of the toolkit and ensuring all relevant groups are represented
- to conduct a systematic review on the needs of family carers of patients with advanced disease
- to conduct a scoping study of available online resources for family carers of patients with advanced disease
- to conduct interviews/focus groups with family carers of patients with advanced disease to identify gaps in essential information and resources
- to develop content for the toolkit and transfer content into educational modules
- to invite key stakeholders to review the carer toolkit
- to develop a dissemination plan
- to launch the toolkit
Timeline: The project will run from July 2017 to June 2020.
To find out more and find out about the project, visit the project website at https://www.carerhelp.com.au/
If you would like more information about the project please Tina Thomas: Kristina.firstname.lastname@example.org
Page created 18 December 2018