What may help

Talk your Doctor

Carers should not hesitate to ask any questions of their doctor, your doctor or other members of your health care team. It may help for them to write down their questions before a consultation or phone call. They can book a longer appointment to give them ample time to talk. The Needs Assessment Tool - Families may help identify any questions they may have.

Talk to you

You may not have told your caregiver everything about your illness, possibly for fear of worrying or overwhelming them. Tell them they should not be afraid to ask you anything, and that you will be as honest as you can in reply.

For more information

A wide variety of information is available for caregivers, much of it accessible online:

  • CareSearch provides reliable information about advanced cancer, palliative care and the types of services in the different states. There are also links to other reliable websites.
  • Carers Australia provides caregivers with information and education resources. Freecall 1800 242 636
  • The Cancer Council has a range of brochures for people with advanced cancer, their caregivers and families. Call the Helpline on 13 11 20.
  • The Department of Health has fact sheets in a caregiver information pack. They cover topics such as managing money, taking a break and loss and grief.
  • The US Caring Connections website has detailed information for patients and caregivers.
  • The US National Cancer Institute has a booklet on support for caregivers. 

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Life, Hope & Reality was developed and written by Afaf Girgis, Claire Johnson, and Sylvie Lambert with funding from the NHMRC and Cancer Council NSW.

Last updated 30 August 2015