Print Resources

Different people have different needs for information at different times during an illness. Patients will also have different needs from their carers.  To support these different needs the following list of resources has been compiled based around topics relevant to patients and their carers.  The source of the information is included, note that some information is from outside Australia.

Advance Care Planning

• Advance care planning guide (Select State or Territory of interest)
  From the Advance Care Planning Australia website

Bereavement Grief and Loss

• Understanding grief
  From Palliative Care Australia
• Are you needing help after someone has died? (1.65MB pdf)
  From Centrelink Summary of relevant services and other useful information

Carers

• Practical caring: At the end of life (89.6kb pdf)
  CareSearch
• Are You a Carer? (221kb pdf)
  CareSearch
• Asking for help (256kb pdf)
  CareSearch
• Become informed (242kb pdf)
  CareSearch
• Being prepared (252kb pdf)
  CareSearch
• Carers are not all the same (255kb pdf)
  CareSearch
• Caring needs differ (215kb pdf)
  CareSearch
• Coping with holidays (239kb pdf)
  CareSearch
• Financial matters (235kb pdf)
  CareSearch
• Grief and loss (208kb pdf)
  CareSearch
• How do you care (228kb pdf)
  CareSearch
• Support is important (224kb pdf)
  CareSearch
• Things happen (254kb pdf)
  CareSearch
• Resources for carers (1.4MB pdf)
  A pamphlet from Palliative Care Victoria
• Rights and responsibilities in caring for a family member (56.3kb pdf)
  Information sheet for carers from Carers Victoria
• Looking after yourself (1.39MB pdf)
  A pamphlet from Palliative Care Victoria
• How and why to get family to help with caring (56kb pdf)
  Information sheet for carers from Carers Victoria
• What to do when someone dies (1.69MB pdf)
  A pamphlet from Palliative Care Victoria 

Children and Teens

• Grief and Loss
  Parenting SA Guide 
• Grief and Children
  Fact sheet from Better Health Channel
• Questions children may ask when someone dies
  Marie Curie Cancer Care (UK)
• Coping with grief as a teenager
  Marie Curie Cancer Care (UK)
• Talking to children about death (99kb pdf)
  National Institutes of Health (US)

Communication (Family and Friends)

• What can I say, what can I do (273kb pdf)
  An information brochure for families and friends from Palliative Care Australia
• Relationships and communication
  From the Better Health Channel
• Talking to children when someone close is very ill
  Marie Curie Cancer Care (UK)

Communication (Health Team)

• Asking questions can help: An aid for people seeing the palliative care team
  A resource from Palliative Care Australia

Complementary Therapies

• Complementary medicines - tell your healthcare professionals
  Fact sheet produced by the Better Health Channel
• Understanding Comlementary Therapies (836kb pdf)
  A guide for people with cancer, their families and friends from the Cancer Council

Dementia

• Dementia - how it affects carers (52kb pdf)
  Fact sheet from the Better Health Channel

Dying

• What to do when someone dies (1.69MB pdf)
  A pamphlet from Palliative Care Victoria
• Confusion and terminal restlessness (1.39MB pdf)
  A brochure for caregivers from Palliative Care Victoria
• The process of dying (1.39MB pdf)
  A brochure for caregivers from Palliative Care Victoria
• Nearing the End of Life
  Web page produced by the American Cancer Society (US)

Feelings and Emotions

• Living with Limited Time: Exploring Feelings
  Article from Canadian Virtual Hospice looks at emotions and issues for families (Canada)

Finances

• Needing help after someone has died? (1.65MB pdf)
  From Centrelink

Funerals

• Understanding funerals (64kb pdf)
  From the Cancer Council NSW
• Planning a funeral (1.01MB pdf)
  From the Seniors Information Service NSW
• Needing help after someone has died? (1.65MB pdf)
  From Centrelink

Indigenous Resources

• Let's yarn about Palliative Care - Going Home to Country (752kb pdf)
  Pamphlet about koori palliative care from Palliative Care Victoria
• What do we tell the children? When someone dies (1.05MB pdf)
  Indigenous Substance Misuse Health Promotions Unit
• Coping with sorrow, loss and grief (216kb pdf)
  Lifeline Information Services

Information Needs

• Why information matters: At the end of life (90kb pdf)
  CareSearch

Medicines

• Understanding side effects of medicines (335kb pdf)
  Fact sheet from the Australian Self-Medication Industry

Pain

• Overcoming Cancer Pain - A guide for people with cancer, their families and friends (314kb pdf)
  Booklet from the Cancer Council
• Facts about morphine and other opioid medicines in palliative care
  Brochure from Palliative Care Australia
• Pain and pain management (1.39MB pdf)
  A brochure from Palliative Care Victoria
• About pain (293kb pdf), About pain medications (248kb pdf), Pain and Pain relief (359kb pdf)
  Factsheets from the Tasmanian Department of Health and Human Services
• Sample pain diary (31kb pdf)
  From Palliative Care Victoria
• Graseby syringe driver patient - caregiver factsheet (26kb pdf)
  Adapted from information from the Centre for Palliative Care Research and Education

Palliative Care

• What is palliative care?
  Information from Palliative Care Australia
• For patients, carers, family and friends (220kb pdf)
  Brochure from CareSearch

Palliative Care Team

• Volunteer support workers (1.63MB pdf)
  Social Workers (1.63MB pdf)
  Pastoral care (1.63MB pdf)
  Grief & Bereavement counsellors (303kb pdf)
  Leaflets from Palliative care Victoria on specific roles

Patient Rights

• Patient rights and responsibilities (69kb pdf)
  An information brochure from Palliative Care Australia
• Australian Charter of Health Care Rights (90kb pdf)
  Sheet from the Australian Commission on Safety and Quality in Healthcare

Renal

• Health Fact Sheets
  Information from Kidney Health Australia 
• Withdrawing from dialysis treatment (1.81MB pdf)
  A booklet from Renal Resource Centre, NSW

Symptoms Other Than Pain

• Fatigue and exhaustion (1.39MB pdf)
  Nausea and vomiting (1.39MB pdf)
  Nutrition in palliative care (1.39MB pdf)
  Anorexia in advanced illness (1.39MB pdf)
  Confusion and terminal restlessness (1.39MB pdf)
  Information brochures for carers from Palliative Care Victoria
• About breathlessness (252kb pdf)
  About constipation (267kb pdf)
  About delirium (316kb pdf)
  About fatigue (255kb pdf)
  About laxatives (238kb pdf)
  About nausea and vomiting (386kb pdf)
  Factsheets from the Tasmanian Department of Health and Human Services

Syringe Drivers

• Graseby syringe driver patient - caregiver fact sheet (26kb pdf)
  Adapted from information from the Centre for Palliative Care Research and Education

Last updated 23 May 2017