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Different people have different needs for information at different times during an illness. Patients will also have different needs from their carers.  To support these different needs the following list of resources has been compiled based around topics relevant to patients and their carers.  The source of the information is included, note that some information is from outside Australia.

Advance Care Planning

• Advance care planning guide (Select State or Territory of interest)
  From the Advance Care Planning Australia website

Bereavement Grief and Loss

• Grief and Loss (280kb pdf)
  CareSearch
• Understanding grief
  From Palliative Care Australia
• Are you needing help after someone has died? (1.65MB pdf)
  From Centrelink Summary of relevant services and other useful information

Carers

• Caring for Someone with Life-limiting Illness (427kb pdf)
  CareSearch
• Managing Life-limiting Illness with Medicines (417kb pdf)
  CareSearch
• Practical Caring: At the end of life (90kb pdf)
  CareSearch
• Are You a Carer? (221kb pdf)
  CareSearch
• Asking for help (256kb pdf)
  CareSearch
• Become informed (242kb pdf)
  CareSearch
• Being prepared (252kb pdf)
  CareSearch
• Carers are not all the same (255kb pdf)
  CareSearch
• Caring needs differ (215kb pdf)
  CareSearch
• Coping with holidays (239kb pdf)
  CareSearch
• Financial matters (235kb pdf)
  CareSearch
• Grief and loss (208kb pdf)
  CareSearch
• How do you care (228kb pdf)
  CareSearch
• Support is important (224kb pdf)
  CareSearch
• Things happen (254kb pdf)
  CareSearch
• Resources for carers (1.4MB pdf)
  A pamphlet from Palliative Care Victoria
• Looking after yourself (1.39MB pdf)
  A pamphlet from Palliative Care Victoria
• How and why to get family to help with caring (56kb pdf)
  Information sheet for carers from Carers Victoria

Children and Teens

• Children and Grief (Pre-school, ages five and under) (140kb pdf)
  Information sheet from the Australian Centre for Grief and Bereavement
• Children and Grief (Primary School, ages 6-12) (129kb pdf)
  Information sheet from the Australian Centre for Grief and Bereavement
• Adolescents and Grief (631kb pdf)
  Information sheet from the Australian Centre for Grief and Bereavement
• Grief and Loss
  Parenting SA Guide 
• Grief and Children
  Fact sheet from Better Health Channel
• Questions children may ask when someone dies
  Marie Curie Cancer Care (UK)

Communication (Family and Friends)

• How can I support my friend/family member? (615kb pdf)
  An information brochure for families and friends from Palliative Care Australia
• Relationships and communication
  From the Better Health Channel

Communication (Health Team)

• Asking questions can help: An aid for people seeing the palliative care team
  A resource from Palliative Care Australia

Complementary Therapies

• Complementary medicines - tell your healthcare professionals
  Fact sheet produced by the Better Health Channel
• Understanding Complementary Therapies (948kb pdf)
  A guide for people with cancer, their families and friends from the Cancer Council

Dementia

• Dementia - taking care of carers (97kb pdf)
  Fact sheet from the Better Health Channel

Diabetes

• Palliative and end of life care: information for older people with diabetes (6.43MB pdf)
• Palliative and end of life care: information for families caring for older relatives with diabetes (7.54MB pdf)
• Planning palliative and end of life care with older people with diabetes: information for health professionals (3.77MB pdf)
  Information from the Deakin University Barwon Health Partnership

Dying

• At the End (366kb pdf)
  CareSearch
• What to do after someone dies
  From the Better Health Channel
• Confusion and terminal restlessness (153kb pdf)
  A brochure for caregivers from Palliative Care Victoria
• The process of dying (2.33MB pdf)
  A brochure for caregivers from Palliative Care Victoria
• Nearing the End of Life
  Web page produced by the American Cancer Society (US)

Feelings and Emotions

• Living with Life-limiting Illness (276kb pdf)
  CareSearch
  Living with Limited Time: Exploring Feelings
  Article from Canadian Virtual Hospice looks at emotions and issues for families (Canada)

Finances

• Needing help after someone has died? (1.65MB pdf)
  From Centrelink

Funerals

• Understanding funerals (64kb pdf)
  From the Cancer Council NSW
• Planning a funeral (1.01MB pdf)
  From the Seniors Information Service NSW
• Needing help after someone has died? (1.65MB pdf)
  From Centrelink

Indigenous Resources

• What do we tell the children? When someone dies (1.05MB pdf)
  Indigenous Substance Misuse Health Promotions Unit
• Coping with sorrow, loss and grief (1.05MB pdf)
  Lifeline Information Services

Information Needs

• Why information matters: At the end of life (273kb pdf)
  CareSearch

Medicines

• Medicines - safety issues
  Fact sheet produced by the Better Health Channel

Pain

• Overcoming Cancer Pain - A guide for people with cancer, their families and friends (314kb pdf)
  Booklet from the Cancer Council
• Facts about morphine and other opioid medicines in palliative care
  Brochure from Palliative Care Australia
• About pain and the help available (1.66MB pdf)
  A brochure from Palliative Care Victoria
• Graseby syringe driver patient - caregiver factsheet (26kb pdf)
  Adapted from information from the Centre for Palliative Care Research and Education

Palliative Care

• About Palliative Care (420kb pdf)
  CareSearch
• Palliative Care Support for Patients, Carers and Families (1.30MB pdf)
  CareSearch Booklet
• Supporting a Person Who Needs Palliative Care: A Guide for Family and Friends (280kb pdf)
  Information from Palliative Care Victoria
• What is palliative care?
  Information from Palliative Care Australia
• Understanding Palliative Care (234kb pdf)
  Brochure from CareSearch

Palliative Care Team

• Volunteer support workers (1.63MB pdf)
  Social Workers (1.63MB pdf)
  Pastoral care (1.63MB pdf)
  Grief & Bereavement counsellors (303kb pdf)
  Leaflets from Palliative care Victoria on specific roles

Patient Rights

• Australian law at the end of life: An overview (249kb pdf)
  An information brochure from the Australian Centre for Health Law Research
• Australian Charter of Health Care Rights (90kb pdf)
  Sheet from the Australian Commission on Safety and Quality in Healthcare

Renal

• Health factsheets and photosheets
  Information from Kidney Health Australia 
• Withdrawing from dialysis treatment (1.81MB pdf)
  A booklet from Renal Resource Centre, NSW

Symptoms Other Than Pain

• Nausea and vomiting (155kb pdf)
  Nutrition in palliative care (1.39MB pdf)
  Anorexia in advanced illness (153kb pdf)
  Confusion and terminal restlessness (153kb pdf)
  Information brochures for carers from Palliative Care Victoria
• About breathing problems
  About constipation
  About delirium
  About fatigue
  About nausea and vomiting
  Pages from Health Direct

Syringe Drivers

• Graseby syringe driver patient - caregiver fact sheet (26kb pdf)
  Adapted from information from the Centre for Palliative Care Research and Education
   

Last updated 29 October 2020