The participation of people with dementia in the planning of their care and support: An integrative literature review

  • 23 November 2020
  • Author: CareSearch
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Read ST, Toye C, Wynaden D.

No abstract available

Royal Commission Releases New Research Papers

  • 20 November 2020
  • Author: CareSearch
  • Number of views: 0
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The Royal Commission into Aged Care Quality and Safety have released two new papers relating to aged care access and quality indicators. Paper 16 shows that many people in non-metropolitan regions move more than 100 kilometres, or drive for more than 60 minutes, from their home when they begin permanent residential aged care or use respite in an aged care facility. Paper 15 presents information on over 50 quality indicators about residential aged care including how results are distributed across facilities.

These and all other papers are now available for download from the Royal Commission website. 

CareSearch 2020-2023: Building on our foundation of evidence to support quality palliative care

A blog post by Dr Katrina Erny-Albrecht, Senior Research Fellow, CareSearch, College of Nursing and Health Sciences, Flinders University

  • 19 November 2020
  • Author: CareSearch
  • Number of views: 170
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CareSearch 2020-2023: Building on our foundation of evidence to support quality palliative care

In the 11th blog for our National Palliative Care Project series, CareSearch Senior Research Fellow Dr Katrina Erny-Albrecht discusses how the project will continue supporting Australians and contribute to the delivery of the National Palliative Care Strategy by providing access to relevant evidence and resources.

Palliative Care Australia seeks new leader

  • 16 November 2020
  • Author: Ruth
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On Friday 13 November, 2020 the Board of Palliative Care Australia (PCA) released a media statement to announce that they would commence recruitment of a Chief Executive Officer following the resignation of Chief Executive Officer Rohan Greenland to take up an appointment as Chief Executive Officer of MS Australia. In the interim Ms Tamara Mckee has been appointed as acting CEO of PCA during the recruitment process.

Exploring advance care planning awareness, experiences, and preferences of people with cancer and support people: an Australian online cross-sectional study

  • 16 November 2020
  • Author: CareSearch
  • Number of views: 0
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Rodi H, Detering K, Sellars M, Macleod A, Todd J, Fullerton S, Waller A, Nolte L.

Purpose:
To explore advance care planning (ACP) awareness, experiences, and preferences of people with cancer and support people of someone with cancer, in Australia.

Methods:
Descriptive analysis and independent group t tests were used to examine data from a national, online cross-sectional survey.

Results:
Of 705 respondents (440 people with cancer, 265 support people), 48.5% of participants had heard of ACP prior to the survey and 65% had discussed their values or preferences with someone. Significantly more people aged under 65 years had discussed their preferences than their older counterparts. Most (93%) discussions occurred with family or friends, but only 3.7% occurred with a health professional. A total of 33% had documented their preferences, with support people, women, and people aged under 65 years significantly more likely to have signed a legal document appointing someone to make medical decisions on their behalf. Views varied about the preferred timing of ACP and end-of-life care discussions (38.3% when cancer is incurable compared to 20% at diagnosis). Only 3.0% did not want to discuss ACP at all. Topics discussed were significantly different based on cohort, gender, age group, treatment status, and region.

Conclusion:
Despite increasing community awareness of ACP, understanding remains low amongst cancer patients and support people, who generally rely on discussions with family and friends rather than health professionals. ACP should be introduced early across multiple interactions with health professionals, discuss a broad range of ACP relevant topics, and involve the cancer patient and their support person.

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