CareSearch Blog: Palliative Perspectives

The views and opinions expressed in our blog series are those of the authors and are not necessarily supported by CareSearch, Flinders University and/or the Australian Government Department of Health.
 

Listen, Acknowledge, Respond: Addressing the mental health needs of those living with dying

A guest blog post from the Listen Acknowledge Respond project team: Julianne Whyte, CEO, Amaranth Foundation, Janelle Wheat, Associate Dean Academic, Charles Sturt University, Janelle Thomas, Research Officer and Kirsty Smith, Project Manager, Listen, Acknowledge, Respond, Charles Sturt University

  • 30 August 2016
  • Author: CareSearch
  • Number of views: 3270
  • 1 Comments
Listen, Acknowledge, Respond: Addressing the mental health needs of those living with dying

Mental health and palliative care patients: the “treatment gap”
Sadness, social withdrawal, depression, loss of hope; if a non-palliative person experiences any of these feelings, the health care system has well established processes and services to treat them. Why then do we accept this as ‘normal’ and ‘to be expected’ for those facing the end of life? Why does the system hesitate to ‘label’ these vulnerable people with a mental illness tag?

Mental illness in the terminally ill is too often underdiagnosed and undertreated. It’s frequently ignored – “well of course you’re having trouble coping, you’re dying,” – or pushed aside in favour of addressing clinical symptoms. While existential and psychological care is acknowledged as being crucial to providing quality end of life care, people continually report that theirs, their families and care givers needs in this domain are not addressed.

 

Improving Patient Outcomes in Palliative Care through Point-of-Care Assessment and Benchmarking

A guest blog post from Karen Quinsey, PCOC National Director

  • 23 August 2016
  • Author: CareSearch
  • Number of views: 3557
  • 2 Comments
Improving Patient Outcomes in Palliative Care through Point-of-Care Assessment and Benchmarking

Who are we?
The Palliative Care Outcomes Collaboration (PCOC) is a nationally funded program that uses standardised clinical assessment tools to benchmark and measure patient outcomes in palliative care.

  • PCOC is a collaboration between four universities, each represented by a chief investigator:
  • Professor Kathy Eagar, University of Wollongong, New South Wales
  • Professor David Currow, Flinders University, South Australia
  • Professor Patsy Yates, Queensland University of Technology
  • Dr Claire Johnson, University of Western Australia

Improving Children’s Palliative Care Close to Home in Australia

A guest blog post from Dr Anthony Herbert, Director, Paediatric Palliative Care Service, Lady Cilento Children’s Hospital, Brisbane and Project Lead, Quality of Care Collaborative of Australia for Paediatric Palliative Care Education (QuoCCA)

  • 16 August 2016
  • Author: CareSearch
  • Number of views: 4690
  • 1 Comments
Improving Children’s Palliative Care Close to Home in Australia
Children’s palliative care shares many of the principles of palliative care that is provided to adults.  However, there are unique aspects of the care provided in looking after a child with a life limiting illness.  This includes children diagnosed with cancer and non-cancer diagnoses from infancy to young adulthood.  We are also providing this care working with the children’s family (parents, siblings, grandparents) and the broader community (including schools).

The goal of our project is to deliver education in paediatric palliative care in areas outside of the metropolitan centres of Australia, and in all states and territories of Australia.  This reflects the geographic diversity of Australia, with many patients living outside of capital cities, and also large distances between centres.  The anticipated outcome of this education is greater confidence of health professionals to care for dying children, and improved quality of care.

 

PCACE Project: Developing and maintaining guidance for palliative care in aged care

A guest blog post from Dr Jennifer Tieman, CareSearch Director, Associate Professor, Discipline Palliative and Supportive Services

  • 9 August 2016
  • Author: CareSearch
  • Number of views: 3578
  • 2 Comments
PCACE Project: Developing and maintaining guidance for palliative care in aged care

The release of the Guidelines for a Palliative Approach in Residential Aged Care (APRAC) and the Guidelines for a Palliative Approach for Aged Care in the Community Setting (COMPAC) were a significant advance in recognising and responding to changing population demography in Australia.  They aimed to support the provision of palliative care for older people living in the community or in residential aged care by identifying and evaluating the evidence for care to promote quality of life for older Australians who have a life-limiting illness or who are becoming progressively frailer during old age. The two sets of guidelines were important landmarks nationally and internationally. 
 

Dying To Know Day: Everyone can make a difference.

A guest blog post from Kerrie Noonan, Cofounder and Director, The GroundSwell Project

  • 2 August 2016
  • Author: CareSearch
  • Number of views: 3290
  • 1 Comments
Dying To Know Day: Everyone can make a difference.

What if we knew how to respond to death and loss when it happens in our family, workplace and community?
What if we knew how to access end of life and palliative care when we needed it?
What would it be like if more of us were willing and able to respond well to death?
What if we planned for death like we plan for other important life events?

 

About our Blog

The CareSearch blog Palliative Perspectives informs and provides a platform for sharing views, tips and ideas related to palliative care from community members and health professionals. 
 

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