When you learn that someone has a terminal illness it may be confronting. It may make you think about your own life and how you will one day face the thought of dying.
You may be worried about what to say and what not to say to the person who is ill. You may feel uncomfortable being with someone who is obviously unwell. If you have already experienced the loss of a loved one this may affect how you are feeling now. There is no proper or right thing to say. Being with someone and being willing to listen is the most important thing that you can do.
As an illness progresses, people who are very ill may talk less. They may find it difficult to have people come and visit and tire easily. Prepare for shorter visits. Take your cues from the patient or carer.
The disease, or treatments for the disease, may change their mood or personality. Don't take it personally. Remember that the family carer may still need company and support.
It can also be difficult when somebody has died. It is important that you acknowledge what has happened. It is worse if you ignore it and don’t talk about what has happened.
- CarersNSW has a series of Factsheets that provide useful information for carers.
Related CareSearch pages
At the End
Last updated 05 May 2016*
Tips for Visitors
Family Carer Coordinating Role