Websites	Faculty of Health Science, The Flinders University of SA, 2002 This program contains information on understanding culture and an introduction to Aboriginal and Torres Strait Islander studies providing historical and contextual frameworks for learning and an introduction to key concepts, terminology and ethical practices. ICAP Resource Kit Koori Human Services & Department of Health, 2005 This kit seeks to involve and support Aboriginal workers and agencies. It recommends ways of establishing and maintaining both relationships with Aboriginal communities and organisations, and service planning and evaluation, that ensure the cultural needs of Aboriginal people are addressed. The Working Carers Support Gateway - Indigenous Portal An information portal for those looking after someone and working too. Welcome to Kokotinna: A Staff Development Program on Aboriginal & Torres Strait Islander Cultures and Health
Books	Working with Aboriginal communities. A practical approach Department of Industry and Resources (DOIR), 2004 This booklet covers issues relating to approaching communities, facilitating discussions as well as aspects relating to Aboriginal culture such as kinship, taboos, funerals, and law business. pdf link above or contact: Department of Industry and Resources Mineral House, 100 Plain Street East Perth  WA 6004 Management of HIV/AIDS resource guide for Indigenous primary health care organisations National Indigenous Australians' Sexual Health Strategy, 2000. This manual provides - procedures to help with the management and care of Indigenous people living with HIV/AIDS and their carers; information to primary health care organisations covering issues such as confidentiality, testing, counselling issues and partner notification. Training re-Visions: A National Review of Aboriginal and Torres Strait Islander Health Worker Training Curtain Indigenous Research Centre & Centre for Educational Research and evaluation Consortium & Jojara and Associates, 2000 A review that researched the training of Indigenous Health care Workers. It reports on the importance of local cultural knowledge in terms of the effectiveness of the carer role and the different emphasis placed on the role depending on the employment context. Evaluation and palliative care: a guide to the evaluation of palliative care services and programs Edgar K, Cranny C, & Fildes D, 2004 This booklet is a guide to assist palliative care projects and services to design, plan and implement evaluations that are consistent with the National Palliative Care Program. Communicating Positively – A Guide to Appropriate Aboriginal Terminology NSW Health Department, 2004 Provides health staff with background information and guidance as to appropriate word usage for health staff working with Aboriginal people and communities. NSW Health. Download publication (in pdf format) from OR Better Health Centre - Publications Warehouse, Locked Mail Bag 5003, Gladesville NSW 2111.
Booklets	Information & Support Pack: for those bereaved by suicide & other sudden death Clark, SJ, Hillman, SD, & Ministerial Council for Suicide Prevention, 2003 This booklet explains the feelings an Indigenous person may have when grieving over a family member who has committed suicide or died suddenly.  It also discusses sorry and funeral time and the traditions of the Indigenous culture and what may be expected of them at this time. Guidelines for delivery of culturally sensitive and flexible counselling for Indigenous carers This report details the process and findings supporting the development of specialised guidelines for the delivery of flexible and culturally sensitive counselling to Indigenous carers. Palliative Care for Aboriginal and Torres Strait Islander People Colyer, Claire / Kate Sullivan and Associates Pty. Ltd, 2004 Provides information about palliative care, what it involves and the specific needs of Aboriginal and Torres Strait Islander people. It includes personal stories and case studies from palliative care units and hospitals. Who receives specialist palliative care in Western Australia - and who misses out McNamara B, Rosenwax L, D'Arcy Holman C, Nightingale E. This study provides an insight into who is missing out on palliative care services in the last year of life, particularly elderly Aboriginals living in rural or remote regions who are also socially disadvantaged.
Articles	Cancer among people living in rural and remote Indigenous communities in Queensland (abstract)   Coory M, Thompson A, & Ganguly I, Coory M, Thompson A, Ganguly I.(MJA 2000; 173: 301-304) This study contains an analysis of the incidence of cancer and the mortality rate among Indigenous people in Qld. It examines the type of cancers that occur and why Indigenous people have poorer survival rates than non-Indigenous people. Can obtain from Queensland Government Health.   Providing Palliative Care for Aboriginal Patients (abstract) Fried O. Australian Family Physician, Nov.2000 Vol.29.No.11.pp.1035-38. Discusses the fact that many Indigenous people are ill-informed about palliative care and either lack proper access to it or the service isn’t culturally appropriate. Suggests the way forward is to work with Aboriginal Health Workers to ensure correct steps are put in place to enable Indigenous people to want to access mainstream palliative care. Reducing the impact of cancer in Indigenous communities, ways forward  Lowenthal R, Grogan P, & Kerrins E, MJA 2005; 182(3): 105-106 Discussion paper addressing the issue of cancer and Indigenous people, the cause of increased incidence amongst Indigenous groups compared to non-Indigenous and the cultural beliefs and rituals within Indigenous communities. Issues in Palliative Care for Indigenous Communities  Maddocks I, & Rayner R. Medical Journal of Australia, 2003, Vol.179, Issue 6 (Supplement), S17-S19 The article discusses the need to consider cultural beliefs of Indigenous groups around palliative car, their understanding of disease causation, ceremonial duties and the importance of Aboriginal health care workers in the care of Indigenous people. The Aboriginal Health Worker  Medical Journal of Australia, 2006, Vol.184, Issue 10, p.529-530. Discusses the challenges in working in one's own community, where work can be rewarding yet stressful; there can be a perception that you are "everything to everyone". 'The biggest worry...': research findings on pain management for Aboriginal peoples in Northern Territory, Australia McGrath P. Central Queensland University, Brisbane, Queensland, Australia, Rural and Remote Health 6:549.  Discusses effective pain management during end-of-life care. Talking to patients about death and dying Australian Family Physician, 2004, Vol.33, Issue 1-2, pp85-88 Focus group responses discussing the lack of support and education General Practitioner's have in talking about death and dying. General Practitioner's also express concern regarding access to support for dying Indigenous patients. Palliative care in a multicultural society: perceptions of health care professionals McNamara B, Martin K, Waddell C, & Yeun K, Palliative Medicine, 1997, Vol 11, pp.359-367 Research into how to improve cross-cultural palliative care as suggested by care providers. From this come issues such as difficulties faced by care providers and the need for educational programs for care providers. This later issue is seen to be the key to the provision of culturally appropriate care to patients and their families from all cultural backgrounds.
Reports	National Indigenous Palliative Care Needs Study: Final Report The National Palliative Care Program / Kate Sullivan & Associates Pty Ltd Palliative Care and Indigenous patients. Caring Communities Program - Aboriginal & Torres Strait Islander Peoples Projects. National Palliative Care Strategy In October 2000 the Australian Health Ministers' Advisory Council endorsed the National Palliative Care Strategy. The Strategy is the policy document that the Australian Government and state and territory governments use to guide palliative care policy development and service delivery across Australia. Palliative Care Strategy 2005-2009 The Department of Health and Community Services identified the need for future direction in palliative care and successfully gained funding to achieve this objective from the Australian Government Department of Health and Ageing in mid 2003. The Palliative Care Strategy was subsequently developed as the result of many initiatives. These have included extensive stakeholder input across the Northern Territory, recent and past service reviews, the NT Palliative Care Policy (1999), community advocacy, and local and national palliative care research. Project for Palliative Care Services for Culturally and Linguistically Diverse Communities in the Barwon South West Region, Victoria. Barwon Health, 2003 Report to Department of Human Services, April 2003
Policies and Guidelines	Guidelines for a Palliative Approach in Residential Aged Care Edith Cowan University, 2004 Guidelines that cover all major aspects of providing palliative care for a RACF resident. Each chapter deals with a different issue from attending to physical symptoms and spiritual needs to dealing with the reactions of family members. Providing culturally appropriate palliative care to Indigenous Australians: Resource Kit Wodonga TAFE, Mungabareena Aboriginal Corporation & Mercy Health Service, 2004 This publication provides strategies and training material to support staff in mainstream health services to provide culturally appropriate palliative care to Indigenous Australians. A Guide to Palliative Care Service Development: a Population Based Approach Palliative Care Australia This policy document has been developed to use beside the ‘Palliative Care Service Provision in Australia: a Planning Guide’ and the revised ‘Standards for Providing Quality Palliative Care to all Australians’.
Leaflets	Let’s yarn about palliative care going home to country  A leaflet to explain and promote palliative care services to members of the Koori community is now available for use in clinical practice. The following leaflets are available from Aboriginal Drug and Alcohol Council (SA) Inc. (ADAC) www.adac.org.au. Grief and Trauma Children - what to tell the children when someone dies  Grief and Trauma Telling your story - Getting over grief Grief and Trauma Sorry Business - Grief and loss Feeling Good Tips for Aboriginal Carers This leaflet talks about the importance of looking after yourself while looking after someone else.
Video / CD / DVD	“Talking Together” Contemporary Issues in Aboriginal and Torres Strait Islander Health: HIV, Hepatitis & Sexual Health  (ASHM) 2003 Information, including resources and services, and culturally appropriate ways of discussing these issues with Indigenous people. Order from:  DVD / Video Orders Rural Health Education Foundation PO Box 324 Curtin ACT  2605 Palliative Care for Indigenous People This is a copy of a 65 minute broadcast of a program that focuses on cultural and medical issues surrounding appropriate delivery of palliative care to Indigenous Australians. It also provides a greater cultural awareness of how Indigenous communities deal with death and dying, and grief and bereavement. CD available from Rural Health Education Foundation, PO Box 219, Mawson  ACT 2607 Aboriginal health workers and chronic disease management Examines how Aboriginal health workers, general practitioners and other health workers can contribute to chronic disease detection and management. CD available from Rural Health Education Foundation, PO Box 219, Mawson  ACT  2607
Conference Presentations	Indigenous Palliative Care poster project Taylor, A. Palliative Care Council of SA & Coulthard, F. Pika Wiya Health Service, SA. 7th National Rural Health Conference.

This page was created in March 2007 and is scheduled for review in March 2009
Page last updated 24 May 2007