The following resources are available from the suppliers as noted. Those without suppliers details may be available for purchase through your local book supplier, or available for loan through your library.
| Books |
The Public Health Bush Book
Department of Health and Community Services, 2002
A book that supports health training and provides guidance to staff in order to achieve better health outcomes in Aboriginal communities. Volume 1 : Strategies and Resources
Volume 2: Facts and Approaches to 3 Key Public Health Issues.
Lookin’ after our own: Supporting Aboriginal Families through the hospital experience
Clark A, Andrews S & Austin N.
This book is written from a Koori perspective by three Aboriginal liaison workers for the Royal Children’s Hospital in Melbourne. It is about the experiences, fears and apprehensions of having a child in hospital.
Available:
Royal Children's Hospital Aboriginal Family Support Unit
Melbourne Vic 3000
Phone: (03) 9345 6111
hartneyj@cryptic.rch.unimelb.edu.au
"Bessie's Story: Palliative Care in Remote Communities".
Lowe P, 1998
This picture book shows an Aboriginal woman going home to her community for palliation. Produced by the North West Regional Palliative Care Committee, 1998.
Available:
North West Regional Palliative Care Committee
PO Box 2202
Broome WA 6725
Telling our stories in ways that make us stronger
Wingard, B & Lester, J, 2001
This book includes chapters on:
- finding culturally appropriate ways to grieve, to remember and to heal
- suggestions relating to culturally appropriate health and counselling services for Indigenous Australians.
Available:
Dulwich Centre Publications
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| Booklets |
A Medical Practitioner’s Guide to Aboriginal Health
Australian Medical Association, 1998
This resource focuses on issues affecting Indigenous people in urban and rural areas throughout Western Australia. It deals with how to communicate with Aboriginal people, what medical services are available in each region, different types of diseases that affect Indigenous groups as well as specific information about each group and region.
Home to the Kimberley: Taking care of Aged Patients from Remote Communities
Kimberly Aged and Community Services, 2003
A book detailing the factors / issues affecting Indigenous communities, their access to care, cultural experiences, how to assist individuals who have to be transported to Perth for treatment and a general overview of what to expect when caring for Indigenous people.
Available:
Kimberley Aged and Community Services,
PO Box 2507
Broome WA 6725
Phone: (08) 9192 1012
Understanding Morphine
Mt Isa District Palliative Care Service
This booklet was compiled to answer patients' and carers' questions about pain relief in plain language. It is beautifully illustrated by local Aboriginal artists Harry and Shannon Gertz and is user friendly.
Available:
Mt Isa Palliative Care Service
30 Camooweal Street
Mt Isa Qld 4825
Phone: (07) 4744 4444
Many Ways of Caring: The Aboriginal Palliative Care Paintings Project
Ofra Fried & Territory Palliative Care Central Australia, 1998/1999
Aboriginals from the 4 main language groups in Central Australia express their feeling about palliative care by doing individual paintings as each group had their own cultural way of dealing with death and dying.
Available: Territory Palliative Care
Practice Guidelines for Health Professionals Dealing with the Death of a Northern Territory Aboriginal Person
Dr Tarun Weeramanthri & Territory Health Services & Menzies School of Health Research, 1996
These guidelines are to assist health professionals give back to families some sense of control over what happens after death and to allow them to identify any long term problems affecting the family, the community or themselves.
Available:
PO Box 41096
Casuarina NT 0811
or
PO Box 8569
Alice Springs NT 0871
Loss and Grief - Helping Aboriginal People Cope
Central Australian Congress
Chapters include: What is grief, Emotional feelings, Thoughts, Behaviours, Physical Feelings, Spiritual aspects, Aboriginal people and their losses, Ideas for coping with grief, Helping others who are grieving, Children and grief, and When and where to go to for help.
Available:
www.caac.org.au
Aboriginal Cultural Handbook
Madafferi, Robyn & Aboriginal and Islander Woman's Congress of WA, 1998
Resources to make carers aware of the issues Aboriginal children and their families face, their lifestyle, their culture and the way they communicate. It also gives suggestions for working with Aboriginal children and certain aspects that should be considered, such as family structure, food habits and attendance at school.
Available:
www.facs.gov.au
Let Me Die in My Country
Williamson, Peter, 1996
A report that documents consultations taken with Aboriginal people in the Kimberley and Pilbara region to develop guidelines for setting up a culturally appropriate palliative care service for Aboriginal people within these regions.
Available:
www.health.wa.gov.au
Pain Management Strategies for Health Professionals Caring for Central Australian Aboriginal People
Fenwick, Clare, 2001
A resource package that can provide health professionals with evidence based culturally sensitive information so that Aboriginal people are the recipients of excellent pain care.
Available:
Commonwealth Dept of Health and Ageing
www.health.gov.au
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| Manuals |
CARPA Standard Treatment Manual
Central Australian Rural Practitioners Association, 2004
This manual has more than 100 topics, with sections on mental health, chronic diseases and some additional general practice topics. It contains two sections, one on palliative care and one on grief and loss (in the mental health section).
Available:
Central Australia Rural Practitioners Association
PO Box 8143
Alice Springs NT 0871 |
| Articles |
Issues influencing the provision of palliative care services to remote Aboriginal communities in the Northern Territory
McGrath C. Australian Journal of Rural Health, 2000, Vol.8, No.1, p.47.
This paper examines the availability of palliative care services to Aboriginal people living in remote communities in the Northern Territory. It identifies a number of factors influencing the provision of palliative care services to Indigenous people. These include cultural considerations, different casual beliefs and the importance of the place of death.
Palliative care for patients with end-stage renal failure: reflections from Central Australia
Fried, Ofra, Palliative Medicine, Nov. 2003, Vol.17,No.6,pp.514-9
Article explores palliative care issues for Aboriginal patients with end-stage renal failure. A case history from these patients illustrates the distinctive concerns for local service provision including communication issues, cultural requirements and the need to provide care in remote locations.
Palliative care and sorry business
Prior, Deborah, 2003, Aboriginal and Islander Health Worker Journal, vol. 27, No.1, pp 7-9.
Written to provide Aboriginal health workers with information about the nature of palliative care, how to access palliative care services and clinical aspects of palliative care.
Available:
PO Box 502
Matraville NSW 2036
(02) 9311 2593 Freecall 1800 888 575
email: Journal@aihwj.com.au
www.aihwj.com.au
Terminal Illness in Rural Communities
Ramanathan, Shanti & Dunn, Peter, 1998, Aboriginal and Islander Health Worker Journal, Vol.22, No. 5, pp.23-26.
This article considers the cultural and religious needs of Aboriginal people, including burial rites and customs and traditional mourning practices. It acknowledges the need for palliative care to be local or home based and kept within the family.
Available:
The Editor
PO Box 502
Matraville NSW 2036
email: journal@aihwj.com.au
Dying in Country: Implications of Culture in the Delivery of Palliative Care in Indigenous Australian Communities
Willis, J, 1999, Anthropology and Medicine, 1999, Vol.6, No.3,pp.423-435
Examination of 3 aspects of the process of dying for Pitjantjatjara people in Central Australia - preference of dying in their home 'country' as well as preference for palliative care through matrilineal kin, and the difficulty of providing comprehensive treatment in remote areas.
Available:
www.tandf.co.uk
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| Reports |
Indigenous Palliative Care Service Delivery: A Living Model
McGrath P., Watson J., Derschow B., Murphy S & Rayner R. 2004
This report describes the development of a model for Indigenous palliative care based on research conducted within Aboriginal communities in the Northern Territory.
The Terminally Ill Koori: Their Care and Their Carers: Final Report
Olga Collis-McAnespie, Peter Dunn, Lynn Hemmings, Pamela Bell & Alison Dawes, 1997
A project aiming to improve the amount of information on the needs of terminally ill Aboriginal people, their family and carer(s) and to improve access to culturally appropriate palliative care services for them.
Available:
www.csu.edu.au/research/
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| Video / CD / DVD |
Caring for Elizabeth. Palliative care in remote communities
Kimberley Palliative Care Service
This video shows how Elizabeth and her family make decisions about her end of life care. Includes a palliative care nurse discussing the help available.
Video produced by Kimberley Palliative Care Service as part of the Commonwealth funded 'Caring Communities' project 2004 email: kpcs@health.wa.gov.au
Doctors in Aboriginal Health, Aboriginal Health Workers, Cross-Cultural Awareness, Insight into Aboriginal Community Control
Royal College of General Practice (RACGP) & The National Aboriginal Community Controlled Organisation (NACCHO), 2003.
These videos are designed to provide insights into Aboriginal community controlled health services, and culturally appropriate health care for Aboriginal and Torres Strait Islander people.
Available:
RACGP, National Rural Facility
15 Gover Street
North Adelaide SA 5006
My Story, Aboriginal and Torres Strait Islander Women sharing their experience of breast cancer
James Cook University, Qld Cancer Fund, Breast Cancer Network Australia
This video shows Aboriginal and Torres Strait Islander women sharing their stories of diagnosis and breast cancer treatment and how they can take control of their lives during this treatment.
Available:
www.cancercouncil.com.au
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This page was created in March 2007 and is due for review in March 2009