These articles and texts have been identified during the development of the Young Carers page by the authors and reviewers. They provide additional information on the role and practice of this professional group in palliative care. This is not an exhaustive list. References were selected for their relevance, and have not been formally reviewed for quality.
Aldridge J & Beckers S. (1993) Children who Care: Inside the World of Young caregivers. Loughborough University Young Carers Research Group, Loughborough.
Aldridge J & Becker S. Befriending Young Carers. A Pilot Study. (1996). Loughborough University Young Carers Research Group, Loughborough.
Aldridge J and Becker S. Children as carers: the impact of parental illness and disability on children’s caring roles. 1999. Journal of Family Therapy. 21: 303-320.
Becker S (1995). Young Carers in Europe: An explanatory Cross-national Study in Britain, France, Sweden & Germany. Loughborough University Young Carers Research Group, Loughborough.
Cree VE. Worries and problems of young carers: issues for mental health. 2003. Child and Family Social Work. 8. 301 – 309.
Cummins RA, Hughes J, Tomyn A, Gibson A, Woerner J & Lai Lufanna. “The Wellbeing of Australians- Carer Health and Wellbeing”. Australian Centre on Quality of Life. Carers Australia. 2007. Report 17.1
Doran T, Drever F, Whitehead M. Health of young and elderly informal carers: analysis of UK census data. 2003. BMJ. 327. 1388.
Forrest Keenan K, Miedzbrodzka Z, van Teijingen E, McKeeL, Simpson SA. Young people’s experiences of growing up in a family affected by Huntington’s disease. 2007. Clinical Genetics. 71: 120-129.
Lackey NR, Gates MF Combining the analyses of three qualitative data sets in studying young caregivers. 1997. Jrnl of Advanced Nursing. 26. 664-671.
National Alliance for Caregivers. Young Caregivers in the US. Report of Findings. (2005) National Alliance for Caregivers and The United Hospital Fund.
Olsen R & Parker G. A response to Aldridge and Becker - ‘ Disability rights and the denial of young carers: the dangers of zero-sum arguments’. 1997. Critical Social Policy. Vol 17 125-133.
Olsen R. Families under the Microscope: Parallels between the Young Carers Debate of the 1990s and the transformation of Childhood in the Late Nineteenth Century. 2000. Children & Society Vol 14. 384-394.
Olsen R. Young Carers: challenging the facts and politics of research into children and caring. 1996. Disability and Society, Vol 11 (1) 41-54.
Shaw M & Dorling D. Who cares in England and Wales? The Positive Care Law: cross-sectional study. 2004. Br Jrnl of Gen Prac. 54. 899- 903.
Siskowski C, Diaz N, Connors L. Recognition and Assessment of Caregiving Youth in hospice and Home Healthcare. Home Healthcare Nurse. 2007. Vol 25. (7) 433-438.
Barber M, Siskowski C. Youth caregivers: unrecognized providers of care. Pediatrics. 2008 Apr;121(4):873-4. No abstract available.
Siskowski. C (2007) Young Caregivers: Effect of Family Health Situations on School Performance The Journal of School Nursing Jun; 22, 3 Health and Medical Complete :163-9
Thomas N. ‘Your friends don’t understand’: Invisibility and unmet need in the lives of ‘young carers’. 2003 Child and Family Social Work. 8. 35-46.
Tomkins CJ. Who Will Care for the Grandparents? 2007. Jrnl of Psychosocial Nursing. Vol 45 (5).19.
This page was created on 19 May 2008 and is due for review in May 2010.