These articles and texts have been identified during the development of the Paediatrics page by the authors and reviewers. They provide additional information on the role and practice of this professional group in palliative care.  This is not an exhaustive list. References were selected for their relevance, and have not been formally reviewed for quality.

• Bluebond-Langner M, Belasco J B, Goldman A, et al. Understanding parents' approaches to care and treatment of children with cancer when standard therapy has failed Journal of Clinical Oncology (2007) 25(17): 2414 - 2419.
• Clarke J and Quin S. Professional carers' experiences of providing a pediatric palliative care service in Ireland Qual Health Res, (2007) 17(9): 1219 – 1231
• Collins, J (2000) The Measurement of symptoms in children with cancer.  Journal of Pain and Symptom Management, 19(5): 363-377
• Contro NA, Larson J, Scofield S, et al. Hospital staff and family perspectives regarding quality of pediatric palliative care Pediatrics, (2004)  114(5): 1248 - 1252.
• De Graves S and Aranda S. (2005) When a child cannot be cured – reflections of health professionals. European Jounal of Cancer Care; 14(2):132-140.
• Fowler K, Poehling K, Billheimer D, et al. Hospice referral practices for children with cancer: A Survey of pediatric oncologists J. Clin. Oncol. (2006)  24(7): 1099 - 1104.
• Goldman A. ABC of Palliative care: Special needs of children BMJ (1998) 316:49-52  http://www.bmj.com/cgi/reprint/316/7124/49
• Harris MB. Palliative care in children with cancer: which child and when? J Natl Cancer Inst Monographs, 2004 32: 144 - 149. 
• Himelstein BP. Palliative care for infants, children, adolescents, and their families.  Journal of Palliative Medicine; (2006)  9(1):163-81
• Hinds PS, Brandon J, Allen C, et al. Patient-reported outcomes in end-of-life research Pediatric Oncology J Pediatr. Psychol. (2007) 32(9): 1079 - 1088. 
• Hurwitz CA, Duncan J, and Wolfe J. Caring for the child with cancer at the close of life: "There are people who make it, and i'm hoping i'm one of them" JAMA, (2004)  292(17): 2141 - 2149. 
• Hynson Jl, Gillis J, Collins JJ, et al. The dying child: how is care different? Medical J of Australia; (2003)  179:S20-S2.
• IMPaCCT: standards for paediatric palliative care in Europe. (2007) European J of Palliative Care, 14(3): 109-114
• Mack JW, Hilden JM, Watterson J, et al. Parent and physician perspectives on quality of care at the end of life in children with cancer J. Clin. Oncol. (2005)  23(36): 9155 - 9161.
• Monterosso L, and Kristjanson LJ. The supportive and palliative care needs of families of children who die from cancer: an Australian study. Palliative Medicine, (2008). 22(1), 59-69. 
• Monterosso L, Kristjanson, LJ, Aoun S, et al. Supportive and palliative care needs of families of children with life-threatening illnesses in Western Australia: evidence to guide the development of a palliative care service. Palliative Medicine, (2007) 21(8): 689 - 696.
• Myer EC, Ritholz MD, Burns JP, et al. Improving the quality of end-of-life care in the pediatric intensive care unit: parent's priorities and recommendations. Pediatrics (2006);117(3):649-57.
• Stillion JM and Papadatou D. Suffer the children: an examination of psychosocial issues in children and adolescents with terminal illness American Behavioral Scientist, 2002 46(2): 299 - 315.
• Tomlinson D, Bartels U, Hendershot E et al. Challenges to participation in paediatric palliative care research: a review of the literature. Palliative Medicine, (2007) 21(5): 435 - 440.
• Vickers J, Thompson A, Collins GS, et al. Place and provision of palliative care for children with progressive cancer: a study by the Paediatric Oncology Nurses' Forum/United Kingdom Children's Cancer Study Group Palliative Care Working Group J. Clin. Oncol. (2007) 25(28): 4472 - 4476.
• Wolfe J, Holcombe EG, Klar N, et al. Symptoms and suffering at the end of life in children with cancer. New England Journal of Medicine; (2000) 342(5):326-33.

Text Books

Goldman A, Hain R, Liben S (Eds) (2006) Oxford Textbook of Palliative Care for Children. New York: Oxford University Press.

This page was created on 14 May 2008 and is due for review in May 2010