General 74 reviews
Bibliometrics 11 reviews
Definitions and populations 17 reviews
Ethics 2 reviews
Funding 3 reviews
Recruitment 17 reviews
Oriani A, Dunleavy L, Sharples P, Perez Algorta G, Preston NJ. Are the MORECare guidelines on reporting of attrition in palliative care research populations appropriate? A systematic review and meta-analysis of randomised controlled trials. BMC Palliat Care. 2020 Jan 9;19(1):6. doi: 10.1186/s12904-019-0506-6.
Alves AMPM, Costa SFG, Fernandes MA, Batista PSS, Lopes ME, Zaccara AA. Communication in Palliative Care: a Bibliometric Study (802kb pdf). Rev Fund Care Online. 2019.11(n. esp):524-532. DOI: http://dx.doi.org/10.9789/2175-5361.2019.v11i2.524-532.
Ernecoff NC, Check D, Bannon M, Hanson LC, Dionne-Odom JN, Corbelli J, Klein-Fedyshin M, Schenker Y, Zimmermann C, Arnold RM, Kavalieratos D. Comparing Specialty and Primary Palliative Care Interventions: Analysis of a Systematic Review. J Palliat Med. 2019 Oct 23. doi: 10.1089/jpm.2019.0349. [Epub ahead of print]
Gregersen TA, Birkelund R, Wolderslund M, Netsey-Afedo ML, Steffensen KD, Ammentorp J. What matters in clinical trial decision-making: a systematic review of interviews exploring cancer patients' experiences. Scand J Caring Sci. 2019 Feb 8. doi: 10.1111/scs.12637. [Epub ahead of print]
Scholz B, Bevan A, Georgousopoulou E, Collier A, Mitchell I. Consumer and carer leadership in palliative care academia and practice: A systematic review with narrative synthesis. Palliat Med. 2019 Jun 14:269216319854012. doi: 10.1177/0269216319854012. [Epub ahead of print]
Sun X, Zhou X, Zhang Y, Liu H. Reporting and Methodological Quality of Systematic Reviews and Meta-Analyses of Nursing Interventions in Patients With Alzheimer's Disease: General Implications of the Findings. J Nurs Scholarsh. 2019 Feb 25. doi: 10.1111/jnu.12462. [Epub ahead of print]
Ugalde A, Gaskin CJ, Rankin NM, Schofield P, Boltong A, Aranda S, Chambers S, Krishnasamy M, Livingston PM. A systematic review of cancer caregiver interventions: Appraising the potential for implementation of evidence into practice. Psychooncology. 2019 Feb 4. doi: 10.1002/pon.5018. [Epub ahead of print]
Weaver MS, Mooney-Doyle K, Kelly KP, Montgomery K, Newman AR, Fortney CA, Bell CJ, Spruit JL, Kurtz Uveges M, Wiener L, Schmidt CM, Madrigal VN, Hinds PS. The Benefits and Burdens of Pediatric Palliative Care and End-of-Life Research: A Systematic Review. J Palliat Med. 2019 Mar 5. doi: 10.1089/jpm.2018.0483. [Epub ahead of print]
Widger K, Medeiros C, Trenholm M, Zuniga-Villanueva G, Streuli JC. Indicators Used to Assess the Impact of Specialized Pediatric Palliative Care: A Scoping Review. J Palliat Med. 2019 Feb;22(2):199-219. doi: 10.1089/jpm.2018.0420. Epub 2018 Dec 11.
Bloomer MJ, Hutchinson AM, Brooks L, Botti M. Dying persons' perspectives on, or experiences of, participating in research: An integrative review. Palliat Med. 2018 Apr;32(4):851-860. doi: 10.1177/0269216317744503. Epub 2017 Dec 13.
Booth A, Maddison J, Wright K, Fraser L, Beresford B. Research prioritisation exercises related to the care of children and young people with life-limiting conditions, their parents and all those who care for them: A systematic scoping review. Palliat Med. 2018 Dec;32(10):1552-1566. doi: 10.1177/0269216318800172.
Cheong WL, Mohan D, Warren N, Reidpath DD. Palliative Care Research in the Asia Pacific Region: A Systematic Review and Bibliometric Analysis of Peer-Reviewed Publications. J Palliat Med. 2018 Dec 20. doi: 10.1089/jpm.2018.0447. [Epub ahead of print]
Ghirotto L, Busani E, Salvati M, Di Marco V, Caldarelli V, Artioli G. Researching children's perspectives in pediatric palliative care: A systematic review and meta-summary of qualitative research. Palliat Support Care. 2018 May 29:1-12. doi: 10.1017/S1478951518000172. [Epub ahead of print]
Górska S, Forsyth K, Maciver D. Living With Dementia: A Meta-synthesis of Qualitative Research on the Lived Experience. Gerontologist. 2018 May 8;58(3):e180-e196. doi: 10.1093/geront/gnw195.
Gutiérrez Sánchez D, Pérez Cruzado D, Cuesta-Vargas AI. The quality of dying and death measurement instruments: A systematic psychometric review. J Adv Nurs. 2018 Apr 19. doi: 10.1111/jan.13687. [Epub ahead of print]
Lam HR, Chow S, Taylor K, Chow R, Lam H, Bonin K, Rowbottom L, Herrmann N. Challenges of conducting research in long-term care facilities: a systematic review. BMC Geriatr. 2018 Oct 12;18(1):242. doi: 10.1186/s12877-018-0934-9.
McIlfatrick S, Muldrew DHL, Hasson F, Payne S. Examining palliative and end of life care research in Ireland within a global context: a systematic mapping review of the evidence. BMC Palliat Care. 2018 Sep 27;17(1):109. doi: 10.1186/s12904-018-0364-7.
Phillipson L, Hammond A. More Than Talking: A Scoping Review of Innovative Approaches to Qualitative Research Involving People With Dementia. Int J Qual Methods. 2018;17:1-13. doi.org/10.1177/1609406918782784
Robinson H, Williams V, Curtis F, Bridle C, Jones AW. Facilitators and barriers to physical activity following pulmonary rehabilitation in COPD: a systematic review of qualitative studies. NPJ Prim Care Respir Med. 2018 Jun 4;28(1):19. doi: 10.1038/s41533-018-0085-7.
Sanches KDS, Rabin EG, Teixeira PTO. The scenario of scientific publication on palliative care in oncology over the last 5 years: a scoping review. Rev Esc Enferm USP. 2018 Jun 25;52:e03336. doi: 10.1590/S1980-220X2017009103336.
Sun X, Zhou X, Yu Y, Liu H. Exploring reporting quality of systematic reviews and Meta-analyses on nursing interventions in patients with Alzheimer's disease before and after PRISMA introduction. BMC Med Res Methodol. 2018 Nov 29;18(1):154. doi: 10.1186/s12874-018-0622-7.
Bouça-Machado R, Rosário M, Alarcão J, Correia-Guedes L, Abreu D, Ferreira JJ. Clinical trials in palliative care: a systematic review of their methodological characteristics and of the quality of their reporting. BMC Palliat Care. 2017 Jan 25;16(1):10.
Clark J, Gardiner C, Barnes A. International palliative care research in the context of global development: a systematic mapping review. BMJ Support Palliat Care. 2018 Mar;8(1):7-18. doi: 10.1136/bmjspcare-2015-001008. Epub 2016 Aug 2.
Hussain JA, Bland M, Langan D, Johnson MJ, Currow DC, White IR. Quality of missing data reporting and handling in palliative care trials demonstrates that further development of the CONSORT statement is required: a systematic review. J Clin Epidemiol. 2017 May 19. pii: S0895-4356(16)30473-5. doi: 10.1016/j.jclinepi.2017.05.009. [Epub ahead of print]
Jones TA, Olds TS, Currow DC, Williams MT. Feasibility and Pilot Studies in Palliative Care Research: A Systematic Review. J Pain Symptom Manage. 2017 Jul;54(1):139-151.e4. doi: 10.1016/j.jpainsymman.2017.02.015. Epub 2017 Apr 24.
Jünger S, Payne SA, Brine J, Radbruch L, Brearley SG. Guidance on Conducting and REporting DElphi Studies (CREDES) in palliative care: Recommendations based on a methodological systematic review. Palliat Med. 2017 Sep;31(8):684-706. doi: 10.1177/0269216317690685. Epub 2017 Feb 13.
Penner JL, Stevenson M, Parmar MP, Bélanger E. The psychosocial needs of students conducting research with patients and their families in advanced cancer and palliative care: A scoping review. Palliat Support Care. 2017 Apr;15(2):260-266. doi: 10.1017/S1478951516000481. Epub 2016 Jul 15.
Putt K, Faville KA, Lewis D, McAllister K, Pietro M, Radwan A. Role of Physical Therapy Intervention in Patients With Life-Threatening Illnesses. Am J Hosp Palliat Care. 2017 Mar;34(2):186-196. doi: 10.1177/1049909115623246. Epub 2016 Jul 11.
Hussain JA, White IR, Langan D, Johnson MJ, Currow DC, Torgerson DJ, Bland M. Missing data in randomized controlled trials testing palliative interventions pose a significant risk of bias and loss of power: a systematic review and meta-analyses. J Clin Epidemiol. 2016 Jun;74:57-65. doi: 10.1016/j.jclinepi.2015.12.003. Epub 2015 Dec 21.
Weingärtner V, Dargatz N, Weber C, Mueller D, Stock S, Voltz R, Gaertner J. Patient reported outcomes in randomized controlled cancer trials in advanced disease: a structured literature review. Expert Rev Clin Pharmacol. 2016 Jun;9(6):821-9. Epub 2016 Apr 7.
Gaertner J, Weingärtner V, Lange S, Hausner E, Gerhardus A, Simon ST, Voltz R, Becker G, Schmacke N. The Role of End-of-Life Issues in the Design and Reporting of Cancer Clinical Trials: A Structured Literature Review. PLoS One. 2015 Sep 1;10(9):e0136640. eCollection 2015.
Lendon JP, Ahluwalia SC, Walling AM, Lorenz KA, Oluwatola OA, Anhang Price R, Quigley D, Teno JM. Measuring Experience With End-of-Life Care: A Systematic Literature Review. J Pain Symptom Manage. 2015 May;49(5):904-15.e1-3.
Wang CW, Chan CL. End-of-life care research in Hong Kong: A systematic review of peer-reviewed publications. Palliat Support Care. 2015 Dec;13(6):1711-20.
Warth M, Kessler J, Koenig J, Hillecke TK, Wormit AF, Bardenheuer HJ. Methodological challenges for music therapy controlled clinical trials in palliative care. Nord J Mus therapy. 2015; 24(4):344-371. [No abstract available]
Blum D, Inauen R, Binswanger J, Strasser F. Barriers to research in palliative care: A systematic literature review. Progr Palliat Care. 2015 Aug 02;23(2):75-84.
McIlfatrick SJ, Murphy T. Palliative care research on the island of Ireland over the last decade: a systematic review and thematic analysis of peer reviewed publications. BMC Palliat Care. 2013 Sep 4;12(1):33.
Albers G, Harding R, Pasman HR, Onwuteaka-Philipsen BD, Hall S, Toscani F, Ribbe MW, Deliens L; On behalf of PRISMA. What is the methodological rigour of palliative care research in long-term care facilities in Europe? A systematic review. Palliat Med. 2012 Jul;26(5):722-733. Epub 2011 Jun 22.
Heron‐Speirs HA, Harvey ST, Baken DM. Moderators of psycho-oncology therapy effectiveness: Addressing design variable confounds in meta-analysis. Clinical Psychology: Science and Practice. 2012; 19(1): 49-71.
Manji A, Lehrnbecher T, Dupuis LL, Beyene J, Sung L. A systematic review and meta-analysis of anti-pseudomonal penicillins and carbapenems in pediatric febrile neutropenia. Support Care Cancer. 2012 Oct;20(10):2295-304.Epub 2011 Dec 6.
O'Brien MR, Clark D. Unsolicited written narratives as a methodological genre in terminal illness: challenges and limitations. Qual Health Res. 2012 Feb;22(2):274-84. Epub 2011 Aug 29.
Ryan D, Gallagher P, Wright S, Cassidy E. Methodological challenges in researching psychological distress and psychiatric morbidity among patients with advanced cancer: what does the literature (not) tell us? Palliat Med. 2012 Mar;26(2):162-77.
Bennett MI, Hughes N, Johnson MI. Methodological quality in randomised controlled trials of transcutaneous electric nerve stimulation for pain: low fidelity may explain negative findings. Pain. 2011 Jun;152(6):1226-32. Epub 2011 Mar 23.
Garau M, Shah KK, Mason AR, Wang Q, Towse A, Drummond MF. Using QALYs in cancer: a review of the methodological limitations. Pharmacoeconomics. 2011 Aug;29(8):673-85.
Lloyd Liz, White K, Sutton E. Researching the end-of-life in old age: cultural, ethical and methodological issues. Ageing Soc. 2011 Apr;31(3):386-407.
O'Sullivan EM. Using epidemiological surveillance systems and routine data sets to study place of care and place of death: strengths and weaknesses. Palliat Med. 2011 Jan;25(1):94-6. No abstract available.
Fine E, Reid MC, Shengelia R, Adelman RD. Directly observed patient-physician discussions in palliative and end-of-life care: a systematic review of the literature. J Palliat Med. 2010 May;13(5):595-603.
Macdonald ME, Chilibeck G, Affleck W, Cadell S. Gender imbalance in pediatric palliative care research samples. Palliat Med. 2010 Jun;24(4):435-44. Epub 2009 Dec 16.
O'Brien MR, Clark D. Use of unsolicited first-person written illness narratives in research: systematic review. J Adv Nurs. 2010 Aug;66(8):1671-82. Epub 2010 Jun 16.
Stiles CR, Biondo PD, Cummings G, Hagen NA. Clinical trials focusing on cancer pain educational interventions: core components to include during planning and reporting. J Pain Symptom Manage. 2010 Aug;40(2):301-8. Epub 2010 Jun 11.
White C, Hardy J. What do palliative care patients and their relatives think about research in palliative care?-a systematic review. Support Care Cancer. 2010 Aug;18(8):905-11. Epub 2009 Aug 25.
Cherny NI, Abernethy AP, Strasser F, Sapir R, Currow D, Zafar SY. Improving the methodologic and ethical validity of best supportive care studies in oncology: lessons from a systematic review. J Clin Oncol. 2009 Nov 10;27(32):5476-86. Epub 2009 Jun 29.
Hadley G, Derry S, Moore RA, Wee B. Can observational studies provide a realistic alternative to randomized controlled trials in palliative care? J Pain Palliat Care Pharmacother. 2009;23(2):106-13.
O'Callaghan C. Objectivist and constructivist music therapy research in oncology and palliative care: an overview and reflection. Music and Medicine. 2009 Jul;1(1):41-60.
Potting C, Mistiaen P, Poot E, Blijlevens N, Donnelly P, van Achterberg T. A review of quality assessment of the methodology used in guidelines and systematic reviews on oral mucositis. J Clin Nurs. 2009 Jan;18(1):3-12.
Wu HL, Volker DL. The use of theory in qualitative approaches to research: application in end-of-life studies. J Adv Nurs. 2009 Dec;65(12):2719-32.
Harris FM, Kendall M, Bentley A, Maguire R, Worth A, Murray S, Boyd K, Brown D, Kearney N, Sheikh A. Researching experiences of terminal cancer: a systematic review of methodological issues and approaches. Eur J Cancer Care (Engl). 2008 Jul;17(4):377-86.
Li KK, Hadi S, Kirou-Mauro A, Chow E. When should we define the response rates in the treatment of bone metastases by palliative radiotherapy? Clin Oncol (R Coll Radiol). 2008 Feb;20(1):83-9. Epub 2007 Nov 5.
Hubbard G, Kidd L, Donaghy E, McDonald C, Kearney N. A review of literature about involving people affected by cancer in research, policy and planning and practice. Patient Educ Couns. 2007 Jan;65(1):21-33.
Wilson E, Elkan R, Cox K. Closure for patients at the end of a cancer clinical trial: literature review. J Adv Nurs. 2007 Sep;59(5):445-53.
Bell RF, Wisloff T, Eccleston C, Kalso E. Controlled clinical trials in cancer pain. How controlled should they be? A qualitative systematic review. Br J Cancer. 2006 Jun 5;94(11):1559-67.
Bingley AF, McDermott E, Thomas C, Payne S, Seymour JE, Clark D. Making sense of dying: a review of narratives written since 1950 by people facing death from cancer and other diseases. Palliat Med. 2006 Apr;20(3):183-95.
Kaasa S, Hjermstad MJ, Loge JH. Methodological and structural challenges in palliative care research: how have we fared in the last decades? Palliat Med. 2006 Dec;20(8):727-34.
Kirou-Mauro A, Harris K, Sinclair E, Selby D, Chow E. Are family proxies a valid source of information about cancer patients' quality of life at the end-of-life? A literature review. Journal of Cancer Pain & Symptom Palliation. 2006;2(2): 23-33.
Bottorff JL, Kelly M, Young J. Methodological issues in researching palliative care nursing practice. Can J Nurs Res. 2005 Jun;37(2):50-68.
Lorenz KA, Lynn J, Morton SC, Dy SM, Shugarman LM, Wilkinson A, Mularski RA, Sun VC, Hughes RG, Rhodes SL, Maglione M, Hilton LK, Rolon C, Shekelle PG. Methodological approaches for a systematic review of end-of-life care. J Palliat Med. 2005;8 Suppl 1:S4-11.
Piggott M, McGee H, Feuer D. Has CONSORT improved the reporting of randomized controlled trials in the palliative care literature? A systematic review. Palliat Med. 2004 Jan;18(1):32-8.
Froggatt KA, Field D, Bailey C, Krishnasamy M. Qualitative research in palliative care 1990-1999: a descriptive review. Int J Palliat Nurs. 2003 Mar;9(3):98-104.
Hunt CK. Concepts in caregiver research. J Nurs Scholarsh. 2003;35(1):27-32.
McPherson CJ, Addington-Hall JM. Judging the quality of care at the end of life: can proxies provide reliable information? Soc Sci Med. 2003 Jan;56(1):95-109.
George LK. Research design in end-of-life research: state of science. Gerontologist. 2002 Oct;42 Spec No 3:86-98.
Cook AM, Finlay IG, Edwards AG, Hood K, Higginson IJ, Goodwin DM, Normand CE, Douglas HR. Efficiency of searching the grey literature in palliative care. J Pain Symptom Manage. 2001 Sep;22(3):797-801.
Wilkes L, Tracy S, White K. The future of palliative care nursing research in Australia. Int J Nurs Pract. 2000 Feb;6(1):32-8.
Rinck GC, van den Bos GA, Kleijnen J, de Haes HJ, Schade H, Veenhof CH. Methodologic issues in effectiveness research on palliative cancer care: a systematic review. J Clin Oncol. 1997 Apr;15(4):1697-707.
Corner J. Is there a research paradigm for palliative care? Palliat Med. 1996 Jul;10(3):201-8.
Bibliometrics: 11 reviews
Zhang X, Wu Z, Zhao H, Li C, Wu J, Dai G. Conclusiveness of the Cochrane Reviews in Palliative and Supportive Care for Cancer. Am J Hosp Palliat Care. 2017 Feb;34(1):53-56. doi: 10.1177/1049909115605058. Epub 2016 Jul 11.
Papavasiliou E, Payne S, Brearley S, Brown J, Seymour J. Continuous Sedation (CS) Until Death: Mapping the Literature by Bibliometric Analysis. J Pain Symptom Manage. 2013 Jun;45(6):1073-1082.
Hui D, Arthur J, Dalal S, Bruera E. Quality of the supportive and palliative oncology literature: a focused analysis on randomized controlled trials. Support Care Cancer. 2012 Aug;20(8):1779-85. Epub 2011 Sep 21.
Nieder C, Pawinski A, Dalhaug A. Contribution of case reports to brain metastases research: systematic review and analysis of pattern of citation. PLoS One. 2012;7(3):e34300. Epub 2012 Mar 28.
Ugolini D, Neri M, Cesario A, Banassi S, Milazzo D, Bennati L, Lapenna L-M, Pasqualetti P. Scientific production in cancer rehabilitation grows higher: a bibliometric analysis. Support Care Cancer. 2012;20:1629-1638. Epub 2011 Sept 9. No article available online.
Bailey LJ, Sanson-Fisher R, Aranda S, D'Este C, Sharkey K, Schofield P. Quality of life research: types of publication output over time for cancer patients, a systematic review. Eur J Cancer Care (Engl). 2010 Sep;19(5):581-8. Epub 2009 Oct 14.
Biedrzycki BA. Decision making for cancer clinical trial participation: a systematic review. Oncol Nurs Forum. 2010 Nov 1;37(6):E387-99.
Curiale V. World-wide literature survey on geriatirc palliative medicine. Eur Geriatr Med. 2010 In Press.
Payne SA, Turner JM. Research methodologies in palliative care: a bibliometric analysis. Palliat Med. 2008 Jun;22(4):336-42.
Schneider N, Bramesfeld A, Burruano L. Palliative care in public health: a formal and content-related analysis of European journals. Journal of Public Health. 2007 Apr;15(2):87-91.
Bailey C, Froggatt K, Field D, Krishnasamy M. The nursing contribution to qualitative research in palliative care 1990-1999: a critical evaluation. J Adv Nurs. 2002 Oct;40(1):48-60.
Definitions and populations: 17 reviews
Friedel M, Aujoulat I, Dubois AC, Degryse JM. Instruments to Measure Outcomes in Pediatric Palliative Care: A Systematic Review. Pediatrics. 2019 Jan;143(1). pii: e20182379. doi: 10.1542/peds.2018-2379. Epub 2018 Dec 7.
Secunda K, Wirpsa MJ, Neely KJ, Szmuilowicz E, Wood GJ, Panozzo E, McGrath J, Levenson A, Peterson J, Gordon EJ, Kruser JM. Use and Meaning of "Goals of Care" in the Healthcare Literature: a Systematic Review and Qualitative Discourse Analysis. J Gen Intern Med. 2019 Oct 21. doi: 10.1007/s11606-019-05446-0. [Epub ahead of print]
Antunes B, Rodrigues PP, Higginson IJ, Ferreira PL. Outcome measurement-a scoping review of the literature and future developments in palliative care clinical practice. Ann Palliat Med. 2018 Oct;7(Suppl 3):S196-S206. doi: 10.21037/apm.2018.07.03. Epub 2018 Jul 26.
Kim H, Park EM, Henry C, Ward SE, Song MK. Control Conditions That Are Neither Usual Care Nor No Treatment in Randomized Trials of Psychoeducational Palliative Care Interventions: A Systematic Review. Am J Hosp Palliat Care. 2018 Oct 21:1049909118805936. doi: 10.1177/1049909118805936. [Epub ahead of print]
Scherrens AL, Beernaert K, Robijn L, Deliens L, Pauwels NS, Cohen J, Deforche B. The use of behavioural theories in end-of-life care research: A systematic review. Palliat Med. 2018 Jun;32(6):1055-1077. doi: 10.1177/0269216318758212. Epub 2018 Mar 23.
Lee JGL, Ylioja T, Lackey M. Identifying lesbian, gay, bisexual, and transgender search terminology: A systematic review of health systematic reviews. PLoS One. 2016 May 24;11(5):e0156210. doi: 10.1371/journal.pone.0156210. eCollection 2016.
Meier EA, Gallegos JV, Thomas LP, Depp CA, Irwin SA, Jeste DV. Defining a Good Death (Successful Dying): Literature Review and a Call for Research and Public Dialogue. Am J Geriatr Psychiatry. 2016 Apr;24(4):261-71. Epub 2016 Jan 22.
Piil K, Juhler M, Jakobsen J, Jarden M. Controlled rehabilitative and supportive care intervention trials in patients with high-grade gliomas and their caregivers: a systematic review. BMJ Support Palliat Care. 2016 Mar;6(1):27-34. Epub 2014 Jun 2.
Lee RT, Ramchandran K, Sanft T, Von Roenn J. Implementation of supportive care and best supportive care interventions in clinical trials enrolling patients with cancer. Ann Oncol. 2015 Sep;26(9):1838-45.
Hui D, Nooruddin Z, Didwaniya N, Dev R, De La Cruz M, Kim SH, Kwon JH, Hutchins R, Liem C, Bruera E. Concepts and definitions for "actively dying," "end of life," "terminally ill," "terminal care," and "transition of care": a systematic review. J Pain Symptom Manage. 2014 Jan;47(1):77-89. Epub 2013 Jun 21.
Sigurdardottir KR, Oldervoll L, Hjermstad MJ, Kaasa S, Knudsen AK, Løhre ET, Loge JH, Haugen DF. How are palliative care cancer populations characterized in randomized controlled trials? A literature review. J Pain Symptom Manage. 2014 May;47(5):906-914.e17. Epub 2013 Sep 7.
Van Mechelen W, Aertgeerts B, De Ceulaer K, Thoonsen B, Vermandere M, Warmenhoven F, van Rijswijk E, Delepeleire J. Defining the palliative care patient: A systematic review. Palliat Med. 2013 Mar; 27(3): 197-208.
Bausewein C, Higginson IJ. Challenges in defining 'palliative care' for the purposes of clinical trials. Curr Opin Support Palliat Care. 2012 Dec;6(4):471-82.
Hui D, Mori M, Parsons HA, Kim SH, Li Z, Damani S, Bruera E. The lack of standard definitions in the supportive and palliative oncology literature. J Pain Symptom Manage. 2012 Mar;43(3):582-92.
Wohleber AM, McKitrick DS, Davis SE. Designing research with hospice and palliative care populations. Am J Hosp Palliat Care. 2012 Aug;29(5):335-45. Epub 2011 Nov 21.
Jack B, Boland A, Dickson R, Stevenson J, McLeod C. Best supportive care in lung cancer trials is inadequately described: a systematic review. Eur J Cancer Care (Engl). 2010 May;19(3):293-301. Epub 2009 Jul 29.
Lorenz K, Lynn J, Morton S, Dy S, Mularski R, Shugarman L, Sun V, Wilkinson AM, Maglione M, Shekelle PG. End-of-life care and outcomes. Evid Rep Technol Assess (Summ). 2004 Dec(110):1-6.
Ethics: 2 reviews
Strech D, Schildmann J. Quality of ethical guidelines and ethical content in clinical guidelines: the example of end-of-life decision-making. J Med Ethics. 2011 Jul;37(7):390-6. Epub 2011 Feb 22.
Duke S, Bennett H. A narrative review of the published ethical debates in palliative care research and an assessment of their adequacy to inform research governance. Palliat Med. 2010 Mar;24(2):111-26. Epub 2009 Dec 4.
Funding: 3 reviews
Gelfman LP, Du Q, Morrison RS. An update: NIH research funding for palliative medicine 2006 to 2010. J Palliat Med. 2013 Feb;16(2):125-9. doi: Epub 2013 Jan 22.
Hui D, Reddy A, Parsons HA, Bruera E. Reporting of funding sources and conflict of interest in the supportive and palliative oncology literature. J Pain Symptom Manage.2012 Sep;44(3):421-30. Epub 2012 Jul 7.
Gelfman LP, Morrison RS. Research funding for palliative medicine. J Palliat Med. 2008 Jan-Feb;11(1):36-43.
Recruitment: 17 reviews
Chambers E, Gardiner C, Thompson J, Seymour J. Patient and carer involvement in palliative care research: An integrative qualitative evidence synthesis review. Palliat Med. 2019 Jun 28:269216319858247. doi: 10.1177/0269216319858247. [Epub ahead of print]
Hosie A, Siddiqi N, Featherstone I, Johnson M, Lawlor PG, Bush SH, Amgarth-Duff I, Edwards L, Cheah SL, Phillips J, Agar M. Inclusion, characteristics and outcomes of people requiring palliative care in studies of non-pharmacological interventions for delirium: A systematic review. Palliat Med. 2019 Jun 28:269216319853487. doi: 10.1177/0269216319853487. [Epub ahead of print]
McCallum KJ, Jackson D, Walthall H, Aveyard H. A focused mapping review and synthesis of current practice in qualitative end of life research with the bereaved. Nurse Res. 2019 Sep 16;27(3):14-19. doi: 10.7748/nr.2019.e1668. Epub 2019 Jul 19.
Sheill G, Guinan E, Brady L, Hevey D, Hussey J. Exercise interventions for patients with advanced cancer: A systematic review of recruitment, attrition, and exercise adherence rates. Palliat Support Care. 2019 May 21:1-11. doi: 10.1017/S1478951519000312. [Epub ahead of print]
Waheed W, Mirza N, Waheed MW, Blakemore A, Kenning C, Masood Y, Matthews F, Bower P. Recruitment and methodological issues in conducting dementia research in British ethnic minorities: A qualitative systematic review. Int J Methods Psychiatr Res. 2019 Dec 5:e1806. doi: 10.1002/mpr.1806. [Epub ahead of print]
Dunleavy L, Walshe C, Oriani A, Preston N. Using the 'Social Marketing Mix Framework' to explore recruitment barriers and facilitators in palliative care randomised controlled trials? A narrative synthesis review. Palliat Med. 2018 May;32(5):990-1009. doi: 10.1177/0269216318757623. Epub 2018 Feb 27.
Hudson BF, Oostendorp LJ, Candy B, Vickerstaff V, Jones L, Lakhanpaul M, Bluebond-Langner M, Stone P. The under reporting of recruitment strategies in research with children with life-threatening illnesses: A systematic review. Palliat Med. 2017 May;31(5):419-436. Epub 2016 Sep 8.
Kars MC, van Thiel GJ, van der Graaf R, Moors M, de Graeff A, van Delden JJ. A systematic review of reasons for gatekeeping in palliative care research. Palliat Med. 2016 Jun;30(6):533-48. Epub 2015 Nov 17.
Boland J, Currow DC, Wilcock A, Tieman J, Hussain JA, Pitsillides C, Abernethy AP, Johnson MJ. A Systematic Review of Strategies Used to Increase Recruitment of People With Cancer or Organ Failure Into Clinical Trials: Implications for Palliative Care Research. J Pain Symptom Manage. 2015 Apr;49(4):762-772.e5.
Dhalla S, Poole G. Motivators to participation in medical trials: the application of social and personal categorization. Psychol Health Med. 2013;18(6):664-75. Epub 2013 Jan 30.
Alexander SJ. 'As long as it helps somebody': why vulnerable people participate in research. Int J Palliat Nurs. 2010 Apr;16(4):173-8.
Jenkins VA, Anderson JL, Fallowfield LJ. Communication and informed consent in phase 1 trials: a review of the literature from January 2005 to July 2009. Support Care Cancer. 2010 Sep;18(9):1115-21. Epub 2010 Mar 4.
Todd AM, Laird BJ, Boyle D, Boyd AC, Colvin LA, Fallon MT. A systematic review examining the literature on attitudes of patients with advanced cancer toward research. J Pain Symptom Manage. 2009 Jun;37(6):1078-85. Epub 2009 May 5.
Ford JG, Howerton MW, Lai GY, Gary TL, Bolen S, Gibbons MC, Tilburt J, Baffi C, Tanpitukpongse TP, Wilson RF, Powe NR, Bass EB. Barriers to recruiting underrepresented populations to cancer clinical trials: a systematic review. Cancer. 2008 Jan 15;112(2):228-42.
Tomlinson D, Bartels U, Hendershot E, Constantin J, Wrathall G, Sung L. Challenges to participation in paediatric palliative care research : a review of the literature. Palliat Med. 2007 Jul;21(5):435-40.
Mills EJ, Seely D, Rachlis B, Griffith L, Wu P, Wilson K, Ellis P, Wright JR. Barriers to participation in clinical trials of cancer: A meta-analysis and systematic review of patient-reported factors. Lancet Oncol. 2006 Feb;7(2):141-8.
Steinhauser K, Clipp E, Hays J, Olsen M, Arnold R, Christakis N, Lindquist JH, Tulsky JA. Identifying, recruiting, and retaining seriously-ill patients and their caregivers in longitudinal research. Palliat Med. 2006 Dec;20(8):745-54.
Last updated 10 February 2020