Review Collection: People with dementia

83 reviews


Allen AP, Curran EA, Duggan Á, Cryan JF, Chorcoráin AN, Dinan TG, Molloy DW, Kearney PM, Clarke G. A systematic review of the psychobiological burden of informal caregiving for patients with dementia: Focus on cognitive and biological markers of chronic stress. Neurosci Biobehav Rev. 2017 Feb;73:123-164. Epub 2016 Dec 13.

Arruda EH, Paun O. Dementia Caregiver Grief and Bereavement: An Integrative Review. West J Nurs Res. 2017 Jun;39(6):825-851. Epub 2016 Jul 13.

Diehl-Schmid J, Jox R, Gauthier S, Belleville S, Racine E, Schüle C, Turecki G, Richard-Devantoy S. Suicide and assisted dying in dementia: What we know and what we need to know. A narrative literature review. Int Psychogeriatr. 2017 Aug;29(8):1247-1259. doi: 10.1017/S1041610217000679. Epub 2017 May 2.

Douglas JW, Lawrence JC, Turner LW. Social Ecological Perspectives of Tube-Feeding Older Adults with Advanced Dementia: A Systematic Literature Review. J Nutr Gerontol Geriatr. 2017 Jan-Mar;36(1):1-17. doi: 10.1080/21551197.2016.1277174. Epub 2017 Jan 31.

Durepos P, Wickson-Griffiths A, Hazzan AA, Kaasalainen S, Vastis V, Battistella L, Papaioannou A. Assessing Palliative Care Content in Dementia Care Guidelines: A Systematic Review. J Pain Symptom Manage. 2017 Apr;53(4):804-813. Epub 2017 Jan 4.

Hyde AJ, May BH, Dong L, Feng M, Liu S, Guo X, Zhang AL, Lu C, Xue CC. Herbal medicine for management of the behavioural and psychological symptoms of dementia (BPSD): A systematic review and meta-analysis. J Psychopharmacol. 2017 Feb;31(2):169-183. Epub 2016 Dec 7.

Mansfield E, Boyes AW, Bryant J, Sanson-Fisher R. Quantifying the unmet needs of caregivers of people with dementia: a critical review of the quality of measures. Int J Geriatr Psychiatry. 2017 Mar;32(3):274-287. Epub 2016 Dec 16.

Sullivan DO, Mannix M, Timmons S. Integrated Care Pathways and Care Bundles for Dementia in Acute Care: Concept Versus Evidence. Am J Alzheimers Dis Other Demen. 2017 Jun;32(4):189-193. doi: 10.1177/1533317517698791. Epub 2017 Apr 12.

Vilela VC, Pacheco RL, Latorraca COC, Pachito DV, Riera R. What do cochrane systematic reviews say about non-pharmacological interventions for treating cognitive decline and dementia? Sao Paulo Med J. 2017 May-Jun;135(3):309-320. doi: 10.1590/1516-3180.2017.0092060617.


Anderson K, Bird M, MacPherson S, Blair A. How do staff influence the quality of long-term dementia care and the lives of residents? A systematic review of the evidence. Int Psychogeriatr. 2016 Aug;28(8):1263-81. Epub 2016 Apr 15.

Buswell M, Lumbard P, Prothero L, Lee C, Martin S, Fleming J, Goodman C. Unplanned, urgent and emergency care: what are the roles that EMS plays in providing for older people with dementia? An integrative review of policy, professional recommendations and evidence. Emerg Med J. 2016 Jan;33(1):61-70.

Disalvo D, Luckett T, Agar M, Bennett A, Davidson PM. Systems to identify potentially inappropriate prescribing in people with advanced dementia: a systematic review. BMC Geriatr. 2016 May 31;16:114. doi: 10.1186/s12877-016-0289-z.

Ellis-Smith C, Evans CJ, Bone AE, Henson LA, Dzingina M, Kane PM, Higginson IJ, Daveson BA; BuildCARE. Measures to assess commonly experienced symptoms for people with dementia in long-term care settings: a systematic review. BMC Med. 2016 Feb 26;14(1):38.

Feast A, Orrell M, Charlesworth G, Melunsky N, Poland F, Moniz-Cook E. Behavioural and psychological symptoms in dementia and the challenges for family carers: systematic review. Br J Psychiatry. 2016 May;208(5):429-34. Epub 2016 Mar 17.

Husebo BS, Achterberg W, Flo E. Identifying and Managing Pain in People with Alzheimer's Disease and Other Types of Dementia: A Systematic Review. CNS Drugs. 2016 Jun;30(6):481-97.

Mahin-Babaei F, Hilal J, Hughes JC. The basis, ethics and provision of palliative care for dementia: A review. Maturitas. 2016 Jan;83:3-8. Epub 2015 Sep 16.

Murphy E, Froggatt K, Connolly S, O'Shea E, Sampson EL, Casey D, et al. Palliative care interventions in advanced dementia. Cochrane Database Syst Rev. 2016 Dec 2;12:CD011513. doi: 10.1002/14651858.CD011513.pub2.

Nyman SR, Szymczynska P. Meaningful activities for improving the wellbeing of people with dementia: beyond mere pleasure to meeting fundamental psychological needs. Perspect Public Health. 2016 Mar;136(2):99-107.

Pozzebon M, Douglas J, Ames D. Spouses' experience of living with a partner diagnosed with a dementia: a synthesis of the qualitative research. Int Psychogeriatr. 2016 Apr;28(4):537-56. Epub 2016 Jan 11.


Afram B, Verbeek H, Bleijlevens MH, Hamers JP. Needs of informal caregivers during transition from home towards institutional care in dementia: a systematic review of qualitative studies. Int Psychogeriatr. 2015 Jun;27(6):891-902. Epub 2014 Oct 7.

Boersma P, van Weert JC, Lakerveld J, Dröes RM. The art of successful implementation of psychosocial interventions in residential dementia care: a systematic review of the literature based on the RE-AIM framework. Int Psychogeriatr. 2015 Jan;27(1):19-35.Epub 2014 Aug 5.

Brooke J, Ojo O. Enteral nutrition in dementia: a systematic review. Nutrients. 2015 Apr 3;7(4):2456-68.

Buckley JS, Salpeter SR. A Risk-Benefit Assessment of Dementia Medications: Systematic Review of the Evidence. Drugs Aging. 2015 Jun;32(6):453-67.

Burns M, McIlfatrick S. Palliative care in dementia: literature review of nurses' knowledge and attitudes towards pain assessment. Int J Palliat Nurs. 2015 Aug;21(8):400-7.

Candy B, Elliott M, Moore K, Vickerstaff V, L Sampson E, Jones L. UK quality statements on end of life care in dementia: a systematic review of research evidence. BMC Palliat Care. 2015 Oct 19;14:51.

Chi S, Wang C, Jiang T, Zhu XC, Yu JT, Tan L. The prevalence of depression in Alzheimer's disease: a systematic review and meta-analysis. Curr Alzheimer Res. 2015;12(2):189-98.

Foley NC, Affoo RH, Martin RE. A systematic review and meta-analysis examining pneumonia-associated mortality in dementia. Dement Geriatr Cogn Disord. 2015;39(1-2):52-67.Epub 2014 Oct 22.

Large S, Slinger R. Grief in caregivers of persons with Alzheimer's disease and related dementia: a qualitative synthesis. Dementia (London). 2015 Mar;14(2):164-83. doi: 10.1177/1471301213494511. Epub 2013 Jul 11.

Lord K, Livingston G, Cooper C. A systematic review of barriers and facilitators to and interventions for proxy decision-making by family carers of people with dementia. Int Psychogeriatr. 2015 Aug;27(8):1301-12. Epub 2015 Apr 14.

Perrar KM, Schmidt H, Eisenmann Y, Cremer B, Voltz R. Needs of people with severe dementia at the end-of-life: a systematic review. J Alzheimers Dis. 2015;43(2):397-413.

Tomlinson E, Stott J. Assisted dying in dementia: a systematic review of the international literature on the attitudes of health professionals, patients, carers and the public, and the factors associated with these. Int J Geriatr Psychiatry. 2015 Jan;30(1):10-20. Epub 2014 Jul 10.

van der Maaden T, Hendriks SA, de Vet HC, Zomerhuis MT, Smalbrugge M, Jansma EP, Koopmans RT, Hertogh CM, van der Steen JT. Antibiotic use and associated factors in patients with dementia: a systematic review. Drugs Aging. 2015 Jan;32(1):43-56.


Benbow SM, Sharman V. Review of family therapy and dementia: twenty-five years on. nt Psychogeriatr. 2014 Dec;26(12):2037-50. Epub 2014 Jul 15.

Damiani G, Silvestrini G, Trozzi L, Maci D, Iodice L, Ricciardi W. Quality of dementia clinical guidelines and relevance to the care of older people with comorbidity: evidence from the literature. Clin Interv Aging. 2014 Aug 20;9:1399-407.

Davies N, Maio L, Rait G, Iliffe S. Quality end-of-life care for dementia: What have family carers told us so far? A narrative synthesis. Palliat Med. 2014 Mar 13;28(7):919-930.[Epub ahead of print]

de Jonghe A, van de Glind EM, van Munster BC, de Rooij SE. Underrepresentation of patients with pre-existing cognitive impairment in pharmaceutical trials on prophylactic or therapeutic treatments for delirium: a systematic review.
J Psychosom Res. 2014 Mar;76(3):193-9.Epub 2013 Dec 31.

Moens K, Higginson IJ, Harding R; EURO IMPACT. Are there differences in the prevalence of palliative care-related problems in people living with advanced cancer and eight non-cancer conditions? A systematic review. J Pain Symptom Manage. 2014 Oct;48(4):660-77. Epub 2014 May 5.

Petriwskyj A, Gibson A, Parker D, Banks S, Andrews S, Robinson A. A qualitative metasynthesis: family involvement in decision making for people with dementia in residential aged care. Int J Evid Based Healthc. 2014 Jun;12(2):87-104.

Romero JP, Benito-León J, Louis ED, Bermejo-Pareja F. Under reporting of dementia deaths on death certificates: a systematic review of population-based cohort studies. J Alzheimers Dis. 2014;41(1):213-21.

van der Steen JT, van Soest-Poortvliet MC, Hallie-Heierman M, Onwuteaka-Philipsen BD, Deliens L, de Boer ME, Van den Block L, van Uden N, Hertogh CM, de Vet HC. Factors associated with initiation of advance care planning in dementia: a systematic review. J Alzheimers Dis. 2014;40(3):743-57. doi: 10.3233/JAD-131967.


Brody AA1, Galvin JE. A review of interprofessional dissemination and education interventions for recognizing and managing dementia. Gerontol Geriatr Educ. 2013;34(3):225-56.

Brown MA, Sampson EL, Jones L, Barron AM. Prognostic indicators of 6-month mortality in elderly people with advanced dementia: a systematic review. Palliat Med. 2013 May;27(5):389-400.

Cadieux MA, Garcia LJ, Patrick J. Needs of people with dementia in long-term care: a systematic review. Am J Alzheimers Dis Other Demen. 2013 Dec;28(8):723-33. Epub 2013 Sep 4.

Chan D, Livingston G, Jones L, Sampson EL. Grief reactions in dementia carers: a systematic review. Int J Geriatr Psychiatry. 2013 Jan;28(1):1-17.  Epub 2012 Mar 8.

Clarke G, Harrison K, Holland A, Kuhn I, Barclay S. How are treatment decisions made about artificial nutrition for individuals at risk of lacking capacity? A systematic literature review. PLoS One. 2013 Apr 16;8(4):e61475.

Eggenberger E, Heimerl K, Bennett MI. Communication skills training in dementia care: a systematic review of effectiveness, training content, and didactic methods in different care settings. Int Psychogeriatr. 2013 Mar;25(3):345-58. Epub 2012 Nov 2.

Peacock SC. The experience of providing end-of-life care to a relative with advanced dementia: an integrative literature review. Palliat Support Care. 2013 Apr;11(2):155-68. Epub 2012 Oct 23.

Andrea Petriwskyj, Deborah Parker, Andrew Robinson, Alexandra Gibson, Sharon Andrews, Susan Banks. Family involvement in decision making for people with dementia in residential aged care: a systematic review of quantitative and qualitative evidence. JBI Database of Systematic Reviews & Implementation Reports 2013;11(7) 131 - 282. (Abstract unavailable)

Phillips JL, West PA, Davidson PM, Agar M.Phillips JL, West PA, Davidson PM, Agar M. Does case conferencing for people with advanced dementia living in nursing homes improve care outcomes: Evidence from an integrative review? Int J Nurs Stud. 2013 Aug;50(8):1122-35. Epub 2012 Nov 28.

Strech D, Mertz M, Knüppel H, Neitzke G, Schmidhuber M. The full spectrum of ethical issues in dementia care: systematic qualitative review. Br J Psychiatry. 2013 Jun;202:400-6.


Connolly A, Sampson EL, Purandare N. End-of-life care for people with dementia from ethnic minority groups: a systematic review.  J Am Geriatr Soc. 2012 Feb;60(2):351-60.

Morandi A, McCurley J, Vasilevskis EE, Fick DM, Bellelli G, Lee P, Jackson JC, Shenkin SD, Marcotrabucchi, Schnelle J, Inouye SK, Ely EW, MacLullich A. Tools to detect delirium superimposed on dementia: a systematic review. J Am Geriatr Soc. 2012 Nov; 60(11):2005-13.  Epub 2012 Oct 5.

Povova J, Ambroz P, Bar M, Pavukova V, Sery O, Tomaskova H, Janout V. Epidemiological of and risk factors for Alzheimer's disease: a review. Biomed Pap Med Fac Univ Palacky Olomouc Czech Repub. 2012 Jun;156(2):108-14.

Procter E..Collaboration between the specialties in provision of end-of-life care for all in the UK: reality or utopia? Int J Palliat Nurs. 2012 Jul;18(7):339-47.

Robinson L, Dickinson C, Rousseau N, Beyer F, Clark A, Hughes J, Howel D, Exley C. A systematic review of the effectiveness of advance care planning interventions for people with cognitive impairment and dementia. Age Ageing. 2012 Mar;41(2):263-9. Epub 2011 Dec 8.


Dening KH, Jones L, Sampson EL. Advance care planning for people with dementia: a review. Int Psychogeriatr. 2011 Dec;23(10):1535-51. Epub 2011 Aug 26.

Ni Thuathail A, Welford C. Pain assessment tools for older people with cognitive impairment. Nurs Stand.2011 Oct 12-18;26(6):39-46. 


de Jonghe A, Korevaar JC, van Munster BC, de Rooij SE. Effectiveness of melatonin treatment on circadian rhythm disturbances in dementia. Are there implications for delirium? A systematic review. Int J Geriatr Psychiatry. 2010 Dec;25(12):1201-8. doi: 10.1002/gps.2454.

Goodman C, Evans C, Wilcock J, Froggatt K, Drennan V, Sampson E, Blanchard M, Bissett M, Iliffe S. End of life care for community dwelling older people with dementia: an integrated review. Int J Geriatr Psychiatry. 2010 Apr;25(4):329-37.

Hennings J, Froggatt K, Keady J. Approaching the end of life and dying with dementia in care homes: the accounts of families. Rev Clin Geront. 2010;20(2):114-27.

Napoles AM, Chadiha L, Eversley R, Moreno-John G. Reviews: developing culturally sensitive dementia caregiver interventions: are we there yet? Am J Alzheimers Dis Other Demen. 2010;25(5):389-406. Epub 2010 May 27.

Park J, Castellanos-Brown K, Belcher J. A review of observational pain scales in nonverbal elderly with cognitive impairments. Research on Social Work Practice. 2010;20(6):651-4.

Parsons C, Hughes CM, Passmore AP, Lapane KL. Withholding, discontinuing and withdrawing medications in dementia patients at the end of life: a neglected problem in the disadvantaged dying? Drugs Aging. 2010 Jun 1;27(6):435-49.

van der Steen JT. Dying with dementia: what we know after more than a decade of research. J Alzheimers Dis. 2010;22(1):37-55.

Westenhaver TF, Krassa TJ, Bonner GJ, Wilkie DJ. Advance care plans for CPR or mechanical ventilation in patients with dementia. Nurse Pract. 2010 Dec;35(12):38-42.


Candy B, Sampson EL, Jones L. Enteral tube feeding in older people with advanced dementia: findings from a Cochrane systematic review. Int J Palliat Nurs. 2009 Aug;15(8):396-404.

Lee M, Chodosh J. Dementia and life expectancy: what do we know? J Am Med Dir Assoc. 2009 Sep;10(7):466-71. Epub 2009 Jun 27.

McAuliffe L, Nay R, O'Donnell M, Fetherstonhaugh D. Pain assessment in older people with dementia: literature review. J Adv Nurs. 2009 Jan;65(1):2-10. Epub 2008 Nov 11.

Ryan T. End-of-life care for people with dementia: a thematic review of familial involvement, practices and beliefs. Int J Disabil Hum Dev. 2009 Jan-Mar;8(1):15-20. No abstract available.

Sampson EL, Candy B, Jones L. Enteral tube feeding for older people with advanced dementia. Cochrane Database Syst Rev. 2009 Apr 15;(2):CD007209.


Birch D, Draper J. A critical literature review exploring the challenges of delivering effective palliative care to older people with dementia. J Clin Nurs. 2008 May;17(9):1144-63.

Volicer L.  End-of-Life Care for People With Dementia in Long-Term Care Settings. Alzheim Care Today. 2008 9(2): 84-102.


Kettl P. Helping families with end-of-life care in Alzheimer's disease. J Clin Psychiatry. 2007 Mar;68(3):445-50. 


Roger KS. A literature review of palliative care, end of life and dementia. Palliat Support Care 2006 Sep;4(3):295-303. 

Zwakhalen SM, Hamers JP, Abu-Saad HH, Berger MP. Pain in elderly people with severe dementia: a systematic review of behavioural pain assessment tools. BMC Geriatr. 2006 Jan 27;6:3.


Sampson EL, Ritchie CW, Lai R, Raven PW, Blanchard MR. A systematic review of the scientific evidence for the efficacy of a palliative care approach in advanced dementia. Int Psychoger. 2005 Mar;17(1):31-40.

Smith M. Pain assessment in nonverbal older adults with advanced dementia. Perspect Psychiatr Care. 2005 Jul-Sep;41(3):99-113.

Volicer L. End-of-life care for people with dementia in residential care settings. Alzheimers Association. 2005;35p. (170kb pdf)


Lorenz K, Lynn J, Morton SC, Dy S, Mularski R, Shugarman L, Sun V, Wilkinson AM, Maglione M, Shekelle PG. End-of-life care and outcomes. Evid Rep Technol Assess (Summ). 2004 Dec;(110):1-6.


Pinderhughes ST, Morrison RS. Evidence-based approach to management of fever in patients with end-stage dementia. J Palliat Med. 2003 Jun;6(3):351-4.

Pinquart M, Sörensen S. Differences between caregivers and noncaregivers in psychological health and physical health: a meta-analysis. Psychol Aging. 2003 Jun;18(2):250-67.


Dewey ME, Saz P. Dementia, cognitive impairment and mortality in persons aged 65 and over living in the community: a systematic review of the literature. Int J Geriatr Psychiatry. 2001 Aug;16(8):751-61. 


Ramritu P, Finlayson K, Mitchell A, Croft G. Identification and nursing management of dysphagia in individuals with neurological impairment. The Joanna Briggs Institute for Evidence Based Nursing and Midwifery. 2000; Systematic Review No. 8.


Finucane TE, Christmas C, Travis K. Tube feeding in patients with advanced dementia: a review of the evidence. JAMA. 1999 Oct 13;282(14):1365-70.

Last updated 12 September 2017