Engagement Project

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CareSearch Engagement Project

Over the 2017-2020 period the CareSearch/palliAGED team are developing and applying a structured framework to engage with specific groups to learn more about how they find health care information, and what information about palliative care they need. Our aim is to increase awareness and understanding of palliative care, to strengthen our connections with professional and community groups, and to ensure everyone has access to reliable information they can trust. A summary of the Engagement project is available as a fact sheet (305kb pdf).

The three groups we are working with over the 2017-2020 period are:
  • Patients, Families and Carers
  • Aged Care, and
  • Allied Health. 

What’s happening

In mid-2018, selected representatives from the three groups came together for one-day workshops (one workshop per group). These representatives took centre stage and told us the views and specific palliative care information needs of their community or sector. We learnt of the channels that commonly provide them with new information, and how this information moves out to members of their community or sector. They also provided feedback on the format and content of CareSearch and palliAGED palliative care resources, and the best avenues to share these with the community. 

Responding to the insights gained, we have created an Action Plan for each group or sector. In November 2018, a workshop summary and the final Action Plan was presented via an online meeting to people who had registered their interest in the project.
Engagement Infographic
We are now working to roll out the Action Plans. 

In the coming months you will hear more from us through the aged care, allied health, and patient, carer and family community information channels. We will be addressing issues raised in the workshops and providing guidance on how to use the CareSearch and palliAGED resources to support your palliative care information needs. 

Keep up with the action

Find out about the CareSearch and palliAGED Engagement Project action so far:

To hear more about these actions read our newsletters @CareSearch and palliAGED news.
You can register to receive the newsletters: @CareSearch or palliAGED news
You can also stay in touch with us on Twitter @CareSearch and @palliAGED #EngagementPallCare

Latest Engagement News

Yuletide 2018 Resources and Information

About the yule tide goat

As part of the end of year celebrations the engagement project mascot Dr Monty G.O.A.T made a guest appearance to inspire staff at Christmas.
Yuletide goat – engagement in action (230kb pdf)
 

Useful Information and Resources

You're not alone tips for coping with holidays and other significant events Remembering absent friends and loved ones.

CareSearch Palliative Perspectives Blog on contemplating the last Christmas together.

Have your say

We understand the importance of working with you to provide support for you, so if you have any questions, or would like to suggest ways to reach members of these communities please contact us. 
  • Want to tell us how we can share what CareSearch and palliAGED do? 
  • Got an idea of how to connect us to your sector or community? 
  • Like to share a newsletter, event or organisation that we can contact? 
Drop your ideas to us via this feedback form and we’ll take it from there.

 

Feedback and comments

About CareSearch and palliAGED

CareSearch and palliAGED provide reliable, evidence-based online information for everyone on end-of-life and palliative care. This information can support informed decision-making on the most appropriate care. These are important decisions that need to be made whether you are a patient, family member, carer, or health care provider.

Working out what is based on fact and not just someone’s opinion is not always easy. CareSearch and palliAGED act as a ‘gateway’ to ensure that online health information is trustworthy. We also consolidate evidence into accessible language and formats that reflect the needs of specific professional and community groups. Letting people know how to access and best use CareSearch and palliAGED resources is an important part of what we do.

Page updated 19 December 2018