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Information For
Patients, Carers and Families
Introduction for Patients
Introduction for Carers
Introduction for Families
How to Care
Looking After Someone
Family Carer Role
Family Conflict In Caring
If You Cannot Continue In The Caring Role
Looking After Yourself
Managing Daily Life
Paid Careworkers In The Home
Respite
Social Support
Tips for Carers About Visitors
Who is a Carer?
Practical Caring Resources
Getting Practical Help
Managing Medicines
Costs of Medicines
Medicines Explained
Practical Ways to Manage Medicines
Tips for Managing Medicines
Practical Information and Resources
Transport
Supporting Carers
Coming Home When Someone is Ill
Coping with Long Distance Caring
Family Carer Coordinating Role
Practical Assistance
Responding to Their Feelings
Saying Goodbye
Tips For Visitors
What to Say
Young People Provide Care Too
Carer Needs Tool
Carer Resources (CareSearch)
Living with Illness
Changes Over Time
Course Of Illness
Quality Of Life
Complementary Therapies
Some of the More Common Therapies
Continuing To Work
Emotional Challenges
Anxiety and Depression
Making Decisions
The Hard Thing About Being Cared For
When Someone You Care About is Seriously Ill
When You Are Seriously Ill
Would it Help to Talk to Someone?
Financial Matters
Costs of Care
Financial Help and Advice
Financial Resources
Superannuation and Insurances
Planning for the Future
Advance Care Planning
Funerals
Wills
Spirituality
Support Groups
Symptoms
Pain
Why is Communication Important?
Communicating With Health Professionals
Difficult Conversations
Family Communication
Talking With Children
At the End
Caring at the End
Changes at the Time of Death
Dying at Home
Family Issues at the End
Immediately After a Death
Place of Care, Place of Death
Preparing for the End
Specific Groups
Aboriginal and Torres Strait Islander People
Lesbian, Gay, Bisexual, Transgender and Intersex
Homelessness
Intellectual Disability
Living Alone
Mental Illness
Multicultural
Other Languages
Older People
Children and Adolescents
Prisoners and Their Families
Refugees and Asylum Seekers
Rural and Remote
Young Carers
Bereavement, Grief and Loss
Children and Grief and Loss
Grief and Sadness
Loss of a Child
Remembering
Grief and Loss Resources
Using Online Information
How Research Contributes
Is it Trustworthy?
Sources of Information
Using Information
About Palliative Care
It's Not Just Cancer
Referring to Palliative Care
What is Palliative Care?
Who Provides Palliative Care
Coordinating Palliative Care
The Role of Health Professionals
The Role of Specialist Palliative Care
Why Information Matters
Patient's Need for Information
Family Carer's Need For Information
Finding Services
Palliative Care Services
National Resources
Disease-Specific Resources
State Resources
Australian Capital Territory
New South Wales
Northern Territory
Queensland
South Australia
Tasmania
Victoria
Western Australia
Print Resources
GPs
Patient Assessment
Identifying Palliative Care Needs
Assessing Prognosis
Assessing Symptoms
Assessing Distress
Assessing Family and Caregivers
Planning Care
Communication
Communication Starters
Sharing Care
Advance Care Planning
Planning for a Home Death
Symptoms
Appetite
Bowels
Breathing
Delirium
Fatigue
Nausea and Vomiting
Pain
Sleep
Clinical Decisions
Managing Opioids
Procedures and Investigations
The Deteriorating Patient
Emergencies
Syringe Drivers
Psychosocial Complexity
Refractory Problems
The Dying Patient
Assessing the Dying Patient
End of Life Symptoms
Supporting Families and Caregivers
Bereavement
Following up the Bereaved
Practice Management
Prescribing
Reimbursement
Professional Practice
Self-Care
Ongoing Education
Resources
GP Resources by Topic
Printable Patient Resources
Finding Literature and Evidence about GPs
Aboriginal and Torres Strait Islander Care
Culturally Safe and Responsive Care
Developing Your Knowledge and Skills
The Care Journey
Why it's Important to Ask
Understanding the Care Context
Working Together
Palliative Care Approach
Person-Centred Care
Talking Together
Creating a Caring Environment
Changing Your Care Approach
Resources for the Aboriginal and Torres Strait Islander Health Workforce
Caring for Yourself
Relevant Health Organisations
Patient, Family and Community Journeys
What’s Happening to me?
How do I Provide Care for my Family and Community?
Where Can I Find Help?
Online Information and Stories
Research, Evidence and Practice
National Responses
Aboriginal and Torres Strait Islander Peoples Palliative Care Resource Kit
About the Section
Acknowledgement of Country
Allied Health
Allied Health and Palliative Care
Roles of Allied Health Professionals
Dietitians
Music Therapists
Occupational Therapists
Physiotherapists
Psychologists
Social Workers
Speech Pathologists
New to Palliative Care?
Practice Settings
About the Allied Health Section
Getting Started
Interdisciplinary Teams
Communication
Competencies
Multidisciplinary Care
Working Boundaries
Working with Patients, Carers and Families
Adapting Goals
Discussing Palliative Care
Professional Boundaries
Responding to Strong Emotions
When a Patient Dies
Working with Families
Information for Patients, Carers and Families
Resources for Patients, Carers and Families
Clinical Considerations
Advance Care Planning
Care of the Spirit
Complementary Therapies
Helping to Maintain Hope
Managing Symptoms
Psycho-social Assessment
Self-care
Evidence, Quality, Standards and Affordability
Allied Health Evidence
Policy, Quality, Standards and Affordability
Research
Professional Development
Continuing Professional Development
Educating Others
Journal Club
Networking
Reflective Practice
Clinical and Education Resources
Allied Health Videos
Podcasts, Presentations, Posters and Abstracts
Stories
Disease Specific Information
Cancer Cachexia
Motor Neurone Disease
Nurses
Clinical
Advance Care Planning
After Death Care
After a Death at Home
Care of the Body
Religious and Cultural Considerations
Tissue Donation
Care of the Spirit
Communication
Complementary Therapies
End of Life Care
EOL Care Pathways
Ethical Issues
Assisted Suicide
Autonomy
Euthanasia
Nutrition and Hydration
Palliative Sedation
Research
Resuscitation
Truth Telling and Collusion
Withholding and Withdrawing Treatment
Medication Management
Evidence for Medications
Palliative Medications
Prescribing Resources
The Role of the Carer
Multidisciplinary Team
Practical Caring Issues
Managing Fungating Wounds
Syringe Drivers
Self-Care
Burnout
Contributing Factors
Self-care Concepts
Symptom Management
Clinical Assessment
Clinical Decision Making
Working with Families
Family Meetings
Supporting Carers
Working With Families
Areas of Practice
Lesbian, Gay, Bisexual, Transgender and Intersex
Homelessness
Intellectually Disabled
Living Alone
Mental Illness
Multicultural
Paediatrics (Specific Populations)
Prisoners
Refugees and Asylum Seekers
Rural and Remote (Specific Populations)
Aboriginal and Torres Strait Islander People
Aged Care and Dementia
HIV / AIDS
Hospital
Multicultural Areas of Practice
Non-malignant / End Stage Disease
Oncology
Paediatrics
Adolescents and Young Adults (AYA)
Neonates
Primary Care / Community
Rural and Remote
Research
Critical Analysis
EBP / QI / Research / Audit
Evidence
Evidence Based Practice
Research
Education
CPD and Portfolio Development
Critical Incident Analysis
Journal Club
Mentoring
Professional Development
Providing Education
Undergraduates
Policy, Quality, Standards
Policy and Planning
Public Health Palliative Care
Quality
Standards
Working Together Change Framework (Nurses HUB)
Nurses Providing Palliative Care
Competencies and Standards for Practice
Nurse Practitioners
Palliative Care Nursing
Special Interest Groups
Working in Specialist Palliative Care
Resources
Nurses Views
About the Nurses Section
What is the Nurses Section
Background to the Project
Clinical Disclaimer
Residential Aged Care
Researchers
Getting Started in Palliative Care Research
The Research Context
Planning the Study
Involving Consumers in Research
Study Design
Protocol Development
Practical Considerations in Planning a Study
Obtaining Funding
Ethics Approval
Trial Registration
Finding Out More
Grants
Conducting the Study
The Research Team
Multi-site Research
Data Management
Governance
The Findings
Disseminating the Results
Authorship Arrangements
Publication
Knowledge Translation
Research Studies Register
Studies by Investigator
Studies by Topic
Research Data Management System
About the Research Data Management System
Clinical Evidence
Advance Care Planning
Communication Issues
Surrogate Decision-Makers
Health System Factors
Medico-Legal Aspects
Patient Management
Appetite Problems
Cachexia Anorexia Syndrome
Appetite Stimulants
Artificial Nutrition
Anxiety
Bereavement and Grief
Abnormal Grief
Bereavement PubMed Searches
Create Your Own Bereavement PubMed Search
Breathing
Cough
Dyspnoea
Haemoptysis
Obstruction
Respiratory Secretions
Complementary Therapies
Specific Complementary Therapies
Constipation
Laxatives
Delirium
Pharmacological Management
Non-pharmacological Management
Dementia
Palliative Care Challenges
Caregivers and Care Settings
Prognosis and Advance Care Planning
Symptom Management
Depression
End-of-Life Care
Principles of Good End-of-Life Care
Patients' and Families' Experience
Symptom Management at the End of Life
Evaluation and Quality Assessment
End-of-Life Care in Different Settings
Fatigue
Heart Failure
Prognostic Issues
Symptoms and Patients' Experiences
Management Issues
Carers and Families
Service Issues
Nausea
Antiemetics
Bowel Obstruction
Pain
Health Service Issues
Assessment Tools
Opioid Analgesics
Radiotherapy and Adjuvants
Non Pharmacological Approaches
Interventional Pain Management
Sleeping Problems
Insomnia
Social Support
Suffering
Existential Distress
Dignity Conserving Care
Carer Evidence
Carers
Perspectives on Family Carers
Supporting Carers
Resources For, and About, Carers
Young Carers
Service Delivery Evidence
Audit
Models of Service Delivery
Self-Care
Clinician Stress and Burnout
What is Palliative Care
Death and Dying in Australia
Providing Palliative Care in Australia
Preferred Place of Death
Caring in the Community
Australia's Diverse Population
Role of Research
Volunteers
Major Projects
Advance Care Planning Australia
Advance Project
Australian Carer Toolkit
What is the Australian Family Carer Toolkit Project
CareSearch
Caring Safely at Home Project - Queensland
Closing the Gap
End of Life Directions for Aged Care (ELDAC)
End-of-Life Essentials
Enhancing Legal Knowledge of Medical Practitioners
NBN Telehealth
PaCCSC Project
PaCCSC Home
PaCSA
palliAGED
Palliative Care Community Pharmacy Updates
Palliative Care Education & Training Collaborative
Palliative Care Online Training
Palliative Care Outcomes Collaboration
Quality of Care Collaborative in Paediatric PC
Talking End of Life...with people with intellectual disability (TEL)
Other Projects
Life, Hope & Reality
Introduction
How to use Life, Hope and Reality
About cancer
Physical Needs
Always Tired?
What may help
Can't Sleep?
What may help
Worried about pain?
Know your doses
Trouble breathing?
What may help
Experiencing Bowel Problems?
What may help
Changes in diet
Exercise
Feeling sick?
What may help
Meals
Lost your appetite?
What may help
Trouble getting around?
What may help
What may help cont.
Considering further treatment?
What may help
Looking for other treatment?
What may help
Do your homework
Sick of hospitals?
What may help
Emotional Needs
Feeling anxious?
What may help
Feeling depressed?
What may help
Lost hope?
What may help
What about intimacy and sex?
What may help
What about dignity?
What may help
Not thinking clearly?
What may help
Social Needs
Social support
What may help
Relationships
What may help
Talking to family and friends
What may help
Talking to health professionals
What may help
Cultural differences
What may help
Language barriers
What may help
Spirituality
What may help
Lifestyle
Diet
What may help
Exercise
What may help
Work and leisure
What may help
Finances
Costs and expenses
What may help
Paying the bills
What may help
Caregiver benefits
What may help
End of Life
Advanced care planning
What may help
Other decisions
What may help
Making the will
What may help
Organ donation
What may help
A desire to die
What may help
The People who Care
Physical health
What may help
Mental health
What may help
Social effects
What may help
Financial effects
What may help
Access to information
What may help
Effect on families
What may help
Practical matters
What may help
Palliative Care
What is it?
Where is it provided?
Who provides it?
Professional health workers
Specialist teams or services
When and why should I use it?
How much will it cost?
Is it right for me?
How do I get access to care?
What may help
Useful Self Assessment Tools
Glossary
Glossary C-G
Glossary H-L
Glossary M-O
Glossary P-R
Glossary S-Z
Print Options
Need Help Now?
Dementia Website
Dementia Home
Person-Centred Care
Understanding Each Person's Needs
Facilitated Case Conferencing
Why Use Facilitated Case Conferencing
Advance Care Planning
Triggers
New or Worsening Symptoms
Case Study - Fred Wisp
Functional or Clinical Status Decline
Case Study - John Alland
Return to RACF or home
Case Study - Lenore Anderson
Poor Appetite or Decreased Oral Intake
Case Study - Joan Prentice
Family Distress or Disagreement About Care
Case Study - Antony Paparo
Preparation for Facilitated Case Conferencing
Planning - Attendance
Preparation
Gather Relevant Information About the Person
Conducting a facilitated case conference
Role of the chair
Engaging GPs
Communication Strategies
Engaging Families / Carers
Managing Conflict
Communication - prognosis and end of life issues
Resources
Forms and Tools
Educational videos
Useful links
About us
Contact Us
Acronyms and Abbreviations
Finding Evidence
Why is Evidence Important?
What is Evidence?
Consumer Participation
Appraising Evidence
Applying Evidence
Knowledge Translation
Searching for Evidence
Databases and Resources
Learning to Search
Using Search Filters
About the Palliative Care Search Filter
About the Heart Failure Search Filter
About the Dementia Search Filter
About the RAC Search Filter
Systematic Searching
Searching the Web
Selecting Search Engines
Using Search Engines
Evaluating Quality
Open Access
Specialist Palliative Care Journals
Using Evidence in Practice
Identifying the Need to Change
Implementing Change
Measuring Change
PubMed Searches
Create Your Own PubMed Search
Information About CareSearch PubMed Searches
Technical Notes
Palliative Care Filter Effectiveness Study
Lung Cancer Search Filters
Information About Lung Cancer PubMed Searches
Non Small Cell Lung Cancer PubMed Searches
Lung Cancer and Palliative Care PubMed Searches
Create Your Own Lung Cancer PubMed Search
Heart Failure PubMed Searches
Economic Searches
Costs of Bereavement Care Searching
Other Costs of Bereavement Care Searching Resources
Costs of Dementia Care Searching
Other Costs of Dementia Care Searching Resources
Costs of Lung Cancer Care Searching
Other Costs of Lung Cancer Care Searching Resources
Costs of Primary Health Care Searching
Other Costs of Primary Health Care Searching Resources
Other Economic Search Resources
Grey Literature
Grey Literature Database
Search Literature
Frequently Asked Questions
Quality Improvement
Australian Quality Improvement Support
Appraising QI Reports and Studies
Theses
Systematic Review Collection
Latest Reviews
Procedures
Education
Health Professional Options
Major Education Initiatives
Formal Qualifications
Conferences
Short Courses and Workshops
eLearning
Clinical Experiences
Educator and Manager Supports
Apply the Palliative Care Workforce Development Framework
Create and Design a Program or Activity
Develop Skills in Teaching and Learning in Palliative Care
Integrate Palliative Care into Learning
Build Palliative Care Capacity in an Organisation
Resources for Workforce Development
Careworkers, Carers and Volunteers
Careworker Learning
Carers Learning
Volunteer Learning
Community Education
A Whole of Workforce Framework
About the Project
Acknowledgements
About CareSearch
CareSearch Project
CareSearch Model
CareSearch and Evidence
Evaluation and Program Logic
Quality Processes and HONcode
CareSearch Products
CareSearch Publications
Dying2Learn
What is a MOOC?
About Dying2Learn
Learning Modules
Videos and Infographics
Published Articles, Presentations and Posters
Sharing Dying2Learn
Dying2Learn Resources 2018
Dying2Learn Resources 2017
Dying2Learn Resources 2016
Engagement Project
Engagement Project Feedback Form
My Information Kit
My Learning
RAC Hub Project
Videos
Videos (Multicultural)
Acknowledgements
Working in Partnership
Using CareSearch
Newsroom
Newsletters
In Focus
Supporting our carers
Palliative Care Education
Quality Palliative Care is Evidence Based
CareSearch 2019
CareSearch 2018
CareSearch News
What's New in the Community
Latest Australian Research
Highlighted Reviews
Latest Journal Articles
CareSearch Blog
Order Resources
Contact CareSearch
Project Feedback Form
X
Home
Information For
Patients, Carers and Families
Introduction for Patients
Introduction for Carers
Introduction for Families
How to Care
Looking After Someone
Family Carer Role
Family Conflict In Caring
If You Cannot Continue In The Caring Role
Looking After Yourself
Managing Daily Life
Paid Careworkers In The Home
Respite
Social Support
Tips for Carers About Visitors
Who is a Carer?
Practical Caring Resources
Getting Practical Help
Managing Medicines
Costs of Medicines
Medicines Explained
Practical Ways to Manage Medicines
Tips for Managing Medicines
Practical Information and Resources
Transport
Supporting Carers
Coming Home When Someone is Ill
Coping with Long Distance Caring
Family Carer Coordinating Role
Practical Assistance
Responding to Their Feelings
Saying Goodbye
Tips For Visitors
What to Say
Young People Provide Care Too
Carer Needs Tool
Carer Resources (CareSearch)
Living with Illness
Changes Over Time
Course Of Illness
Quality Of Life
Complementary Therapies
Some of the More Common Therapies
Continuing To Work
Emotional Challenges
Anxiety and Depression
Making Decisions
The Hard Thing About Being Cared For
When Someone You Care About is Seriously Ill
When You Are Seriously Ill
Would it Help to Talk to Someone?
Financial Matters
Costs of Care
Financial Help and Advice
Financial Resources
Superannuation and Insurances
Planning for the Future
Advance Care Planning
Funerals
Wills
Spirituality
Support Groups
Symptoms
Pain
Why is Communication Important?
Communicating With Health Professionals
Difficult Conversations
Family Communication
Talking With Children
At the End
Caring at the End
Changes at the Time of Death
Dying at Home
Family Issues at the End
Immediately After a Death
Place of Care, Place of Death
Preparing for the End
Specific Groups
Aboriginal and Torres Strait Islander People
Lesbian, Gay, Bisexual, Transgender and Intersex
Homelessness
Intellectual Disability
Living Alone
Mental Illness
Multicultural
Other Languages
Older People
Children and Adolescents
Prisoners and Their Families
Refugees and Asylum Seekers
Rural and Remote
Young Carers
Bereavement, Grief and Loss
Children and Grief and Loss
Grief and Sadness
Loss of a Child
Remembering
Grief and Loss Resources
Using Online Information
How Research Contributes
Is it Trustworthy?
Sources of Information
Using Information
About Palliative Care
It's Not Just Cancer
Referring to Palliative Care
What is Palliative Care?
Who Provides Palliative Care
Coordinating Palliative Care
The Role of Health Professionals
The Role of Specialist Palliative Care
Why Information Matters
Patient's Need for Information
Family Carer's Need For Information
Finding Services
Palliative Care Services
National Resources
Disease-Specific Resources
State Resources
Australian Capital Territory
New South Wales
Northern Territory
Queensland
South Australia
Tasmania
Victoria
Western Australia
Print Resources
GPs
Patient Assessment
Identifying Palliative Care Needs
Assessing Prognosis
Assessing Symptoms
Assessing Distress
Assessing Family and Caregivers
Planning Care
Communication
Communication Starters
Sharing Care
Advance Care Planning
Planning for a Home Death
Symptoms
Appetite
Bowels
Breathing
Delirium
Fatigue
Nausea and Vomiting
Pain
Sleep
Clinical Decisions
Managing Opioids
Procedures and Investigations
The Deteriorating Patient
Emergencies
Syringe Drivers
Psychosocial Complexity
Refractory Problems
The Dying Patient
Assessing the Dying Patient
End of Life Symptoms
Supporting Families and Caregivers
Bereavement
Following up the Bereaved
Practice Management
Prescribing
Reimbursement
Professional Practice
Self-Care
Ongoing Education
Resources
GP Resources by Topic
Printable Patient Resources
Finding Literature and Evidence about GPs
Aboriginal and Torres Strait Islander Care
Culturally Safe and Responsive Care
Developing Your Knowledge and Skills
The Care Journey
Why it's Important to Ask
Understanding the Care Context
Working Together
Palliative Care Approach
Person-Centred Care
Talking Together
Creating a Caring Environment
Changing Your Care Approach
Resources for the Aboriginal and Torres Strait Islander Health Workforce
Caring for Yourself
Relevant Health Organisations
Patient, Family and Community Journeys
What’s Happening to me?
How do I Provide Care for my Family and Community?
Where Can I Find Help?
Online Information and Stories
Research, Evidence and Practice
National Responses
Aboriginal and Torres Strait Islander Peoples Palliative Care Resource Kit
About the Section
Acknowledgement of Country
Allied Health
Allied Health and Palliative Care
Roles of Allied Health Professionals
Dietitians
Music Therapists
Occupational Therapists
Physiotherapists
Psychologists
Social Workers
Speech Pathologists
New to Palliative Care?
Practice Settings
About the Allied Health Section
Getting Started
Interdisciplinary Teams
Communication
Competencies
Multidisciplinary Care
Working Boundaries
Working with Patients, Carers and Families
Adapting Goals
Discussing Palliative Care
Professional Boundaries
Responding to Strong Emotions
When a Patient Dies
Working with Families
Information for Patients, Carers and Families
Resources for Patients, Carers and Families
Clinical Considerations
Advance Care Planning
Care of the Spirit
Complementary Therapies
Helping to Maintain Hope
Managing Symptoms
Psycho-social Assessment
Self-care
Evidence, Quality, Standards and Affordability
Allied Health Evidence
Policy, Quality, Standards and Affordability
Research
Professional Development
Continuing Professional Development
Educating Others
Journal Club
Networking
Reflective Practice
Clinical and Education Resources
Allied Health Videos
Podcasts, Presentations, Posters and Abstracts
Stories
Disease Specific Information
Cancer Cachexia
Motor Neurone Disease
Nurses
Clinical
Advance Care Planning
After Death Care
After a Death at Home
Care of the Body
Religious and Cultural Considerations
Tissue Donation
Care of the Spirit
Communication
Complementary Therapies
End of Life Care
EOL Care Pathways
Ethical Issues
Assisted Suicide
Autonomy
Euthanasia
Nutrition and Hydration
Palliative Sedation
Research
Resuscitation
Truth Telling and Collusion
Withholding and Withdrawing Treatment
Medication Management
Evidence for Medications
Palliative Medications
Prescribing Resources
The Role of the Carer
Multidisciplinary Team
Practical Caring Issues
Managing Fungating Wounds
Syringe Drivers
Self-Care
Burnout
Contributing Factors
Self-care Concepts
Symptom Management
Clinical Assessment
Clinical Decision Making
Working with Families
Family Meetings
Supporting Carers
Working With Families
Areas of Practice
Lesbian, Gay, Bisexual, Transgender and Intersex
Homelessness
Intellectually Disabled
Living Alone
Mental Illness
Multicultural
Paediatrics (Specific Populations)
Prisoners
Refugees and Asylum Seekers
Rural and Remote (Specific Populations)
Aboriginal and Torres Strait Islander People
Aged Care and Dementia
HIV / AIDS
Hospital
Multicultural Areas of Practice
Non-malignant / End Stage Disease
Oncology
Paediatrics
Adolescents and Young Adults (AYA)
Neonates
Primary Care / Community
Rural and Remote
Research
Critical Analysis
EBP / QI / Research / Audit
Evidence
Evidence Based Practice
Research
Education
CPD and Portfolio Development
Critical Incident Analysis
Journal Club
Mentoring
Professional Development
Providing Education
Undergraduates
Policy, Quality, Standards
Policy and Planning
Public Health Palliative Care
Quality
Standards
Working Together Change Framework (Nurses HUB)
Nurses Providing Palliative Care
Competencies and Standards for Practice
Nurse Practitioners
Palliative Care Nursing
Special Interest Groups
Working in Specialist Palliative Care
Resources
Nurses Views
About the Nurses Section
What is the Nurses Section
Background to the Project
Clinical Disclaimer
Residential Aged Care
Researchers
Getting Started in Palliative Care Research
The Research Context
Planning the Study
Involving Consumers in Research
Study Design
Protocol Development
Practical Considerations in Planning a Study
Obtaining Funding
Ethics Approval
Trial Registration
Finding Out More
Grants
Conducting the Study
The Research Team
Multi-site Research
Data Management
Governance
The Findings
Disseminating the Results
Authorship Arrangements
Publication
Knowledge Translation
Research Studies Register
Studies by Investigator
Studies by Topic
Research Data Management System
About the Research Data Management System
Clinical Evidence
Advance Care Planning
Communication Issues
Surrogate Decision-Makers
Health System Factors
Medico-Legal Aspects
Patient Management
Appetite Problems
Cachexia Anorexia Syndrome
Appetite Stimulants
Artificial Nutrition
Anxiety
Bereavement and Grief
Abnormal Grief
Bereavement PubMed Searches
Create Your Own Bereavement PubMed Search
Breathing
Cough
Dyspnoea
Haemoptysis
Obstruction
Respiratory Secretions
Complementary Therapies
Specific Complementary Therapies
Constipation
Laxatives
Delirium
Pharmacological Management
Non-pharmacological Management
Dementia
Palliative Care Challenges
Caregivers and Care Settings
Prognosis and Advance Care Planning
Symptom Management
Depression
End-of-Life Care
Principles of Good End-of-Life Care
Patients' and Families' Experience
Symptom Management at the End of Life
Evaluation and Quality Assessment
End-of-Life Care in Different Settings
Fatigue
Heart Failure
Prognostic Issues
Symptoms and Patients' Experiences
Management Issues
Carers and Families
Service Issues
Nausea
Antiemetics
Bowel Obstruction
Pain
Health Service Issues
Assessment Tools
Opioid Analgesics
Radiotherapy and Adjuvants
Non Pharmacological Approaches
Interventional Pain Management
Sleeping Problems
Insomnia
Social Support
Suffering
Existential Distress
Dignity Conserving Care
Carer Evidence
Carers
Perspectives on Family Carers
Supporting Carers
Resources For, and About, Carers
Young Carers
Service Delivery Evidence
Audit
Models of Service Delivery
Self-Care
Clinician Stress and Burnout
What is Palliative Care
Death and Dying in Australia
Providing Palliative Care in Australia
Preferred Place of Death
Caring in the Community
Australia's Diverse Population
Role of Research
Volunteers
Major Projects
Advance Care Planning Australia
Advance Project
Australian Carer Toolkit
What is the Australian Family Carer Toolkit Project
CareSearch
Caring Safely at Home Project - Queensland
Closing the Gap
End of Life Directions for Aged Care (ELDAC)
End-of-Life Essentials
Enhancing Legal Knowledge of Medical Practitioners
NBN Telehealth
PaCCSC Project
PaCCSC Home
PaCSA
palliAGED
Palliative Care Community Pharmacy Updates
Palliative Care Education & Training Collaborative
Palliative Care Online Training
Palliative Care Outcomes Collaboration
Quality of Care Collaborative in Paediatric PC
Talking End of Life...with people with intellectual disability (TEL)
Other Projects
Life, Hope & Reality
Introduction
How to use Life, Hope and Reality
About cancer
Physical Needs
Always Tired?
What may help
Can't Sleep?
What may help
Worried about pain?
Know your doses
Trouble breathing?
What may help
Experiencing Bowel Problems?
What may help
Changes in diet
Exercise
Feeling sick?
What may help
Meals
Lost your appetite?
What may help
Trouble getting around?
What may help
What may help cont.
Considering further treatment?
What may help
Looking for other treatment?
What may help
Do your homework
Sick of hospitals?
What may help
Emotional Needs
Feeling anxious?
What may help
Feeling depressed?
What may help
Lost hope?
What may help
What about intimacy and sex?
What may help
What about dignity?
What may help
Not thinking clearly?
What may help
Social Needs
Social support
What may help
Relationships
What may help
Talking to family and friends
What may help
Talking to health professionals
What may help
Cultural differences
What may help
Language barriers
What may help
Spirituality
What may help
Lifestyle
Diet
What may help
Exercise
What may help
Work and leisure
What may help
Finances
Costs and expenses
What may help
Paying the bills
What may help
Caregiver benefits
What may help
End of Life
Advanced care planning
What may help
Other decisions
What may help
Making the will
What may help
Organ donation
What may help
A desire to die
What may help
The People who Care
Physical health
What may help
Mental health
What may help
Social effects
What may help
Financial effects
What may help
Access to information
What may help
Effect on families
What may help
Practical matters
What may help
Palliative Care
What is it?
Where is it provided?
Who provides it?
Professional health workers
Specialist teams or services
When and why should I use it?
How much will it cost?
Is it right for me?
How do I get access to care?
What may help
Useful Self Assessment Tools
Glossary
Glossary C-G
Glossary H-L
Glossary M-O
Glossary P-R
Glossary S-Z
Print Options
Need Help Now?
Dementia Website
Dementia Home
Person-Centred Care
Understanding Each Person's Needs
Facilitated Case Conferencing
Why Use Facilitated Case Conferencing
Advance Care Planning
Triggers
New or Worsening Symptoms
Case Study - Fred Wisp
Functional or Clinical Status Decline
Case Study - John Alland
Return to RACF or home
Case Study - Lenore Anderson
Poor Appetite or Decreased Oral Intake
Case Study - Joan Prentice
Family Distress or Disagreement About Care
Case Study - Antony Paparo
Preparation for Facilitated Case Conferencing
Planning - Attendance
Preparation
Gather Relevant Information About the Person
Conducting a facilitated case conference
Role of the chair
Engaging GPs
Communication Strategies
Engaging Families / Carers
Managing Conflict
Communication - prognosis and end of life issues
Resources
Forms and Tools
Educational videos
Useful links
About us
Contact Us
Acronyms and Abbreviations
Finding Evidence
Why is Evidence Important?
What is Evidence?
Consumer Participation
Appraising Evidence
Applying Evidence
Knowledge Translation
Searching for Evidence
Databases and Resources
Learning to Search
Using Search Filters
About the Palliative Care Search Filter
About the Heart Failure Search Filter
About the Dementia Search Filter
About the RAC Search Filter
Systematic Searching
Searching the Web
Selecting Search Engines
Using Search Engines
Evaluating Quality
Open Access
Specialist Palliative Care Journals
Using Evidence in Practice
Identifying the Need to Change
Implementing Change
Measuring Change
PubMed Searches
Create Your Own PubMed Search
Information About CareSearch PubMed Searches
Technical Notes
Palliative Care Filter Effectiveness Study
Lung Cancer Search Filters
Information About Lung Cancer PubMed Searches
Non Small Cell Lung Cancer PubMed Searches
Lung Cancer and Palliative Care PubMed Searches
Create Your Own Lung Cancer PubMed Search
Heart Failure PubMed Searches
Economic Searches
Costs of Bereavement Care Searching
Other Costs of Bereavement Care Searching Resources
Costs of Dementia Care Searching
Other Costs of Dementia Care Searching Resources
Costs of Lung Cancer Care Searching
Other Costs of Lung Cancer Care Searching Resources
Costs of Primary Health Care Searching
Other Costs of Primary Health Care Searching Resources
Other Economic Search Resources
Grey Literature
Grey Literature Database
Search Literature
Frequently Asked Questions
Quality Improvement
Australian Quality Improvement Support
Appraising QI Reports and Studies
Theses
Systematic Review Collection
Latest Reviews
Procedures
Education
Health Professional Options
Major Education Initiatives
Formal Qualifications
Conferences
Short Courses and Workshops
eLearning
Clinical Experiences
Educator and Manager Supports
Apply the Palliative Care Workforce Development Framework
Create and Design a Program or Activity
Develop Skills in Teaching and Learning in Palliative Care
Integrate Palliative Care into Learning
Build Palliative Care Capacity in an Organisation
Resources for Workforce Development
Careworkers, Carers and Volunteers
Careworker Learning
Carers Learning
Volunteer Learning
Community Education
A Whole of Workforce Framework
About the Project
Acknowledgements
About CareSearch
CareSearch Project
CareSearch Model
CareSearch and Evidence
Evaluation and Program Logic
Quality Processes and HONcode
CareSearch Products
CareSearch Publications
Dying2Learn
What is a MOOC?
About Dying2Learn
Learning Modules
Videos and Infographics
Published Articles, Presentations and Posters
Sharing Dying2Learn
Dying2Learn Resources 2018
Dying2Learn Resources 2017
Dying2Learn Resources 2016
Engagement Project
Engagement Project Feedback Form
My Information Kit
My Learning
RAC Hub Project
Videos
Videos (Multicultural)
Acknowledgements
Working in Partnership
Using CareSearch
Newsroom
Newsletters
In Focus
Supporting our carers
Palliative Care Education
Quality Palliative Care is Evidence Based
CareSearch 2019
CareSearch 2018
CareSearch News
What's New in the Community
Latest Australian Research
Highlighted Reviews
Latest Journal Articles
CareSearch Blog
Order Resources
Contact CareSearch
Project Feedback Form
GO
Information For
>
Patients, Carers and Families
>
Finding Services
>
Disease-Specific Resources
Patients, Carers and Families
Introduction for Patients
Introduction for Carers
Introduction for Families
How to Care
Looking After Someone
Family Carer Role
Family Conflict In Caring
If You Cannot Continue In The Caring Role
Looking After Yourself
Managing Daily Life
Paid Careworkers In The Home
Respite
Social Support
Tips for Carers About Visitors
Who is a Carer?
Practical Caring Resources
Getting Practical Help
Managing Medicines
Costs of Medicines
Medicines Explained
Practical Ways to Manage Medicines
Tips for Managing Medicines
Practical Information and Resources
Transport
Supporting Carers
Coming Home When Someone is Ill
Coping with Long Distance Caring
Family Carer Coordinating Role
Practical Assistance
Responding to Their Feelings
Saying Goodbye
Tips For Visitors
What to Say
Young People Provide Care Too
Carer Needs Tool
Carer Resources (CareSearch)
Living with Illness
Changes Over Time
Course Of Illness
Quality Of Life
Complementary Therapies
Some of the More Common Therapies
Continuing To Work
Emotional Challenges
Anxiety and Depression
Making Decisions
The Hard Thing About Being Cared For
When Someone You Care About is Seriously Ill
When You Are Seriously Ill
Would it Help to Talk to Someone?
Financial Matters
Costs of Care
Financial Help and Advice
Financial Resources
Superannuation and Insurances
Planning for the Future
Advance Care Planning
Funerals
Wills
Spirituality
Support Groups
Symptoms
Pain
Why is Communication Important?
Communicating With Health Professionals
Difficult Conversations
Family Communication
Talking With Children
At the End
Caring at the End
Changes at the Time of Death
Dying at Home
Family Issues at the End
Immediately After a Death
Place of Care, Place of Death
Preparing for the End
Specific Groups
Aboriginal and Torres Strait Islander People
Lesbian, Gay, Bisexual, Transgender and Intersex
Homelessness
Intellectual Disability
Living Alone
Mental Illness
Multicultural
Other Languages
Older People
Children and Adolescents
Prisoners and Their Families
Refugees and Asylum Seekers
Rural and Remote
Young Carers
Bereavement, Grief and Loss
Children and Grief and Loss
Grief and Sadness
Loss of a Child
Remembering
Grief and Loss Resources
Using Online Information
How Research Contributes
Is it Trustworthy?
Sources of Information
Using Information
About Palliative Care
It's Not Just Cancer
Referring to Palliative Care
What is Palliative Care?
Who Provides Palliative Care
Coordinating Palliative Care
The Role of Health Professionals
The Role of Specialist Palliative Care
Why Information Matters
Patient's Need for Information
Family Carer's Need For Information
Finding Services
Palliative Care Services
National Resources
Disease-Specific Resources
State Resources
Australian Capital Territory
New South Wales
Northern Territory
Queensland
South Australia
Tasmania
Victoria
Western Australia
Print Resources
GPs
Patient Assessment
Identifying Palliative Care Needs
Assessing Prognosis
Assessing Symptoms
Assessing Distress
Assessing Family and Caregivers
Planning Care
Communication
Communication Starters
Sharing Care
Advance Care Planning
Planning for a Home Death
Symptoms
Appetite
Bowels
Breathing
Delirium
Fatigue
Nausea and Vomiting
Pain
Sleep
Clinical Decisions
Managing Opioids
Procedures and Investigations
The Deteriorating Patient
Emergencies
Syringe Drivers
Psychosocial Complexity
Refractory Problems
The Dying Patient
Assessing the Dying Patient
End of Life Symptoms
Supporting Families and Caregivers
Bereavement
Following up the Bereaved
Practice Management
Prescribing
Reimbursement
Professional Practice
Self-Care
Ongoing Education
Resources
GP Resources by Topic
Printable Patient Resources
Finding Literature and Evidence about GPs
Aboriginal and Torres Strait Islander Care
Culturally Safe and Responsive Care
Developing Your Knowledge and Skills
The Care Journey
Why it's Important to Ask
Understanding the Care Context
Working Together
Palliative Care Approach
Person-Centred Care
Talking Together
Creating a Caring Environment
Changing Your Care Approach
Resources for the Aboriginal and Torres Strait Islander Health Workforce
Caring for Yourself
Relevant Health Organisations
Patient, Family and Community Journeys
What’s Happening to me?
How do I Provide Care for my Family and Community?
Where Can I Find Help?
Online Information and Stories
Research, Evidence and Practice
National Responses
Aboriginal and Torres Strait Islander Peoples Palliative Care Resource Kit
About the Section
Acknowledgement of Country
Allied Health
Allied Health and Palliative Care
Roles of Allied Health Professionals
Dietitians
Music Therapists
Occupational Therapists
Physiotherapists
Psychologists
Social Workers
Speech Pathologists
New to Palliative Care?
Practice Settings
About the Allied Health Section
Getting Started
Interdisciplinary Teams
Communication
Competencies
Multidisciplinary Care
Working Boundaries
Working with Patients, Carers and Families
Adapting Goals
Discussing Palliative Care
Professional Boundaries
Responding to Strong Emotions
When a Patient Dies
Working with Families
Information for Patients, Carers and Families
Resources for Patients, Carers and Families
Clinical Considerations
Advance Care Planning
Care of the Spirit
Complementary Therapies
Helping to Maintain Hope
Managing Symptoms
Psycho-social Assessment
Self-care
Evidence, Quality, Standards and Affordability
Allied Health Evidence
Policy, Quality, Standards and Affordability
Research
Professional Development
Continuing Professional Development
Educating Others
Journal Club
Networking
Reflective Practice
Clinical and Education Resources
Allied Health Videos
Podcasts, Presentations, Posters and Abstracts
Stories
Disease Specific Information
Cancer Cachexia
Motor Neurone Disease
Nurses
Clinical
Advance Care Planning
After Death Care
After a Death at Home
Care of the Body
Religious and Cultural Considerations
Tissue Donation
Care of the Spirit
Communication
Complementary Therapies
End of Life Care
EOL Care Pathways
Ethical Issues
Assisted Suicide
Autonomy
Euthanasia
Nutrition and Hydration
Palliative Sedation
Research
Resuscitation
Truth Telling and Collusion
Withholding and Withdrawing Treatment
Medication Management
Evidence for Medications
Palliative Medications
Prescribing Resources
The Role of the Carer
Multidisciplinary Team
Practical Caring Issues
Managing Fungating Wounds
Syringe Drivers
Self-Care
Burnout
Contributing Factors
Self-care Concepts
Symptom Management
Clinical Assessment
Clinical Decision Making
Working with Families
Family Meetings
Supporting Carers
Working With Families
Areas of Practice
Lesbian, Gay, Bisexual, Transgender and Intersex
Homelessness
Intellectually Disabled
Living Alone
Mental Illness
Multicultural
Paediatrics (Specific Populations)
Prisoners
Refugees and Asylum Seekers
Rural and Remote (Specific Populations)
Aboriginal and Torres Strait Islander People
Aged Care and Dementia
HIV / AIDS
Hospital
Multicultural Areas of Practice
Non-malignant / End Stage Disease
Oncology
Paediatrics
Adolescents and Young Adults (AYA)
Neonates
Primary Care / Community
Rural and Remote
Research
Critical Analysis
EBP / QI / Research / Audit
Evidence
Evidence Based Practice
Research
Education
CPD and Portfolio Development
Critical Incident Analysis
Journal Club
Mentoring
Professional Development
Providing Education
Undergraduates
Policy, Quality, Standards
Policy and Planning
Public Health Palliative Care
Quality
Standards
Working Together Change Framework (Nurses HUB)
Nurses Providing Palliative Care
Competencies and Standards for Practice
Nurse Practitioners
Palliative Care Nursing
Special Interest Groups
Working in Specialist Palliative Care
Resources
Nurses Views
About the Nurses Section
What is the Nurses Section
Background to the Project
Clinical Disclaimer
Residential Aged Care
Researchers
Getting Started in Palliative Care Research
The Research Context
Planning the Study
Involving Consumers in Research
Study Design
Protocol Development
Practical Considerations in Planning a Study
Obtaining Funding
Ethics Approval
Trial Registration
Finding Out More
Grants
Conducting the Study
The Research Team
Multi-site Research
Data Management
Governance
The Findings
Disseminating the Results
Authorship Arrangements
Publication
Knowledge Translation
Research Studies Register
Studies by Investigator
Studies by Topic
Research Data Management System
About the Research Data Management System
Disease-Specific Resources
Cancer
Cancer Council Australia
Lions Australian Prostate Cancer Website
Cancer Australia
Virtual Cancer Centre
Dementia
Dementia Australia
Heart Conditions
Heart Foundation
HIV / AIDS
Australian Federation of AIDS Organisations
Multicultural HIV and Hepatitis Service
Lung Disease
Lung Foundation Australia
Neurological
Brain Foundation
Motor Neurone Disease (MND) Australia
MNDCare
Multiple Sclerosis Australia
National Stroke Foundation
Parkinson's Australia
Renal
Kidney Health Australia
Last updated 25 January 2019
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