Consumer input is also valuable in identifying and prioritising research issues, and consumer involvement in planning and managing projects is increasingly expected as part of health research. The NHMRC has released a Statement on consumer and community involvement in health and medical research. Increasingly, consumers are also often involved in determining funding priorities.
A number of resources are available to help support consumer and community participation in research including:
- Cancer Voices is a consumer organisation that supports and trains consumers to become involved in research and other advocacy for those with cancer; some of the state-based Cancer Voices organisations run training programs for consumers who wish to become involved; eg, Cancer Voices NSW
- From the Health Issues Centre:
- From the NHMRC:
Last updated 01 July 2020