What's New in the Community

Read palliative care news and events around Australia.
1 August 2019

PCOC releases 2018 Annual report (1.32MB pdf)

The Australian Palliative Care Outcomes Collaboration (PCOC) has released their 2018 Annual report (1.32MB pdf).

1 August 2019

Western Australia releases Final Report on Voluntary Assisted Dying

The Western Australia Department of Health has released the final report of the Ministerial Expert Panel on Voluntary Assisted Dying. The importance of ensuring people have information on comfort and palliative care is included in recommendations one and five of the fourteen recommendations put forward by the panel. 

22 July 2019

Australian-first resource aims to better understand grief and bereavement in Aboriginal and Torres Strait Islander cultures (4.04MB pdf)

Australian Centre for Grief and Bereavement has launched a new resource aimed at assisting practitioners and those working with Aboriginal and Torres Strait Islander cultures within the grief and bereavement sector. Working with Aboriginal or Torres Strait Islander Grief and Bereavement: A Resource for Workers (4.04MB pdf).

21 June 2019

New Royal Commission into Aged Care Quality and Safety Background Paper

The Royal Commission into Aged Care Quality and Safety has released a new background paper Advance care planning in Australia (394kb pdf). All the papers are available for download on the Commission’s website.

20 June 2019

New Factsheet on Voluntary Assisted Dying (255kb pdf)

In response to new legislation enacted in Victoria on June 19, 2019 the Australian Centre for Health Law Research at Queensland University of Technology has released a new factsheet on Assisted dying (255kb pdf). The printable publication provides key facts including what it is, eligibility, access, and safeguards.

11 June 2019

Australian Institute of Health and Welfare finds Palliative care-related hospitalisations growing faster than other hospital services

Released May 22nd the latest Palliative care services in Australia report shows that between 2012-13 and 2016-17, palliative care-related hospitalisations rose by over 25% compared to an 18% increase recorded for all hospitalisations over the same period. Read more and access the report.

6 June 2019

Palliative Care Australia publishes guiding principles for health professionals about voluntary assisted dying (81kb pdf)

From 19 June 2019, Victorians at the end of life who are suffering and who meet strict eligibility criteria will be able to request access to voluntary assisted dying (VAD). On June 3rd, 2019 Palliative Care Australia released a guiding principles document for VAD. CEO Rohan Greenland says the document, Voluntary Assisted Dying in Australia: Guiding principles for those providing care to people living with a life-limiting illness (81kb pdf) is national in scope, designed to sit alongside enacted state legislation where it exists, organisational ethical frameworks and professional codes of conduct. The guideline defines seven principles of equal importance:

  • People living with a life-limiting illness are supported and respected whether or not they choose to explore or access voluntary assisted dying.
  • People exploring voluntary assisted dying will not be abandoned.
  • Respectful and professional behaviour towards colleagues and co-workers regardless of their views on voluntary assisted dying.
  • Effective communication is an important part of quality care.
  • Ongoing development of knowledge, skill and confidence is required to provide competent and safe care to people living with a life–limiting illness. Self-care practice is a shared responsibility between individuals, colleagues and organisations.
  • Continue to learn from evidence and evolving practice to drive quality improvement in voluntary assisted dying.

Health professionals practicing in the state of Victoria can find more information on Voluntary Assisted Dying participation and services at Health.Vic

30 May 2019

Royal Commission hearings to include palliative care

The June 24 - 28th, 2019 public hearings of the Royal Commission into Aged Care Quality and Safety being held in Perth will focus on person-centred care. This will include inquiry of:

  • the role of advance care planning to support the provision of quality aged care services
  • the extent to which people accessing aged care services are able to access palliative care
  • the quality of palliative care services available to people accessing aged care services

You can read more about the areas of inquiry at the Royal Commission webpage.

22 May 2019

Australian College of Nursing releases white paper on palliative care

Released in May 2019 and providing an overview of contemporary palliative care service delivery, ‘Achieving Quality Palliative Care for All: The Essential Role of Nurses - A White Paper by ACN 2019’ (437kb pdf) summarises evidence for the role of nurses in palliative care.  It also identifies urgent areas for action to ensure access to quality palliative care for all people with a life-limiting illness.

13 May 2019

National Palliative Care Week 19-25 May 2019

National Palliative Care Week is an annual event held to raise awareness of end of life and palliative care issues in the Australian community. This year’s theme is ‘What matters most?' The week is organised by Palliative Care Australia and supported by the Commonwealth Department of Health.

13 May 2019

Have We under invested in Palliative Care?

On Wednesday May 1st, at an event held at the Bradley Forum, UNISA, Adelaide, Professor Stephen Duckett of the Grattan Institute, Melbourne, outlined how we can improve policy and payment design to increase access to palliative care. The podcast of this event is now freely available.

9 May 2019

Palliative Care Australia (PCA) position statement

Palliative Care Australia (PCA) has released a position statement, Sustainable access to prescription opioids for use in palliative care (458kb pdf), with endorsement from 12 other peak health organisations, to call for a 'future-proof' approach to ensure sustainable access to prescription opioids for Australians receiving palliative care. The statement warns of unintended consequence of increased government and regulatory restrictions surrounding non-cancer opioid prescribing to reduce the misuse and abuse of opioids within the wider community. Eight recommendations are made to address the needs of people with life-limiting illness.

18 April 2019

NHMRC National Dementia Research

The NHMRC Dementia Research Institute has partnered with the National Ageing Research Institute (NARI) and key stakeholders to develop a Dementia Research Action Plan targeting Culturally and Linguistically Diverse (CALD) communities. Dementia is one of Australia’s most significant health challenges. However, CALD communities are often underrepresented in, and at times excluded from, dementia research and other areas of Australian health and medical research. To help inform the development of the action plan individuals and organisations are invited to complete a short survey.

12 April 2019

2019 Palliative Care in Queensland Priorities

Based on outcomes of the Palliative Care in Queensland Summit held in 2018 to listen to key stakeholders providing palliative care and set an agreed advocacy agenda, Palliative Care Queensland has released a new publication – 2019 Palliative Care in Queensland Priorities (2.55MB pdf).  Developed for consumers, carers, service providers, organisations, peak bodies and government to use in their pursuit of quality end-of-life care for all Queenslanders the report lists five key priority areas:
  • Better funding
  • Improved access
  • Community activation
  • Focus on advance care planning
  • Workforce development
4 April 2019

Palliative Care in the Catholic Sector

Catholic Health Australia (CHA) has launched the Palliative Care in the Catholic Sector (788kb pdf) report on palliative care services and explores innovative opportunities to embrace and resource palliative care as an integral part of the health care system. The report was launched at Calvary Hospital North Adelaide which is one of the first private hospitals to introduce home-based palliative care services. The report aim is to contribute to the quality and quantity of information available on Palliative Care issues and reports on internally collected and nationally available data and semi-structured interviews from over 30 palliative care clinicians, palliative care nursing staff, managers, administrators, and researchers from CHA member organisations.

15 March 2019

New Antipsychotic Tracking Tool (APTT) for Residential aged care

Dementia Training Australia has released a freely available tool to generate regular audit reports on antipsychotic usage within an aged care setting. Included in the tool are:

  • A comprehensive PDF instruction manual
  • Two Microsoft Excel files (the APTT itself and an antipsychotic medication list)
  • Instruction videos to guide you in how to set up and use the APTT.

You can download the tool from the DTA website

13 March 2019

NSW End of Life and Palliative Care framework 2019-2024

Following broad engagement with stakeholders, health professionals and community members, NSW Health has released a framework document for palliative care. Five priority areas identified in the Framework are:

  • Care is person centred
  • There is recognition and support for families and carers
  • There is access to care providers across all settings who are skilled and competent in caring for people requiring end of life and palliative care
  • Care is well-coordinated and integrated
  • Access to quality care is equitable
28 February 2019

National Palliative Care Strategy 2018 released

The Australian Government has released the updated National Palliative Care Strategy. Endorsed by all Australian Health Ministers the 2018 National Palliative Care Strategy is for use by all Australian governments, as well as organisations and individuals, to guide improvement of palliative care across Australia so that people affected by life-limiting illnesses get the care they need to live well. The strategy has six guiding principles regarded as fundamental to ensuring that all people experience the palliative care they need.

The guiding principles are:

  • Palliative care is person-centred care
  • Death is a part of life
  • Carers are valued and receive the care they need
  • Care is accessible
  • Everyone has a role to play in palliative care
  • Care is high quality and evidence-based
25 February 2019

Listing of treatment for shortness of breath in palliative care

Shortness of breath (dysponea) is a common symptom in very advanced stages of many diseases and disorders. In a world first, Mayne Pharma International Pty Ltd has announced the listing of a low-dose sustained-release morphine called Kapanol on the Australian Register of Therapeutic Goods for the symptomatic reduction of chronic breathlessness in the palliative care of patients with distressing breathlessness due to severe COPD, cardiac failure, malignancy or other cause.

Listing of the treatment was largely underpinned by work conducted by Australian researchers. The Australian national Palliative Care Clinical Studies Collaborative, formerly at Flinders University and now based at University of Technology Sydney, has built on work started more than 20 years ago at Flinders University to study the effectiveness and safety of regular, low dose extended-release morphine for the symptomatic reduction of chronic breathlessness. The work, led by the principal investigator of the Collaborative, Professor David Currow, has engaged clinician-researchers in every mainland state. The Flinders Palliative Care Clinical Studies Collaborative has led national trials supporting the release of the new treatment this year.

25 February 2019

GriefLink re-launch of website

GriefLink was re-launched on February 20th at Anglicare SA by Mrs Lan Le, wife of His Excellency the Governor of South Australia, the Honourable Hieu Van Le AC. Supported by University of Adelaide, Anglicare, and Alfred James, the GriefLink website provides information and resources for people experiencing grief, and those who are supporting them. Maintained by a team based in South Australia, some of the support information provided by GriefLink may be specific to that State.