Serious illness brings many changes. Learning what is likely to happen and how things could change may help you cope with this. It may help you to make important decisions. For example, would you like to keep working? Is this the right time to take a special trip, or make contact with people in your life who are important?
Having information will be helpful to you. You may want to do some reading and think about things. You may want to discuss things / issues with your carer and other family members. You should seek the type and amount of information to make you feel comfortable. Health professionals can provide information on local resources.
Changes may occur in all aspects of your life. Physical changes may have to be managed. You may have pain and other symptoms like tiredness or loss of appetite. You may also have to deal with changing feelings and emotions. You may feel overwhelmed. It could also mean that you have to adjust to gradual losses, for instance your mobility or independence.
Two people with the same disease will not always have the same treatment. They will also not respond in the same way to the disease or treatment. A disease may progress slowly or more quickly. The changes or deterioration associated with your disease could begin gradually. They might start more suddenly.
Knowing what you can expect may help to make decisions. You may want to know what is happening to you. Think about what is important to you, as you may want to make decisions about the end of your life.