Patient's Need for Information

If you are seriously ill you may want certain information about the illness. You may want to know about symptoms, or about how your illness will affect you. Your family may want to know about other things. This could include time frames or being cared for at home. Sometimes family and friends want to know more than you do. Sometimes you may not be sure if you want information or not. Your need for information may change as your illness progresses. It is OK to change your mind.

You may have concerns about who gets information about your illness. You may worry that decisions will not include you. People who are dying have said that there are certain things they find easier to understand than other people do.

You may need to talk to the health professionals caring for you about this. You can decide what you want shared and who is able to talk to health professionals about your care.

Last updated 07 August 2019