The TEL Project: How to help people with intellectual disability understand dying and death, and plan for it if they wish

A guest blog post by Dr Michele Wiese, Senior Lecturer, School of Psychology, Western Sydney University, NSW

  • 3 December 2020
  • Author: Guest
  • Number of views: 875
  • 0 Comments
The TEL Project: How to help people with intellectual disability understand dying and death, and plan for it if they wish

People with intellectual disability, just like everyone else, have a right to understand dying and death. In this second blog for our Part of Life series, Dr Michele Wiese, Senior Lecturer in the School of Psychology at Western Sydney University discusses how the ‘Talking end of life…with people with intellectual disability’ (TEL) can help them understand end of life, and make plans for it if they choose.

Australia must improve palliative care for people with dementia

A guest blog post by the Dementia Australia Policy Team, Dementia Australia

  • 2 December 2019
  • Author: Guest
  • Number of views: 1750
  • 0 Comments
Australia must improve palliative care for people with dementia

Palliative care for people living with dementia should be available when and where it is needed. The Dementia Australia Policy Team discusses their discussion paper on what Australia needs to do to improve palliative care services for people living with dementia.

Tackling eye and mouth care during end of life

A guest blog post by Karen Gregory, Palliative Care Clinical Nurse, Resthaven Inc. SA

  • 16 October 2019
  • Author: Guest
  • Number of views: 3372
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Tackling eye and mouth care during end of life

Symptom management is a large component of maintaining a person’s comfort at the end of life, along with supporting spiritual, emotional and cultural wellbeing of the person and their loved ones. Karen Gregory from Resthaven Inc. discusses how routine comfort measures often thought about at this time are around pain relief, comfortable positioning, skin care, urinary and bowel care, mouth and eye care. She refers to the palliAGED Practice Tip Sheets and gives tips on simple techniques to maintain comfort of the eyes and mouth which can make a high impact on the quality of life during the last days of life.

Less can be more: Researching non-beneficial treatment at the end-of-life

A guest blog post by Professor Adrian Barnett, Chief Investigator, InterACT Study and Professor of Statistics, Australian Centre for Health Services Innovation (AusHSI), Queensland University of Technology

  • 23 July 2019
  • Author: Guest
  • Number of views: 2920
  • 0 Comments
Less can be more: Researching non-beneficial treatment at the end-of-life

Advances in medicine mean health care professionals can prolong life, yet some treatments have a low chance of providing tangible benefits to some patients, can result in a ‘bad death’, and represent a multi-million dollar cost to the public. Professor Adrian Barnett from the Queensland University of Technology discusses the study he is involved in which looks to increase awareness among hospital clinicians of the extent of non-beneficial treatment at the end-of-life and stimulate action to reduce it.

Knowing me, knowing you… Reflecting on intimacy and sexuality at the end of life

A guest blog post by Nigel McGothigan, Director of Aged Care and Health Care Education, Australian Capital College

  • 26 June 2019
  • Author: Guest
  • Number of views: 2822
  • 0 Comments
Knowing me, knowing you…  Reflecting on intimacy and sexuality at the end of life

No matter their diverse characteristics, life experiences, cultural background, gender, sexuality, sexual orientation or financial situation, every Australian has the right to have to their individual needs and expectations met without discrimination. For many, there remains a difficulty in accepting that older adults or those who are at end of life want intimacy and have sexuality needs. Nigel McGothigan, Director of Aged Care and Health Care Education from Australian Capital College discusses the tools put in place to support the aged care workforce to understand and be agile in addressing expectations and the complex and diverse care needs of the older person.

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