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The views and opinions expressed in our blog series are those of the authors and are not necessarily supported by CareSearch, Flinders University and/or the Australian Government Department of Health.
The rise of ageing and chronic illnesses means that most Australians are living with ill health and significant disability for many years before they die. In our 6th CareSearch@10 anniversary blog post, Kim Devery of Flinders University and End-of-Life Essentials writes why health professionals need trustworthy evidence.
Australia is a dynamic multicultural country. Ours is a nation that is home to one of the world’s oldest culture and millions of people belonging to 270 ancestries. We need quality evidence to be able to address the needs and challenges faced by our older CALD Australians and provide them person and family-centred palliative care. Mary Patetsos discusses providing person- and family-centred palliative care for a culturally diverse Australia and the importance to have resources like CareSearch.
In 2017 Palliative Care Australia undertook a review and update of the reference documents A Guide to Palliative Care Service Development: A population based approach and Palliative Care Service Provision in Australia: A planning guide. Together these key reference documents have provided a framework for the ongoing development of palliative care policy within the health care system for the last fifteen years.
As a young doctor I spent some time working in a palliative care hospital in the early 90’s. It was such a privilege to be working with people at end of life - with the opportunity to make a difference to quality of life and well-being of patients, and their family members. That experience made me decide to devote my career to Palliative Medicine.
I had some experiences at that time that stayed with me.
I had a patient, Marion, who had been a school principal. Marion had suffered a severe stroke. She had survived but was very incapacitated, confined to bed and unable to communicate. She was being kept alive, surviving on a feeding tube, and facing a life of care and dependence. Her specialist was very committed to her survival.