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The views and opinions expressed in our blog series are those of the authors and are not necessarily supported by CareSearch, Flinders University and/or the Australian Government Department of Health.
The life expectancy of people with an intellectual disability (ID) has increased but people with ID are under-referred to palliative care and there is currently no model of palliative care in Australia or specific guidelines for services to meet their needs. In the 13th blog for our National Palliative Care Project series, Dr Rachael Cvejic from the Department of Developmental Disability Neuropsychiatry at the University of NSW Sydney discusses a new project which aims to improve palliative care services for people with an intellectual disability.
In the 11th blog for our National Palliative Care Project series, CareSearch Senior Research Fellow Dr Katrina Erny-Albrecht discusses how the project will continue supporting Australians and contribute to the delivery of the National Palliative Care Strategy by providing access to relevant evidence and resources.
In her latest blog, Dr Priyanka Vandersman introduces the ELDAC Digital Dashboard, a one-stop shop for aged care providers to graphically view and track all end of life care activities and processes relating to their residents and clients. The dashboard is currently undergoing an implementation study to measure its impact and usability for aged care clinicians who provide palliative and end-of-life care to older Australians.
Currently, Aboriginal and Torres Strait Islander people are significantly less likely to access palliative care services, in comparison to the Australian population. In the 10th blog for our National Palliative Care Project series Dr Tina Janamian, General Manager for Education and Innovation at AGPAL discusses a new project to help ensure Aboriginal and Torres Strait Islander peoples have access to culturally safe palliative care and end-of-life services.
Learning a loved one has a terminal illness is a tragic and unforgettable moment, made even more challenging for those who have studied the disease and know what to expect. In her guest blog, South Australian Advance Care Directive Consultant, Sandra Bradley, shares her experience of caring for her terminally ill husband throughout the COVID pandemic.