CareSearch Blog: Palliative Perspectives

The views and opinions expressed in our blog series are those of the authors and are not necessarily supported by CareSearch, Flinders University and/or the Australian Government Department of Health.
 

‘Before I die…’ Compassionate Communities in action

A guest blog post from Dr John Rosenberg, Research Fellow at the NHMRC Centre for Research Excellence in End of Life Care

  • 18 April 2017
  • Author: CareSearch
  • Number of views: 7419
  • 0 Comments
‘Before I die…’ Compassionate Communities in action

Wandering around your city or town, have you ever seen ‘pop-up’ chalk boards inviting you to contribute your thoughts on an issue affecting us all? If you were asked what one thing you’d want before you die, what would it be? Travel to a dreamt-of place? Marry your beloved? See your grandchildren born? See Collingwood win the AFL Grand Final (go the ‘pies!)?

Chances are you’ll see a ‘Before I die, I want to…’ board somewhere (Before I Die website). It’s an initiative that encourages open dialogue about death with the hope that it will engender compassion for those in our community who are living with a life-limiting illness. It’s a bit like a bucket list, really.

The Impact of Loss and Grief within a Community

A guest blog post from Janice Butera, Intake Worker and Specialist Bereavement Counsellor, Australia Centre for Grief and Bereavement

  • 11 April 2017
  • Author: CareSearch
  • Number of views: 11199
  • 0 Comments
The Impact of Loss and Grief within a Community

The 21st Century has exposed us to vast stories of loss and grief affecting many people in communities worldwide.  The upsurge of these catastrophic events has altered the way we view the world and the way we relate to others in our communities. Often distressing events intrinsically motivate us to seek support via our own networks of family, friends and community; ultimately in times of crises we are reliant on one another for comfort as we continue to grieve individually and collectively. However, sometimes people turn inwards to grieve and support from the community is ignored. Recognising different grieving styles is imperative in grief therapy and explored herein.
 

Three things to do about health professionals’ knowledge of end of life law

A guest blog post by Professors Ben White and Lindy Willmott, Directors, Australian Centre for Health Law Research, Faculty of Law, QUT

  • 9 December 2016
  • Author: CareSearch
  • Number of views: 7396
  • 1 Comments
Three things to do about health professionals’ knowledge of end of life law

Health professionals need to know the law that governs withholding and withdrawing life-sustaining treatment. Law is not at the centre of the clinical encounter, but it is part of the regulatory framework that governs these decisions. Failure to know and follow the law puts health professionals and their patients at risk. But we know there are gaps in health professionals’ legal knowledge in this area and this is not surprising either, given how complex and difficult this field of law is.

 

Now there is specialised support and training for Australian GP nurses to provide better care at a very difficult time

A guest blog post by Associate Professor Josephine Clayton, Specialist Physician in Palliative Medicine at HammondCare’s Greenwich Hospital in Sydney, Associate Professor of Palliative Care at the University of Sydney and Director of the Advance Project

  • 2 December 2016
  • Author: CareSearch
  • Number of views: 4444
  • 0 Comments
Now there is specialised support and training for Australian GP nurses to provide better care at a very difficult time

As a young doctor I spent some time working in a palliative care hospital in the early 90’s.  It was such a privilege to be working with people at end of life - with the opportunity to make a difference to quality of life and well-being of patients, and their family members. That experience made me decide to devote my career to Palliative Medicine.
 
I had some experiences at that time that stayed with me.
 
I had a patient, Marion, who had been a school principal. Marion had suffered a severe stroke. She had survived but was very incapacitated, confined to bed and unable to communicate. She was being kept alive, surviving on a feeding tube, and facing a life of care and dependence. Her specialist was very committed to her survival.

 

When the small things become extraordinarily important…

A guest blog post by Dr Deidre Morgan, Occupational Therapy, School of Health Sciences, Flinders University

  • 18 November 2016
  • Author: CareSearch
  • Number of views: 6035
  • 1 Comments
When the small things become extraordinarily important…

When someone has an incurable disease like advanced cancer or motor neurone disease, they experience many changes, one of which is functional decline. Although functional decline is inevitable at the end-of-life, the drive for people to remain as independent as possible is actually heightened at this time. The occupational therapist (OT) has two key roles to play here. Firstly, they play an active role in optimising a person’s independence and participation as function declines. Secondly, by supporting active participation in everyday activities to the best of a person’s ability, the OT can support people to come to terms with bodily deterioration and pending death. I’ll look at these two concepts in more detail.  
 

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About our Blog

The CareSearch blog Palliative Perspectives informs and provides a platform for sharing views, tips and ideas related to palliative care from community members and health professionals. 
 

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