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The views and opinions expressed in our blog series are those of the authors and are not necessarily supported by CareSearch, Flinders University and/or the Australian Government Department of Health.
How online health information is presented affects its usability and developing an effective design can be a challenge if the target audience is broad and has diverse needs. Amanda Adams, PhD Candidate at Flinders University Research Centre for Palliative Care, Death, and Dying, discusses her study on how interface designs can help everyone to access and use health information.
There is a need for more research led by nurses working in clinical environments. In the last of our blog series for International Year of the Nurse and Midwife, Dr Caroline Phelan of Flinders University and academic at the Research Centre for Palliative Care, Death and Dying (RePadd) discuss the important role of research nurses in developing evidence, and her personal experience.
To continue our celebration of the International Year of Nurses and Midwife, we are featuring blogs on nurses and their critical role in providing palliative care and how they can be supported further. Kylie Ash, National Project Manager for PCC4U and Melissa Slattery, Head of Discipline for Nursing at EQUALS International, discuss the need for a nationally consistent palliative care education for enrolled nurses, and how the PCC4U EN Toolkit and EQUALs Diploma of Nursing can help.
Dying to Know Day (August 8th) is an annual campaign that encourages community members and organisations to host events that encourage critical discussion and planning around death, dying, and grief. Holly Rankin-Smith, Communication Director at The Groundswell Project, discusses their campaign and the importance of having these critical conversations particularly during this COVID-19 pandemic.
Some patients do not receive adequate pain and symptom relief at the end of life, causing distress to patients, families and healthcare professionals. It is unclear whether undertreatment of symptoms occurs, in part, because of nurses' concerns about legal and/or disciplinary repercussions if the patient dies after medication is administered. Dr Katrin Gerber, Professor Lindy Willmott, Professor Ben White, and Distinguished Professor Patsy Yates from Queensland University of Technology discuss the findings from their research and interviews with nurses from different clinical backgrounds and settings about their concerns when providing pain and symptom relief to patients near the end of life.