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The views and opinions expressed in our blog series are those of the authors and are not necessarily supported by CareSearch, Flinders University and/or the Australian Government Department of Health.
The release of the Guidelines for a Palliative Approach in Residential Aged Care (APRAC) and the Guidelines for a Palliative Approach for Aged Care in the Community Setting (COMPAC) were a significant advance in recognising and responding to changing population demography in Australia. They aimed to support the provision of palliative care for older people living in the community or in residential aged care by identifying and evaluating the evidence for care to promote quality of life for older Australians who have a life-limiting illness or who are becoming progressively frailer during old age. The two sets of guidelines were important landmarks nationally and internationally.
What if we knew how to respond to death and loss when it happens in our family, workplace and community?
What if we knew how to access end of life and palliative care when we needed it?
What would it be like if more of us were willing and able to respond well to death?
What if we planned for death like we plan for other important life events?
I had the pleasure of coordinating the May edition of the CareSearch Allied Health Hub (AHH) newsletter in which we chose to highlight Motor Neurone Disease (MND) for three reasons:
1. Allied health practitioners play a very important role in a multidisciplinary approach which improves quality of life, for both patient and family.
2. Palliative Care week and MND week both occur in May and it was an opportune time to highlight MND.
3. MND is entering the sphere of practice for more allied health practitioners and it has been brought to the public’s attention recently with fundraisers like “Freeze MND”.
During National Palliative Care Week, the University of Technology Sydney (UTS) hosted a forum on dementia care planning facilitated by the Director of The Centre for Cardiovascular and Chronic Care, Faculty of Health, Professor Jane Phillips. Imelda Gilmore, an Alzheimer’s Australia NSW Dementia Advocate and wife of a person with dementia, opened the forum by highlighting the importance of “getting the word out to have conversations about end of life early on”. A recurring theme at the forum was the need for care decisions to be person-centred and focused on what the person with dementia would have wanted were they able to speak for themselves, rather than the wishes of surrogate decision-makers. Lynn Chenoweth (Professor of Nursing at the Centre for Healthy Brain Ageing, The University of New South Wales) defined person-centredness as respecting the person with dementia’s “values, beliefs, history, likes and dislikes … all of the things that make them unique”.