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The views and opinions expressed in our blog series are those of the authors and are not necessarily supported by CareSearch, Flinders University and/or the Australian Government Department of Health.
My name is Elizabeth Shepherd and I am the Program Development and Quality Manager for Palliative Care at the Sydney Children’s Hospital Network. Working within this specialised area can be challenging and emotional, however, it can also be very rewarding. My position allows me to work closely with the 3 specialist PPC teams located at Children’s Hospital Westmead, Sydney Children’s Hospital Randwick and John Hunter Children’s Hospital, Newcastle. Together we are known as The NSW PPC Programme and over the past 5 years I have been fortunate to work with the energetic and dedicated staff from each service to improve the support that is available to children and families across NSW.
The Palliative Care Clinical Studies Collaborative (PaCCSC) is a national research network that has two main aims:
Mental health and palliative care patients: the “treatment gap”
Sadness, social withdrawal, depression, loss of hope; if a non-palliative person experiences any of these feelings, the health care system has well established processes and services to treat them. Why then do we accept this as ‘normal’ and ‘to be expected’ for those facing the end of life? Why does the system hesitate to ‘label’ these vulnerable people with a mental illness tag?
Mental illness in the terminally ill is too often underdiagnosed and undertreated. It’s frequently ignored – “well of course you’re having trouble coping, you’re dying,” – or pushed aside in favour of addressing clinical symptoms. While existential and psychological care is acknowledged as being crucial to providing quality end of life care, people continually report that theirs, their families and care givers needs in this domain are not addressed.
Who are we?
The Palliative Care Outcomes Collaboration (PCOC) is a nationally funded program that uses standardised clinical assessment tools to benchmark and measure patient outcomes in palliative care.