CareSearch Blog: Palliative Perspectives

The views and opinions expressed in our blog series are those of the authors and are not necessarily supported by CareSearch, Flinders University and/or the Australian Government Department of Health.
 

A Rewarding Place to Work: My Personal Perspective on Paediatric Palliative Care (PPC)

A guest blog post from Elizabeth Shepherd, Program Development and Quality Manager, Palliative Care at Sydney Children's Hospital Network

  • 21 September 2016
  • Author: CareSearch
  • Number of views: 3673
  • 0 Comments
A Rewarding Place to Work: My Personal Perspective on Paediatric Palliative Care (PPC)
My name is Elizabeth Shepherd and I am the Program Development and Quality Manager for Palliative Care at the Sydney Children’s Hospital Network. Working within this specialised area can be challenging and emotional, however, it can also be very rewarding. My position allows me to work closely with the 3 specialist PPC teams located at Children’s Hospital Westmead, Sydney Children’s Hospital Randwick and John Hunter Children’s Hospital, Newcastle. Together we are known as The NSW PPC Programme and over the past 5 years I have been fortunate to work with the energetic and dedicated staff from each service to improve the support that is available to children and families across NSW.
 

PaCCSC RAPID Pharmacovigilance program

A guest blog post from Linda Devilee, National Manager, PaCCSC

  • 13 September 2016
  • Author: CareSearch
  • Number of views: 4140
  • 1 Comments
PaCCSC RAPID Pharmacovigilance program
The Palliative Care Clinical Studies Collaborative (PaCCSC) is a national research network that has two main aims:
1. Firstly, to generate high quality research evidence to support the use of medicines and other interventions at the end of life to better manage or alleviate symptoms. 
2. Secondly, to build capacity and embed research within the health workforce to enable the conduct of high quality clinical research and the uptake of new evidence into clinical practice.

Free palliative care online training helping people live well with chronic illness

A guest blog post from Alison Verhoeven, Chief Executive, Australian Healthcare and Hospitals Association

  • 7 September 2016
  • Author: CareSearch
  • Number of views: 4648
  • 2 Comments
Free palliative care online training helping people live well with chronic illness
Palliative Care has become widely recognised as one of the most vital disciplines in Australian health, with our ageing population and increasingly effective medical treatments bringing about longer and longer final care stages of life.

Palliative care can be an awkward subject to broach – it is difficult to talk about death. However, given our ageing population and our rising rates of chronic and complex disease, including increasing instances of multiple morbidities, these discussions have never been more important and following the discussion, we must meet the growing need for carers with palliative care skills.

 

Listen, Acknowledge, Respond: Addressing the mental health needs of those living with dying

A guest blog post from the Listen Acknowledge Respond project team: Julianne Whyte, CEO, Amaranth Foundation, Janelle Wheat, Associate Dean Academic, Charles Sturt University, Janelle Thomas, Research Officer and Kirsty Smith, Project Manager, Listen, Acknowledge, Respond, Charles Sturt University

  • 30 August 2016
  • Author: CareSearch
  • Number of views: 3510
  • 1 Comments
Listen, Acknowledge, Respond: Addressing the mental health needs of those living with dying

Mental health and palliative care patients: the “treatment gap”
Sadness, social withdrawal, depression, loss of hope; if a non-palliative person experiences any of these feelings, the health care system has well established processes and services to treat them. Why then do we accept this as ‘normal’ and ‘to be expected’ for those facing the end of life? Why does the system hesitate to ‘label’ these vulnerable people with a mental illness tag?

Mental illness in the terminally ill is too often underdiagnosed and undertreated. It’s frequently ignored – “well of course you’re having trouble coping, you’re dying,” – or pushed aside in favour of addressing clinical symptoms. While existential and psychological care is acknowledged as being crucial to providing quality end of life care, people continually report that theirs, their families and care givers needs in this domain are not addressed.

 

Improving Patient Outcomes in Palliative Care through Point-of-Care Assessment and Benchmarking

A guest blog post from Karen Quinsey, PCOC National Director

  • 23 August 2016
  • Author: CareSearch
  • Number of views: 3854
  • 2 Comments
Improving Patient Outcomes in Palliative Care through Point-of-Care Assessment and Benchmarking

Who are we?
The Palliative Care Outcomes Collaboration (PCOC) is a nationally funded program that uses standardised clinical assessment tools to benchmark and measure patient outcomes in palliative care.

  • PCOC is a collaboration between four universities, each represented by a chief investigator:
  • Professor Kathy Eagar, University of Wollongong, New South Wales
  • Professor David Currow, Flinders University, South Australia
  • Professor Patsy Yates, Queensland University of Technology
  • Dr Claire Johnson, University of Western Australia
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About our Blog

The CareSearch blog Palliative Perspectives informs and provides a platform for sharing views, tips and ideas related to palliative care from community members and health professionals. 
 

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