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The views and opinions expressed in our blog series are those of the authors and are not necessarily supported by CareSearch, Flinders University and/or the Australian Government Department of Health.
One part of advance care planning that is often unseen is law. Yet law plays an important role in end-of-life care. Professor Ben White and Professor Lindy Willmott from Queensland University of Technology explains the legal aspects of planning for advance care and end of life, and how the Australian Centre for Health Law Research supports health professionals.
If you were unable to speak for yourself, who would you want to speak for you? And more importantly, what health care decisions would you want them to make? Discussing your values and preferences helps determine what would be important to your future health care. Linda Nolte, Program Director for Advance Care Planning Australia discusses National Advance Care Planning Week and the importance of the making our future preferences known.
The pattern of disease, dying and death has changed dramatically in Australia over the last century. In Australia alone almost 160,000 people die every year. Of these at least 120,000 are expected deaths, meaning that access to palliative care could be of great benefit to both the individuals and their families. But ensuring access to quality palliative care for all who need it is not without its challenges. This is why a group of researchers sought funding from National Health and Medical Research Council (NHMRC) for the Centre of Research Excellence in End-of-Life Care (CRE-ELC).
I started out my career as an enrolled nurse and after a few short term positions spent 21 years at Ashford Hospital. While I was there and aged about 33, my brother died after a short diagnosis of cancer at age 35 – way too young and with much still to give. He spent a few weeks in Daw House hospice – my introduction to this facility and palliative care. I was so inspired with the way care could be delivered and the compassion with which staff went about their work that I decided then and there that this was the way I wished to work going forward. I learnt that, at that time, there was no hope of employment at Daw House for an enrolled nurse, so decided that I would study to become a registered nurse to realise my desire to work in this field.