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The views and opinions expressed in our blog series are those of the authors and are not necessarily supported by CareSearch, Flinders University and/or the Australian Government Department of Health.
Many people spend the last stages of their lives in aged care, and for that reason Palliative Care Australia believes that end-of-life care should be recognised as core business for residential aged care. Increasingly, aged care providers are recognising the need to ensure their workforce have the necessary skills and competencies to deliver high quality end-of-life care. Yet in spite of this recognition, access to quality palliative care services is far from guaranteed in residential aged care – particularly in rural and remote areas.
We all want the ‘best death possible’ for our loved ones and ourselves as we enter old age. So we need to ask ourselves, what are the barriers to accessing care that can support this, and will looking at the issue from a population or needs-based policy perspective help to ensure end-of-life care becomes core business for all aged care providers?
One of the statements we commonly see in research reports and in policy and service documents is a comment about an ageing population. The reality of a demographic change where people are living longer than ever before has been instrumental in driving rethinking around issues such as retirement age, superannuation access, healthy lifestyles and supportive living environments. Living longer does not however mean living forever, and an ageing population means we also need to consider how we support older Australians as they approach death.
Wandering around your city or town, have you ever seen ‘pop-up’ chalk boards inviting you to contribute your thoughts on an issue affecting us all? If you were asked what one thing you’d want before you die, what would it be? Travel to a dreamt-of place? Marry your beloved? See your grandchildren born? See Collingwood win the AFL Grand Final (go the ‘pies!)?
Chances are you’ll see a ‘Before I die, I want to…’ board somewhere (Before I Die website). It’s an initiative that encourages open dialogue about death with the hope that it will engender compassion for those in our community who are living with a life-limiting illness. It’s a bit like a bucket list, really.
The 21st Century has exposed us to vast stories of loss and grief affecting many people in communities worldwide. The upsurge of these catastrophic events has altered the way we view the world and the way we relate to others in our communities. Often distressing events intrinsically motivate us to seek support via our own networks of family, friends and community; ultimately in times of crises we are reliant on one another for comfort as we continue to grieve individually and collectively. However, sometimes people turn inwards to grieve and support from the community is ignored. Recognising different grieving styles is imperative in grief therapy and explored herein.
The CareSearch team hosted a MOOC on death and dying (Dying2Learn) in 2016 with over 1,000 participants from 18 countries. The aim of the MOOC was to explore community attitudes in relation to death as a normal part of life, and to open conversations around death and dying. In week one participants were asked to look at language, and to ‘think of alternative words (or euphemisms) that are used to describe death’. We were surprised when we saw 471 participants providing 3,053 alternative words and posting blogs about language.