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The views and opinions expressed in our blog series are those of the authors and are not necessarily supported by CareSearch, Flinders University and/or the Australian Government Department of Health.
Informing people with vastly different backgrounds, literacy levels and capacity, as well as roles is a challenge. This is why in the 2017-2020 project period, CareSearch and palliAGED began the Engagement Project working with specific groups (allied health, aged care and patients, carers, and families) to learn more about how they find and use health care information and what information about end of life and palliative care they need. Dr Katrina Erny-Albrecht, Senior Research Fellow for CareSearch discusses some key findings from the project and the central importance of context.
COVID-19 presents an unprecedented challenge for patients, carers, and health professionals, especially for those providing home-based palliative care to patients. Professor Liz Reymond Director at Brisbane South Palliative Care Collaborative and Deputy Director at Metro South Palliative Care Service discusses the new caring@home packages for carers to support them to help manage symptoms in home-based palliative care patients and limit the risk of community COVID-19 transmission.
Being aware and having access to evidence-based palliative care information is important for those providing or receiving palliative care. CareSearch is aware that the way people access information varies and that making information available is often of itself not enough. To better understand the palliative care information needs of people and organisations CareSearch undertook an Engagement Project. Katrina Erny-Albrecht from CareSearch discusses the aims and activities involved in the project.
When it comes to dying in an acute hospital, clinicians need some help and guidance to know how to care for vulnerable patients and what is needed at this point of their life. Maite Uribe from Southern Adelaide Palliative Care Service discusses caring for dying patients in an acute hospital setting, and three tips for getting it right.
Doctors caring for palliative patients encounter myriad of challenges. Dr Chris Moy chair of the Central Adelaide Clinical Council for Adelaide Primary Health Network and chair of the Federal AMA Ethics and Medico-legal Committee writes about the common hurdles faced by doctors, and how CareSearch can help them spend more time in caring for patients and their families.