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The views and opinions expressed in our blog series are those of the authors and are not necessarily supported by CareSearch, Flinders University and/or the Australian Government Department of Health.
Quality of life is an important outcome in aged care where curative treatments may no longer be the main focus. Research Fellow Dr Claire Hutchinson discusses a three year research project which develops a new quality of life measure that aged care providers can use for quality assessments.
How online health information is presented affects its usability and developing an effective design can be a challenge if the target audience is broad and has diverse needs. Amanda Adams, PhD Candidate at Flinders University Research Centre for Palliative Care, Death, and Dying, discusses her study on how interface designs can help everyone to access and use health information.
There is a need for more research led by nurses working in clinical environments. In the last of our blog series for International Year of the Nurse and Midwife, Dr Caroline Phelan of Flinders University and academic at the Research Centre for Palliative Care, Death and Dying (RePadd) discuss the important role of research nurses in developing evidence, and her personal experience.
Some patients do not receive adequate pain and symptom relief at the end of life, causing distress to patients, families and healthcare professionals. It is unclear whether undertreatment of symptoms occurs, in part, because of nurses' concerns about legal and/or disciplinary repercussions if the patient dies after medication is administered. Dr Katrin Gerber, Professor Lindy Willmott, Professor Ben White, and Distinguished Professor Patsy Yates from Queensland University of Technology discuss the findings from their research and interviews with nurses from different clinical backgrounds and settings about their concerns when providing pain and symptom relief to patients near the end of life.
There have been many changes around how to care for others since the outbreak of COVID-19. These changes can compromise the wellbeing of people who receive and deliver palliative care. Hence it has never been more important to undertake research into understanding what is quality – and brilliant - palliative care. Dr Aileen Collier, Associate Professor Ann Dadich, Ms Catherine Jeffs and Professor Gregory Crawford discuss the findings of their research into enabling and sustaining brilliant palliative care.