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The views and opinions expressed in our blog series are those of the authors and are not necessarily supported by CareSearch, Flinders University and/or the Australian Government Department of Health.
Technological advances are enabling the integration of mobile healthcare Apps into the self-management plans for people living with various chronic and complex conditions. Priyanka Bhattarai discusses her research into investigating if self-management Apps are a feasible and acceptable modality to assist older people in the community to better manage their arthritic pain. The potential extension of this to palliative care is also discussed.
Advances in medicine mean health care professionals can prolong life, yet some treatments have a low chance of providing tangible benefits to some patients, can result in a ‘bad death’, and represent a multi-million dollar cost to the public. Professor Adrian Barnett from the Queensland University of Technology discusses the study he is involved in which looks to increase awareness among hospital clinicians of the extent of non-beneficial treatment at the end-of-life and stimulate action to reduce it.
Due to advances in medicine, people with physical disabilities are living longer. While end-of-life care should be readily accessible for this group, the care needs of people with significant physical disabilities arguably adds an additional layer of complexity to such care. Dr Ruth Walker from Flinders University discusses end-of-life care needs for adults with long-standing physical disability and the new research she is involved in to explore the specific needs of people with physical disabilities who are at the end-of-life, as well as the needs of their families and the support staff who help care for them.
Health care professionals agree that the quality of care provided in the emergency department for dying patients and their families is often not as good as it needs to be. Dr Tracy Giles of Flinders University explains how her research into the experiences of family members will help to identify what is working well already and areas of care that need improvement, and how you can become involved.