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The views and opinions expressed in our blog series are those of the authors and are not necessarily supported by CareSearch, Flinders University and/or the Australian Government Department of Health.
Informing people with vastly different backgrounds, literacy levels and capacity, as well as roles is a challenge. This is why in the 2017-2020 project period, CareSearch and palliAGED began the Engagement Project working with specific groups (allied health, aged care and patients, carers, and families) to learn more about how they find and use health care information and what information about end of life and palliative care they need. Dr Katrina Erny-Albrecht, Senior Research Fellow for CareSearch discusses some key findings from the project and the central importance of context.
COVID-19 presents an unprecedented challenge for patients, carers, and health professionals, especially for those providing home-based palliative care to patients. Professor Liz Reymond Director at Brisbane South Palliative Care Collaborative and Deputy Director at Metro South Palliative Care Service discusses the new caring@home packages for carers to support them to help manage symptoms in home-based palliative care patients and limit the risk of community COVID-19 transmission.
CarerHelp provides family carers to access information and resources to help them to plan and be prepared to care for a person with a terminal disease. Dr Kristina Thomas from the Centre for Palliative Care at St Vincent’s Hospital discusses her research into understanding the experiences and needs of family members, and how the results were used to help inform the development of CarerHelp.
Being aware and having access to evidence-based palliative care information is important for those providing or receiving palliative care. CareSearch is aware that the way people access information varies and that making information available is often of itself not enough. To better understand the palliative care information needs of people and organisations CareSearch undertook an Engagement Project. Katrina Erny-Albrecht from CareSearch discusses the aims and activities involved in the project.
CarerHelp is an online resource that empowers family carers to prepare for caring for a person with terminal illness. Di Saward from Centre for Palliative Care at St Vincent’s Hospital discusses the importance of identifying and appraising existing online resources to inform content, and some of the processes involved in developing CarerHelp.