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The views and opinions expressed in our blog series are those of the authors and are not necessarily supported by CareSearch, Flinders University and/or the Australian Government Department of Health.
COVID-19 presents an unprecedented challenge for patients, carers, and health professionals, especially for those providing home-based palliative care to patients. Professor Liz Reymond Director at Brisbane South Palliative Care Collaborative and Deputy Director at Metro South Palliative Care Service discusses the new caring@home packages for carers to support them to help manage symptoms in home-based palliative care patients and limit the risk of community COVID-19 transmission.
CarerHelp provides family carers to access information and resources to help them to plan and be prepared to care for a person with a terminal disease. Dr Kristina Thomas from the Centre for Palliative Care at St Vincent’s Hospital discusses her research into understanding the experiences and needs of family members, and how the results were used to help inform the development of CarerHelp.
Being aware and having access to evidence-based palliative care information is important for those providing or receiving palliative care. CareSearch is aware that the way people access information varies and that making information available is often of itself not enough. To better understand the palliative care information needs of people and organisations CareSearch undertook an Engagement Project. Katrina Erny-Albrecht from CareSearch discusses the aims and activities involved in the project.
CarerHelp is an online resource that empowers family carers to prepare for caring for a person with terminal illness. Di Saward from Centre for Palliative Care at St Vincent’s Hospital discusses the importance of identifying and appraising existing online resources to inform content, and some of the processes involved in developing CarerHelp.
Caring for a loved one who is dying can be physically, emotionally, mentally, and socially challenging. Khang Chiem cared for his husband Benjamin Leske who was diagnosed with brain cancer. In this Palliative Perspectives Blog, Khang shares his experience and discusses the importance of self-care and developing resilience.