CareSearch Blog: Palliative Perspectives

The views and opinions expressed in our blog series are those of the authors and are not necessarily supported by CareSearch, Flinders University and/or the Australian Government Department of Health.
 

Improving the journey for Aboriginal and Torres Strait Islander patients: Managing Two Worlds Together

A guest blog post by Fiona Walls, Communication Officer, Lowitja Institute

  • 10 July 2018
  • Author: Guest
  • Number of views: 2272
  • 0 Comments
Improving the journey for Aboriginal and Torres Strait Islander patients: Managing Two Worlds Together
Providing culturally appropriate and person-centred palliative care for Aboriginal and Torres Strait Islander patients can be complex. Fiona Walls from the Lowitja Institute discusses how the findings and resources developed from Managing Two Worlds Together study can help.
 

National Advance Care Planning Week

A guest blog post by Linda Nolte, Program Director, Advance Care Planning Australia

  • 16 April 2018
  • Author: CareSearch
  • Number of views: 2432
  • 0 Comments
National Advance Care Planning Week
If you were unable to speak for yourself, who would you want to speak for you? And more importantly, what health care decisions would you want them to make? Discussing your values and preferences helps determine what would be important to your future health care. Linda Nolte, Program Director for Advance Care Planning Australia discusses National Advance Care Planning Week and the importance of the making our future preferences known.

Listen, Acknowledge, Respond: Addressing the mental health needs of those living with dying

A guest blog post from the Listen Acknowledge Respond project team: Julianne Whyte, CEO, Amaranth Foundation, Janelle Wheat, Associate Dean Academic, Charles Sturt University, Janelle Thomas, Research Officer and Kirsty Smith, Project Manager, Listen, Acknowledge, Respond, Charles Sturt University

  • 30 August 2016
  • Author: CareSearch
  • Number of views: 3496
  • 1 Comments
Listen, Acknowledge, Respond: Addressing the mental health needs of those living with dying

Mental health and palliative care patients: the “treatment gap”
Sadness, social withdrawal, depression, loss of hope; if a non-palliative person experiences any of these feelings, the health care system has well established processes and services to treat them. Why then do we accept this as ‘normal’ and ‘to be expected’ for those facing the end of life? Why does the system hesitate to ‘label’ these vulnerable people with a mental illness tag?

Mental illness in the terminally ill is too often underdiagnosed and undertreated. It’s frequently ignored – “well of course you’re having trouble coping, you’re dying,” – or pushed aside in favour of addressing clinical symptoms. While existential and psychological care is acknowledged as being crucial to providing quality end of life care, people continually report that theirs, their families and care givers needs in this domain are not addressed.

 

‘What is needed to improve care planning for people living with dementia?’

A guest blog post from Tim Luckett PhD, Senior Research Fellow, University of Technology Sydney and Ingrid Duff, Research Assistant, Centre for Cardiovascular and Chronic Care

  • 19 July 2016
  • Author: CareSearch
  • Number of views: 7503
  • 2 Comments
‘What is needed to improve care planning for people living with dementia?’
During National Palliative Care Week, the University of Technology Sydney (UTS) hosted a forum on dementia care planning facilitated by the Director of The Centre for Cardiovascular and Chronic Care, Faculty of Health, Professor Jane Phillips. Imelda Gilmore, an Alzheimer’s Australia NSW Dementia Advocate and wife of a person with dementia, opened the forum by highlighting the importance of “getting the word out to have conversations about end of life early on”. A recurring theme at the forum was the need for care decisions to be person-centred and focused on what the person with dementia would have wanted were they able to speak for themselves, rather than the wishes of surrogate decision-makers. Lynn Chenoweth (Professor of Nursing at the Centre for Healthy Brain Ageing, The University of New South Wales) defined person-centredness as respecting the person with dementia’s “values, beliefs, history, likes and dislikes … all of the things that make them unique”.

About our Blog

The CareSearch blog Palliative Perspectives informs and provides a platform for sharing views, tips and ideas related to palliative care from community members and health professionals. 
 

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