Subscribe Blog Contact
The views and opinions expressed in our blog series are those of the authors and are not necessarily supported by CareSearch, Flinders University and/or the Australian Government Department of Health.
Eleven Primary Health Networks (PHNs) across Australia are implementing the Greater Choice for At Home Palliative Care (GCfAHPC) measure. In the second blog in our series on GCfAHPC, Anne Harley, Integrated Health Coordinator at South Western Sydney PHN discusses their 'Peace of Mind' project and activities to raise community awareness about dementia, advance care planning and palliative care.
Palliative care for people living with dementia should be available when and where it is needed. The Dementia Australia Policy Team discusses their discussion paper on what Australia needs to do to improve palliative care services for people living with dementia.
Many of us are unaware that Dementia is a terminal illness. It is currently the second leading cause of death overall in Australia. Kirsty Carr from Dementia Australia discusses three things you need to know about dementia and dying.
For this discussion, aged care refers to the additional care required for an older person needing regular health professional input either in the community or in an aged care home.
Palliative care is, according to the WHO (World Health Organisation), ‘an approach that improves the quality of life of patients and their families facing the problems associated with life-threatening illness, through the prevention and relief of suffering by means of early identification and impeccable assessment and treatment of pain and other problems, physical, psychosocial and spiritual’.
During National Palliative Care Week, the University of Technology Sydney (UTS) hosted a forum on dementia care planning facilitated by the Director of The Centre for Cardiovascular and Chronic Care, Faculty of Health, Professor Jane Phillips. Imelda Gilmore, an Alzheimer’s Australia NSW Dementia Advocate and wife of a person with dementia, opened the forum by highlighting the importance of “getting the word out to have conversations about end of life early on”. A recurring theme at the forum was the need for care decisions to be person-centred and focused on what the person with dementia would have wanted were they able to speak for themselves, rather than the wishes of surrogate decision-makers. Lynn Chenoweth (Professor of Nursing at the Centre for Healthy Brain Ageing, The University of New South Wales) defined person-centredness as respecting the person with dementia’s “values, beliefs, history, likes and dislikes … all of the things that make them unique”.