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The views and opinions expressed in our blog series are those of the authors and are not necessarily supported by CareSearch, Flinders University and/or the Australian Government Department of Health.
Over the past two years, CareSearch has hosted Dying2Learn, a free Massive Open Online Course (MOOC) about death and dying. We created the course hoping we could provide a community platform for open social discussion and connection on death, dying and palliative care – something that at times can be hard to strike up a conversation about in our day-to-day lives.
Let’s be frank, end-of-life care can be tricky. Yes, dying is normal, but it hasn’t been a major focus in the acute hospital systems. Health care professionals working in acute hospitals can find themselves challenged by patients with end-of-life care needs. Doctors, nurses and allied health professionals can be in a situation where they do not know how to best respond to a patient with end-of-life needs. Appropriate end-of-life interventions can be missed.
With 52% of Australians dying in acute hospitals, end-of-life care is essential knowledge for all health care professionals.
What if we knew how to respond to death and loss when it happens in our family, workplace and community?
What if we knew how to access end of life and palliative care when we needed it?
What would it be like if more of us were willing and able to respond well to death?
What if we planned for death like we plan for other important life events?
This is one of the questions that will be addressed in the Dying2Learn MOOC. As a palliative care doctor, it has been wonderful to have the opportunity to start this conversation, and I am looking forward to the interactions with real anticipation.
In developing this section of the MOOC I have tried hard not to assume too much about what participants should think or believe, or to push any particular perspective. Obviously that is a bit difficult for me, as my work for over a decade has been in the smoke and dust of the clinical battlefields where dying patients often end up i.e. acute hospitals. As palliative medicine clinicians we often feel like we are galloping in to rescue people from the hospital system, and (speaking for myself, anyhow) we can sometimes be a bit black and white about things. What I have learned though, over and over again, is that it is not simple for people. Many are unprepared for the decisions they will need to make, and - like BREXIT perhaps!- may not fully understand what they have let themselves in for until it is too late.