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The views and opinions expressed in our blog series are those of the authors and are not necessarily supported by CareSearch, Flinders University and/or the Australian Government Department of Health.
People with intellectual disability, just like everyone else, have a right to understand dying and death. In this second blog for our Part of Life series, Dr Michele Wiese, Senior Lecturer in the School of Psychology at Western Sydney University discusses how the ‘Talking end of life…with people with intellectual disability’ (TEL) can help them understand end of life, and make plans for it if they choose.
The life expectancy of people with an intellectual disability (ID) has increased but people with ID are under-referred to palliative care and there is currently no model of palliative care in Australia or specific guidelines for services to meet their needs. In the 13th blog for our National Palliative Care Project series, Dr Rachael Cvejic from the Department of Developmental Disability Neuropsychiatry at the University of NSW Sydney discusses a new project which aims to improve palliative care services for people with an intellectual disability.
Improving the quality of care for people in residential and community aged care settings is very important, especially with an ageing population. In the 12th blog for our National Palliative Care Project series, Distinguished Professor Patsy Yates and Karen Clifton from Queensland University of Technology discuss how the End of Life Directions for Aged Care (ELDAC) Project will help to support health professionals and aged care workers.
In the 11th blog for our National Palliative Care Project series, CareSearch Senior Research Fellow Dr Katrina Erny-Albrecht discusses how the project will continue supporting Australians and contribute to the delivery of the National Palliative Care Strategy by providing access to relevant evidence and resources.
Currently, Aboriginal and Torres Strait Islander people are significantly less likely to access palliative care services, in comparison to the Australian population. In the 10th blog for our National Palliative Care Project series Dr Tina Janamian, General Manager for Education and Innovation at AGPAL discusses a new project to help ensure Aboriginal and Torres Strait Islander peoples have access to culturally safe palliative care and end-of-life services.