Review collection - Tools and measures 

245 reviews

General 186 reviews
Bereavement 5 reviews
Existential distress 7 reviews
Fatigue 6 reviews
Pain 12 reviews
Quality of life 23 reviews
Spirituality 7 reviews



Chu C, Engels Y, Suh SY, Kim SH, White N. Should the Surprise Question be Used as a Prognostic Tool for People With Life-limiting Illnesses? J Pain Symptom Manage. 2023 May 18:S0885-3924(23)00509-2. doi: 10.1016/j.jpainsymman.2023.05.003. Epub ahead of print.

Dehpour T, Koffman J. Assessment of anticipatory grief in informal caregivers of dependants with dementia: a systematic review. Aging Ment Health. 2023 Jan;27(1):110-123. doi: 10.1080/13607863.2022.2032599. Epub 2022 Feb 15.

Fischer C, Bednarz D, Simon J. Methodological challenges and potential solutions for economic evaluations of palliative and end-of-life care: A systematic review. Palliat Med. 2023:2692163231214124.

Quah ELY, Chua KZY, Lua JK, Wan DWJ, Chong CS, Lim YX, Krishna L. A Systematic Review of Stakeholder Perspectives of Dignity and Assisted Dying. J Pain Symptom Manage. 2023 Feb;65(2):e123-e136. doi: 10.1016/j.jpainsymman.2022.10.004. Epub 2022 Oct 14.

Shrestha S, Poudel A, Forough AS, Steadman KJ, Nissen LM. A systematic review on methods for developing and validating deprescribing tools for older adults with limited life expectancy. Int J Pharm Pract. 2023 Mar 13;31(1):3-14. doi: 10.1093/ijpp/riac094.

Vakkila E, Jehkonen M. Apraxia and dementia severity in Alzheimer's disease: a systematic review. J Clin Exp Neuropsychol. 2023 Feb;45(1):84-103. doi: 10.1080/13803395.2023.2199971. Epub 2023 Apr 11.

Xie Z, Ding J, Jiao J, Tang S, Huang C. Screening instruments for early identification of unmet palliative care needs: A systematic review and meta-analysis. BMJ Support Palliat Care. 2023 Dec 28:spcare-2023-004465.

Yoong SQ, Porock D, Whitty D, Tam WWS, Zhang H. Performance of the Palliative Prognostic Index for cancer patients: A systematic review and meta-analysis. Palliat Med. 2023 Sep;37(8):1144-1167.

Zogby CB. What is the rate of depersonalization and burnout among hospital-based palliative care nurse practitioners? A review of validated instruments. Illn Cris Loss. 2023;31(4):687-703.


Cheng Q, Xu B, Ng MSN, Zheng H, So WKW. Needs assessment instruments for family caregivers of cancer patients receiving palliative care: a systematic review. Support Care Cancer. 2022 May 28. doi: 10.1007/s00520-022-07122-2. Epub ahead of print.

Kirkland SW, Yang EH, Garrido Clua M, Kruhlak M, Campbell S, Villa-Roel C, Rowe BH. Screening tools to identify patients with unmet palliative care needs in the emergency department: a systematic review. Acad Emerg Med. 2022 Mar 28. doi: 10.1111/acem.14492. Epub ahead of print.

López-García M, Rubio L, Martin-de-Las-Heras S, Suárez J, Pérez-Cárceles MD, Martin-Martin J. Instruments to measure skills and knowledge of physicians and medical students in palliative care: A systematic review of psychometric properties. Med Teach. 2022 Apr 29:1-13. doi: 10.1080/0142159X.2022.2067033. Epub ahead of print.

Mayland CR, Sunderland KA, Cooper M, Taylor P, Powell PA, Zeigler L, Cox V, Gilman C, Turner N, Flemming K, Fraser LK. Measuring quality of dying, death and end-of-life care for children and young people: A scoping review of available tools. Palliat Med. 2022 Aug 1:2692163221105599. doi: 10.1177/02692163221105599. Epub ahead of print.

Mitchinson L, Chu C, Bruun A, Sisk AR, Armstrong M, Vindrola-Padros C, Kupeli N, Candy B, Stone P. How best to capture the impact of complementary therapies in palliative care: A systematic review to identify and assess the appropriateness and validity of multi-domain tools. Palliat Med. 2022 Sep 7:2692163221122955. doi: 10.1177/02692163221122955. Epub ahead of print.

Montagut-Martínez P, Pérez-Cruzado D, Gutiérrez-Sánchez D. Cancer-related fatigue measures in palliative care: A psychometric systematic review. Eur J Cancer Care (Engl). 2022 Jul 12:e13642. doi: 10.1111/ecc.13642. Epub ahead of print.

Nayfeh A, Conn LG, Dale C, Kratina S, Hales B, Das Gupta T, Chakraborty A, Taggar R, Fowler R. The effect of end-of-life decision-making tools on patient and family-related outcomes of care among ethnocultural minorities: A systematic review. PLoS One. 2022 Aug 4;17(8):e0272436. doi: 10.1371/journal.pone.0272436.

Shrestha S, Poudel A, Forough AS, Steadman KJ, Nissen LM. A systematic review on methods for developing and validating deprescribing tools for older adults with limited life expectancy. Int J Pharm Pract. 2022 Dec 6:riac094. doi: 10.1093/ijpp/riac094. Epub ahead of print.

van Lummel EV, Ietswaard L, Zuithoff NP, Tjan DH, van Delden JJ. The utility of the surprise question: A useful tool for identifying patients nearing the last phase of life? A systematic review and meta-analysis. Palliat Med. 2022 Jul;36(7):1023-1046. doi: 10.1177/02692163221099116.

Waller A, Hobden B, Fakes K, Clark K. A Systematic Review of the Development and Implementation of Needs-Based Palliative Care Tools in Heart Failure and Chronic Respiratory Disease. Front Cardiovasc Med. 2022 Apr 13;9:878428. doi: 10.3389/fcvm.2022.878428.


Donkor A, Luckett T, Aranda S, Vanderpuye V, Phillips JL. Development of the 'REadiness SElf-assessment (RESEA) guide' to assist low and middle-income countries with establishing safe and sustainable radiotherapy services: a pragmatic sequential mixed qualitative methods project. BMC Health Serv Res. 2021 Mar 23;21(1):268. doi: 10.1186/s12913-021-06274-x.

Ellis-Smith C, Tunnard I, Dawkins M, Gao W, Higginson IJ, Evans CJ; SPACE. Managing clinical uncertainty in older people towards the end of life: a systematic review of person-centred tools. BMC Palliat Care. 2021 Oct 22;20(1):168. doi: 10.1186/s12904-021-00845-9.

Goni-Fuste B, Crespo I, Monforte-Royo C, Porta-Sales J, Balaguer A, Pergolizzi D. What defines the comprehensive assessment of needs in palliative care? An integrative systematic review. Palliat Med. 2021 Apr;35(4):651-669. doi: 10.1177/0269216321996985. Epub 2021 Mar 1.

Grant M, de Graaf E, Teunissen S. A systematic review of classifications systems to determine complexity of patient care needs in palliative care. Palliat Med. 2021 Apr;35(4):636-650. doi: 10.1177/0269216321996983. Epub 2021 Mar 12.

Ingle MP, Valdovinos C, Ford KL, Zhou S, Bull S, Gornail S, Zhang X, Moore S, Portz J. Patient Portals to Support Palliative and End-of-Life Care: Scoping Review. J Med Internet Res. 2021 Sep 16;23(9):e28797. doi: 10.2196/28797.

Kustanti CY, Chu H, Kang XL, Liu D, Pien LC, Jen HJ, Shen SH, Chen JH, Chou KR. Evaluation of the performance of instruments to diagnose grief disorders: A diagnostic meta-analysis. Int J Nurs Stud. 2021 Aug;120:103972. doi: 10.1016/j.ijnurstu.2021.103972. Epub 2021 May 7.

Pobar I, Job M, Holt T, Hargrave C, Hickey B. Prognostic tools for survival prediction in advanced cancer patients: A systematic review. J Med Imaging Radiat Oncol. 2021 May 10. doi: 10.1111/1754-9485.13185. Epub ahead of print.

Rimmer B, Crowe L, Todd A, Sharp L. Assessing unmet needs in advanced cancer patients: a systematic review of the development, content, and quality of available instruments. J Cancer Surviv. 2021 Aug 6. doi: 10.1007/s11764-021-01088-6. Epub ahead of print.

Robijn L, Deliens L, Scherrens AL, Pauwels NS, Pype P, Rietjens J, Chambaere K. A systematic review of quality improvement initiatives for continuous sedation until death. Palliat Med. 2021 Apr;35(4):670-682. doi: 10.1177/0269216321996990. Epub 2021 Mar 15.

Sharif Nia H, Lehto RH, Pahlevan Sharif S, Mashrouteh M, Goudarzian AH, Rahmatpour P, Torkmandi H, Yaghoobzadeh A. A Cross-Cultural Evaluation of the Construct Validity of Templer's Death Anxiety Scale: A Systematic Review. Omega (Westport). 2021 Sep;83(4):760-776. doi: 10.1177/0030222819865407. Epub 2019 Jul 31.

Sloan DH, Hannum SM, DeGroot L, Dy SM, Waldfogel J, Chyr LC, Heughan JA, Zhang A, Wilson RF, Yuan CT, Wu DS, Robinson KA, Cotter VT. Advance Care Planning Shared Decision-Making Tools for Non-Cancer Chronic Serious Illness: A Mixed Method Systematic Review. Am J Hosp Palliat Care. 2021 Feb 15:1049909121995416. doi: 10.1177/1049909121995416. Epub ahead of print.

Stone P, White N, Oostendorp LJM, Llewellyn H, Vickerstaff V. Comparing the performance of the palliative prognostic (PaP) score with clinical predictions of survival: A systematic review. Eur J Cancer. 2021 Oct 11;158:27-35. doi: 10.1016/j.ejca.2021.08.049. Epub ahead of print.

Tark A, Song J, Parajuli J, Chae S, Stone PW. Are We Getting What We Really Want? A Systematic Review of Concordance Between Physician Orders for Life-Sustaining Treatment (POLST) Documentation and Subsequent Care Delivered at End-of-Life. Am J Hosp Palliat Care. 2021 Sep;38(9):1142-1158. doi: 10.1177/1049909120976319. Epub 2020 Nov 28.

Teike Lüthi F, MacDonald I, Rosselet Amoussou J, Bernard M, Borasio GD, Ramelet AS. Instruments for the identification of patients in need of palliative care in the hospital setting: a systematic review of measurement properties. JBI Evid Synth. 2021 Nov 22. doi: 10.11124/JBIES-20-00555. Epub ahead of print.

Thapa R, Chimoriya R, Arora A. The development and psychometric properties of oral health assessment instruments used by non-dental professionals for nursing home residents: a systematic review. BMC Geriatr. 2021 Jan 9;21(1):35. doi: 10.1186/s12877-020-01989-8.

Watt CL, Scott M, Webber C, Sikora L, Bush SH, Kabir M, Boland JW, Woodhouse R, Sands MB, Lawlor PG. Delirium screening tools validated in the context of palliative care: A systematic review. Palliat Med. 2021 Feb 16:269216321994730. doi: 10.1177/0269216321994730. Epub ahead of print.


Alobaidi NY, Almeshari M, Stockley JA, Sapey E, Edgar RG. A Systematic Review of the Use of Physiological Tests Assessing the Acute Response to Treatment During Exacerbations of COPD (with a Focus on Small Airway Function). COPD. 2020 Dec;17(6):711-720. doi: 10.1080/15412555.2020.1815183. Epub 2020 Nov 12.

Ament SM, Couwenberg IM, Boyne JJ, Kleijnen J, Stoffers HE, van den Beuken MH, Engels Y, Bellersen L, Janssen DJ. Tools to help healthcare professionals recognize palliative care needs in patients with advanced heart failure: A systematic review. Palliat Med. 2020 Oct 15:269216320963941. doi: 10.1177/0269216320963941. Epub ahead of print.

Ayton DR, Gardam ML, Pritchard EK, Ruseckaite R, Ryan J, Robinson SJ, Brodaty H, Ward SA, Ahern S. Patient-Reported Outcome Measures to Inform Care of People With Dementia-A Systematic Scoping Review. Gerontologist. 2020 May 5:gnz179. doi: 10.1093/geront/gnz179. Epub ahead of print.

Chilvers M, Johnston K, Ferrar K, Williams MT. Dyspnoea Assessment In Adults With End-Stage Kidney Disease: A Systematic Review. J Ren Care. 2020 Sep;46(3):137-150. doi: 10.1111/jorc.12321. Epub 2020 Feb 12.

Choi SSW, Cajita MI, Gitlin LN. A review of measures of three common dementia-related behaviors: Rejection of care, aggression, and agitation. Geriatr Nurs. 2020 May 10:S0197-4572(20)30124-5. doi: 10.1016/j.gerinurse.2020.04.003. Epub ahead of print.

de López KJ, Søndergaard Knudsen H, Hansen TGB. What Is Measured in Bereavement Treatment for Children and Adolescents? A Systematic Literature Review. Illn Crises Loss. 2020 Oct;28(4):363-387. doi:10.1177/1054137317741713

ElMokhallalati Y, Bradley SH, Chapman E, Ziegler L, Murtagh FE, Johnson MJ, Bennett MI. Identification of patients with potential palliative care needs: A systematic review of screening tools in primary care. Palliat Med. 2020 Jun 7:269216320929552. doi: 10.1177/0269216320929552. Epub ahead of print.

Erzkamp S, Köberlein-Neu J, Rose O. An Algorithm for Comprehensive Medication Management in Nursing Homes: Results of the AMBER Project. Drug Saf. 2020 Oct 31. doi: 10.1007/s40264-020-01016-0. Epub ahead of print.

Gutiérrez-Sánchez D, Gómez-García R, Cuesta-Vargas AI, Pérez-Cruzado D. The suffering measurement instruments in palliative care: A systematic review of psychometric properties. Int J Nurs Stud. 2020 Jul 10;110:103704. doi: 10.1016/j.ijnurstu.2020.103704. Epub ahead of print.

Jeong E, Park J, Lee J. Diagnostic Test Accuracy of the 4AT for Delirium Detection: A Systematic Review and Meta-Analysis. Int J Environ Res Public Health. 2020 Oct 15;17(20):E7515. doi: 10.3390/ijerph17207515.

Karamanidou C, Natsiavas P, Koumakis L, Marias K, Schera F, Schäfer M, Payne S, Maramis C. Electronic Patient-Reported Outcome-Based Interventions for Palliative Cancer Care: A Systematic and Mapping Review. JCO Clin Cancer Inform. 2020 Jul;4:647-656. doi: 10.1200/CCI.20.00015.

Kistler EA, Stevens E, Scott E, Philpotts LL, Greer JA, Greenwald JL. Triggered Palliative Care Consults: A Systematic Review of Interventions for Hospitalized and Emergency Department Patients. J Pain Symptom Manage. 2020 Feb 12:S0885-3924(20)30074-9. doi: 10.1016/j.jpainsymman.2020.02.001. Epub ahead of print.

Nielsen TR, Jørgensen K. Cross-cultural dementia screening using the Rowland Universal Dementia Assessment Scale: a systematic review and meta-analysis. Int Psychogeriatr. 2020 Mar 9:1-14. doi: 10.1017/S1041610220000344. Epub ahead of print.

Remawi BN, Gadoud A, Murphy IMJ, Preston N. Palliative care needs-assessment and measurement tools used in patients with heart failure: a systematic mixed-studies review with narrative synthesis. Heart Fail Rev. 2020 Aug 3. doi: 10.1007/s10741-020-10011-7. Epub ahead of print.

Schmidt EB, Blum D, Domeisen Benedetti F, Schlögl M, Strasser F. Tools for guiding interventions to address patient-perceived multidimensional unmet healthcare needs in palliative care: systematic literature review. BMJ Support Palliat Care. 2020 Nov 11:bmjspcare-2020-002495. doi: 10.1136/bmjspcare-2020-002495. Epub ahead of print.

van Eenennaam RM, Kruithof WJ, van Es MA, Kruitwagen-van Reenen ET, Westeneng HJ, Visser-Meily JMA, van den Berg LH, Beelen A. Discussing personalized prognosis in amyotrophic lateral sclerosis: development of a communication guide. BMC Neurol. 2020 Dec 14;20(1):446. doi: 10.1186/s12883-020-02004-8.


Chen C, Meier ST. Selecting the Best Instrument to Measure Family Perceptions of End-of-Life Communication in Intensive Care Units. Am J Hosp Palliat Care. 2019 Aug 7:1049909119867623. doi: 10.1177/1049909119867623. [Epub ahead of print]

Cheng L, Liu F, Feng S, Wang Y, Gu Y, Kang Q. Symptom experience of children with cancer younger than 8 years of age: an integrative review. J Pain Symptom Manage. 2019 Apr 10. pii: S0885-3924(19)30167-8. doi: 10.1016/j.jpainsymman.2019.03.021. [Epub ahead of print]

den Boer K, de Veer AJE, Schoonmade LJ, Verhaegh KJ, van Meijel B, Francke AL. A systematic review of palliative care tools and interventions for people with severe mental illness. BMC Psychiatry. 2019 Apr 3;19(1):106. doi: 10.1186/s12888-019-2078-7.

Guarino A, Favieri F, Boncompagni I, Agostini F, Cantone M, Casagrande M. Executive Functions in Alzheimer Disease: A Systematic Review. Front Aging Neurosci. 2019 Jan 15;10:437. doi: 10.3389/fnagi.2018.00437. eCollection 2018.

Hukins D, Macleod U, Boland JW. Identifying potentially inappropriate prescribing in older people with dementia: a systematic review. Eur J Clin Pharmacol. 2019 Jan 4. doi: 10.1007/s00228-018-02612-x. [Epub ahead of print]

Komalasari R, Chang HCR, Traynor V. A review of the Rowland Universal Dementia Assessment Scale. Dementia (London). 2019 Jan 3:1471301218820228. doi: 10.1177/1471301218820228. [Epub ahead of print]

Krooupa AM, Vivat B, McKeever S, Marcus E, Sawyer J, Stone P. Identification and evaluation of observational measures for the assessment and/or monitoring of level of consciousness in adult palliative care patients: A systematic review for I-CAN-CARE. Palliat Med. 2019 Aug 22:269216319871666. doi: 10.1177/0269216319871666. [Epub ahead of print]

Saunders CH, Patel K, Kang H, Elwyn G, Kirkland K, Durand MA. Serious Choices: A Systematic Environmental Scan of Decision Aids and Their Use for Seriously Ill People Near Death. J Hosp Med. 2019 May;14(5):294-302. doi: 10.12788/jhm.3110.

Soikkeli-Jalonen A, Stolt M, Hupli M, Lemetti T, Kennedy C, Kydd A, Haavisto E. Instruments for assessing nurses' palliative care knowledge and skills in specialised care setting: An integrative review. J Clin Nurs. 2019 Dec 19;10.1111/jocn.15146. doi: 10.1111/jocn.15146. [Epub ahead of print].

Spronk I, Meijers MC, Heins MJ, Francke AL, Elwyn G, van Lindert A, van Dulmen S, van Vliet LM. Availability and effectiveness of decision aids for supporting shared decision making in patients with advanced colorectal and lung cancer: Results from a systematic review. Eur J Cancer Care (Engl). 2019 May;28(3):e13079. doi: 10.1111/ecc.13079. Epub 2019 May 8.

Thompson W, Lundby C, Graabaek T, Nielsen DS, Ryg J, Søndergaard J, Pottegård A. Tools for deprescribing in frail older persons and those with limited life expectancy: a systematic review. J Am Geriatr Soc. 2019 Jan;67(1):172-180. doi: 10.1111/jgs.15616. Epub 2018 Oct 13.

Tian L, Cao X, Feng X. Evaluation of psychometric properties of needs assessment tools in cancer patients: A systematic literature review. PLoS One. 2019 Jan 8;14(1):e0210242. doi: 10.1371/journal.pone.0210242. eCollection 2019.


Afseth J, Neubeck L, Karatzias T, Grant R. Holistic needs assessment in brain cancer patients: A systematic review of available tools. Eur J Cancer Care (Engl). 2018 Oct 26:e12931. doi: 10.1111/ecc.12931. [Epub ahead of print]

Azhar A, Bruera E. Outcome measurement and complex physical, psychosocial and spiritual experiences of death and dying. Ann Palliat Med. 2018 Oct;7(Suppl 3):S231-S243. doi: 10.21037/apm.2018.07.04. Epub 2018 Aug 9.

Baik D, Russell D, Jordan L, Dooley F, Bowles KH, Masterson Creber RM. Using the Palliative Performance Scale to Estimate Survival for Patients at the End of Life: A Systematic Review of the Literature. J Palliat Med. 2018 Aug 21. doi: 10.1089/jpm.2018.0141. [Epub ahead of print]

Carpenter CR, Banerjee J, Keyes D, Eagles D, Schnitker L, Barbic D, Fowler S, LaMantia MA. Accuracy of Dementia Screening Instruments in Emergency Medicine - A Diagnostic Meta-Analysis. Acad Emerg Med. 2018 Sep 17. doi: 10.1111/acem.13573. [Epub ahead of print]

Creighton AS, Davison TE, Kissane DW. The assessment of anxiety in aged care residents: a systematic review of the psychometric properties of commonly used measures. Int Psychogeriatr. 2018 Jul;30(7):967-979. doi: 10.1017/S1041610217002599. Epub 2017 Dec 10.

Ding J, Johnson CE, Cook A. How We Should Assess the Delivery of End-Of-Life Care in General Practice? A Systematic Review. J Palliat Med. 2018 Aug 21. doi: 10.1089/jpm.2018.0194. [Epub ahead of print]

Dolatabadi E, Van Ooteghem K, Taati B, Iaboni A. Quantitative Mobility Assessment for Fall Risk Prediction in Dementia: A Systematic Review. Dement Geriatr Cogn Disord. 2018;45(5-6):353-67.

Grimshaw SL, Taylor NF, Mechinaud F, Shields N. Assessment of physical function in children with cancer: A systematic review. Pediatr Blood Cancer. 2018 Aug 9:e27369. doi: 10.1002/pbc.27369. [Epub ahead of print]

Groebe B, Strupp J, Eisenmann Y, Schmidt H, Schlomann A, Rietz C, Voltz R. Measuring attitudes towards the dying process: A systematic review of tools. Palliat Med. 2018 Jan 1:269216317748889. doi: 10.1177/0269216317748889. [Epub ahead of print]

Kozlov E, Niknejad B, Reid MC. Palliative Care Gaps in Providing Psychological Treatment: A Review of the Current State of Research in Multidisciplinary Palliative Care. Am J Hosp Palliat Care. 2018 Mar;35(3):505-510. doi: 10.1177/1049909117723860. Epub 2017 Aug 8.

Kupeli N, Candy B, Tamura-Rose G, Schofield G, Webber N, Hicks SE, Floyd T, Vivat B, Sampson EL, Stone P, Aspden T. Tools Measuring Quality of Death, Dying, and Care, Completed after Death: Systematic Review of Psychometric Properties. Patient. 2018 Aug 24. doi: 10.1007/s40271-018-0328-2. [Epub ahead of print]

Lange F, Brückner C, Knebel A, Seer C, Kopp B. Executive dysfunction in Parkinson's disease: A meta-analysis on the Wisconsin Card Sorting Test literature. Neurosci Biobehav Rev. 2018 Oct;93:38-56. doi: 10.1016/j.neubiorev.2018.06.014. Epub 2018 Jun 23.

Lehto RH. Miller SEL, Flanigan M, Wyatt G. Mental health in patients with advanced cancer at the end of life: evaluation of evidence and future directions. Expert Rev Qual Life Cancer Care. 2018;3(2-3):79-94.

Liu Y, Su L, Wang Y, Liu S, Dong B. The application of the palliative prognostic index in predicting the life expectancy of patients in palliative care: a systematic review and meta-analysis. Aging Clin Exp Res. 2018 Mar 23. doi: 10.1007/s40520-018-0928-7. [Epub ahead of print]

Muldrew DH, Hasson F, Carduff E, Clarke M, Coast J, Finucane A, Graham L, Larkin P, McCorry NK, Slater P, Watson M, Wright E, McIlfatrick S. Assessment and management of constipation for patients receiving palliative care in specialist palliative care settings: A systematic review of the literature. Palliat Med. 2018 May;32(5):930-938. doi: 10.1177/0269216317752515. Epub 2018 Feb 12.

Myers J, Cosby R, Gzik D, Harle I, Harrold D, Incardona N, Walton T. Provider Tools for Advance Care Planning and Goals of Care Discussions: A Systematic Review. Am J Hosp Palliat Care. 2018 Jan 1:1049909118760303. doi: 10.1177/1049909118760303. [Epub ahead of print]

Nunan S, Brown Wilson C, Henwood T, Parker D. Fall risk assessment tools for use among older adults in long-term care settings: A systematic review of the literature. Australas J Ageing. 2018 Mar;37(1):23-33. doi: 10.1111/ajag.12476. Epub 2017 Nov 23.

Pieper L, Zernikow B, Drake R, Frosch M, Printz M, Wager J. Dyspnea in Children with Life-Threatening and Life-Limiting Complex Chronic Conditions. J Palliat Med. 2018 Apr;21(4):552-564. doi: 10.1089/jpm.2017.0240. Epub 2018 Jan 9.

Poos JM, Jiskoot LC, Papma JM, van Swieten JC, van den Berg E. Meta-analytic Review of Memory Impairment in Behavioral Variant Frontotemporal Dementia. J Int Neuropsychol Soc. 2018 Mar 19:1-13. doi: 10.1017/S1355617718000115. [Epub ahead of print]

Quispel-Aggenbach DWP, Holtman GA, Zwartjes HAHT, Zuidema SU, Luijendijk HJ. Attention, arousal and other rapid bedside screening instruments for delirium in older patients: a systematic review of test accuracy studies. Age Ageing. 2018 Apr 25. doi: 10.1093/ageing/afy058. [Epub ahead of print]

Spronk I, Burgers JS, Schellevis FG, van Vliet LM, Korevaar JC. The availability and effectiveness of tools supporting shared decision making in metastatic breast cancer care: a review. BMC Palliat Care. 2018 May 11;17(1):74. doi: 10.1186/s12904-018-0330-4.

Surr CA, Griffiths AW, Kelley R. Implementing Dementia Care Mapping as a practice development tool in dementia care services: a systematic review. Clin Interv Aging. 2018 Jan 26;13:165-177. doi: 10.2147/CIA.S138836. eCollection 2018.​

Vanderlinden JA, Ross-White A, Holden R, Shamseddin MK, Day A, Boyd JG. Quantifying Cognitive Dysfunction Across the Spectrum of End Stage Kidney Disease - A Systematic Review and Meta-Analysis. Nephrology (Carlton). 2018 Aug 10. doi: 10.1111/nep.13448. [Epub ahead of print]

Vella Azzopardi R, Beyer I, Vermeiren S, Petrovic M, Van Den Noortgate N, Bautmans I, Gorus E; Gerontopole Brussels Study group. Increasing use of cognitive measures in the operational definition of frailty-A systematic review. Ageing Res Rev. 2018 May;43:10-16. doi: 10.1016/j.arr.2018.01.003. Epub 2018 Feb 8.

Yang F, Dawes P, Leroi I, Gannon B. Measurement tools of resource use and quality of life in clinical trials for dementia or cognitive impairment interventions: A systematically conducted narrative review. Int J Geriatr Psychiatry. 2018 Feb;33(2):e166-e176. doi: 10.1002/gps.4771. Epub 2017 Aug 10.


Aslakson RA, Dy SM, Wilson RF, Waldfogel J, Zhang A, Isenberg SR, Blair A, Sixon J, Lorenz KA, Robinson KA. Patient- and Caregiver-Reported Assessment Tools for Palliative Care: Summary of the 2017 Agency for Healthcare Research and Quality Technical Brief. J Pain Symptom Manage. 2017 Dec;54(6):961-972.e16. doi: 10.1016/j.jpainsymman.2017.04.022. Epub 2017 Aug 15. 

Button E, Chan RJ, Chambers S, Butler J, Yates P. A systematic review of prognostic factors at the end of life for people with a hematological malignancy. BMC Cancer. 2017 Mar 23;17(1):213. doi: 10.1186/s12885-017-3207-7.

Engelhardt EG, Révész D, Tamminga HJ, Punt CJA, Koopman M, Onwuteaka-Philipsen BD, Steyerberg EW, Jansma IP, De Vet HCW, Coupé VMH. Clinical Usefulness of Tools to Support Decision-making for Palliative Treatment of Metastatic Colorectal Cancer: A Systematic Review. Clin Colorectal Cancer. 2017 Jun 24. pii: S1533-0028(17)30148-2. doi: 10.1016/j.clcc.2017.06.007. [Epub ahead of print]

Eskildsen NB, Joergensen CR, Thomsen TG, Ross L, Dietz SM, Groenvold M, Johnsen AT. Patient empowerment: a systematic review of questionnaires measuring empowerment in cancer patients. Acta Oncol. 2017 Feb;56(2):156-165. Epub 2017 Jan 12.

Roydhouse JK, Wilson IB. Systematic review of caregiver responses for patient health-related quality of life in adult cancer care. Qual Life Res. 2017 Aug;26(8):1925-1954. doi: 10.1007/s11136-017-1540-6. Epub 2017 Mar 14.

Simmons CPL, McMillan DC, McWilliams K, Sande TA, Fearon KC, Tuck S, Fallon MT, Laird BJ. Prognostic Tools in Patients With Advanced Cancer: A Systematic Review. J Pain Symptom Manage. 2017 May;53(5):962-970.e10. Epub 2017 Jan 4.

Smith LE, Moore E, Ali I, Smeeth L, Stone P, Quint JK. Prognostic variables and scores identifying the end of life in COPD: a systematic review. Int J Chron Obstruct Pulmon Dis. 2017 Jul 31;12:2239-2256. doi: 10.2147/COPD.S137868. eCollection 2017.

Tanco K, Park JC, Cerana A, Sisson A, Sobti N, Bruera E. A systematic review of instruments assessing dimensions of distress among caregivers of adult and pediatric cancer patients. Palliat Support Care. 2017 Feb;15(1):110-124. Epub 2016 Mar 29.

Tomlinson D, Tigelaar L, Hyslop S, Lazor T, Dupuis LL, Griener K, Oliveria J, Sung L. Self-report of symptoms in children with cancer younger than 8 years of age: a systematic review. Support Care Cancer. 2017 Aug;25(8):2663-2670. Epub 2017 May 12.

White N, Kupeli N, Vickerstaff V, Stone P. How accurate is the 'Surprise Question' at identifying patients at the end of life? A systematic review and meta-analysis. BMC Med. 2017 Aug 2;15(1):139. doi: 10.1186/s12916-017-0907-4. 


Camuso N, Bajaj P, Dudgeon D, Mitera G. Engaging Patients as Partners in Developing Patient-Reported Outcome Measures in Cancer-A Review of the Literature. Support Care Cancer. 2016 Aug;24(8):3543-9. Epub 2016 Mar 28.

Chow R, Chiu N, Bruera E, Krishnan M, Chiu L, Lam H, DeAngelis C, Pulenzas N, Vuong S, Chow E. Inter-rater reliability in performance status assessment among health care professionals: a systematic review. Ann Palliat Med. 2016 Apr;5(2):83-92.

Ellis-Smith C, Evans CJ, Bone AE, Henson LA, Dzingina M, Kane PM, Higginson IJ, Daveson BA; BuildCARE. Measures to assess commonly experienced symptoms for people with dementia in long-term care settings: a systematic review. BMC Med. 2016 Feb 26;14(1):38.

George N, Phillips E, Zaurova M, Song C, Lamba S, Grudzen C. Palliative Care Screening and Assessment in the Emergency Department: A Systematic Review. J Pain Symptom Manage. 2016 Jan;51(1):108-19.e2. Epub 2015 Aug 31.

McCaffrey N, Bradley S, Ratcliffe J, Currow DC. What Aspects of Quality of Life Are Important From Palliative Care Patients' Perspectives? A Systematic Review of Qualitative Research. J Pain Symptom Manage. 2016 Aug;52(2):318-328.e5.

Oczkowski SJ, Chung HO, Hanvey L, Mbuagbaw L, You JJ. Communication Tools for End-of-Life Decision-Making in Ambulatory Care Settings: A Systematic Review and Meta-Analysis. PLoS One. 2016 Apr 27;11(4):e0150671. doi: 10.1371/journal.pone.0150671. eCollection 2016.

Singer AE, Ash T, Ochotorena C, Lorenz KA, Chong K, Shreve ST, Ahluwalia SC. A Systematic Review of Family Meeting Tools in Palliative and Intensive Care Settings. Am J Hosp Palliat Care. 2016 Sep;33(8):797-806. Epub 2015 Jul 26.


Aktas A, Walsh D, Kirkova J. The psychometric properties of cancer multisymptom assessment instruments: a clinical review. Support Care Cancer. 2015 Jul;23(7):2189-202.Epub 2015 Apr 19.

Austin CA, Mohottige D, Sudore RL, Smith AK, Hanson LC. Tools to Promote Shared Decision Making in Serious Illness: A Systematic Review. JAMA Intern Med. 2015 Jul 1;175(7):1213-21.

Collins ES, Witt J, Bausewein C, Daveson BA, Higginson IJ, Murtagh FE. A Systematic Review of the Use of the Palliative Care Outcome Scale and the Support Team Assessment Schedule in Palliative Care. Pain Symptom Manage. 2015 Dec;50(6):842-853.e19.Epub 2015 Aug 31.

De J, Wand AP. Delirium Screening: A Systematic Review of Delirium Screening Tools in Hospitalized Patients. Gerontologist. 2015 Dec;55(6):1079-99. Epub 2015 Nov 5.

Karacsony S, Chang E, Johnson A, Good A, Edenborough M. Measuring nursing assistants' knowledge, skills and attitudes in a palliative approach: A literature review. Nurse Educ Today. 2015 Dec;35(12):1232-9. Epub 2015 May 21.

Luta X, Maessen M, Egger M, Stuck AE, Goodman D, Clough-Gorr KM. Measuring intensity of end of life care: a systematic review. PLoS One. 2015 Apr 14;10(4):e0123764.

Piccinelli C, Clerici CA, Veneroni L, Ferrari A, Proserpio T. Hope in severe disease: a review of the literature on the construct and the tools for assessing hope in the psycho-oncologic setting. Tumori. 2015 Sep-Oct;101(5):491-500. doi: 10.5301/tj.5000349. Epub 2015 Apr 30.

Staccini L, Tomba E, Grandi S, Keitner GI. The evaluation of family functioning by the family assessment device: a systematic review of studies in adult clinical populations. Fam Process. 2015 Mar;54(1):94-115.Epub 2014 Aug 25.

Walsh RI, Mitchell G, Francis L, van Driel ML. What Diagnostic Tools Exist for the Early Identification of Palliative Care Patients in General Practice? A systematic review. J Palliat Care. 2015;31(2):118-23. [No Abstract Available].


Bulloch MN, Olin JL. Instruments for evaluating medication use and prescribing in older adults. J Am Pharm Assoc (2003). 2014 Sep-Oct;54(5):530-7.

Kamal AH, Gradison M, Maguire JM, Taylor D, Abernethy AP. Quality measures for palliative care in patients with cancer: a systematic review. J Oncol Pract. 2014 Jul;10(4):281-7. Epub 2014 Jun 10.

Paiva CE, Barroso EM, Carneseca EC, de Pádua Souza C, Dos Santos FT, Mendoza López RV, Ribeiro Paiva SB. A critical analysis of test-retest reliability in instrument validation studies of cancer patients under palliative care: a systematic review. BMC Med Res Methodol. 2014 Jan 21;14:8.


Brinkkemper T, van Norel AM, Szadek KM, Loer SA, Zuurmond WW, Perez RS. The use of observational scales to monitor symptom control and depth of sedation in patients requiring palliative sedation: a systematic review. Palliat Med. 2013 Jan;27(1):54-67.Epub 2011 Nov 1.

Hubbard G, Menzies S, Flynn P, Adams S, Haseen F, Thomas I, Scanlon K, Reed L, Forbat L. Relational mechanisms and psychological outcomes in couples affected by breast cancer: a systematic narrative analysis of the literature. BMJ Support Palliat Care. 2013 Sep;3(3):309-17. Epub 2012 Oct 25.

McCrory DC, Coeytaux RR, Yancy WS , Schmit KM, Kemper AR, Goode A, Hasselblad V, Heidenfelder BL, Irvine RJ, Musty MD, Gray R, Sanders GD. Assessment and Management of Chronic Cough [Internet]. Rockville (MD): Agency for Healthcare Research and Quality (US); 2013 Jan. Report No.: 13-EHC032-EF. AHRQ Comparative Effectiveness Reviews.

Maas EA, Murray SA, Engels Y, Campbell C. What tools are available to identify patients with palliative care needs in primary care: a systematic literature review and survey of European practice. BMJ Support Palliat Care. 2013 Dec;3(4):444-51.

Oldenmenger WH, de Raaf PJ, de Klerk C, van der Rijt CC. Cut points on 0-10 numeric rating scales for symptoms included in the edmonton symptom assessment scale in cancer patients: a systematic review. J Pain Symptom Manage. 2013 Jun;45(6):1083-93.

Wheelwright S, Darlington AS, Hopkinson JB, Fitzsimmons D, White A, Johnson CD. A systematic review of health-related quality of life instruments in patients with cancer cachexia. Support Care Cancer. 2013 Sep;21(9):2625-36. Epub 2013 Jun 25.

Whittingham K, Barnes S, Gardiner C. Tools to measure quality of life and carer burden in informal carers of heart failure patients:A narrative review. Palliat Med. 2013 Jul;27(7):596-607. Epub 2013 Feb 26


Annunziata MA, Giovannini L, Muzzatti B. Assessing the body image: relevance, application and instruments for oncological settings. Support Care Cancer. 2012 May;20(5):901-7.Epub 2011 Dec 12.

Brandstätter M, Baumann U, Borasio GD, Fegg MJ. Systematic review of meaning in life assessment instruments. Psychooncology. 2012 Jan 10. doi: 10.1002/pon.2113. [Epub ahead of print]

Carey M, Noble N, Sanson-Fisher R, MacKenzie L. Identifying psychological morbidity among people with cancer using the Hospital Anxiety and Depression Scale: time to revisit first principles? Psychooncology. 2012 Mar;21(3):229-38.

Howell D, Mayo S, Currie S, Jones G, Boyle M, Hack T, Green E, Hoffman L, Collacutt V, McLeod D, Simpson J. Psychosocial health care needs assessment of adult cancer patients: a consensus-based guideline. Support Care Cancer. 2012 Dec;20(12):3343-54. Epub 2012 May 13.

Mitchell AJ, Meader N, Davies E, Clover K, Carter GL, Loscalzo MJ, Linden W, Grassi L, Johansen C, Carlson LE, Zabora J. Meta-analysis of screening and case finding tools for depression in cancer: evidence based recommendations for clinical practice on behalf of the Depression in Cancer Care consensus group. J Affect Disord. 2012 Oct;140(2):149-60. Epub 2012 May 24.

Morandi A, McCurley J, Vasilevskis EE, Fick DM, Bellelli G, Lee P, Jackson JC, Shenkin SD, Marcotrabucchi, Schnelle J, Inouye SK, Ely EW, MacLullich A. Tools to detect delirium superimposed on dementia: a systematic review. J Am Geriatr Soc. 2012 Nov;60(11):2005-13. Epub 2012 Oct 5.

Muzzatti B1, Annunziata MA. Assessing the social impact of cancer: a review of available tools. Support Care Cancer. 2012 Oct;20(10):2249-57. Epub 2012 Aug 7.

Osborne TR, Ramsenthaler C, Siegert RJ, Edmonds PM, Schey SA, Higginson IJ. What issues matter most to people with multiple myeloma and how well are we measuring them? A systematic review of quality of life tools. Eur J Haematol. 2012 Dec;89(6):437-57. Epub 2012 Oct 26.

Raijmakers N, Galushko M, Domeisen F, Beccaro M, Lundh Hagelin C, Lindqvist O, Popa-Velea O, Romotzky V, Schuler S, Ellershaw J, Ostgathe C; OPCARE9. Quality indicators for care of cancer patients in their last days of life: literature update and experts' evaluation. J Palliat Med. 2012 Mar;15(3):308-16. Epub 2012 Feb 10.

Stiel S, Pastrana T, Balzer C, Elsner F, Ostgathe C, Radbruch L. Outcome assessment instruments in palliative and hospice care-a review of the literature. Support Care Cancer. 2012 Mar 13. [Epub ahead of print]

Thewes B, Butow P, Zachariae R, Christensen S, Simard S, Gotay C. Fear of cancer recurrence: a systematic literature review of self-report measures. Psychooncology. 2012 Jun;21(6):571-87. doi: 10.1002/pon.2070. Epub 2011 Oct 21.

Yip WK, Mordiffi SZ, Ang E. Reliability, validity and feasibility of quality of life instruments for adult patients with cancer undergoing chemotherapy: result from a systematic review. Int J Evid Based Healthc. 2012 Mar;10(1):27-52.


Bausewein C, Le Grice C, Simon S, Higginson I; on behalf of PRISMA. The use of two common palliative outcome measures in clinical care and research: A systematic review of POS and STAS. Palliat Med. 2011 Jun;25(4):304-313. Epub 2011 Apr 4.

Donovan KA, Jacobsen PB. The Fatigue Symptom Inventory: a systematic review of its psychometric properties. Support Care Cancer. 2011 Feb;19(2):169-85. Epub 2010 Sep 8.

Fayed N, Schiariti V, Bostan C, Cieza A, Klassen A. Health status and QOL instruments used in childhood cancer research: deciphering conceptual content using World Health Organization definitions. Qual Life Res. 2011 Oct;20(8):1247-58. Epub 2011 Feb 4.

Frey R, Gott M, Banfield R, Campbell T. What questionnaires exist to measure the perceived competence of generalists in palliative care provision? A critical literature review. BMJ Support Palliat Care. 2011 Jun;1(1):19-32.

Glover C, Banks P, Carson A, Martin CR, Duffy T. Understanding and assessing the impact of end-stage renal disease on quality of life: A systematic review of the content validity of self-administered instruments used to assess health-related quality of life in end-stage renal disease. The Patient: Patient-Centered Outcomes Research. 2011 Jan;4(1):19-30.

Hjermstad MJ, Fayers PM, Haugen DF, Caraceni A, Hanks GW, Loge JH, Fainsinger R, Aass N, Kaasa S; European Palliative Care Research Collaborative (EPCRC). Studies comparing numerical rating scales, verbal rating scales, and visual analogue scales for assessment of pain intensity in adults: a systematic literature review. J Pain Symptom Manage. 2011 Jun;41(6):1073-93.

Kodaka M, Postuvan V, Inagaki M, Yamada M. A systematic review of scales that measure attitudes toward suicide. Int J Soc Psychiatry. 2011 Jul;57(4):338-61.

Meert KL, Schim SM, Briller SH. Parental bereavement needs in the pediatric intensive care unit: review of available measures. J Palliat Med. 2011 Aug;14(8):951-64. Epub 2011 Jun 1.

Ni Thuathail A, Welford C. Pain assessment tools for older people with cognitive impairment. Nurs Stand.2011 Oct 12-18;26(6):39-46.

Parker D, Hodgkinson B. A comparison of palliative care outcome measures used to assess the quality of palliative care provided in long-term care facilities: a systematic review. Palliat Med. 2011 Jan;25(1):5-20. Epub 2010 Sep 3.

Sessanna L, Finnell DS, Underhill M, Chang YP, Peng HL. Measures assessing spirituality as more than religiosity: a methodological review of nursing and health-related literature. J Adv Nurs. 2011 Aug;67(8):1677-94. doi: 10.1111/j.1365-2648.2010.05596.x. Epub 2011 Mar 4.

van Soest-Poortvliet MC, van der Steen JT, Zimmerman S, Cohen LW, Munn J, Achterberg WP, Ribbe MW, de Vet HC. Measuring the quality of dying and quality of care when dying in long-term care settings: a qualitative content analysis of available instruments. J Pain Symptom Manage. 2011 Dec;42(6):852-63.

Williams AL, McCorkle R Cancer family caregivers during the palliative, hospice, and bereavement phases: a review of the descriptive psychosocial literature. Palliat Support Care. 2011 Sep;9(3):315-25.

Yarlas AS, White MK, Yang M, Saris-Baglama RN, Bech PG, Christensen T. Measuring the health status burden in hemodialysis patients using the SF-36® health survey. Qual Life Res. 2011 Apr;20(3):383-9. Epub 2010 Oct 23.

Ziegler L, Hill K, Neilly L, Bennett MI, Higginson IJ, Murray SA, Stark D; COMPASS Collaborative. Identifying psychological distress at key stages of the cancer illness trajectory: a systematic review of validated self-report measures. J Pain Symptom Manage. 2011 Mar;41(3):619-36.


Hales S, Zimmermann C, Rodin G. The quality of dying and death: a systematic review of measures. Palliat Med. 2010 Mar;24(2):127-44. Epub 2010 Jan 19.

Hanson LC, Scheunemann LP, Zimmerman S, Rokoske FS, Schenck AP. The PEACE project review of clinical instruments for hospice and palliative care. J Palliat Med. 2010 Oct;13(10):1253-60.

Hudson PL, Trauer T, Graham S, Grande G, Ewing G, Payne S, Stajduhar KI, Thomas K. A systematic review of instruments related to family caregivers of palliative care patients. Palliat Med. 2010 Oct;24(7):656-68. Epub 2010 Jul 6.

Klassen AF, Strohm SJ, Maurice-Stam H, Grootenhuis MA. Quality of life questionnaires for children with cancer and childhood cancer survivors: a review of the development of available measures. Support Care Cancer. 2010 Sep;18(9):1207-17. Epub 2009 Oct 16.

Mitchell AJ, Meader N, Symonds P. Diagnostic validity of the Hospital Anxiety and Depression Scale (HADS) in cancer and palliative settings: a meta-analysis. J Affect Disord. 2010 Nov;126(3):335-48. Epub 2010 Mar 5.

Mitera G, Zeiadin N, Sahgal A, Finkelstein J, Chow E, Loblaw A. Quality of life measures used in radiation therapy trials for patients with metastatic spinal cord compression (MSCC): A literature review. J Pain Manage. 2010;3(1):31-8. [No Abstract Available].

Park J, Castellanos-Brown K, Belcher J. A review of observational pain scales in nonverbal elderly with cognitive impairments. Research on Social Work Practice. 2010;20(6):651-4.

Tomlinson D, von Baeyer CL, Stinson JN, Sung L. A systematic review of faces scales for the self-report of pain intensity in children. Pediatrics. 2010 Nov;126(5):e1168-98. Epub 2010 Oct 4.

Walker J, Böhnke JR, Cerny T, Strasser F. Development of symptom assessments utilising item response theory and computer-adaptive testing--a practical method based on a systematic review. Crit Rev Oncol Hematol. 2010 Jan;73(1):47-67. Epub.

Wong CL, Holroyd-Leduc J, Simel DL, Straus SE. Does this patient have delirium?: value of bedside instruments. JAMA. 2010 Aug 18;304(7):779-86.


Helbostad JL, Hølen JC, Jordhøy MS, Ringdal GI, Oldervoll L, Kaasa S; European Association for Palliative Care (EAPC) Research Network. A first step in the development of an international self-report instrument for physical functioning in palliative cancer care: a systematic literature review and an expert opinion evaluation study. J Pain Symptom Manage. 2009 Feb;37(2):196-205.

Rao JK, Abraham LA, Anderson LA. Novel approach, using end-of-life issues, for identifying items for public health surveillance. Prev Chronic Dis. 2009 Apr;6(2):A57. Epub 2009 Mar 16.

Wasteson E, Brenne E, Higginson IJ, Hotopf M, Lloyd-Williams M, Kaasa S, Loge JH; European Palliative Care Research Collaborative (EPCRC). Depression assessment and classification in palliative cancer patients: a systematic literature review. Palliat Med. 2009 Dec;23(8):739-53. Epub 2009 Oct 13.

Whalen KJ, Buchholz SW. The reliability, validity and feasibility of tools used to screen for caregiver burden: a systematic review. JBI Libr Syst Rev. 2009;7(32):1372-1429.


Cade CH. Clinical tools for the assessment of pain in sedated critically ill adults. Nurs Crit Care. 2008 Nov-Dec;13(6):288-97.

Nekolaichuk C, Watanabe S, Beaumont C. The Edmonton Symptom Assessment System: a 15-year retrospective review of validation studies (1991--2006). Palliat Med. 2008 Mar;22(2):111-22.


Bausewein C, Farquhar M, Booth S, Gysels M, Higginson IJ. Measurement of breathlessness in advanced disease: a systematic review. Respir Med. 2007 Mar;101(3):399-410. Epub 2006 Aug 17.

Cole JC Dubois D, Kosinski M. Use of patient-reported sleep measures in clinical trials of pain treatment: a literature review and synthesis of current sleep measures and a conceptual model of sleep disturbance in pain. Clin Ther. 2007;29(Suppl):2580-8.

Dorman S, Byrne A, Edwards A. Which measurement scales should we use to measure breathlessness in palliative care? A systematic review. Palliat Med. 2007 Apr;21(3):177-91.

Downing M, Lau F, Lesperance M, Karlson N, Shaw J, Kuziemsky C, Bernard S, Hanson L, Olajide L, Head B, Ritchie C, Harrold J, Casarett D. Meta-analysis of survival prediction with Palliative Performance Scale. J Palliat Care. 2007 Winter;23(4):245-52; discussion 252-4.

Imhof SL, Kaskie B, Wyatt MG. Finding the way to a better death: an evaluation of palliative care referral tools. J Gerontol Nurs. 2007 Jun;33(6):40-9.

Jordhoy MS, Inger Ringdal G, Helbostad JL, Oldervoll L, Loge JH, Kaasa S. Assessing physical functioning: a systematic review of quality of life measures developed for use in palliative care. Palliat Med. 2007 Dec;21(8):673-82.

Lau F, Cloutier-Fisher D, Kuziemsky C, Black F, Downing M, Borycki E, Ho F. A systematic review of prognostic tools for estimating survival time in palliative care. J Palliat Care. 2007 Summer;23(2):93-112.

Mularski RA, Dy SM, Shugarman LR, Wilkinson AM, Lynn J, Shekelle PG, Morton SC, Sun VC, Hughes RG, Hilton LK, Maglione M, Rhodes SL, Rolon C, Lorenz KA. A systematic review of measures of end-of-life care and its outcomes. Health Serv Res. 2007 Oct;42(5):1848-70.

Richardson A, Medina J, Brown V, Sitzia J. Patients' needs assessment in cancer care: a review of assessment tools. Support Care Cancer. 2007 Oct;15(10):1125-44. Epub 2007 Jan 19.

Saxby C, Ackroyd R, Collins S, Mayland C. How should we measure emesis in palliative care? Palliat Med. 2007 Jul;21(5):369-83.

Scott NW, Fayers PM, Aaronson NK, Bottomley A, de Graeff A, Groenvold M, Koller M, Petersen MA, Sprangers MA; EORTC and the Quality of Life Cross-Cultural Meta-Analysis Group. The use of differential item functioning analyses to identify cultural differences in responses to the EORTC QLQ-C30. Qual Life Res. 2007 Feb;16(1):115-29. Epub 2006 Nov 16.


Giacomini M, Cook D, DeJean D, Shaw R, Gedge E. Decision tools for life support: a review and policy analysis. Crit Care Med. 2006 Mar;34(3):864-70.

Jones G, Ledger W, Bonnett T, Radley S, Parkinson N, Kennedy S. The impact of treatment for gynecological cancer on health-related quality of life (HRQoL): a systematic review. Am J Obstet Gynecol. 2006 Jan;194(1):26-42.

Kirkova J, Davis MP, Walsh D, Tiernan E, O'Leary N, LeGrand SB, Lagman RL, Russell KM. Cancer symptom assessment instruments: a systematic review. J Clin Oncol. 2006 Mar 20;24(9):1459-73.

Lorenz KA, Lynn J, Dy S, Wilkinson A, Mularski RA, Shugarman LR, Hughes R, Asch SM, Rolon C, Rastegar A, Shekelle PG. Quality measures for symptoms and advance care planning in cancer: a systematic review. J Clin Oncol. 2006 Oct 20;24(30):4933-8.


Lorenz K, Lynn J, Morton S, Dy S, Mularski R, Shugarman L, Sun V, Wilkinson AM, Maglione M, Shekelle PG.. End-of-life care and outcomes. Evid Rep Technol Assess (Summ). 2004 Dec(110):1-6.


Deeken JF, Taylor KL, Mangan P, Yabroff P, Ingham JM. Care for caregivers: a review of self-report instruments developed to measure the burden, needs and quality of life of caregivers. J Pain Symptom Manage. 2003 Oct;26(4):922-53.


Osse B, Vernooij-Dassen M, de Vree B, Schade E. Assessment of the need for palliative care as perceived by individual cancer patients and their families: a review of instruments for improving patient participation in palliative care. Cancer. 2000 Feb 15;88(4):900-11.


Hearn J, Higginson IJ. Development and validation of a core outcome measure for palliative care: the palliative care outcome scale. Qual Health Care. 1999 Dec;8(4):219-27.


Hearn J, Higginson IJ. Outcome measures in palliative care for advanced cancer patients: a review. J Public Health Med. 1997 Jun;19(2):193-9.  

Bereavement - 5 reviews


Setubal MS, Bolibio R, Jesus RC, Benute GG, Gibelli MA, Bertolassi N, Barbosa T, Gomes A, Figueiredo F, Ferreira R, Francisco R, Stein Bernardes L. A systematic review of instruments measuring grief after perinatal loss and factors associated with grief reactions. Palliat Support Care. 2021 Apr;19(2):246-256. doi: 10.1017/S1478951520000826.


Treml J, Kaiser J, Plexnies A, Kersting A. Assessing prolonged grief disorder: A systematic review of assessment instruments. J Affect Disord. 2020 Sep;274:420-434. doi: 10.1016/j.jad.2020.05.049.


Sealey M, Breen LJ, O'Connor M, Aoun SM. A scoping review of bereavement risk assessment measures: Implications for palliative care. Palliat Med. 2015 Jul;29(7):577-589. Epub 2015 Mar 24.


Agnew A, Manktelow R, Taylor B, Jones L. Bereavement needs assessment in specialist palliative care: a review of the literature. Palliat Med. 2010 Jan;24(1):46-59. Epub 2009 Sep 17.


Mayland C, Williams E, Ellershaw J. How well do current instruments using bereaved relatives’ views evaluate care for dying patients? Palliat Med. 2008 Mar;22(2):133-44.

Existential Distress - 6 reviews


Stapleton SJ, Holden J, Epstein J, Wilkie DJ. A Systematic Review of the Symptom Distress Scale in Advanced Cancer Studies. Cancer Nurs. 2016 Jul-Aug;39(4):E9-E23.


Ma X, Zhang J, Zhong W, Shu C, Wang F, Wen J, Zhou M, Sang Y, Jiang Y, Liu L. The diagnostic role of a short screening tool--the distress thermometer: a meta-analysis. Support Care Cancer. 2014 Jul;22(7):1741-55. Epub 2014 Feb 8.


Krikorian A, Limonero JT, Corey MT. Suffering assessment: a review of available instruments for use in palliative care. J Palliat Med. 2013 Feb;16(2):130-42. doi: 10.1089/jpm.2012.0370. Epub 2013 Jan 25.


Kayser K, Acquati C, Tran TV. No patients left behind: a systematic review of the cultural equivalence of distress screening instruments. J Psychosoc Oncol. 2012 Nov;30(6):679-93.


Vodermaier A, Linden W, Siu C. Screening for emotional distress in cancer patients: a systematic review of assessment instruments. J Natl Cancer Inst. 2009 Nov 4;101(21):1464-88. Epub 2009 Oct 13.


Thekkumpurath P, Venkateswaran C, Kumar M, Bennett MI. Screening for psychological distress in palliative care: a systematic review. J Pain Symptom Manage. 2008 Nov;36(5):520-8.


Mitchell AJ. Pooled results from 38 analyses of the accuracy of distress thermometer and other ultra-short methods of detecting cancer-related mood disorders. J Clin Oncol. 2007 Oct 10;25(29):4670-81. Epub 2007 Sep 10.  

Fatigue - 6 reviews


Gore S, Chindam T, Goldberg A, Huang MH, Shoemaker M, Blackwood J. Reliability and Validity of Patient-Reported, Rater-Based, and Hybrid Physical Activity Assessments in COPD: A Systematic Review. COPD. 2020 Oct 15:1-11. doi: 10.1080/15412555.2020.1830963. Epub ahead of print.


Pereira PTVT, Reis AD, Diniz RR, Lima FA, Leite RD, da Silva MCP, Guerra RNM, de Moraes Vieira ÉB, Garcia JBS. Dietary supplements and fatigue in patients with breast cancer: a systematic review. Breast Cancer Res Treat. 2018 Jun 18. doi: 10.1007/s10549-018-4857-0. [Epub ahead of print]


Donovan KA, Stein KD, Lee M, Leach CR, Ilozumba O, Jacobsen PB. Systematic review of the multidimensional fatigue symptom inventory-short form. Support Care Cancer. 2015 Jan;23(1):191-212. Epub 2014 Aug 22.


Tomlinson D, Hinds PS, Ethier MC, Ness KK, Zupanec S, Sung L. Psychometric properties of instruments used to measure fatigue in children and adolescents with cancer: a systematic review. J Pain Symptom Manage. 2013 Jan;45(1):83-91.Epub 2012 Aug 11.


Elbers RG, Rietberg MB, van Wegen EE, Verhoef J, Kramer SF, Terwee CB, Kwakkel G. Self-report fatigue questionnaires in multiple sclerosis, Parkinson's disease and stroke: a systematic review of measurement properties. Qual Life Res. 2012 Aug;21(6):925-44. Epub 2011 Oct 20.


Whitehead L. The measurement of fatigue in chronic illness: a systematic review of unidimensional and multidimensional fatigue measures. J Pain Symptom Manage. 2009 Jan;37(1):107-28.  

Pain - 12 reviews


Chan AY, Ge M, Harrop E, Johnson M, Oulton K, Skene SS, Wong IC, Jamieson L, Howard RF, Liossi C. Pain assessment tools in paediatric palliative care: A systematic review of psychometric properties and recommendations for clinical practice. Palliat Med. 2022 Jan;36(1):30-43. doi: 10.1177/02692163211049309. Epub 2021 Dec 29.

Roberto A, Greco MT, Uggeri S, Cavuto S, Deandrea S, Corli O, Apolone G. Living systematic review to assess the analgesic undertreatment in cancer patients. Pain Pract. 2022 Jan 11. doi: 10.1111/papr.13098. Epub ahead of print.


Lau J, Mazzotta P, Fazelzad R, Ryan S, Tedesco A, Smith AJ, Sud A, Furlan AD, Zimmermann C. Assessment tools for problematic opioid use in palliative care: A scoping review. Palliat Med. 2021 May 17:2692163211015567. doi: 10.1177/02692163211015567. Epub ahead of print.


Tapp D, Chenacher S, Gérard NPA, Bérubé-Mercier P, Gelinas C, Douville F, Desbiens JF. Observational Pain Assessment Instruments for Use With Nonverbal Patients at the End-of-life: A Systematic Review. J Palliat Care. 2019 Jan 13:825859718816073. doi: 10.1177/0825859718816073. [Epub ahead of print]


Abahussin AA, West RM, Wong DC, Ziegler LE. PROMs for pain in adult cancer patients: a systematic review of measurement properties. Pain Pract. 2018 May 17. doi: 10.1111/papr.12711. [Epub ahead of print]

Harrington SE, Gilchrist L, Lee J, Westlake FL, Baker A. Oncology Section EDGE Task Force on Cancer: A Systematic Review of Clinical Measures for Pain. Rehabil Oncol. 2018 Apr;36(2):83-92.


Ngamkham S, Vincent C, Finnegan L, Holden JE, Wang ZJ, Wilkie DJ. The McGill Pain Questionnaire as a multidimensional measure in people with cancer: an integrative review. Pain Manag Nurs. 2012 Mar;13(1):27-51. Epub 2011 May 20.


Knudsen AK, Aass N, Fainsinger R, Caraceni A, Klepstad P, Jordhøy M, Hjermstad MJ, Kaasa S. Classification of pain in cancer patients--a systematic literature review. Palliat Med. 2009 Jun;23(4):295-308. Epub 2009 Mar 13.


Holen J, Hjermstad M, Loge J, Fayers P, Caraceni A, De Conno F, Forbes K, Fürst CJ, Radbruch L, Kaasa S. Pain assessment tools: is the content appropriate for use in palliative care? J Pain Symptom Manage. 2006 Dec;32(6):567-80.

Zwakhalen SM, Hamers JP, Abu-Saad HH, Berger MP. Pain in elderly people with severe dementia: a systematic review of behavioural pain assessment tools. BMC Geriatr. 2006 Jan 27;6:3.


Caraceni A, Brunelli C, Martini C, Zecca E, De Conno, F. Cancer pain assessment in clinical trials. a review of the literature (1999-2002). J Pain Symptom Manage. 2005 May;29(5):507-19.


Jensen MP. The validity and reliability of pain measures in adults with cancer. J Pain. 2003 Feb;4(1):2-21.

Quality of life - 23 reviews


Santana-Berlanga NDR, Porcel-Gálvez AM, Botello-Hermosa A, Barrientos-Trigo S. Instruments to measure quality of life in institutionalised older adults: Systematic review. Geriatr Nurs. 2020 Mar 13:S0197-4572(20)30054-9. doi: 10.1016/j.gerinurse.2020.01.018. Epub ahead of print.

Wagner S, Buchanan JA, Bailey J, Andresen FJ, Omlie C. The Use of Stimulus Preference Assessments for Persons with Neurocognitive Disorder: A Literature Review. Clin Gerontol. 2020 May-Jun;43(3):243-255. doi: 10.1080/07317115.2019.1670313. Epub 2019 Sep 24.


Hall ET, Singhal S, Dickerson J, Gabster B, Wong HN, Aslakson RA, Schapira L; AAHPM Research Committee Writing Group. Patient-Reported Outcomes for Cancer Patients Receiving Checkpoint Inhibitors: Opportunities for Palliative Care-A Systematic Review. J Pain Symptom Manage. 2019 Jul;58(1):137-156.e1. doi: 10.1016/j.jpainsymman.2019.03.015. Epub 2019 Mar 21.

Horton MC, Oyebode J, Clare L, Megson M, Shearsmith L, Brayne C, Kind P, Hoare Z, Al Janabi H, Hewison V, Tennant A, Wright P. Measuring Quality of Life in Carers of People With Dementia: Development and Psychometric Evaluation of Scales measuring the Impact of DEmentia on CARers (SIDECAR). Gerontologist. 2019 Nov 5. pii: gnz136. doi: 10.1093/geront/gnz136. [Epub ahead of print]

Hughes LJ, Farina N, Page TE, Tabet N, Banerjee S. Psychometric properties and feasibility of use of dementia specific quality of life instruments for use in care settings: a systematic review. Int Psychogeriatr. 2019 Jan 3:1-15. doi: 10.1017/S1041610218002259. [Epub ahead of print]

Widger K, Medeiros C, Trenholm M, Zuniga-Villanueva G, Streuli JC. Indicators Used to Assess the Impact of Specialized Pediatric Palliative Care: A Scoping Review. J Palliat Med. 2019 Feb;22(2):199-219. doi: 10.1089/jpm.2018.0420. Epub 2018 Dec 11.


Gutiérrez Sánchez D, Pérez Cruzado D, Cuesta-Vargas AI. The quality of dying and death measurement instruments: A systematic psychometric review. J Adv Nurs. 2018 Apr 19. doi: 10.1111/jan.13687. [Epub ahead of print]

Kenny C, Gilheaney Ó, Walsh D, Regan J. Oropharyngeal Dysphagia Evaluation Tools in Adults with Solid Malignancies Outside the Head and Neck and Upper GI Tract: A Systematic Review. Dysphagia. 2018 Jun;33(3):303-320. doi: 10.1007/s00455-018-9892-9. Epub 2018 Apr 2.

van Roij J, Fransen H, van de Poll-Franse L, Zijlstra M, Raijmakers N. Measuring health-related quality of life in patients with advanced cancer: a systematic review of self-administered measurement instruments. Qual Life Res. 2018 Feb 10. doi: 10.1007/s11136-018-1809-4. [Epub ahead of print]

Yang F, Dawes P, Leroi I, Gannon B. Measurement tools of resource use and quality of life in clinical trials for dementia or cognitive impairment interventions: A systematically conducted narrative review. Int J Geriatr Psychiatry. 2018 Feb;33(2):e166-e176. doi: 10.1002/gps.4771. Epub 2017 Aug 10.


Coombes LH, Wiseman T, Lucas G, Sangha A, Murtagh FE. Health-related quality-of-life outcome measures in paediatric palliative care: A systematic review of psychometric properties and feasibility of use. Palliat Med. 2016 Dec;30(10):935-949. Epub 2016 May 31.

Hyde MK, Chambers SK, Shum D, Ip D, Dunn J. Psycho-oncology assessment in Chinese populations: A systematic review of quality of life and psychosocial measures. Eur J Cancer Care (Engl). 2016 Sep;25(5):691-718. doi: 10.1111/ecc.12367. Epub 2015 Aug 20.

King S, Exley J, Parks S, Ball S, Bienkowska-Gibbs T, MacLure C, Harte E, Stewart K, Larkin J, Bottomley A, Marjanovic S. The use and impact of quality of life assessment tools in clinical care settings for cancer patients, with a particular emphasis on brain cancer: insights from a systematic review and stakeholder consultations. Qual Life Res. 2016 Sep;25(9):2245-56. Epub 2016 Apr 2.


Chu D, Nguyen J, Koo K, Zeng L, Bedard G, Lam H, Wong E, Popovic M, Chow E. An update on the quality of life measurements in lung cancer patients receiving palliative radiotherapy: A literature review. World J Oncol. 2013 Jan; 4(2):67-73.


Correia FR, De Carlo MM. Evaluation of quality of life in a palliative care context: an integrative literature review. Rev Lat Am Enfermagem. 2012 Apr;20(2):401-10


Albers G, Echteld MA, de Vet HC, Onwuteaka-Philipsen BD, van der Linden MH, Deliens L. Content and spiritual items of quality-of-life instruments appropriate for use in palliative care: a review. J Pain Symptom Manage. 2010 Aug;40(2):290-300. Epub 2010 Jun 11.

Albers G, Echteld MA, de Vet HC, Onwuteaka-Philipsen BD, van der Linden MH, Deliens L. Evaluation of quality-of-life measures for use in palliative care: a systematic review. Palliat Med. 2010 Jan;24(1):17-37. Epub 2009 Oct 20.

Danquah FV, Wasserman J, Meininger J, Bergstrom N. Quality of life measures for patients on hemodialysis: a review of psychometric properties. Nephrol Nurs J. 2010 May-Jun;37(3):255-69; quiz 270.


Salvo N, Hadi S, Napolskikh J, Goh P, Sinclair E, Chow E. Quality of life measurement in cancer patients receiving palliative radiotherapy for symptomatic lung cancer: a literature review. Curr Oncol. 2009 Mar;16(2):16-28.

Wettergren L, Kettis-Lindblad A, Sprangers M, Ring L. The use, feasibility and psychometric properties of an individualised quality-of-life instrument: a systematic review of the SEIQoL-DW. Qual Life Res. 2009 Aug;18(6):737-46. Epub 2009 Jun 3.


Halvorsrud L, Kalfoss M. The conceptualization and measurement of quality of life in older adults: a review of empirical studies published during 1994-2006. Eur J Ageing. 2007 Dec;4(4):229-46. 


Gruenewald DA, Higginson IJ, Vivat B, Edmonds P, Burman RE. Quality of life measures for the palliative care of people severely affected by multiple sclerosis: a systematic review. Mult Scler. 2004 Dec;10(6):690-725.


Montazeri A, Gillis CR, McEwen J. Quality of life in patients with lung cancer: a review of literature from 1970 to 1995. Chest. 1998 Feb;113(2):467-81.

Spirituality - 7 reviews


Best M, Aldridge L, Butow P, Olver I, Price M, Webster F. Assessment of spiritual suffering in the cancer context: A systematic literature review. Palliat Support Care. 2015 Oct;13(5):1335-61. doi: Epub 2014 Nov 11.

Oliver A, Galiana L, Benito E. Evaluation tools for spiritual support in end of life care: increasing evidence for their clinical application. Curr Opin Support Palliat Care. 2015 Dec;9(4):357-60. doi: 10.1097/SPC.0000000000000173.


Gijsberts MJ, Echteld MA, van der Steen JT, Muller MT, Otten RH, Ribbe MW, Deliens L. Spirituality at the End of Life: Conceptualization of Measurable Aspects-a Systematic Review. J Palliat Med. 2011 Jul;14(7):852-63. Epub 2011 May 25.

Monod S, Brennan M, Rochat E, Martin E, Rochat S, Büla CJ. Instruments measuring spirituality in clinical research: a systematic review. J Gen Intern Med. 2011 Nov;26(11):1345-57. Epub 2011 Jul 2.

Selman L, Harding R, Gysels M, Speck P, Higginson IJ. The measurement of spirituality in palliative care and the content of tools validated cross-culturally: a systematic review. J Pain Symptom Manage. 2011 Apr;41(4):728-53.

Selman L, Siegert R, Harding R, Gysels M, Speck P, Higginson IJ. A psychometric evaluation of measures of spirituality validated in culturally diverse palliative care populations .J Pain Symptom Manage. 2011 Oct;42(4):604-22.


Albers G, Echteld MA, de Vet HC, Onwuteaka-Philipsen BD, van der Linden MH, Deliens L. Content and spiritual items of quality-of-life instruments appropriate for use in palliative care: a review. J Pain Symptom Manage. 2010 Aug;40(2):290-300. Epub 2010 Jun 11.

Last updated 11 January 2024