Review collection - Motor neurone disease 

31 reviews


Trucco AP, Backhouse T, Mioshi E, Kishita N. Factors associated with grief in informal carers of people living with Motor Neuron Disease: A mixed methods systematic review. Death Stud. 2023 Mar 30:1-15. doi: 10.1080/07481187.2023.2191351. Epub ahead of print.


Chapman C, Bayes S, Sim M. Communication surrounding initiation and withdrawal of non-invasive ventilation in adults with motor neurone disease. Int J Palliat Nurs. 2022 Jul 2;28(7):298-306. doi: 10.12968/ijpn.2022.28.7.298.

Sethi A, Everett E, Mehta A, Besbris J, Burke C, Pedowitz E, Kilpatrick M, Foster L, Maiser S. The Role of Specialty Palliative Care for Amyotrophic Lateral Sclerosis. Am J Hosp Palliat Care. 2022 Jul;39(7):865-873. doi: 10.1177/10499091211049386. Epub 2021 Sep 28.


Flemming K, Turner V, Bolsher S, Hulme B, McHugh E, Watt I. The experiences of, and need for, palliative care for people with motor neurone disease and their informal caregivers: A qualitative systematic review. Palliat Med. 2020 Apr 14:269216320908775. doi: 10.1177/0269216320908775. Epub ahead of print.

Poppe C, Koné I, Iseli LM, Schweikert K, Elger BS, Wangmo T. Differentiating needs of informal caregivers of individuals with ALS across the caregiving course: a systematic review. Amyotroph Lateral Scler Frontotemporal Degener. 2020 Jul 13:1-23. doi: 10.1080/21678421.2020.1771735. Epub ahead of print.


Kim K, Heinze K, Xu J, Kurtz M, Park H, Foradori M, Nolan MT. Theories of Health Care Decision Making at the End of Life: A Meta-Ethnography. West J Nurs Res. 2018 Dec;40(12):1861-1884. doi: 10.1177/0193945917723010. Epub 2017 Aug 17.

Long R, Havics B, Zembillas M, Kelly J, Amundson M. Elucidating the End-of-Life Experience of Persons With Amyotrophic Lateral Sclerosis. Holist Nurs Pract. 2019 Jan/Feb;33(1):3-8. doi: 10.1097/HNP.0000000000000301.


Ng L, Khan F, Young CA, Galea M. Symptomatic treatments for amyotrophic lateral sclerosis/motor neuron disease. Cochrane Database Syst Rev. 2017 Jan 10;1:CD011776.

Oh J, Kim JA. Supportive care needs of patients with amyotrophic lateral sclerosis/motor neuron disease and their caregivers: A scoping review. J Clin Nurs. 2017 Dec;26(23-24):4129-4152. doi: 10.1111/jocn.13945. Epub 2017 Aug 31.


Bergin S, Mockford C. Recommendations to support informal carers of people living with motor neurone disease. Br J Community Nurs. 2016 Oct 2;21(10):518-524.

Carvalho TL, de Almeida LM, Lorega CM, Barata MF, Ferreira ML, de Brito-Marques PR, Correia Cda C. Depresion and anxiety in individuals with amyotrophic lateral sclerosis: a systematic review. Trends Psychiatry Psychother. 2016 Jan-Mar;38(1):1-5. doi: 10.1590/2237-6089-2015-0030. Epub 2016 Mar 18.

Murray L, Butow PN. Advance care planning in motor neuron disease: A systematic review. Palliat Support Care. 2016 Aug;14(4):411-32. Epub 2015 Oct 14.

Seitzer F, Kahrass H, Neitzke G, Strech D. The full spectrum of ethical issues in the care of patients with ALS: a systematic qualitative review. J Neurol. 2016 Feb;263(2):201-9. Epub 2015 Jul 30.

van Groenestijn AC, Kruitwagen-van Reenen ET, Visser-Meily JM, van den Berg LH, Schröder CD. Associations between psychological factors and health-related quality of life and global quality of life in patients with ALS: a systematic review. Health Qual Life Outcomes. 2016 Jul 20;14(1):107.


Marchetti M, Priftis K. Brain-computer interfaces in amyotrophic lateral sclerosis: A metanalysis. Clin Neurophysiol. 2015 Jun;126(6):1255-63. Epub 2014 Oct 2.


Arbesman M, Sheard K. Systematic review of the effectiveness of occupational therapy-related interventions for people with amyotrophic lateral sclerosis. Am J Occup Ther. 2014 Jan-Feb;68(1):20-6.

Eidenberger M, Nowotny S. Inspiratory muscle training in patients with Amyotrophic Lateral Sclerosis: A systematic review. NeuroRehabilitation. 2014;35(3):349-61.

Moens K, Higginson IJ, Harding R; EURO IMPACT. Are there differences in the prevalence of palliative care-related problems in people living with advanced cancer and eight non-cancer conditions? A systematic review. J Pain Symptom Manage. 2014 Oct;48(4):660-77. Epub 2014 May 5.


Aoun SM, Bentley B, Funk L, Toye C, Grande G, Stajduhar KJ. A 10-year literature review of family caregiving for motor neurone disease: moving from caregiver burden studies to palliative care interventions. Palliat Med. 2013 May;27(5):437-46. Epub 2012 Aug 20.

Brettschneider J, Kurent J, Ludolph A. Drug therapy for pain in amyotrophic lateral sclerosis or motor neuron disease. Cochrane Database Syst Rev. 2013 Jun 5;6:CD005226.


Andersen PM, Abrahams S, Borasio GD, de Carvalho M, Chio A, Van Damme P, Hardiman O, Kollewe K, Morrison KE, Petri S, Pradat PF, Silani V, Tomik B, Wasner M, Weber M. EFNS guidelines on the clinical management of amyotrophic lateral sclerosis (MALS)--revised report of an EFNS task force. EFNS Task Force on Diagnosis and Management of Amyotrophic Lateral Sclerosis:, Eur J Neurol. 2012 Mar;19(3):360-75.


Ladonna KA. A literature review of studies using qualitative research to explore chronic neuromuscular disease. J Neurosci Nurs. 2011 Jun;43(3):172-82.


Miller RG, Jackson CE, Kasarskis EJ, England JD, Forshew D, Johnston W, Kalra S, Katz JS, Mitsumoto H, Rosenfeld J, Shoesmith C, Strong MJ, Woolley SC. Practice parameter update: The care of the patient with amyotrophic lateral sclerosis: multidisciplinary care, symptom management, and cognitive/behavioral impairment (an evidence-based review): report of the Quality Standards Subcommittee of the American Academy of Neurology. Neurology. 2009 Oct 13;73(15):1227-33.

Ng L, Khan F, Mathers S. Multidisciplinary care for adults with amyotrophic lateral sclerosis or motor neuron disease. Cochrane Database Syst Rev. 2009 Oct 7;(4):CD007425. doi: 10.1002/14651858.CD007425.pub2.

Stone CA, O'Leary N. Systematic review of the effectiveness of botulinum toxin or radiotherapy for sialorrhea in patients with amyotrophic lateral sclerosis. J Pain Symptom Manage. 2009 Feb;37(2):246-58.


Brettschneider J, Kurent J, Ludolph A, Mitchell JD. Drug therapy for pain in amyotrophic lateral sclerosis or motor neuron disease. Cochrane Database Syst Rev. 2008 Jul 16;(3):CD005226.


Andersen PM, Borasio GD, Dengler R, Hardiman O, Kollewe K, Leigh PN, Pradat PF, Silani V, Tomik B; EALSC Working Group. Good practice in the management of amyotrophic lateral sclerosis: clinical guidelines. An evidence-based review with good practice points. EALSC Working Group. Amyotroph Lateral Scler. 2007 Aug;8(4):195-213.


Heffernan C, Jenkinson C, Holmes T, Macleod H, Kinnear W, Oliver D, Leigh N, Ampong MA. Management of respiration in MND/ALS patients: An evidence based review. Amyotroph Lateral Scler. 2006 Mar;7(1):5-15.

Mockford C, Jenkinson C, Fitzpatrick R. A review: carers, MND and service provision. Amyotroph Lateral Scler. 2006 Sep;7(3):132-41.


Andersen PM, Borasio GD, Dengler R, Hardiman O, Kollewe K, Leigh PN, Pradat PF, Silani V, Tomik B; EFNS Task Force on Diagnosis and Management of Amyotrophic Lateral Sclerosis. EFNS task force on management of amyotrophic lateral sclerosis: guidelines for diagnosing and clinical care of patients and relatives. Eur J Neurol. 2005 Dec;12(12):921-38.

Goodyear-Smith FA. Palliative care service needs of motor neuron disease patients. J Palliat Care. 2005 Summer;21(2):117-25. No Abstract Available.

Last updated 03 May 2023

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