Review collection - Intellectual disability

22 reviews


Ashok N, Hughes D, Yardley S. Challenges and opportunities for improvement when people with an intellectual disability or serious mental illness also need palliative care: A qualitative meta-ethnography. Palliat Med. 2023 Jun 9:2692163231175928. doi: 10.1177/02692163231175928. Epub ahead of print.


Coffey M, Edwards D, Anstey S, Gill P, Mann M, Meudell A, Hannigan B. End-of-life care for people with severe mental illness: mixed methods systematic review and thematic synthesis of published case studies (the MENLOC study). BMJ Open. 2022 Feb 22;12(2):e053223. doi: 10.1136/bmjopen-2021-053223.

O'Riordan D. Boland G, Guerin S, Dodd P. Synthesising existing research on complicated grief in intellectual disability: findings from a systematic review. J Intellect Disabil Res. 2022 Aug 30. doi: 10.1111/jir.12973.


Adam E, Sleeman KE, Brearley S, Hunt K, Tuffrey-Wijne I. The palliative care needs of adults with intellectual disabilities and their access to palliative care services: A systematic review. Palliat Med. 2020 Jun 17:269216320932774. doi: 10.1177/0269216320932774. Epub ahead of print.

Evans CJ, Yorganci E, Lewis P, Koffman J, Stone K, Tunnard I, Wee B, Bernal W, Hotopf M, Higginson IJ; MORECare_Capacity. Processes of consent in research for adults with impaired mental capacity nearing the end of life: systematic review and transparent expert consultation (MORECare_Capacity statement). BMC Med. 2020 Jul 22;18(1):221. doi: 10.1186/s12916-020-01654-2.

MacDonald S, Summers SJ. Psychosocial interventions for people with intellectual disabilities and dementia: A systematic review. J Appl Res Intellect Disabil. 2020 Feb 27. doi: 10.1111/jar.12722. Epub ahead of print.

Noorlandt HW, Echteld MA, Tuffrey-Wijne I, Festen DAM, Vrijmoeth C, van der Heide A, Korfage IJ. Shared decision-making with people with intellectual disabilities in the last phase of life: A scoping review. J Intellect Disabil Res. 2020 Sep 11. doi: 10.1111/jir.12774. Epub ahead of print.


Dillane I, Doody O. Nursing people with intellectual disability and dementia experiencing pain: An integrative review. J Clin Nurs. 2019 Feb 20. doi: 10.1111/jocn.14834. [Epub ahead of print]

McKibben L, Brazil K, Hudson P, McLaughlin D. Informational needs of family caregivers of people with intellectual disability who require palliative care: a two-phase integrative review of the literature. Int J Palliat Nurs. 2019 Jan 2;25(1):4-18. doi: 10.12968/ijpn.2019.25.1.4.

Millard SK, de Knegt NC. Cancer Pain in People With Intellectual Disabilities: Systematic Review and Survey of Health Care Professionals. J Pain Symptom Manage. 2019 Jul 19. pii: S0885-3924(19)30386-0. doi: 10.1016/j.jpainsymman.2019.07.013. [Epub ahead of print]


Fernández-Ávalos I, Fernández-Alcántara M, Cruz-Quintana F, Pérez-Marfil N. Assessment of the grieving processes in people with intellectual disabilities: A systematic review. Estud Psicol. 2017 Jun;38(3):779-87.

Voss H, Vogel A, Wagemans AMA, Francke AL, Metsemakers JFM, Courtens AM, de Veer AJE. Advance Care Planning in Palliative Care for People With Intellectual Disabilities: A Systematic Review. J Pain Symptom Manage. 2017 Aug 8. pii: S0885-3924(17)30347-0. doi: 10.1016/j.jpainsymman.2017.04.016. [Epub ahead of print]


Zaal-Schuller IH, de Vos MA, Ewals FV, van Goudoever JB, Willems DL. End-of-life decision-making for children with severe developmental disabilities: The parental perspective. Res Dev Disabil.2016 Feb-Mar;49-50:235-46.Epub 2015 Dec 29.


Dunkley S, Sales R. The challenges of providing palliative care for people with intellectual disabilities: a literature review. Int J Palliat Nurs. 2014 Jun;20(6):279-84.


Clarke G, Harrison K, Holland A, Kuhn I, Barclay S. How are treatment decisions made about artificial nutrition for individuals at risk of lacking capacity? A systematic literature review. PLoS One. 2013 Apr 16;8(4):e61475.

de Knegt NC, Pieper MJ, Lobbezoo F, Schuengel C, Evenhuis HM, Passchier J, Scherder EJ. Behavioral pain indicators in people with intellectual disabilities: a systematic review. J Pain. 2013 Sep;14(9):885-96. Epub 2013 Jul 3.


Friedman SL, Helm DT, Woodman AC. Unique and universal barriers: hospice care for aging adults with intellectual disability. Am J Intellect Dev Disabil. 2012 Nov;117(6):509-32.


Wigham S, Hatton C, Taylor JL. The effects of traumatizing life events on people with intellectual disabilities: A systematic review. Journal of Mental Health Research in Intellectual Disabilities. 2011 Jan;4(1):19-39.


Reilly DE, Hastings RP, Vaughan FL, Huws JC. Parental bereavement and the loss of a child with intellectual disabilities: a review of the literature. Intellect Dev Disabil. 2008 Feb;46(1):27-43.


Tuffrey-Wijne I, Hogg J, Curfs L. End-of-Life and palliative care for people with intellectual disabilities who have cancer or other life-limiting illness: a review of the literature and available resources. J Appl Res Intellect Disabil. 2007 Jul;20(4):331-344.


Dodd P, Dowling S, Hollins S. A review of the emotional, psychiatric and behavioural responses to bereavement in people with intellectual disabilities. J Intellect Disabil Res. 2005 Jul;49(Pt 7):537-43.


Tuffrey-Wijne I. The palliative care needs of people with intellectual disabilities: a literature review. Palliat Med. 2003 Jan;17(1):55-62.

Last updated 03 August 2023