Review collection - Decision making

214 reviews


Wu Y, Zhang X. Examining conversation analysis in palliative care: A systematic review. Health Commun. 2024 Jan 2:1-12.


Antony L, Thelly AS, Mathew JM. Evidence-based Clinical Practice Guidelines for Caregivers of Palliative Care Patients on the Prevention of Pressure Ulcer. Indian J Palliat Care. 2023 Jan-Mar;29(1):75-81. doi: 10.25259/IJPC_99_2022. Epub 2022 Sep 12.

Bagheri I, Yousefi H, Bahrami M, Shafie D. Quality of Palliative Care Guidelines in Patients with Heart Failure: A Systematic Review of Quality Appraisal using AGREE II Instrument. Indian J Palliat Care. 2023 Jan-Mar;29(1):7-14. doi: 10.25259/IJPC_46_2022. Epub 2022 Aug 23.

Baker Rogers JE. Hospices and Emergency Preparedness Planning: A Scoping Review of the Literature. J Palliat Care. 2023 May 17:8258597231176410. doi: 10.1177/08258597231176410. Epub ahead of print.

Baltazar AO, Popejoy L. Health Literacy of Surrogates and Communication Issues in Palliative Care Conversations in Critical Care: An Integrative Review. J Hosp Palliat Nurs. 2023 Feb 1;25(1):39-44. doi: 10.1097/NJH.0000000000000921. Epub 2022 Nov 22.

Buur LE, Bekker HL, Madsen JK, Søndergaard H, Kannegaard M, Khatir DS, Finderup J. Patient involvement interventions in patients with kidney failure making end-of-life care decisions: a scoping review. JBI Evid Synth. 2023 Jun 7. doi: 10.11124/JBIES-22-00261. Epub ahead of print.

Colquhoun-Flannery E, Goodwin D, Walshe C. How clinicians recognise people who are dying: An integrative review. Int J Nurs Stud. 2023:104666.

da Silva MAP, Corradi-Perini C. The mapping of influencing factors in the decision-making of end-of-life care patients: A systematic scoping review. Indian J Palliat Care. 2023 Jul-Sep;29(3):234-242.

Edwards M, Holland-Hart D, Mann M, Seddon K, Buckle P, Longo M, Byrne A, Nelson A. Understanding how shared decision-making approaches and patient aids influence patients with advanced cancer when deciding on palliative treatments and care: A realist review. Health Expect. 2023 Jul 13. doi: 10.1111/hex.13822. Epub ahead of print.

Gómez Pérez C, Sanchez Garcia AB, García Capilla DJ. Bioethical perspective of the limitation of therapeutic effort in adult terminal patients. Systematic review. Enf Global. 2023 Jul 1;22(3):586-619. doi:10.6018/eglobal.554661

Hashemlu L, Esmaeili R, Bahramnezhad F, Rohani C. A systematic review on clinical guidelines of home health care in heart failure patients. BMC Nurs. 2023 Apr 18;22(1):127. doi: 10.1186/s12912-023-01294-w.

Heradstveit SH, Larsen MH, Solberg MT, Steindal SA. Critical care nurses' role in the decision-making process of withdrawal of life-sustaining treatment: A qualitative systematic review. J Clin Nurs. 2023 Sep;32(17-18):6012-6027. doi: 10.1111/jocn.16728. Epub 2023 Apr 21.

Hewitt J, Alsaba N, May K, Noon HS, Rennie C, Marshall AP. Emergency department and intensive care unit health professionals' knowledge and application of the law that applies to end-of-life decision-making for adults: A scoping review of the literature. Aust Crit Care. 2023 Jul;36(4):628-639. doi: 10.1016/j.aucc.2022.08.002. Epub 2022 Sep 10.

Hirata M, Kobayashi K. Experiences with the end-of-life decision-making process in children with cancer, their parents, and healthcare professionals: A systematic review and meta-ethnography. J Pediatr Nurs. 2022 Dec 29:S0882-5963(22)00319-0. doi: 10.1016/j.pedn.2022.12.004. Epub ahead of print.

Liu X, Wang T, Cheung DST, Chau PH, Ho MH, Han Y, et al. Dyadic advance care planning: systematic review of patient-caregiver interventions and effects. BMJ Support Palliat Care. 2023 Oct 19:spcare-2023-004430.

Mcpeake ML, Cook N, Mcilfatrick S, Hasson F. The experience of shared decision-making for patients with end-stage kidney disease undergoing haemodialysis and their families-A scoping review. J Clin Nurs. 2023 May 27. doi: 10.1111/jocn.16766. Epub ahead of print.

Meijers B, Wellekens K, Montomoli M, Altabas K, Geter J, McCarthy K, Lobbedez T, Kazancioglu R, Thomas N. Healthcare professional education in shared decision making in the context of chronic kidney disease: a scoping review. BMC Nephrol. 2023 Jun 29;24(1):195. doi: 10.1186/s12882-023-03229-8.

Neefjes V. Parental ethical decision making and implications for advance care planning: A systematic review and secondary analysis of qualitative literature from England and Wales, Germany, and the Netherlands. J Palliat Med. 2023;26(12):1728-1743.

Polakova K, Ahmed F, Vlckova K, Brearley SG. Parents' experiences of being involved in medical decision-making for their child with a life-limiting condition: A systematic review with narrative synthesis. Palliat Med. 2023:2692163231214414.

Pun J, Chow JCH, Fok L, Cheung KM. Role of patients' family members in end-of-life communication: an integrative review. BMJ Open. 2023 Feb 21;13(2):e067304. doi: 10.1136/bmjopen-2022-067304.

Ribeiro AF, Pereira SM, Nunes R, Hernández-Marrero P. What do we know about experiencing end-of-life in burn intensive care units? A scoping review. Palliat Support Care. 2023 Aug;21(4):741-757. doi: 10.1017/S1478951522001389.

Richter R, Jansen J, Bongaerts I, Damman O, Rademakers J, van der Weijden T. Communication of benefits and harms in shared decision making with patients with limited health literacy: A systematic review of risk communication strategies. Patient Educ Couns. 2023;116:107944.

Rosca A, Karzig-Roduner I, Kasper J, Rogger N, Drewniak D, Krones T. Shared decision making and advance care planning: a systematic literature review and novel decision-making model. BMC Med Ethics. 2023 Aug 14;24(1):64. doi: 10.1186/s12910-023-00944-7.

Sánchez-Cárdenas MA, Vargas-Escobar LM, Correa-Morales JE, Michelsen-Andrade M, González-Salazar L, Muñoz-Olivar C, López Alba JA, León-Delgado MX. Effectiveness of Subcutaneous Administration of Antibiotics to Control Infections in Elder Palliative Patients: A Systematic Review. Am J Hosp Palliat Care. 2023 Mar 25:10499091231156866. doi: 10.1177/10499091231156866. Epub ahead of print.

Santos FCD, Snigurska UA, Keenan GM, Lucero RJ, Modave F. Clinical Decision Support Systems for Palliative Care Management: A Scoping Review. J Pain Symptom Manage. 2023 Mar 16:S0885-3924(23)00423-2. doi: 10.1016/j.jpainsymman.2023.03.006. Epub ahead of print

Xia Q, Kularatna M, Virdun C, Button E, Close E, Carter HE. Preferences for palliative and end-of-life care: A systematic review of discrete choice experiments. Value Health. 2023 Aug 3:S1098-3015(23)03071-1. doi: 10.1016/j.jval.2023.07.005. Epub ahead of print.

Vu E, Steinmann N, Schröder C, Förster R, Aebersold DM, Eychmüller S, Cihoric N, Hertler C, Windisch P, Zwahlen DR. Applications of Machine Learning in Palliative Care: A Systematic Review. Cancers (Basel). 2023 Mar 4;15(5):1596. doi: 10.3390/cancers15051596.

Zhang Y, Long W, Wang L, Yang L, Zhong J. Obstacles and Facilitating Factors in Decision-Making of Elderly Patients' Living Will in the Chinese Context-A Literature Review. Risk Manag Healthc Policy. 2022 Nov 23;15:2177-2186. doi: 10.2147/RMHP.S386488.

Zhong Y, Cavolo A, Labarque V, Gastmans C. Physicians' attitudes and experiences about withholding/withdrawing life-sustaining treatments in pediatrics: a systematic review of quantitative evidence. BMC Palliat Care. 2023 Sep 29;22(1):145.


Belar A, Arantzamendi M, Menten J, Payne S, Hasselaar J, Centeno C. The Decision-Making Process for Palliative Sedation for Patients with Advanced Cancer-Analysis from a Systematic Review of Prospective Studies. Cancers (Basel). 2022 Jan 8;14(2):301. doi: 10.3390/cancers14020301.

Bruun A, Oostendorp L, Bloch S, White N, Mitchinson L, Sisk AR, Stone P. Prognostic decision-making about imminent death within multidisciplinary teams: a scoping review. BMJ Open. 2022 Apr 5;12(4):e057194. doi: 10.1136/bmjopen-2021-057194.

DeForge C, George M, South K, McHugh M, Smaldone A. Systematic review and meta-analysis of interventions for ICU surrogates making end-of-life decisions. Crit Care Med. 2022 Jan;50(1):421. doi: 10.1097/01.ccm.0000809732.85202.40

Hewitt J, Alsaba N, May K, Noon HS, Rennie C, Marshall AP. Emergency department and intensive care unit health professionals' knowledge and application of the law that applies to end-of-life decision-making for adults: A scoping review of the literature. Aust Crit Care. 2022 Sep 9:S1036-7314(22)00099-6. doi: 10.1016/j.aucc.2022.08.002. Epub ahead of print.

Lo UC, Musa H, Li J, Gaon J, Hibbs DE, Ong JA. Patient beliefs associated with medication hesitancy in palliative care: A systematic review using the theory of planned behavior. Palliat Support Care. 2022 Dec 12:1-13. doi: 10.1017/S1478951522001547. Epub ahead of print.

Malhotra C, Shafiq M, Batcagan-Abueg APM. What is the evidence for efficacy of advance care planning in improving patient outcomes? A systematic review of randomised controlled trials. BMJ Open 2022;12:e060201. doi: 10.1136/bmjopen-2021-060201.

Miller EM, Porter JE, Barbagallo MS. The experiences of health professionals, patients, and families with truth disclosure when breaking bad news in palliative care: A qualitative meta-synthesis. Palliat Support Care. 2022 Jun;20(3):433-444. doi: 10.1017/S1478951521001243.

Mulcahy Symmons S, Ryan K, Aoun SM, Selman LE, Davies AN, Cornally N, Lombard J, McQuilllan R, Guerin S, O'Leary N, Connolly M, Rabbitte M, Mockler D, Foley G. Decision-making in palliative care: patient and family caregiver concordance and discordance-systematic review and narrative synthesis. BMJ Support Palliat Care. 2022 Mar 22:bmjspcare-2022-003525. doi: 10.1136/bmjspcare-2022-003525. Epub ahead of print.

Nayfeh A, Conn LG, Dale C, Kratina S, Hales B, Das Gupta T, Chakraborty A, Taggar R, Fowler R. The effect of end-of-life decision-making tools on patient and family-related outcomes of care among ethnocultural minorities: A systematic review. PLoS One. 2022 Aug 4;17(8):e0272436. doi: 10.1371/journal.pone.0272436.

Ryan RE, Connolly M, Bradford NK, Henderson S, Herbert A, Schonfeld L, Young J, Bothroyd JI, Henderson A. Interventions for interpersonal communication about end of life care between health practitioners and affected people. Cochrane Database Syst Rev. 2022 Jul 8;7(7):CD013116. doi: 10.1002/14651858.CD013116.pub2.

Srivastava R, Srivastava S. Parental Perspective in Paediatric Palliative Care: A Systematic Review of Literature Using the PRISMA Method. Indian J Palliat Care. 2022 Apr-Jun;28(2):199-215. doi: 10.25259/IJPC_37_2021. Epub 2022 Mar 3.

Zhou Y, Wang A, Ellis-Smith C, Braybrook D, Harding R. Mechanisms and contextual influences on the implementation of advance care planning for older people in long-term care facilities: A realist review. Int J Nurs Stud. 2022 Apr 30;133:104277. doi: 10.1016/j.ijnurstu.2022.104277. Epub ahead of print.


Arciero V, Delos Santos S, Koshy L, Rahmadian A, Saluja R, Everest L, Parmar A, Chan KKW. Assessment of Food and Drug Administration- and European Medicines Agency-Approved Systemic Oncology Therapies and Clinically Meaningful Improvements in Quality of Life: A Systematic Review. JAMA Netw Open. 2021 Feb 1;4(2):e2033004. doi: 10.1001/jamanetworkopen.2020.33004.

Battista V, Baker DJ, Trimarchi T, Sabri B, Wright R, D'Aoust RF. Advance Directives for Adolescents and Young Adults Living With Neuromuscular Disease: An Integrative Review of the Literature. J Hosp Palliat Nurs. 2021 Oct 1;23(5):492-498. doi: 10.1097/NJH.0000000000000786.

Fernandes CS, Lourenço M, Vale B. Patient card games in palliative care: integrative review. BMJ Support Palliat Care. 2021 Oct 27:bmjspcare-2021-003300. doi: 10.1136/bmjspcare-2021-003300. Epub ahead of print.

George LS, Matsoukas K, McFarland DC, Bowers JM, Doherty MJ, Kwon YS, Atkinson TM, Kozlov E, Saraiya B, Prigerson HG, Breitbart W. Interventions to Improve Prognostic Understanding in Advanced Stages of Life-Limiting Illness: A Systematic Review. J Pain Symptom Manage. 2021 Sep 8:S0885-3924(21)00524-8. doi: 10.1016/j.jpainsymman.2021.09.002. Epub ahead of print.

Juárez-Villegas LE, Altamirano-Bustamante MM, Zapata-Tarrés MM. Decision-Making at End-of-Life for Children With Cancer: A Systematic Review and Meta-Bioethical Analysis. Front Oncol. 2021 Oct 15;11:739092. doi: 10.3389/fonc.2021.739092.

Kelly EP, Myers B, Henderson B, Sprik P, White KB, Pawlik TM. The Influence of Patient and Provider Religious and Spiritual Beliefs on Treatment Decision Making in the Cancer Care Context. Med Decis Making. 2021 Jul 1:272989X211022246. doi: 10.1177/0272989X211022246. Epub ahead of print.

Kuosmanen L, Hupli M, Ahtiluoto S, Haavisto E. Patient participation in shared decision-making in palliative care - an integrative review. J Clin Nurs. 2021 Dec;30(23-24):3415-3428. doi: 10.1111/jocn.15866. Epub 2021 May 24.

Mason B, Boyd K, Doubal F, Barber M, Brady M, Cowey E, Visvanathan A, Lewis S, Gallacher K, Morton S, Mead GE. Core Outcome Measures for Palliative and End-of-Life Research After Severe Stroke: Mixed-Method Delphi Study. Stroke. 2021 Nov;52(11):3507-3513. doi: 10.1161/STROKEAHA.120.032650. Epub 2021 Jul 16.

Pel-Littel RE, Snaterse M, Teppich NM, Buurman BM, van Etten-Jamaludin FS, van Weert JCM, Minkman MM, Scholte Op Reimer WJM. Barriers and facilitators for shared decision making in older patients with multiple chronic conditions: a systematic review. BMC Geriatr. 2021 Feb 6;21(1):112. doi: 10.1186/s12877-021-02050-y.

Wilson DM, Anafi F, Roh SJ, Errasti-Ibarrondo B. A Scoping Research Literature Review to Identify Contemporary Evidence on the Incidence, Causes, and Impacts of End-of-Life Intra-Family Conflict. Health Commun. 2021 Nov;36(13):1616-1622. doi: 10.1080/10410236.2020.1775448. Epub 2020 Jun 10.


Banting SP, Waters PS, Peacock O, Narasimhan V, Lynch AC, McCormick JJ, Warrier SK, Heriot AG. Management of primary and metastatic malignant small bowel obstruction, operate or palliate. A systematic review. ANZ J Surg. 2020 Aug 31. doi: 10.1111/ans.16188. Epub ahead of print.

Bennett F, OʼConner-Von S. Communication Interventions to Improve Goal-Concordant Care of Seriously Ill Patients: An Integrative Review. J Hosp Palliat Nurs. 2020 Feb;22(1):40-48. doi: 10.1097/NJH.0000000000000606.

Crawford R, Sully K, Conroy R, Johnson C, Doward L, Bell T, Welch V, Peloquin F, Gater A. Patient-Centered Insights on Treatment Decision Making and Living with Acute Myeloid Leukemia and Other Hematologic Cancers. Patient. 2020 Feb;13(1):83-102. doi: 10.1007/s40271-019-00384-9.

de Jong RW, Stel VS, Heaf JG, Murphy M, Massy ZA, Jager KJ. Non-medical barriers reported by nephrologists when providing renal replacement therapy or comprehensive conservative management to end-stage kidney disease patients: a systematic review. Nephrol Dial Transplant. 2020 Jan 3;gfz271. doi: 10.1093/ndt/gfz271. [Epub ahead of print].

Efstathiou N, Vanderspank-Wright B, Vandyk A, Al-Janabi M, Daham Z, Sarti A, Delaney JW, Downar J. Terminal withdrawal of mechanical ventilation in adult intensive care units: A systematic review and narrative synthesis of perceptions, experiences and practices. Palliat Med. 2020 Oct;34(9):1140-1164. doi: 10.1177/0269216320935002. Epub 2020 Jun 27.

Evans CJ, Yorganci E, Lewis P, Koffman J, Stone K, Tunnard I, Wee B, Bernal W, Hotopf M, Higginson IJ; MORECare_Capacity. Processes of consent in research for adults with impaired mental capacity nearing the end of life: systematic review and transparent expert consultation (MORECare_Capacity statement). BMC Med. 2020 Jul 22;18(1):221. doi: 10.1186/s12916-020-01654-2.

Haltaufderheide J, Nadolny S, Gysels M, Bausewein C, Vollmann J, Schildmann J. Outcomes of clinical ethics support near the end of life: A systematic review. Nurs Ethics. 2020 May;27(3):838-854. doi: 10.1177/0969733019878840. Epub 2019 Nov 19.

Ludwick A, Corey K, Meghani S. Racial and Socioeconomic Factors Associated with the Use of Complementary and Alternative Modalities for Pain in Cancer Outpatients: An Integrative Review. Pain Manag Nurs. 2020 Jan 9;S1524-9042(18)30294-7. doi: 10.1016/j.pmn.2019.08.005. [Epub ahead of print].

Mohiuddin A, Suleman M, Rasheed S, Padela AI. When can Muslims withdraw or withhold life support? A narrative review of Islamic juridical rulings. Glob Bioeth. 2020 Mar 22;31(1):29-46. doi: 10.1080/11287462.2020.1736243.

Noorlandt HW, Echteld MA, Tuffrey-Wijne I, Festen DAM, Vrijmoeth C, van der Heide A, Korfage IJ. Shared decision-making with people with intellectual disabilities in the last phase of life: A scoping review. J Intellect Disabil Res. 2020 Sep 11. doi: 10.1111/jir.12774. Epub ahead of print.

Rutherford J, Willmott L, White BP. Physician attitudes to voluntary assisted dying: a scoping review. BMJ Support Palliat Care. 2020 Jun 20:bmjspcare-2020-002192. doi: 10.1136/bmjspcare-2020-002192. Epub ahead of print.

Singh GK, Ivynian SE, Ferguson C, Davidson PM, Newton PJ. Palliative care in chronic heart failure: a theoretically guided, qualitative meta-synthesis of decision-making. Heart Fail Rev. 2020 Jan 3;10.1007/s10741-019-09910-1. doi: 10.1007/s10741-019-09910-1. [Epub ahead of print].

Soar N, Birns J, Sommerville P, Lang A, Archer S. Approaches to Eating and Drinking with Acknowledged Risk: A Systematic Review. Dysphagia. 2020 Apr 1. doi: 10.1007/s00455-020-10107-0. Epub ahead of print.

Tao WW, Tao XM, Wang Y, Bi SH. Psycho-social and Educational Interventions for enhancing adherence to dialysis in adults with End-Stage Renal Disease: A Meta-Analysis. J Clin Nurs. 2020 Apr 22. doi: 10.1111/jocn.15301. Epub ahead of print.

Thodé M, Pasman HRW, van Vliet LM, Damman OC, Ket JCF, Francke AL, Jongerden IP. Feasibility and effectiveness of tools that support communication and decision making in life-prolonging treatments for patients in hospital: a systematic review. BMJ Support Palliat Care. 2020 Oct 5:bmjspcare-2020-002284. doi: 10.1136/bmjspcare-2020-002284. Epub ahead of print.

Thompson JH, Moser D. Experiences with end-of-life care with a left ventricular assist device: An integrative review. Heart Lung. 2020 Mar 18:S0147-9563(20)30085-6. doi: 10.1016/j.hrtlng.2020.02.046. Epub ahead of print.

Widberg C, Wiklund B, Klarare A. Patients' experiences of eHealth in palliative care: an integrative review. BMC Palliat Care. 2020 Oct 14;19(1):158. doi: 10.1186/s12904-020-00667-1.

Winterbottom AE, Mooney A, Russon L, Hipkiss V, Ziegler L, Williams R, Finderup J, Bekker HL. Kidney disease pathways, options and decisions: an environmental scan of international patient decision aids. Nephrol Dial Transplant. 2020 Aug 23:gfaa102. doi: 10.1093/ndt/gfaa102. Epub ahead of print.

Yamaji N, Suto M, Takemoto Y, Suzuki D, Lopes KDS, Ota E. Supporting the Decision Making of Children With Cancer: A Meta-synthesis. J Pediatr Oncol Nurs. 2020 May 27:1043454220919711. doi: 10.1177/1043454220919711. Epub ahead of print.


Abedini NC, Hechtman RK, Singh AD, Khateeb R, Mann J, Townsend W, Chopra V. Interventions to reduce aggressive care at end of life among patients with cancer: a systematic review. Lancet Oncol. 2019 Nov;20(11):e627-e636. doi: 10.1016/S1470-2045(19)30496-6.

Beauchemin M, Murray MT, Sung L, Hershman DL, Weng C, Schnall R. Clinical decision support for therapeutic decision-making in cancer: A systematic review. Int J Med Inform. 2019 Oct;130:103940. doi: 10.1016/j.ijmedinf.2019.07.019. Epub 2019 Aug 12.

Bennett RA, LeBaron VT. Parental perspectives on roles in end-of-life decision making in the pediatric intensive care unit: An integrative review. J Pediatr Nurs. 2019 Mar 1;46:18-25. doi: 10.1016/j.pedn.2019.02.029. [Epub ahead of print]

Bibas L, Peretz-Larochelle M, Adhikari NK, Goldfarb MJ, Luk A, Englesakis M, Detsky ME, Lawler PR. Association of Surrogate Decision-making Interventions for Critically Ill Adults With Patient, Family, and Resource Use Outcomes: A Systematic Review and Meta-analysis. JAMA Netw Open. 2019 Jul 3;2(7):e197229. doi: 10.1001/jamanetworkopen.2019.7229.

Blakeley C, Smith DM, Johnstone ED, Wittkowski A. Parental decision-making following a prenatal diagnosis that is lethal, life-limiting, or has long term implications for the future child and family: a meta-synthesis of qualitative literature. BMC Med Ethics. 2019 Aug 8;20(1):56. doi: 10.1186/s12910-019-0393-7.

Couture M, Ducharme F, Sasseville M, Bradette C, Gaudet K. A qualitative systematic review of factors affecting caregivers' decision-making for care setting placements for individuals with dementia. Geriatr Nurs. 2019 Oct 26. pii: S0197-4572(19)30524-5. doi: 10.1016/j.gerinurse.2019.09.002. [Epub ahead of print]

Daneau S, Bourbonnais A, Legault A. Surrogates' end-of-life decision-making process in nursing homes for residents with a neurocognitive disorder: An integrative review. Int J Older People Nurs. 2019 Oct 15:e12274. doi: 10.1111/opn.12274. [Epub ahead of print]

Davies N, Schiowitz B, Rait G, Vickerstaff V, Sampson EL. Decision aids to support decision-making in dementia care: a systematic review. Int Psychogeriatr. 2019 Jul 26:1-17. doi: 10.1017/S1041610219000826. [Epub ahead of print]

Edmonds KP, Ajayi TA. Do We Know What We Mean? An Examination of the Use of the Phrase "Goals of Care" in the Literature. J Palliat Med. 2019 Dec;22(12):1546-1552. doi: 10.1089/jpm.2019.0059. Epub 2019 Jun 19.

Gessler D, Juraskova I, Sansom-Daly UM, Shepherd HL, Patterson P, Muscat DM. Clinician-patient-family decision-making and health literacy in adolescents and young adults with cancer and their families: A systematic review of qualitative studies. Psychooncology. 2019 May 20. doi: 10.1002/pon.5110. [Epub ahead of print]

Gómez-Vírseda C, de Maeseneer Y, Gastmans C. Relational autonomy: what does it mean and how is it used in end-of-life care? A systematic review of argument-based ethics literature. BMC Med Ethics. 2019 Oct 26;20(1):76. doi: 10.1186/s12910-019-0417-3.

Gonzalez AI GONZALEZ, Schmucker C, Nothacker J, Motschall E, Nguyen TS, Brueckle MS, Blom J, van den Akker M, Röttger K, Wegwarth O, Hoffmann T, Straus SE, Gerlach FM, Meerpohl JJ, Muth C. Health-related preferences of older patients with multimorbidity: an evidence map. BMJ Open. 2019 Dec 15;9(12):e034485. doi: 10.1136/bmjopen-2019-034485.

Gregersen TA, Birkelund R, Wolderslund M, Netsey-Afedo ML, Steffensen KD, Ammentorp J. What matters in clinical trial decision-making: a systematic review of interviews exploring cancer patients' experiences. Scand J Caring Sci. 2019 Feb 8. doi: 10.1111/scs.12637. [Epub ahead of print]

Hanning J, Walker KJ, Horrigan D, Levinson M, Mills A. Review article: Goals-of-care discussions for adult patients nearing end of life in emergency departments: A systematic review. Emerg Med Australas. 2019 Aug;31(4):525-532. doi: 10.1111/1742-6723.13303. Epub 2019 May 1.

Hemsley B, Meredith J, Bryant L, Wilson NJ, Higgins I, Georgiou A, Hill S, Balandin S, McCarthy S. An integrative review of stakeholder views on Advance Care Directives (ACD): Barriers and facilitators to initiation, documentation, storage, and implementation. Patient Educ Couns. 2019 Jan 11. pii: S0738-3991(18)30810-3. doi: 10.1016/j.pec.2019.01.007. [Epub ahead of print]

Houska A, Loučka M. Patients' Autonomy at the End of Life: A Critical Review. J Pain Symptom Manage. 2019 Jan 3. pii: S0885-3924(18)31487-8. doi: 10.1016/j.jpainsymman.2018.12.339. [Epub ahead of print]

Kelly AJ, Luckett T, Clayton JM, Gabb L, Kochovska S, Agar M. Advance care planning in different settings for people with dementia: A systematic review and narrative synthesis. Palliat Support Care. 2019 Jun 10:1-13. doi: 10.1017/S1478951519000257. [Epub ahead of print]

Kerckhoffs MC, Kant M, van Delden JJM, Hooft L, Kesecioglu J, van Dijk D. Selecting and evaluating decision-making strategies in the intensive care unit: A systematic review. J Crit Care. 2019 Jan 30;51:39-45. doi: 10.1016/j.jcrc.2019.01.029. [Epub ahead of print]

Kim S, Savage TA, Hershberger PE, Kavanaugh K. End-of-Life Care in Neonatal Intensive Care Units from an Asian Perspective: An Integrative Review of the Research Literature. J Palliat Med. 2019 Jan 11. doi: 10.1089/jpm.2018.0304. [Epub ahead of print]

Lai M, Jeon YH, McKenzie H. The key factors for the engagement of primary stakeholders in decision-making for the future care of people with dementia living in the community: a systematic integrative review. Int Psychogeriatr. 2019 Feb 14:1-16. doi: 10.1017/S104161021900005X. [Epub ahead of print]

Lewthwaite H, Williams G, Baldock KL, Williams MT. Systematic Review of Pain in Clinical Practice Guidelines for Management of COPD: A Case for Including Chronic Pain? Healthcare (Basel). 2019 Jan 22;7(1). pii: E15. doi: 10.3390/healthcare7010015.

Maffoni M, Argentero P, Giorgi I, Hynes J, Giardini A. Healthcare professionals' moral distress in adult palliative care: a systematic review. BMJ Support Palliat Care. 2019 Jan 12. pii: bmjspcare-2018-001674. doi: 10.1136/bmjspcare-2018-001674. [Epub ahead of print]

Martin C, Shrestha A, Burton M, Collins K, Wyld L. How are caregivers involved in treatment decision-making for older people with dementia and a new diagnosis of cancer? Psychooncology. 2019 Mar 25. doi: 10.1002/pon.5070. [Epub ahead of print]

McPherson K, Carlos WG 3rd, Emmett TW, Slaven JE, Torke AM. Limitation of Life-Sustaining Care in the Critically Ill: A Systematic Review of the Literature. J Hosp Med. 2019 May;14(5):303-310. doi: 10.12788/jhm.3137.

Pearse W, Oprescu F, Endacott J, Goodman S, Hyde M, O'Neill M. Advance care planning in the context of clinical deterioration: a systematic review of the literature. Palliat Care. 2019 Jan 19;12:1178224218823509. doi: 10.1177/1178224218823509. eCollection 2019.

Phillips G, Lifford K, Edwards A, Poolman M, Joseph-Williams N. Do published patient decision aids for end-of-life care address patients' decision-making needs? A systematic review and critical appraisal. Palliat Med. 2019 Jun 14:269216319854186. doi: 10.1177/0269216319854186. [Epub ahead of print]

Procter S, Ooi M, Hopkins C, Moore G. A review of the literature on family decision-making at end of life precipitating hospital admission. Br J Nurs. 2019 Jul 11;28(13):878-884. doi: 10.12968/bjon.2019.28.13.878.

Pyke-Grimm KA, Franck LS, Patterson Kelly K, Halpern-Felsher B, Goldsby RE, Kleiman A, Rehm RS. Treatment Decision-Making Involvement in Adolescents and Young Adults With Cancer. Oncol Nurs Forum. 2019 Jan 13;46(1):E22-E37. doi: 10.1188/19.ONF.E22-E37.

Ribeiro AF, Martins Pereira S, Gomes B, Nunes R. Do patients, families, and healthcare teams benefit from the integration of palliative care in burn intensive care units? Results from a systematic review with narrative synthesis. Palliat Med. 2019 Jul 12:269216319862160. doi: 10.1177/0269216319862160. [Epub ahead of print]

Rodríguez-Prat A, Balaguer A, Crespo I, Monforte-Royo C. Feeling like a burden to others and the wish to hasten death in patients with advanced illness: A systematic review. Bioethics. 2019 Apr 8. doi: 10.1111/bioe.12562. [Epub ahead of print]

Roest B, Trappenburg M, Leget C. The involvement of family in the Dutch practice of euthanasia and physician assisted suicide: a systematic mixed studies review. BMC Med Ethics. 2019 Apr 5;20(1):23. doi: 10.1186/s12910-019-0361-2.

Sampaio SGDSM, Motta LBD, Caldas CP. Value-based medicine and palliative care: how do they converge? Expert Rev Pharmacoecon Outcomes Res. 2019 Oct;19(5):509-515. doi: 10.1080/14737167.2019.1651645. Epub 2019 Aug 7.

Saunders CH, Patel K, Kang H, Elwyn G, Kirkland K, Durand MA. Serious Choices: A Systematic Environmental Scan of Decision Aids and Their Use for Seriously Ill People Near Death. J Hosp Med. 2019 May;14(5):294-302. doi: 10.12788/jhm.3110.

Shrestha A, Martin C, Walters S, Collins K, Burton M, Wyld L. Quality of life versus Length of Life Considerations in Cancer Patients: A Systematic Literature Review. Psychooncology. 2019 Jul;28(7):1367-1380. doi: 10.1002/pon.5054. Epub 2019 May 15.

Spelten ER, Geerse O, van Vuuren J, Timmis J, Blanch B, Duijts S, MacDermott S. Factors influencing the engagement of cancer patients with advance care planning: A scoping review. Eur J Cancer Care (Engl). 2019 May;28(3):e13091. doi: 10.1111/ecc.13091. Epub 2019 May 9.

Spronk I, Meijers MC, Heins MJ, Francke AL, Elwyn G, van Lindert A, van Dulmen S, van Vliet LM. Availability and effectiveness of decision aids for supporting shared decision making in patients with advanced colorectal and lung cancer: Results from a systematic review. Eur J Cancer Care (Engl). 2019 May;28(3):e13079. doi: 10.1111/ecc.13079. Epub 2019 May 8.

Starr LT, Ulrich CM, Corey KL, Meghani SH. Associations Among End-of-Life Discussions, Health-Care Utilization, and Costs in Persons With Advanced Cancer: A Systematic Review. Am J Hosp Palliat Care. 2019 May 9:1049909119848148. doi: 10.1177/1049909119848148. [Epub ahead of print]

Streuli JC, Widger K, Medeiros C, Zuniga-Villanueva G, Trenholm M. Impact of specialized pediatric palliative care programs on communication and decision-making. Patient Educ Couns. 2019 Feb 11. pii: S0738-3991(18)30414-2. doi: 10.1016/j.pec.2019.02.011. [Epub ahead of print]

Su Y, Yuki M, Hirayama K. The experiences and perspectives of family surrogate decision-makers: A systematic review of qualitative studies. Patient Educ Couns. 2019 Dec 16;S0738-3991(19)30555-5. doi: 10.1016/j.pec.2019.12.011. [Epub ahead of print].

Suva G, Penney T, McPherson CJ. Medical Assistance in Dying: A Scoping Review to Inform Nurses' Practice. J Hosp Palliat Nurs. 2019 Feb;21(1):46-53. doi: 10.1097/NJH.0000000000000486.

Tapp D, Chenacher S, Gérard NPA, Bérubé-Mercier P, Gelinas C, Douville F, Desbiens JF. Observational Pain Assessment Instruments for Use With Nonverbal Patients at the End-of-life: A Systematic Review. J Palliat Care. 2019 Jan 13:825859718816073. doi: 10.1177/0825859718816073. [Epub ahead of print]

Wied TS, Knebel M, Tesky VA, Haberstroh J. The human right to make one’s own choices – Implications for supported decision-making in persons with dementia: A systematic review. Eur Psychol. 2019 Apr;24(2):146-158. doi:


Ahluwalia SC, Chen C, Raaen L, Motala A, Walling AM, Chamberlin M, O'Hanlon C, Larkin J, Lorenz K, Akinniranye O, Hempel S. A Systematic Review in Support of the National Consensus Project Clinical Practice Guidelines for Quality Palliative Care, Fourth Edition. J Pain Symptom Manage. 2018 Dec;56(6):831-870. doi: 10.1016/j.jpainsymman.2018.09.008. Epub 2018 Oct 31.

Baik D, Cho H, Masterson Creber RM. Examining Interventions Designed to Support Shared Decision Making and Subsequent Patient Outcomes in Palliative Care: A Systematic Review of the Literature. Am J Hosp Palliat Care. 2018 Jan 1:1049909118783688. doi: 10.1177/1049909118783688. [Epub ahead of print]

Bhatt J, Walton H, Stoner CR, Scior K, Charlesworth G. The nature of decision-making in people living with dementia: a systematic review. Aging Ment Health. 2018 Dec 6:1-11. doi: 10.1080/13607863.2018.1544212. [Epub ahead of print]

Bosco A, Schneider J, Coleston-Shields DM, Jawahar K, Higgs P, Orrell M. Agency in dementia care: systematic review and meta-ethnography. Int Psychogeriatr. 2018 Dec 6:1-16. doi: 10.1017/S1041610218001801. [Epub ahead of print]

Bunn F, Goodman C, Russell B, Wilson P, Manthorpe J, Rait G, Hodkinson I, Durand MA. Supporting shared decision making for older people with multiple health and social care needs: a realist synthesis. BMC Geriatr. 2018 Jul 18;18(1):165. doi: 10.1186/s12877-018-0853-9.

Cresp SJ, Lee SF, Moss C. Substitute decision makers' experiences of making decisions at end of life for older persons with dementia: A systematic review and qualitative meta-synthesis. Dementia (London). 2018 Sep 25:1471301218802127. doi: 10.1177/1471301218802127. [Epub ahead of print]

Crist JD, Ortiz-Dowling EM, Shea KD, Phillips LR. Knowledge Gaps About End-of-Life Decision Making Among Mexican American Older Adults and Their Family Caregivers: An Integrative Review. J Transcult Nurs. 2018 Nov 22:1043659618812949. doi: 10.1177/1043659618812949. [Epub ahead of print]

Daly RL, Bunn F, Goodman C. Shared decision-making for people living with dementia in extended care settings: a systematic review. BMJ Open. 2018 Jun 9;8(6):e018977. doi: 10.1136/bmjopen-2017-018977.

Draper EJ, Hillen MA, Moors M, Ket JCF, van Laarhoven HWM, Henselmans I. Relationship between physicians' death anxiety and medical communication and decision-making: A systematic review. Patient Educ Couns. 2018 Sep 25. pii: S0738-3991(18)30777-8. doi: 10.1016/j.pec.2018.09.019. [Epub ahead of print]

Etkind SN, Bone AE, Lovell N, Higginson IJ, Murtagh FEM. Influences on Care Preferences of Older People with Advanced Illness: A Systematic Review and Thematic Synthesis. J Am Geriatr Soc. 2018 May;66(5):1031-1039. doi: 10.1111/jgs.15272. Epub 2018 Mar 7.

Geerse OP, Stegmann ME, Kerstjens HAM, Hiltermann TJN, Bakitas M, Zimmermann C, Deal AM, Brandenbarg D, Berger MY, Berendsen AJ. Effects of Shared Decision Making on Distress and Health Care Utilization Among Patients With Lung Cancer: A Systematic Review. J Pain Symptom Manage. 2018 Aug 24. pii: S0885-3924(18)30441-X. doi: 10.1016/j.jpainsymman.2018.08.011. [Epub ahead of print]

Gonella S, Basso I, Dimonte V, Martin B, Berchialla P, Campagna S, Di Giulio P. Association Between End-of-Life Conversations in Nursing Homes and End-of-Life Care Outcomes: A Systematic Review and Meta-analysis. J Am Med Dir Assoc. 2018 Nov 20. pii: S1525-8610(18)30554-1. doi: 10.1016/j.jamda.2018.10.001. [Epub ahead of print]

Hamel AV, Gaugler JE, Porta CM, Hadidi NN. Complex Decision-Making in Heart Failure: A Systematic Review and Thematic Analysis. J Cardiovasc Nurs. 2018 May/Jun;33(3):225-231. doi: 10.1097/JCN.0000000000000453.

Higel T, Alaoui A, Bouton C, Fournier JP. Effect of Living Wills on End-of-Life Care: A Systematic Review. J Am Geriatr Soc. 2019 Jan;67(1):164-171. doi: 10.1111/jgs.15630. Epub 2018 Dec 3.

Hopwood J, Walker N, McDonagh L, Rait G, Walters K, Iliffe S, Ross J, Davies N. Internet-Based Interventions Aimed at Supporting Family Caregivers of People With Dementia: Systematic Review. J Med Internet Res. 2018 Jun 12;20(6):e216. doi: 10.2196/jmir.9548.

Kim K, Heinze K, Xu J, Kurtz M, Park H, Foradori M, Nolan MT. Theories of Health Care Decision Making at the End of Life: A Meta-Ethnography. West J Nurs Res. 2018 Dec;40(12):1861-1884. doi: 10.1177/0193945917723010. Epub 2017 Aug 17.

Lin CP, Evans CJ, Koffman J, Armes J, Murtagh FEM, Harding R. The conceptual models and mechanisms of action that underpin advance care planning for cancer patients: A systematic review of randomised controlled trials. Palliat Med. 2018 Oct 26:269216318809582. doi: 10.1177/0269216318809582. [Epub ahead of print]

Mayahara M, Wilbur J, Fogg L, Breitenstein SM. Behavioral Pain Intervention for Hospice and Palliative Care Patients: An Integrative Review. Am J Hosp Palliat Care. 2018 Sep;35(9):1245-1255. doi: 10.1177/1049909118775421. Epub 2018 May 17.

Muldrew DH, Hasson F, Carduff E, Clarke M, Coast J, Finucane A, Graham L, Larkin P, McCorry NK, Slater P, Watson M, Wright E, McIlfatrick S. Assessment and management of constipation for patients receiving palliative care in specialist palliative care settings: A systematic review of the literature. Palliat Med. 2018 May;32(5):930-938. doi: 10.1177/0269216317752515. Epub 2018 Feb 12.

Pignatiello G, Hickman RL Jr, Hetland B. End-of-Life Decision Support in the ICU: Where Are We Now? West J Nurs Res. 2018 Jan;40(1):84-120. doi: 10.1177/0193945916676542. Epub 2016 Nov 9.

Singh GK, Davidson PM, Macdonald PS, Newton PJ. The Perspectives of Health Care Professionals on Providing End of Life Care and Palliative Care for Patients With Chronic Heart Failure: An Integrative Review. Heart Lung Circ. 2018 Oct 17. pii: S1443-9506(18)31950-4. doi: 10.1016/j.hlc.2018.10.009. [Epub ahead of print]

Spronk I, Burgers JS, Schellevis FG, van Vliet LM, Korevaar JC. The availability and effectiveness of tools supporting shared decision making in metastatic breast cancer care: a review. BMC Palliat Care. 2018 May 11;17(1):74. doi: 10.1186/s12904-018-0330-4.

Stevenson M, McDowell ME, Taylor BJ. Concepts for communication about risk in dementia care: A review of the literature. Dementia (London). 2018 Apr;17(3):359-390. doi: 10.1177/1471301216647542. Epub 2016 May 13.

Tapp D, Blais MC. Evaluation of decision support tools for patients with advanced cancer: A systematic review of literature. Palliat Support Care. 2018 Aug 31:1-9. doi: 10.1017/S1478951518000512. [Epub ahead of print]


Cardona-Morrell M, Benfatti-Olivato G, Jansen J, Turner RM, Fajardo-Pulido D, Hillman K. A systematic review of effectiveness of decision aids to assist older patients at the end of life. Patient Educ Couns. 2017 Mar;100(3):425-435. Epub 2016 Oct 11.

Cranley NM, Curbow B, George TJ Jr, Christie J. Influential factors on treatment decision making among patients with colorectal cancer: A scoping review. Support Care Cancer. 2017 Sep;25(9):2943-2951. doi: 10.1007/s00520-017-3763-z. Epub 2017 Jun 6.

Engelhardt EG, Révész D, Tamminga HJ, Punt CJA, Koopman M, Onwuteaka-Philipsen BD, Steyerberg EW, Jansma IP, De Vet HCW, Coupé VMH. Clinical Usefulness of Tools to Support Decision-making for Palliative Treatment of Metastatic Colorectal Cancer: A Systematic Review. Clin Colorectal Cancer. 2017 Jun 24. pii: S1533-0028(17)30148-2. doi: 10.1016/j.clcc.2017.06.007. [Epub ahead of print]

Eskildsen NB, Joergensen CR, Thomsen TG, Ross L, Dietz SM, Groenvold M, Johnsen AT. Patient empowerment: a systematic review of questionnaires measuring empowerment in cancer patients. Acta Oncol. 2017 Feb;56(2):156-165. Epub 2017 Jan 12.

Finnigan-Fox G, Matlock DD, Tate CE, Knoepke CE, Allen LA. Hospice, She Yelped: Examining the Quantity and Quality of Decision Support Available to Patient and Families Considering Hospice. J Pain Symptom Manage. 2017 Dec;54(6):916-921.e1. doi: 10.1016/j.jpainsymman.2017.08.002. Epub 2017 Aug 15.

PEBC’s Ovarian Oncology Guidelines Group. A systematic review of patient values, preferences and expectations for the treatment of recurrent ovarian cancer. Gynecol Oncol. 2017 Jun 7. pii: S0090-8258(17)30895-8. doi: 10.1016/j.ygyno.2017.05.039. [Epub ahead of print]


Birchley G, Jones K, Huxtable R, Dixon J, Kitzinger J, Clare L. Dying well with reduced agency: a scoping review and thematic synthesis of the decision-making process in dementia, traumatic brain injury and frailty. BMC Med Ethics. 2016 Jul 27;17(1):46. doi: 10.1186/s12910-016-0129-x.

Chan RJ, Webster J, Bowers A. End-of-life care pathways for improving outcomes in caring for the dying. Cochrane Database Syst Rev. 2016 Feb 12;2:CD008006. [Update of 2013 article]

Chung HO, Oczkowski SJ, Hanvey L, Mbuagbaw L, You JJ. Educational interventions to train healthcare professionals in end-of-life communication: a systematic review and meta-analysis. BMC Med Educ. 2016 Apr 29;16:131.

Day E, Jones L, Langner R, Bluebond-Langner M. Current understanding of decision-making in adolescents with cancer: A narrative systematic review. Palliat Med. 2016 Dec;30(10):920-934. Epub 2016 May 9.

Delaney JW, Downar J. How is life support withdrawn in intensive care units: A narrative review. J Crit Care. 2016 Oct;35:12-8. Epub 2016 Apr 9.

Flannery L, Ramjan LM, Peters K. End-of-life decisions in the Intensive Care Unit (ICU) - Exploring the experiences of ICU nurses and doctors - A critical literature review. Aust Crit Care. 2016 May;29(2):97-103. Epub 2015 Sep 19.

Hajizadeh N, Uhler L, Herman SW, Lester J. Is Shared Decision Making for End-of-Life Decisions Associated With Better Outcomes as Compared to Other Forms of Decision Making? A Systematic Literature Review. MDM Policy Pract. 2016 Jul 7;1(1):2381468316642237. doi: 10.1177/2381468316642237. eCollection 2016 Jul-Dec.

Karimi M, Clark AM. How do patients' values influence heart failure self-care decision-making?: A mixed-methods systematic review. Int J Nurs Stud. 2016 Jul;59:89-104.Epub 2016 Mar 19.

Lewis E, Cardona-Morrell M, Ong KY, Trankle SA, Hillman K. Evidence still insufficient that advance care documentation leads to engagement of healthcare professionals in end-of-life discussions: A systematic review. Palliat Med. 2016 Oct;30(9):807-24. Epub 2016 Mar 7.

Oczkowski SJ, Chung HO, Hanvey L, Mbuagbaw L, You JJ. Communication Tools for End-of-Life Decision-Making in Ambulatory Care Settings: A Systematic Review and Meta-Analysis. PLoS One. 2016 Apr 27;11(4):e0150671. doi: 10.1371/journal.pone.0150671. eCollection 2016.

Oczkowski SJ, Chung HO, Hanvey L, Mbuagbaw L, You JJ. Communication tools for end-of-life decision-making in the intensive care unit: a systematic review and meta-analysis. Crit Care. 2016 Apr 9;20(1):97.

Schmidt K, Damm K, Prenzler A, Golpon H, Welte T. Preferences of lung cancer patients for treatment and decision-making: a systematic literature review. Eur J Cancer Care (Engl). 2016 Jul;25(4):580-91. Epub 2015 Dec 17.

Zaal-Schuller IH, de Vos MA, Ewals FV, van Goudoever JB, Willems DL. End-of-life decision-making for children with severe developmental disabilities: The parental perspective. Res Dev Disabil.2016 Feb-Mar;49-50:235-46.Epub 2015 Dec 29.


Austin CA, Mohottige D, Sudore RL, Smith AK, Hanson LC. Tools to Promote Shared Decision Making in Serious Illness: A Systematic Review. JAMA Intern Med. 2015 Jul 1;175(7):1213-21.

Finlayson CS, Chen YT, Fu MR. The Impact of Patients' Awareness of Disease Status on Treatment Preferences and Quality of Life among Patients with Metastatic Cancer: A Systematic Review from 1997-2014. J Palliat Med. 2015 Feb;18(2):176-86.Epub 2014 Sep 26.

Hussain JA, Flemming K, Murtagh FE, Johnson MJ. Patient and health care professional decision-making to commence and withdraw from renal dialysis: a systematic review of qualitative research. Clin J Am Soc Nephrol. 2015 Jul 7;10(7):1201-15. doi: 10.2215/CJN.11091114. Epub 2015 May 5.

Lord K, Livingston G, Cooper C. A systematic review of barriers and facilitators to and interventions for proxy decision-making by family carers of people with dementia. Int Psychogeriatr. 2015 Aug;27(8):1301-12. Epub 2015 Apr 14.

Mark NM, Rayner SG, Lee NJ, Curtis JR. Global variability in withholding and withdrawal of life-sustaining treatment in the intensive care unit: a systematic review. Intensive Care Med. 2015 Sep;41(9):1572-85.

Mockford C, Fritz Z, George R, Court R, Grove A, Clarke B, Field R, Perkins GD. Do not attempt cardiopulmonary resuscitation (DNACPR) orders: a systematic review of the barriers and facilitators of decision-making and implementation. Resuscitation. 2015 Mar;88:99-113. Epub 2014 Nov 26.

Schildmann J, Baumann A, Cakar M, Salloch S, Vollmann J. Decisions about Limiting Treatment in Cancer Patients: A Systematic Review and Clinical Ethical Analysis of Reported Variables.  J Palliat Med. 2015 Oct;18(10):884-92. Epub 2015 Aug 6.

Wallace CL. Family communication and decision making at the end of life: a literature review. Palliat Support Care. 2015 Jun;13(3):815-25. Epub 2014 Apr 28.


Boa S,Duncan EAS,Haraldsdottir E, Wyke S. Goal setting in palliative care: A structured review.Prog Pall Care. 2014; 22(6):326-333. [No abstract available]

Butler M, Ratner E, McCreedy E, Shippee N, Kane RL. Decision aids for advance care planning: an overview of the state of the science. Ann Intern Med. 2014 Sep 16;161(6):408-18.

Lewis KB, Stacey D, Matlock DD. Making decisions about implantable cardioverter-defibrillators from implantation to end of life: an integrative review of patients' perspectives. Patient. 2014;7(3):243-60.

McLeod-Sordjan R. Death preparedness: a concept analysis. J Adv Nurs. 2014 May;70(5):1008-19. doi: 10.1111/jan.12252. Epub 2013 Sep 15.

Petriwskyj A, Gibson A, Parker D, Banks S, Andrews S, Robinson A. A qualitative metasynthesis: family involvement in decision making for people with dementia in residential aged care. Int J Evid Based Healthc. 2014 Jun;12(2):87-104.

Tong A, Cheung KL, Nair SS, Kurella Tamura M, Craig JC, Winkelmayer WC. Thematic synthesis of qualitative studies on patient and caregiver perspectives on end-of-life care in CKD.  Am J Kidney Dis. 2014 Jun;63(6):913-27.Epub 2014 Jan 7.

Valdez-Martinez E, Noyes J, Bedolla M. When to stop? Decision-making when children's cancer treatment is no longer curative: a mixed-method systematic review. BMC Pediatr. 2014 May 13;14:124.

Visser M, Deliens L, Houttekier D. Physician-related barriers to communication and patient- and family-centred decision-making towards the end of life in intensive care: a systematic review. Crit Care.2014 Nov 18;18(6):604.


Clarke G, Harrison K, Holland A, Kuhn I, Barclay S. How are treatment decisions made about artificial nutrition for individuals at risk of lacking capacity? A systematic literature review. PLoS One. 2013 Apr 16;8(4):e61475.

Kjørstad OJ, Haugen DF. Cardiopulmonary resuscitation in palliative care cancer patients. idsskr Nor Laegeforen. 2013 Feb 19;133(4):417-21.

Kryworuchko J, Hill E, Murray MA, Stacey D, Fergusson DA. Interventions for shared decision-making about life support in the intensive care unit: a systematic review. Worldviews Evid Based Nurs. 2013 Feb;10(1):3-16. Epub 2012 Apr 10.

Nelson JE, Curtis JR, Mulkerin C, Campbell M, Lustbader DR, Mosenthal AC, Puntillo K, Ray DE, Bassett R, Boss RD, Brasel KJ, Frontera JA, Hays RM, Weissman DE; Improving Palliative Care in the ICU (IPAL-ICU) Project Advisory Board. Choosing and using screening criteria for palliative care consultation in the ICU: a report from the Improving Palliative Care in the ICU (IPAL-ICU) Advisory Board. Crit Care Med. 2013 Oct;41(10):2318-27.

Petriwskyj A, Parker D, Robinson A, Gibson A, Andrews S, Banks S. Family involvement in decision making for people with dementia in residential aged care: a systematic review of quantitative and qualitative evidence. JBI Database System Rev Implement Rep. 2013 July;11(7):131-282.


Clark AM, Savard LA, Spaling MA, Heath S, Duncan AS, Spiers JA. Understanding help-seeking decisions in people with heart failure: a qualitative systematic review. Int J Nurs Stud. 2012 Dec;49(12):1582-97. Epub 2012 Jun 19.

Dy SM, Aslakson R, Wilson RF, Fawole OA, Lau BD, Martinez KA, Vollenweider D, Apostol C, Bass EB. Improving health care and palliative care for advanced and serious illness. Agency for Healthcare Research and Quality. Rockville, MD, October 2012. [No abstract available]

Heinze KE, Nolan MT. Parental decision making for children with cancer at the end of life: a meta-ethnography. J Pediatr Oncol Nurs. 2012 Nov-Dec;29(6):337-45. Epub 2012 Sep 19.

Kelly B, Rid A, Wendler D. Systematic review: individuals' goals for surrogate decision-making. J Am Geriatr Soc. 2012 May;60(5):884-95.

Rietjens JA, Deschepper R, Pasman R, Deliens L. Medical end-of-life decisions: does its use differ in vulnerable patient groups? A systematic review and meta-analysis. Soc Sci Med. 2012 Apr;74(8):1282-7. Epub 2012 Feb 17.


Barclay S, Momen N, Case-Upton S, Kuhn I, Smith E. End-of-life care conversations with heart failure patients: a systematic literature review and narrative synthesis. Br J Gen Pract. 2011 Jan;61(582):e49-62.

Bélanger E, Rodríguez C, Groleau D. Shared decision-making in palliative care: A systematic mixed studies review using narrative synthesis. Palliat Med. 2011 Apr;25(3):242-61. Epub 2011 Jan 27.

Billings JA.The end-of-life family meeting in intensive care part I: Indications, outcomes, and family needs. J Palliat Med. 2011 Sep;14(9):1042-50.

Burkle CM, Schipper AM, Wijdicks EFM. Brain death and the courts. Neurology. 2011 Mar 1;76(9):837-41.

Frost DW, Cook DJ, Heyland DK, Fowler RA. Patient and healthcare professional factors influencing end-of-life decision-making during critical illness: A systematic review. Crit Care Med. 2011 May;39(5):1174-89.

Melhado LW, Byers JF. Patients' and surrogates' decision-making characteristics: withdrawing, withholding, and continuing life-sustaining treatments. J Hosp Palliat Nurs. 2011 Jan-Feb;13(1):16-30.

Strech D, Schildmann J. Quality of ethical guidelines and ethical content in clinical guidelines: the example of end-of-life decision-making. J Med Ethics. 2011 Jul;37(7):390-6. Epub 2011 Feb 22.

Strohschein FJ, Bergman H, Carnevale FA, Loiselle CG. Patient decision making among older individuals with cancer. Qual Health Res. 2011 Jul;21(7):900-26. Epub 2011 Feb 22.

Wendler D, Rid A. Systematic review: the effect on surrogates of making treatment decisions for others. Ann Intern Med. 2011 Mar 1;154(5):336-46.

Wilson F, Gott M, Ingleton C. Perceived risks around choice and decision making at end-of-life: a literature review. Palliat Med. 2011 Oct 12. [Epub ahead of print]


Biedrzycki BA. Decision making for cancer clinical trial participation: a systematic review. Oncol Nurs Forum. 2010 Nov 1;37(6):E387-99.

Morton RL, Tong A, Howard K, Snelling P, Webster AC. The views of patients and carers in treatment decision making for chronic kidney disease: systematic review and thematic synthesis of qualitative studies. BMJ. 2010 Jan 19;340:c112. doi: 10.1136/bmj.c112.

Schofield P, Diggens J, Charleson C, Marigliani R, Jefford M. Effectively discussing complementary and alternative medicine in a conventional oncology setting: communication recommendations for clinicians. Patient Educ Couns. 2010 May;79(2):143-51. Epub 2009 Sep 26.

Sepucha K, Ozanne EM. How to define and measure concordance between patients' preferences and medical treatments: a systematic review of approaches and recommendations for standardization. Patient Educ Couns. 2010 Jan;78(1):12-23. Epub 2009 Jun 30.


Frank RK. Shared decision making and its role in end of life care. Br J Nurs. 2009 May 28;18(10):612-8.

Meeker MA, Jezewski MA. Metasynthesis: withdrawing life-sustaining treatments: the experience of family decision-makers. J Clin Nurs. 2009 Jan;18(2):163-73.

Mitchell BL, Mitchell LC. Review of the literature on cultural competence and end-of-life treatment decisions: the role of the hospitalist. J Natl Med Assoc. 2009 Sep;101(9):920-6.

Saposnik G, Basile VS, Young GB. Movements in brain death: a systematic review. Can J Neurol Sci. 2009 Mar;36(2):154-60.

Shah SG, Farrow A, Robinson I. The representation of healthcare end users' perspectives by surrogates in healthcare decisions: a literature review. Scand J Caring Sci. 2009 Sep 9. [Epub ahead of print]

Zafar SY, Alexander SC, Weinfurt KP, Schulman KA, Abernethy AP. Decision making and quality of life in the treatment of cancer: a review. Support Care Cancer. 2009 Feb;17(2):117-27.


Jackson C, Cheater FM, Reid I. A systematic review of decision support needs of parents making child health decisions. Health Expect. 2008 Sep;11(3):232-51.

Noble H, Meyer J, Bridges J, Kelly D, Johnson B. Patient experience of dialysis refusal or withdrawal-a review of the literature. J Ren Care. 2008 Jun;34(2):94-100.

Winterbottom A, Bekker HL, Conner M, Mooney A. Does narrative information bias individual's decision making? A systematic review. Soc Sci Med. 2008 Dec;67(12):2079-88. Epub 2008 Oct 24.


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Last updated 05 February 2024