Review collection - Chronic diseases

68 reviews


Beresford CJ, Gelling L, Baron S, Thompson L. The experiences of people with liver disease of palliative and end-of-life care in the United Kingdom-A systematic literature review and metasynthesis. Health Expect. 2023 Oct 19.

Blume ED, Kirsch R, Cousino MK, Walter JK, Steiner JM, Miller TA, Machado D, Peyton C, Bacha E, Morell E; American Heart Association Pediatric Heart Failure and Transplantation Committee of the Council on Lifelong Congenital Heart Disease and Heart Health in the Young. Palliative Care Across the Life Span for Children With Heart Disease: A Scientific Statement From the American Heart Association. Circ Cardiovasc Qual Outcomes. 2023 Jan 12:e000114. doi: 10.1161/HCQ.0000000000000114. Epub ahead of print.

Cappucci SP, Smith WS, Schwartzstein R, White DB, Mitchell SL, Fehnel CR. End-Of-Life Care in the Potential Donor after Circulatory Death: A Systematic Review. Neurohospitalist. 2023 Jan;13(1):61-68. doi: 10.1177/19418744221123194. Epub 2022 Oct 9.

Chan LML, Yan OY, Lee JJJ, Lam WWT, Lin CC, Auyeung M, Bloem BR, Kwok JYY. Effects of Palliative Care for Progressive Neurologic Diseases: A Systematic Review and Meta-Analysis. J Am Med Dir Assoc. 2023 Feb;24(2):171-184. doi: 10.1016/j.jamda.2022.11.001. Epub 2022 Dec 5.

George LS, Epstein RM, Akincigil A, Saraiya B, Trevino KM, Kuziemski A, Pushparaj L, Policano E, Prigerson HG, Godwin K, Duberstein P. Psychological Determinants of Physician Variation in End-of-Life Treatment Intensity: A Systematic Review and Meta-Synthesis. J Gen Intern Med. 2023 Feb 2. doi: 10.1007/s11606-022-08011-4. Epub ahead of print.

Hickman E, Seawoodharry M, Gillies C, Khunti K, Seidu S. Deprescribing in cardiometabolic conditions in older patients: a systematic review. Geroscience. 2023 Jul 5. doi: 10.1007/s11357-023-00852-z. Epub ahead of print.

Kawashima A, Evans CJ. Needs-based triggers for timely referral to palliative care for older adults severely affected by noncancer conditions: a systematic review and narrative synthesis. BMC Palliat Care. 2023 Mar 9;22(1):20. doi: 10.1186/s12904-023-01131-6.

Kernick L, Glare P, Hosie A, Chiu A, Kissane DW. Prevalence and management of chronic nonmalignant pain in palliative care populations: A systematic review. Palliat Support Care. 2023 Apr 11:1-7. doi: 10.1017/S1478951523000378. Epub ahead of print.

Santos MF, Reis-Pina P. Palliative care interventions in chronic respiratory diseases: A systematic review. Respir Med. 2023 Sep 17;219:107411. doi: 10.1016/j.rmed.2023.107411. Epub ahead of print.

Warnock L, Gates A. Airway clearance techniques compared to no airway clearance techniques for cystic fibrosis. Cochrane Database Syst Rev. 2023 Apr 12;4(4):CD001401. doi: 10.1002/14651858.CD001401.pub4.


Chyr LC, Sauers EG, Dy SM, Waldfogel JM. The Application of Minimal Clinically Important Differences in Palliative Research: Interpretation of Results of a Systematic Review. J Pain Symptom Manage. 2022 Aug 21:S0885-3924(22)00861-2. doi: 10.1016/j.jpainsymman.2022.08.008. Epub ahead of print.

Chyr LC, DeGroot L, Waldfogel JM, Hannum SM, Sloan DH, Cotter VT, Zhang A, Heughan JA, Wilson RF, Robinson KA, Dy SM. Implementation and Effectiveness of Integrating Palliative Care Into Ambulatory Care of Noncancer Serious Chronic Illness: Mixed Methods Review and Meta-Analysis. Ann Fam Med. 2022 Jan-Feb;20(1):77-83. doi: 10.1370/afm.2754.

Clarke G, Chapman E, Crooks J, Koffman J, Ahmed S, Bennett MI. Does ethnicity affect pain management for people with advanced disease? A mixed methods cross-national systematic review of 'very high' Human Development Index English-speaking countries. BMC Palliat Care. 2022 Apr 6;21(1):46. doi: 10.1186/s12904-022-00923-6.

Coffey M, Edwards D, Anstey S, Gill P, Mann M, Meudell A, Hannigan B. End-of-life care for people with severe mental illness: mixed methods systematic review and thematic synthesis of published case studies (the MENLOC study). BMJ Open. 2022 Feb 22;12(2):e053223. doi: 10.1136/bmjopen-2021-053223.

Davies H, Waduud MA, Laloo R, Wyld L, Wallace T, de Siqueira JR, Bennett MI, Scott DJA. Palliative Care Interventions for Peripheral Artery Disease: A Systematic Review and Narrative Synthesis. J Palliat Med. 2022 Feb;25(2):319-326. doi: 10.1089/jpm.2021.0393. Epub 2021 Dec 2.

Govind N, Ferguson C, Phillips JL, Hickman L. Palliative care interventions and end of life care as reported by patients' post-stroke and their families: a systematic review. Eur J Cardiovasc Nurs. 2022 Nov 29:zvac112. doi: 10.1093/eurjcn/zvac112. Epub ahead of print.

Llop-Medina L, Fu Y, Garcés-Ferrer J, Doñate-Martínez A. Palliative Care in Older People with Multimorbidities: A Scoping Review on the Palliative Care Needs of Patients, Carers, and Health Professionals. Int J Environ Res Public Health. 2022 Mar 8;19(6):3195. doi: 10.3390/ijerph19063195.

Marston C, Morgan DD, Philip J, Agar M. Supporting Carers as Patients Move between Hospital and Home: A Systematic Review of Interventions to Support These Transitions in Care. J Palliat Med. 2022 Oct 13. doi: 10.1089/jpm.2022.0221. Epub ahead of print.

Riley K, Hupcey JE, Kowalchik K. Palliative Care in Severe and Persistent Mental Illness: A Systematic Review. J Hosp Palliat Nurs. 2022 Mar 10. doi: 10.1097/NJH.0000000000000855. Epub ahead of print.

Rosa WE, Roberts KE, Braybrook D, Harding R, Godwin K, Mahoney C, Mathew S, Atkinson TM, Banerjee SC, Haviland K, Hughes TL, Walters CB, Parker PA. Palliative and end-of-life care needs, experiences, and preferences of LGBTQ+ individuals with serious illness: A systematic mixed-methods review. Palliat Med. 2022 Dec 7:2692163221124426. doi: 10.1177/02692163221124426. Epub ahead of print.

Waller A, Hobden B, Fakes K, Clark K. A Systematic Review of the Development and Implementation of Needs-Based Palliative Care Tools in Heart Failure and Chronic Respiratory Disease. Front Cardiovasc Med. 2022 Apr 13;9:878428. doi: 10.3389/fcvm.2022.878428.


Afolabi OA, Nkhoma K, Maddocks M, Harding R. What constitutes a palliative care need in people with serious illnesses across Africa? A mixed-methods systematic review of the concept and evidence. Palliat Med. 2021 Apr 16:2692163211008784. doi: 10.1177/02692163211008784. Epub ahead of print.

Amado-Tineo JP, Oscanoa-Espinoza T, Vásquez-Alva R, Huari-Pastrana R, Delgado-Guay MO. Emergency Department Use by Terminally Ill Patients: A Systematic Review. J Pain Symptom Manage. 2021 Mar;61(3):531-543. doi: 10.1016/j.jpainsymman.2020.08.009. Epub 2020 Aug 19.

Battista V, Baker DJ, Trimarchi T, Sabri B, Wright R, D'Aoust RF. Advance Directives for Adolescents and Young Adults Living With Neuromuscular Disease: An Integrative Review of the Literature. J Hosp Palliat Nurs. 2021 Oct 1;23(5):492-498. doi: 10.1097/NJH.0000000000000786.

Bayly J, Bone AE, Ellis-Smith C, Tunnard I, Yaqub S, Yi D, Nkhoma KB, Cook A, Combes S, Bajwah S, Harding R, Nicholson C, Normand C, Ahuja S, Turrillas P, Kizawa Y, Morita T, Nishiyama N, Tsuneto S, Ong P, Higginson IJ, Evans CJ, Maddocks M. Common elements of service delivery models that optimise quality of life and health service use among older people with advanced progressive conditions: a tertiary systematic review. BMJ Open. 2021 Dec 1;11(12):e048417. doi: 10.1136/bmjopen-2020-048417.

Cowey E, Schichtel M, Cheyne JD, Tweedie L, Lehman R, Melifonwu R, Mead GE. Palliative care after stroke: A review. Int J Stroke. 2021 May 17:17474930211016603. doi: 10.1177/17474930211016603. Epub ahead of print.

Genuis SK, Luth W, Campbell S, Bubela T, Johnston WS. Communication About End of Life for Patients Living With Amyotrophic Lateral Sclerosis: A Scoping Review of the Empirical Evidence. Front Neurol. 2021 Aug 4;12:683197. doi: 10.3389/fneur.2021.683197.

Kmetec S, Fekonja Z, Kolarič JČ, Reljić NM, McCormack B, Sigurðardóttir ÁK, Lorber M. Components for providing person-centred palliative healthcare: An umbrella review. Int J Nurs Stud. 2021 Oct 17;125:104111. doi: 10.1016/j.ijnurstu.2021.104111. Epub ahead of print.

Kühne F, Hermann M, Preisler M, Rohrmoser A, Letsch A, Goerling U. Prognostic Awareness in Advanced Disease: A Review Update and Concept Analysis. Front Psychol. 2021 Jun 24;12:629050. doi: 10.3389/fpsyg.2021.629050.

Kukla H, Herrler A, Strupp J, Voltz R. The effects of confronting one's own end of life on older individuals and those with a life-threatening disease: A systematic literature review. Palliat Med. 2021 Sep 6:2692163211042528. doi: 10.1177/02692163211042528. Epub ahead of print.

Laurentius A, Wiyono L, Subali AD, Siagian SN. Evaluation of Right Ventricular Outflow Tract Stenting as Palliative Treatment in Severely Cyanotic Tetralogy of Fallot: A Systematic Review and Meta-analysis of Observational Studies. J Tehran Univ Heart Cent. 2021; 16(4): 135-146. doi: 10.18502/jthc.v16i4.8599

 Leeper H, Cooper D, Armstrong T. Palliative Care Intervention Trials for Adults Living With Progressive Central Nervous System Diseases and Their Caregivers: A Systematic Review. J Pain Symptom Manage. 2021 Jun 18:S0885-3924(21)00386-9. doi: 10.1016/j.jpainsymman.2021.06.010. Epub ahead of print.

Maqsood MH, Khan MS, Warraich HJ. Association of Palliative Care Intervention With Health Care Use, Symptom Burden and Advance Care Planning in Adults With Heart Failure and Other Noncancer Chronic Illness. J Pain Symptom Manage. 2021 Feb 22:S0885-3924(21)00206-2. doi: 10.1016/j.jpainsymman.2021.02.017. Epub ahead of print.

Mason B, Boyd K, Doubal F, Barber M, Brady M, Cowey E, Visvanathan A, Lewis S, Gallacher K, Morton S, Mead GE. Core Outcome Measures for Palliative and End-of-Life Research After Severe Stroke: Mixed-Method Delphi Study. Stroke. 2021 Nov;52(11):3507-3513. doi: 10.1161/STROKEAHA.120.032650. Epub 2021 Jul 16.

Mole SE, Schulz A, Badoe E, Berkovic SF, de Los Reyes EC, Dulz S, Gissen P, Guelbert N, Lourenco CM, Mason HL, Mink JW, Murphy N, Nickel M, Olaya JE, Scarpa M, Scheffer IE, Simonati A, Specchio N, Von Löbbecke I, Wang RY, Williams RE. Guidelines on the diagnosis, clinical assessments, treatment and management for CLN2 disease patients. Orphanet J Rare Dis. 2021 Apr 21;16(1):185. doi: 10.1186/s13023-021-01813-5.

Palmer E, Kavanagh E, Visram S, Bourke AM, Forrest I, Exley C. Which factors influence the quality of end-of-life care in interstitial lung disease? A systematic review with narrative synthesis. Palliat Med. 2021 Dec 17:2692163211059340. doi: 10.1177/02692163211059340. Epub ahead of print.

Pel-Littel RE, Snaterse M, Teppich NM, Buurman BM, van Etten-Jamaludin FS, van Weert JCM, Minkman MM, Scholte Op Reimer WJM. Barriers and facilitators for shared decision making in older patients with multiple chronic conditions: a systematic review. BMC Geriatr. 2021 Feb 6;21(1):112. doi: 10.1186/s12877-021-02050-y.

Thirunavu V, Du R, Wu JY, Berg AT, Lam SK. The role of surgery in the management of Lennox-Gastaut syndrome: A systematic review and meta-analysis of the clinical evidence. Epilepsia. 2021 Apr;62(4):888-907. doi: 10.1111/epi.16851. Epub 2021 Feb 24.

Topoll A, Arnold R. In chronic noncancer illness, palliative care reduces symptoms and health care use but does not improve QoL. Ann Intern Med. 2021 Mar;174(3):JC31. doi: 10.7326/ACPJ202103160-031. Epub 2021 Mar 2.

Wallin V, Omerov P, Mattsson E, Klarare A. Experiences of food and mealtime from the perspective of patients with chronic life-limiting disease: A mixed-method systematic review. J Adv Nurs. 2021 Nov;77(11):4400-4413. doi: 10.1111/jan.14927. Epub 2021 Jun 16.


Boscart V, Davey M, Crutchlow L, Heyer M, Johnson K, Taucar LS, Costa AP, Heckman G. Effective Chronic Disease Interventions in Nursing Homes: A Scoping Review Based on the Knowledge-to-Action Framework. Clin Gerontol. 2020 Jan 5:1-20. doi: 10.1080/07317115.2019.1707339. Epub ahead of print.

Damarell RA, Morgan DD, Tieman JJ, Healey D. Bolstering General Practitioner Palliative Care: A Critical Review of Support Provided by Australian Guidelines for Life-Limiting Chronic Conditions. Healthcare (Basel). 2020 Dec 11;8(4):553. doi: 10.3390/healthcare8040553.

Fenwick KE, Swan BA. Managing Dyspnea in Individuals With Idiopathic Pulmonary Fibrosis. J Hosp Palliat Nurs. 2020 Dec;22(6):447-455. doi: 10.1097/NJH.0000000000000687.

González-González AI, Schmucker C, Nothacker J, Nury E, Dinh TS, Brueckle MS, Blom JW, van den Akker M, Röttger K, Wegwarth O, Hoffmann T, Gerlach FM, Straus SE, Meerpohl JJ, Muth C. End-of-Life Care Preferences of Older Patients with Multimorbidity: A Mixed Methods Systematic Review. J Clin Med. 2020 Dec 29;10(1):91. doi: 10.3390/jcm10010091.

Jaiswal N, Singh M, Agarwal A, Chauhan A, Jaiswal N. Palliative drug treatments for breathlessness in cystic fibrosis. Cochrane Database Syst Rev. 2020 Apr 28;4(4):CD011855. doi: 10.1002/14651858.CD011855.pub3.

Kapnadak SG, Dimango E, Hadjiliadis D, Hempstead SE, Tallarico E, Pilewski JM, Faro A, Albright J, Benden C, Blair S, Dellon EP, Gochenour D, Michelson P, Moshiree B, Neuringer I, Riedy C, Schindler T, Singer LG, Young D, Vignola L, Zukosky J, Simon RH. Cystic Fibrosis Foundation consensus guidelines for the care of individuals with advanced cystic fibrosis lung disease. J Cyst Fibros. 2020 Feb 27:S1569-1993(20)30064-3. doi: 10.1016/j.jcf.2020.02.015. Epub ahead of print.

Kavalieratos D, Georgiopoulos AM, Dhingra L, Basile MJ, Rabinowitz E, Hempstead SE, Faro A, Dellon EP; Committee on Palliative Care in Cystic Fibrosis. Models of Palliative Care Delivery for Individuals with Cystic Fibrosis: Cystic Fibrosis Foundation Evidence-Informed Consensus Guidelines. J Palliat Med. 2020 Sep 16. doi: 10.1089/jpm.2020.0311. Epub ahead of print.

Lee JYT, Tikellis G, Corte TJ, Goh NS, Keir GJ, Spencer L, Sandford D, Khor YH, Glaspole I, Price J, Hey-Cunningham AJ, Maloney J, Teoh AKY, Watson AL, Holland AE. The supportive care needs of people living with pulmonary fibrosis and their caregivers: a systematic review. Eur Respir Rev. 2020 Apr 29;29(156):190125. doi: 10.1183/16000617.0125-2019.

Loggers SAI, Van Lieshout EMM, Joosse P, Verhofstad MHJ, Willems HC. Prognosis of nonoperative treatment in elderly patients with a hip fracture: A systematic review and meta-analysis. Injury. 2020 Aug 23:S0020-1383(20)30703-8. doi: 10.1016/j.injury.2020.08.027. Epub ahead of print.

Luckett T, San Martin A, Currow DC, Johnson MJ, Barnes-Harris MM, Phillips JL. A systematic review and meta-analysis of studies comparing burden from lung cancer and chronic obstructive pulmonary disease. Palliat Med. 2020 Jul 28:269216320940153. doi: 10.1177/0269216320940153. Epub ahead of print.

Nzwalo I, Aboim MA, Joaquim N, Marreiros A, Nzwalo H. Systematic Review of the Prevalence, Predictors, and Treatment of Insomnia in Palliative Care. Am J Hosp Palliat Care. 2020 Feb 26:1049909120907021. doi: 10.1177/1049909120907021. Epub ahead of print.

Parker KJ, Hickman LD, Phillips JL, Ferguson C. Interventions to optimise transitional care coordination for older people living with dementia and concomitant multimorbidity and their caregivers: A systematic review. Contemp Nurse. 2020 Sep 10:1-29. doi: 10.1080/10376178.2020.1812416. Epub ahead of print.

Quinn KL, Shurrab M, Gitau K, Kavalieratos D, Isenberg SR, Stall NM, Stukel TA, Goldman R, Horn D, Cram P, Detsky AS, Bell CM. Association of Receipt of Palliative Care Interventions With Health Care Use, Quality of Life, and Symptom Burden Among Adults With Chronic Noncancer Illness: A Systematic Review and Meta-analysis. JAMA. 2020 Oct 13;324(14):1439-1450. doi: 10.1001/jama.2020.14205.

Wan HWY, Carey KA, D'Silva A, Vucic S, Kiernan MC, Kasparian NA, Farrar MA. Health, wellbeing and lived experiences of adults with SMA: a scoping systematic review. Orphanet J Rare Dis. 2020 Mar 12;15(1):70. doi: 10.1186/s13023-020-1339-3.


van Jaarsveld MF, Gwyther L. A systematic review of literature to evaluate the burden of physical and psychological symptoms and palliative care in patients diagnosed with idiopathic pulmonary fibrosis. Afr J Thorac Crit Care Med. 2019 Apr 12;25(1):10.7196/AJTCCM.2019.v25i1.231. doi: 10.7196/AJTCCM.2019.v25i1.231.p


Baird LG, Fraser K. Home Care Case Managers' Integrated Care of Older Adults With Multiple Chronic Conditions: A Scoping Review. Prof Case Manag. 2018 Jul/Aug;23(4):165-189. doi: 10.1097/NCM.0000000000000286.

Brighton LJ, Miller S, Farquhar M, Booth S, Yi D, Gao W, Bajwah S, Man WD, Higginson IJ, Maddocks M. Holistic services for people with advanced disease and chronic breathlessness: a systematic review and meta-analysis. Thorax. 2018 Nov 29. pii: thoraxjnl-2018-211589. doi: 10.1136/thoraxjnl-2018-211589. [Epub ahead of print]

Igai Y. A narrative literature review of palliative care regarding patients with idiopathic pulmonary fibrosis. Nurs Open. 2018 Jun 3;5(4):536-545. doi: 10.1002/nop2.163. eCollection 2018 Oct.

Kim JW, Atkins C, Wilson AM. Barriers to specialist palliative care in interstitial lung disease: a systematic review. BMJ Support Palliat Care. 2018 Nov 21. pii: bmjspcare-2018-001575. doi: 10.1136/bmjspcare-2018-001575. [Epub ahead of print]

Kim K, Heinze K, Xu J, Kurtz M, Park H, Foradori M, Nolan MT. Theories of Health Care Decision Making at the End of Life: A Meta-Ethnography. West J Nurs Res. 2018 Dec;40(12):1861-1884. doi: 10.1177/0193945917723010. Epub 2017 Aug 17.

O'Halloran P, Noble H, Norwood K, Maxwell P, Shields J, Fogarty D, Murtagh F, Morton R, Brazil K. Advance care planning with patients who have end-stage kidney disease: a systematic realist review. J Pain Symptom Manage. 2018 Jul 16. pii: S0885-3924(18)30347-6. doi: 10.1016/j.jpainsymman.2018.07.008. [Epub ahead of print]

Phongtankuel V, Meador L, Adelman RD, Roberts J, Henderson CR Jr, Mehta SS, Del Carmen T, Reid MC. Multicomponent Palliative Care Interventions in Advanced Chronic Diseases: A Systematic Review. Am J Hosp Palliat Care. 2018 Jan;35(1):173-183. doi: 10.1177/1049909116674669. Epub 2016 Nov 10.

Pinquart M. Parenting stress in caregivers of children with chronic physical condition—A meta‐analysis. Stress Health. 2018 Apr;34(2):197-207. doi: 10.1002/smi.2780. Epub 2017 Aug 18.

Rowbotham NJ, Palser SC, Smith SJ, Smyth AR. Infection prevention and control in cystic fibrosis: a systematic review of interventions. Expert Rev Respir Med. 2019 Mar 20:1-10. doi: 10.1080/17476348.2019.1595594. [Epub ahead of print]

Sherifali D, Ali MU, Ploeg J, Markle-Reid M, Valaitis R, Bartholomew A, Fitzpatrick-Lewis D, McAiney C. Impact of Internet-Based Interventions on Caregiver Mental Health: Systematic Review and Meta-Analysis. J Med Internet Res. 2018 Jul 3;20(7):e10668. doi: 10.2196/10668.

Sin J, Henderson C, Spain D, Cornelius V, Chen T, Gillard S. eHealth interventions for family carers of people with long term illness: A promising approach? Clin Psychol Rev. 2018 Mar;60:109-125. doi: 10.1016/j.cpr.2018.01.008. Epub 2018 Feb 2.

Wagle KC, Skopelja EN, Campbell NL. Caregiver-Based Interventions to Optimize Medication Safety in Vulnerable Elderly Adults: A Systematic Evidence-Based Review. J Am Geriatr Soc. 2018 Aug 23. doi: 10.1111/jgs.15556. [Epub ahead of print]

Last updated 01 November 2023