Review collection - Carers 

342 reviews


Llop-Medina L, Ródenas-Rigla F, Gallego-Valadés A, Garcés-Ferrer J. Factorial structure of quality of life, satisfaction with caregiving and caregiver burden in palliative care: A systematic review. Nurs Open. 2024;11(1).

Walbaum C, Philipp R, Oechsle K, Ullrich A, Vehling S. Existential distress among family caregivers of patients with advanced cancer: A systematic review and meta-analysis. Psychooncology. 2024;33(1):e6239.


Agustina R, Ispriantari A, Konlan KD, Lin MF. Impact of early palliative care on the quality of life in caregivers of cancer patients: A systematic review. Worldviews Evid Based Nurs. 2023 Jan 13. doi: 10.1111/wvn.12629. Epub ahead of print.

Alshakhs S, Park T, McDarby M, Reid MC, Czaja S, Adelman R, et al. Interventions for family caregivers of patients receiving palliative/hospice care at home: A scoping review. J Palliat Med. 2023 Aug 11.

Baltazar AO, Popejoy L. Health Literacy of Surrogates and Communication Issues in Palliative Care Conversations in Critical Care: An Integrative Review. J Hosp Palliat Nurs. 2023 Feb 1;25(1):39-44. doi: 10.1097/NJH.0000000000000921. Epub 2022 Nov 22.

Batista S, Sapeta P. The care process between informal caregivers and patients with palliative care needs at home: Meta-synthesis. Rev Enf Ref. 2023 Jun 20;6(2):1-10. doi: 10.12707/RVI22074

Becqu YN, van der Wel M, Aktan-Arslan M, van AG, Rietjens DJ, van der Heide A, Witkamp E, Watson M. Supportive interventions for family caregivers of patients with advanced cancer: A systematic review. Psychooncology. 2023 Mar 23. doi: 10.1002/pon.6126. Epub ahead of print.

Bosco A, Di Lorito C, Yang Y, Dunlop M, Booth A, Alexander D, et al. Caregiver experiences of hospice dementia care: A systematic review and meta-ethnography. Aging Ment Health. 2023 Sep 5:1-10.

Chan LML, Yan OY, Lee JJJ, Lam WWT, Lin CC, Auyeung M, Bloem BR, Kwok JYY. Effects of Palliative Care for Progressive Neurologic Diseases: A Systematic Review and Meta-Analysis. J Am Med Dir Assoc. 2023 Feb;24(2):171-184. doi: 10.1016/j.jamda.2022.11.001. Epub 2022 Dec 5.

Chen HL, Li C, Wang J, Fei Y, Min M, Zhao Y, Shan EF, Yin YH, Liu CY, Li XW. Non-Pharmacological Interventions for Feeding and Eating Disorders in Persons with Dementia: Systematic Review and Evidence Summary. J Alzheimers Dis. 2023;94(1):67-88. doi: 10.3233/JAD-221032.

Chen Y, Qiao C, Zhang X, Li W, Yang H. The Effect of Tele-palliative Care on Patient and Caregiver Outcomes: A Systematic Review. Am J Hosp Palliat Care. 2023 Aug;40(8):907-925. doi: 10.1177/10499091221123566. Epub 2022 Sep 14.

Chrastina J, Haroková M. End of Life in Boys and Young Men With Duchenne Muscular Dystrophy - The Perspective of Dying Men and Their Families: A Systematic Review and Thematic Synthesis of Qualitative Evidence. Omega (Westport). 2023 Jul 5:302228231186358. doi: 10.1177/00302228231186358. Epub ahead of print.

Cronin M, McLoughlin K, Foley T, McGilloway S. Supporting family carers in general practice: A scoping review of clinical guidelines and recommendations. BMC Prim Care. 2023;24(1):234.

Daudt HM, Spargo EL. Challenges and Facilitators for Psychosocial Support when Aging and Dying in Place: A Rapid Review of the Literature. Can J Aging. 2023 Mar;42(1):135-153. doi: 10.1017/S071498082200023X. Epub 2022 Jun 28.

Dehpour T, Koffman J. Assessment of anticipatory grief in informal caregivers of dependants with dementia: a systematic review. Aging Ment Health. 2023 Jan;27(1):110-123. doi: 10.1080/13607863.2022.2032599. Epub 2022 Feb 15.

Dhumal T, Siddiqui ZA, Kelley GA, Harper F, Kelly KM. Systematic review and meta-analysis of randomized controlled trials of interventions addressing caregiver distress and burden among cancer caregivers. PEC Innov. 2023 Dec;2:100145. doi: 10.1016/j.pecinn.2023.100145.

Gibson Watt T, Gillanders D, Spiller JA, Finucane AM. Acceptance and Commitment Therapy (ACT) for people with advanced progressive illness, their caregivers and staff involved in their care: A scoping review. Palliat Med. 2023 Jul 25:2692163231183101. doi: 10.1177/02692163231183101. Epub ahead of print.

Hoff T, Trovato K, Kitsakos A. Hospice Satisfaction Among Patients, Family, and Caregivers: A Systematic Review of the Literature. Am J Hosp Palliat Care. 2023 Jul 19:10499091231190778. doi: 10.1177/10499091231190778. Epub ahead of print.

Kardosod A, Needham J, Coyne E. The experiences and needs of metastatic spinal cancer family caregivers at home: a systematic review. Support Care Cancer. 2023 Apr 29;31(5):310. doi: 10.1007/s00520-023-07777-5.

Liu X, Jiang L, Peng X, Xu L, Huang L, Wan Q. Evaluating the effects of dyadic intervention for informal caregivers of palliative patients with lung cancer: A systematic review and meta-analysis. Int J Nurs Pract. 2023

McAndrew NS, Gray TF, Wallace L, Calkins K, Guttormson J, Harding ES, Applebaum AJ. Existential distress in family caregivers: scoping review of meaning-making interventions. BMJ Support Palliat Care. 2023 Aug 21:spcare-2023-004448. doi: 10.1136/spcare-2023-004448. Epub ahead of print.

Nowels MA, Kalra S, Duberstein PR, Coakley E, Saraiya B, George L, Kozlov E. Palliative Care Interventions Effects on Psychological Distress: A Systematic Review & Meta-Analysis. J Pain Symptom Manage. 2023 Feb 8:S0885-3924(23)00060-X. doi: 10.1016/j.jpainsymman.2023.02.001. Epub ahead of print.

Ongko E, Philip J, Zomerdijk N. Perspectives in preparedness of family caregivers of patients with cancer providing end-of-life care in the home: A narrative review of qualitative studies. Palliat Support Care. 2023 Jul 27:1-11. doi: 10.1017/S1478951523001013. Epub ahead of print.

Paterson C, Roberts C, Li J, Chapman M, Strickland K, Johnston N, Law E, Bacon R, Turner M, Mohanty I, Pranavan G, Toohey K. What are the experiences of supportive care in people affected by brain cancer and their informal caregivers: A qualitative systematic review. J Cancer Surviv. 2023 May 31:1–22. doi: 10.1007/s11764-023-01401-5. Epub ahead of print.

Perea-Bello AH, Trapero-Bertran M, Dürsteler C. Palliative care costs in different ambulatory-based settings: A systematic review. Pharmacoeconomics. 2023 Dec 27.

Pitts J, Geller G, Muller A. Caregiver experiences in administering subcutaneous medications to community palliative care patients: Integrative review. Home Health Care Serv Q. 2023 Feb 1:1-19. doi: 10.1080/01621424.2022.2164539. Epub ahead of print.

Sánchez-Alcón M, Sánchez-Ramos JL, Garrido-Fernández A, Sosa-Cordobés E, Ortega-Galán Á M, Ramos-Pichardo JD. Effectiveness of interventions aimed at improving grief and depression in caregivers of people with dementia: A systematic review and meta-analysis. Int J Ment Health Nurs. 2023 Oct;32(5):1211-1224.

Trucco AP, Backhouse T, Mioshi E, Kishita N. Factors associated with grief in informal carers of people living with Motor Neuron Disease: A mixed methods systematic review. Death Stud. 2023 Mar 30:1-15. doi: 10.1080/07481187.2023.2191351. Epub ahead of print.

Valleggi A, Passino C, Emdin M, Murante AM. Differences in family caregiver experiences and expectations of end-of-life heart failure care across providers and settings: a systematic literature review. BMC Health Serv Res. 2023 May 3;23(1):429. doi: 10.1186/s12913-023-09241-w.

Walbaum C, Philipp R, Oechsle K, Ullrich A, Vehling S. Existential distress among family caregivers of patients with advanced cancer: A systematic review and meta-analysis. Psychooncology. 2023 Nov 20.

Weiss CR, Baker C, Gillespie A, Jones J. Ambiguous loss in family caregivers of loved ones with cancer, a synthesis of qualitative studies. J Cancer Surviv. 2023 Apr;17(2):484-498. doi: 10.1007/s11764-022-01286-w. Epub 2022 Nov 18.

Whelden T, Sawin EM. Therapeutic Horticulture for Dementia: A Systematic Review. J Gerontol Nurs. 2023 Jul;49(7):49-52. doi: 10.3928/00989134-20230616-03. Epub 2023 Jul 1.

Yıldız M, Terzioğlu C, Ayhan F. Psychosocial interventions aimed at family members caring for patients with cancer in the palliative period: A systematic review. Int J Nurs Knowl. 2023 Mar 31. doi: 10.1111/2047-3095.12423. Epub ahead of print.

Zhu Y, Pei X, Chen X, Li T. Family Caregivers' Experiences of Caring for Advanced Cancer Patients: A Qualitative Systematic Review and Meta-synthesis. Cancer Nurs. 2023 Jul-Aug 01;46(4):270-283. doi: 10.1097/NCC.0000000000001104. Epub 2022 Dec 11.


Baddeley E, Mann M, Bravington A, Johnson MJ, Currow D, Murtagh FEM, Boland EG, Obita G, Oliver A, Seddon K, Nelson A, Boland JW, Noble SIR. Symptom burden and lived experiences of patients, caregivers and healthcare professionals on the management of malignant bowel obstruction: A qualitative systematic review. Palliat Med. 2022 Mar 8:2692163221081331. doi: 10.1177/02692163221081331. Epub ahead of print.

Bergersen EB, Larsson M, Olsson C. Children and adolescents' preferences for support when living with a dying parent - An integrative review. Nurs Open. 2022 Feb 13. doi: 10.1002/nop2.1187. Epub ahead of print.

Boven C, Dillen L, Van den Block L, Piers R, Van Den Noortgate N, Van Humbeeck L. In-Hospital Bereavement Services as an Act of Care and a Challenge: An Integrative Review. J Pain Symptom Manage. 2022 Mar;63(3):e295-e316. doi: 10.1016/j.jpainsymman.2021.10.008. Epub 2021 Oct 22.

Crawley S, Sampson EL, Moore KJ, Kupeli N, West E. Grief in family carers of people living with dementia: A systematic review. Int Psychogeriatr. 2022 Jan 28:1-32. doi: 10.1017/S1041610221002787. Epub ahead of print.

Diggle MFJ, Schutz S, Butcher D. Bereaved Caregivers' Experiences of End of Life Care For People With Advanced Heart Failure: A Narrative Synthesis. Omega (Westport). 2022 Sep 13:302228221124636. doi: 10.1177/00302228221124636. Epub ahead of print.

Effendy C, Kurianto E, Darmayanti ARI, Noviana U, Nurjannah I. Palliative Care Education to Enhance Informal Caregivers’ Skills in Caring for Patients with Cancer: A Scoping Review. Open Access Maced J Med Sci. 2022 Jan. 2;10(G):69-75.

Hui-Lin C, Ting G. The experiences, perceptions, and support needs among family caregivers of patients with advanced cancer and eating problems: An integrative review. Palliat Med. 2022 Feb 21:2692163211058598. doi: 10.1177/02692163211058598. Epub ahead of print.

Llop-Medina L, Fu Y, Garcés-Ferrer J, Doñate-Martínez A. Palliative Care in Older People with Multimorbidities: A Scoping Review on the Palliative Care Needs of Patients, Carers, and Health Professionals. Int J Environ Res Public Health. 2022 Mar 8;19(6):3195. doi: 10.3390/ijerph19063195.

Malhotra C, Huynh VA, Shafiq M, Batcagan-Abueg APM. Advance care planning and caregiver outcomes: intervention efficacy - systematic review. BMJ Support Palliat Care. 2022 Jul 4:bmjspcare-2021-003488. doi: 10.1136/spcare-2021-003488. Epub ahead of print.

Marco DJ, Thomas K, Ivynian S, Wilding H, Parker D, Tieman J, Hudson P. Family carer needs in advanced disease: systematic review of reviews. BMJ Support Palliat Care. 2022 Jun;12(2):132-141. doi: 10.1136/bmjspcare-2021-003299. Epub 2022 Jan 7.

Marston C, Morgan DD, Philip J, Agar M. Supporting Carers as Patients Move between Hospital and Home: A Systematic Review of Interventions to Support These Transitions in Care. J Palliat Med. 2022 Oct 13. doi: 10.1089/jpm.2022.0221. Epub ahead of print.

Miele F, Neresini F, Boniolo G, Paccagnella O. Supportive care for older people with dementia: Socio-organisational implications. Ageing Soc. 2022;42(2):376-408. doi: 10.1017/S0144686X20000938

Mulcahy Symmons S, Ryan K, Aoun SM, Selman LE, Davies AN, Cornally N, Lombard J, McQuilllan R, Guerin S, O'Leary N, Connolly M, Rabbitte M, Mockler D, Foley G. Decision-making in palliative care: patient and family caregiver concordance and discordance-systematic review and narrative synthesis. BMJ Support Palliat Care. 2022 Mar 22:bmjspcare-2022-003525. doi: 10.1136/bmjspcare-2022-003525. Epub ahead of print.

Norling T, Donovan H. Palliative care education for care workers in aged care: A scoping review. Collegian. 2022 May 19. doi: 10.1016/j.colegn.2022.04.009

Opsomer S, Lauwerier E, De Lepeleire J, Pype P. Resilience in advanced cancer caregiving. A systematic review and meta-synthesis. Palliat Med. 2022 Jan;36(1):44-58. doi: 10.1177/02692163211057749. Epub 2022 Jan 5.

Patra L, Ghoshal A, Damani A, Salins N. Cancer palliative care referral: patients' and family caregivers' perspectives - a systematic review. BMJ Support Palliat Care. 2022 Nov 3:spcare-2022-003990. doi: 10.1136/spcare-2022-003990. Epub ahead of print.

Quinn KL, Krahn M, Stukel TA, Grossman Y, Goldman R, Cram P, Detsky AS, Bell CM. No Time to Waste: An Appraisal of Value at the End of Life. Value Health. 2022 Jun 8:S1098-3015(22)01966-0. doi: 10.1016/j.jval.2022.05.004. Epub ahead of print.

Singer J, Roberts KE, McLean E, Fadalla C, Coats T, Rogers M, Wilson MK, Godwin K, Lichtenthal WG. An examination and proposed definitions of family members' grief prior to the death of individuals with a life-limiting illness: A systematic review. Palliat Med. 2022 Feb 23:2692163221074540. doi: 10.1177/02692163221074540. Epub ahead of print.


Alshammari B, Noble H, McAneney H, Alshammari F, O'Halloran P. Factors Associated with Burden in Caregivers of Patients with End-Stage Kidney Disease (A Systematic Review). Healthcare (Basel). 2021 Sep 14;9(9):1212. doi: 10.3390/healthcare9091212.

Benites AC, Rodin G, Leite ACAB, Nascimento LC, Dos Santos MA. 'The experience of spirituality in family caregivers of adult and elderly cancer patients receiving palliative care: A meta-synthesis'. Eur J Cancer Care (Engl). 2021 Feb 5:e13424. doi: 10.1111/ecc.13424. Epub ahead of print.

Cameron P, Munyan K. Systematic Review of Telehospice Telemedicine and e-Health. Telemed J E Health. 2021 Jan 28. doi: 10.1089/tmj.2020.0451. Epub ahead of print.

Cuevas PE, Davidson P, Mejilla J, Rodney T. Dignity Therapy for End-of-Life Care Patients: A Literature Review. J Patient Exp. 2021 Feb 25;8:2374373521996951. doi: 10.1177/2374373521996951.

Duggleby W, Lee H, Nekolaichuk C, Fitzpatrick-Lewis D. Systematic review of factors associated with hope in family carers of persons living with chronic illness. J Adv Nurs. 2021 Apr 20. doi: 10.1111/jan.14858. Epub ahead of print.

Gonella S, Mitchell G, Bavelaar L, Conti A, Vanalli M, Basso I, Cornally N. Interventions to support family caregivers of people with advanced dementia at the end of life in nursing homes: A mixed-methods systematic review. Palliat Med. 2021 Dec 30:2692163211066733. doi: 10.1177/02692163211066733. Epub ahead of print.

González-Fraile E, Ballesteros J, Rueda JR, Santos-Zorrozúa B, Solà I, McCleery J. Remotely delivered information, training and support for informal caregivers of people with dementia. Cochrane Database Syst Rev. 2021 Jan 4;1:CD006440. doi: 10.1002/14651858.CD006440.pub3.

Hartley J, Bluebond-Langner M, Candy B, Downie J, Henderson EM. The Physical Health of Caregivers of Children With Life-Limiting Conditions: A Systematic Review. Pediatrics. 2021 Jun 21:e2020014423. doi: 10.1542/peds.2020-014423. Epub ahead of print.

Ingle MP, Valdovinos C, Ford KL, Zhou S, Bull S, Gornail S, Zhang X, Moore S, Portz J. Patient Portals to Support Palliative and End-of-Life Care: Scoping Review. J Med Internet Res. 2021 Sep 16;23(9):e28797. doi: 10.2196/28797.

Jung MY, Matthews AK. A Systematic Review of Clinical Interventions Facilitating End-of-Life Communication Between Patients and Family Caregivers. Am J Hosp Palliat Care. 2021 Feb;38(2):180-190. doi: 10.1177/1049909120929323. Epub 2020 May 28.

Kochovska S, Ferreira DH, Garcia MV, Phillips JL, Currow DC. Perspectives on palliative oxygen for breathlessness: Systematic review and meta-synthesis. Eur Respir J. 2021 Mar 2:2004613. doi: 10.1183/13993003.04613-2020. Epub ahead of print.

Kustanti CY, Chu H, Kang XL, Huang TW, Jen HJ, Liu D, Shen Hsiao ST, Chou KR. Prevalence of grief disorders in bereaved families of cancer patients: A meta-analysis. Palliat Med. 2021 Dec 30:2692163211066747. doi: 10.1177/02692163211066747. Epub ahead of print.

Kustanti CY, Fang HF, Linda Kang X, Chiou JF, Wu SC, Yunitri N, Chu H, Chou KR. The Effectiveness of Bereavement Support for Adult Family Caregivers in Palliative Care: A Meta-Analysis of Randomized Controlled Trials. J Nurs Scholarsh. 2021 Mar;53(2):208-217. doi: 10.1111/jnu.12630. Epub 2021 Feb 5.

Lee JZJ, Chen HC, Lee JX, Klainin-Yobas P. Effects of psychosocial interventions on psychological outcomes among caregivers of advanced cancer patients: a systematic review and meta-analysis. Support Care Cancer. 2021 Jul 8. doi: 10.1007/s00520-021-06102-2. Epub ahead of print.

Leeper H, Cooper D, Armstrong T. Palliative Care Intervention Trials for Adults Living With Progressive Central Nervous System Diseases and Their Caregivers: A Systematic Review. J Pain Symptom Manage. 2021 Jun 18:S0885-3924(21)00386-9. doi: 10.1016/j.jpainsymman.2021.06.010. Epub ahead of print.

Liu W, Kim S, Alessio H. Mealtime caregiving knowledge, attitudes, and behaviors for persons living with dementia: A systematic review of psychometric properties of instruments. Int J Nurs Stud. 2021 Feb;114:103824. doi: 10.1016/j.ijnurstu.2020.103824. Epub 2020 Nov 12.

Magan KC, Hirschman KB, Starr LT, Meghani SH. Longitudinal Trajectories and Correlates of Post-Caregiving Depressive Symptoms in Former Caregivers of Persons With Alzheimer's Disease or a Related Dementia. Am J Hosp Palliat Care. 2021 Sep 3:10499091211042836. doi: 10.1177/10499091211042836. Epub ahead of print.

McCauley R, McQuillan R, Ryan K, Foley G. Mutual support between patients and family caregivers in palliative care: A systematic review and narrative synthesis. Palliat Med. 2021 Apr 2:269216321999962. doi: 10.1177/0269216321999962. Epub ahead of print.

Miller EM, Porter JE. Understanding the Needs of Australian Carers of Adults Receiving Palliative Care in the Home: A Systematic Review of the Literature. SAGE Open Nurs. 2021 Feb 24;7:2377960820985682. doi: 10.1177/2377960820985682.

Moss SJ, Wollny K, Poulin TG, Cook DJ, Stelfox HT, Ordons ARD, Fiest KM. Bereavement interventions to support informal caregivers in the intensive care unit: a systematic review. BMC Palliat Care. 2021 May 12;20(1):66. doi: 10.1186/s12904-021-00763-w.

North AS, Carson L, Sharp L, Patterson J, Hamilton DW. The unmet needs of patients with advanced incurable head and neck cancer and their carers: A systematic review and meta-ethnography of qualitative data. Eur J Cancer Care (Engl). 2021 Jun 4:e13474. doi: 10.1111/ecc.13474. Epub ahead of print.

Scerri A, Sammut R, Scerri C. Formal caregivers' perceptions and experiences of using pet robots for persons living with dementia in long-term care: A meta-ethnography. J Adv Nurs. 2020 Oct 5. doi: 10.1111/jan.14581. Epub ahead of print.

Silies KT, Köpke S, Schnakenberg R. Informal caregivers and advance care planning: systematic review with qualitative meta-synthesis. BMJ Support Palliat Care. 2021 May 5:bmjspcare-2021-003095. doi: 10.1136/bmjspcare-2021-003095. Epub ahead of print.

Soikkeli-Jalonen A, Mishina K, Virtanen H, Charalambous A, Haavisto E. Supportive interventions for family members of very seriously ill patients in inpatient care: A systematic review. J Clin Nurs. 2021 Feb 22. doi: 10.1111/jocn.15725. Epub ahead of print.

Zheng Y, Cotton AC, He L, Wuest LG. Spirituality-Integrated Interventions for Caregivers of Patients with Terminal Illness: A Systematic Review of Quantitative Outcomes. J Relig Health. 2021 Aug;60(4):2939-2959. doi: 10.1007/s10943-021-01221-w. Epub 2021 Mar 8.

Zhu S, Zhu H, Zhang X, Liu K, Chen Z, Yang X, Sun C, Xie W, Xu Q, Li W, Pang D, Cui Y, Wang H. Care needs of dying patients and their family caregivers in hospice and palliative care in mainland China: a meta-synthesis of qualitative and quantitative studies. BMJ Open. 2021 Nov 5;11(11):e051717. doi: 10.1136/bmjopen-2021-051717.


Ahn S, Romo RD, Campbell CL. A systematic review of interventions for family caregivers who care for patients with advanced cancer at home. Patient Educ Couns. 2020 Mar 12:S0738-3991(20)30146-4. doi: 10.1016/j.pec.2020.03.012. Epub ahead of print.

Cheng ST, Zhang F. A comprehensive meta-review of systematic reviews and meta-analyses on nonpharmacological interventions for informal dementia caregivers. BMC Geriatr. 2020 Apr 15;20(1):137. doi: 10.1186/s12877-020-01547-2.

Collins RN, Kishita N. Prevalence of depression and burden among informal care-givers of people with dementia: a meta-analysis. Ageing Soc. 2020 Nov;40(11):2355-2392. doi:

Cruz-Oliver DM, Pacheco Rueda A, Viera-Ortiz L, Washington KT, Oliver DP. The evidence supporting educational videos for patients and caregivers receiving hospice and palliative care: A systematic review. Patient Educ Couns. 2020 Mar 19:S0738-3991(20)30148-8. doi: 10.1016/j.pec.2020.03.014. Epub ahead of print.

Fee A, McIlfatrick S, Ryan A. Examining the support needs of older male spousal caregivers of people with a long-term condition: A systematic review of the literature. Int J Older People Nurs. 2020 May 4:e12318. doi: 10.1111/opn.12318. Epub ahead of print.

Flemming K, Turner V, Bolsher S, Hulme B, McHugh E, Watt I. The experiences of, and need for, palliative care for people with motor neurone disease and their informal caregivers: A qualitative systematic review. Palliat Med. 2020 Apr 14:269216320908775. doi: 10.1177/0269216320908775. Epub ahead of print.

Ge X, Tong H, Song Y, He H, Li S, Hong J, Wang W. The caring experience and supportive care needs of male partners for women with gynaecologic cancer: A qualitative literature review. J Clin Nurs. 2020 Sep 19. doi: 10.1111/jocn.15501. Epub ahead of print. 

Ginex P, Coleman M, Vrabel M, Bevans M. Family Caregiver Strain and Burden: A Systematic Review of Evidence-Based Interventions When Caring for Patients With Cancer. Clin J Oncol Nurs. 2020 Feb 1;24(1):31-50. doi: 10.1188/20.CJON.31-50.

Hashem F, Brigden C, Wilson P, Butler C. Understanding what works, why and in what circumstances in hospice at home services for end-of-life care: Applying a realist logic of analysis to a systematically searched literature review. Palliat Med. 2020 Jan;34(1):16-31. doi: 10.1177/0269216319867424. Epub 2019 Dec 18.

Kipfer S, Pihet S. Reliability, validity and relevance of needs assessment instruments for informal dementia caregivers: a psychometric systematic review. JBI Database System Rev Implement Rep. 2019 Nov 20. doi: 10.11124/JBISRIR-2017-003976. Epub ahead of print.

Kunkle R, Chaperon C, Berger AM. Formal Caregiver Burden in Nursing Homes: An Integrative Review. West J Nurs Res. 2020 Dec 27:193945920979691. doi: 10.1177/0193945920979691. Epub ahead of print.

Lee J, Cagle JG. Measures of financial burden for families dealing with serious illness: A systematic review and analysis. Palliat Med. 2020 Dec 4:269216320973161. doi: 10.1177/0269216320973161. Epub ahead of print.

Li Y, Sun D, Zhang X, Li H, Zhao Y, Ma D, Li Z, Sun J. Informal dementia caregivers' experiences and perceptions about mealtime care: A qualitative evidence synthesis. J Adv Nurs. 2020 Sep 30. doi: 10.1111/jan.14550. Epub ahead of print.

Lowers J, Scardaville M, Hughes S, Preston NJ. Comparison of the experience of caregiving at end of life or in hastened death: a narrative synthesis review. BMC Palliat Care. 2020 Oct 8;19(1):154. doi: 10.1186/s12904-020-00660-8.

Micklewright K, Farquhar M. Does the carer support needs assessment tool cover the established support needs of carers of patients with chronic obstructive pulmonary disease? A systematic literature search and narrative review. Palliat Med. 2020 Jul 16:269216320939243. doi: 10.1177/0269216320939243. Epub ahead of print.

Morgan T, Bharmal A, Duschinsky R, Barclay S. Experiences of oldest-old caregivers whose partner is approaching end-of-life: A mixed-method systematic review and narrative synthesis. PLoS One. 2020 Jun 9;15(6):e0232401. doi: 10.1371/journal.pone.0232401.

Poppe C, Koné I, Iseli LM, Schweikert K, Elger BS, Wangmo T. Differentiating needs of informal caregivers of individuals with ALS across the caregiving course: a systematic review. Amyotroph Lateral Scler Frontotemporal Degener. 2020 Jul 13:1-23. doi: 10.1080/21678421.2020.1771735. Epub ahead of print.

Portz JD, Elsbernd K, Plys E, Ford KL, Zhang X, Gore MO, Moore SL, Zhou S, Bull S. Elements of Social Convoy Theory in Mobile Health for Palliative Care: Scoping Review. JMIR Mhealth Uhealth. 2020 Jan 6;8(1):e16060. doi: 10.2196/16060.

Pritchard E, Cussen A, Delafosse V, Swift M, Jolliffe L, Yeates H. Interventions supporting caregiver readiness when caring for patients with dementia following discharge home: A mixed-methods systematic review. Australas J Ageing. 2020 Jan 16;10.1111/ajag.12765. doi: 10.1111/ajag.12765. [Epub ahead of print]

Teahan Á, Lafferty A, McAuliffe E, Phelan A, O'Sullivan L, O'Shea D, Nicholson E, Fealy G. Psychosocial Interventions for Family Carers of People With Dementia: A Systematic Review and Meta-Analysis. J Aging Health. 2020 Jan 19;898264319899793. doi: 10.1177/0898264319899793. [Epub ahead of print]

Xu XY, Kwan RYC, Leung AYM. Behavioural activation for family dementia caregivers: A systematic review and meta-analysis. Geriatr Nurs. 2020 Mar 3:S0197-4572(20)30067-7. doi: 10.1016/j.gerinurse.2020.02.003. Epub ahead of print.

Zulkifley NH, Ismail S, Manaf RA, Ying LP. Educational Intervention for Informal Caregiver of Person with Dementia: A Systematic Review (239kb pdf). Mal J Med Health Sci. 2020 Jan;16(1):325-331.


Akarsu NE, Prince M, Lawrence V, Das-Munshi J. Depression in carers of people with dementia from a minority ethnic background: Systematic review and meta-analysis of randomised-controlled trials of psychosocial interventions. Int J Geriatr Psychiatry. 2019 Feb 4. doi: 10.1002/gps.5070. [Epub ahead of print]

Alves LCS, Monteiro DQ, Bento SR, Hayashi VD, Pelegrini LNC, Vale FAC. Burnout syndrome in informal caregivers of older adults with dementia: A systematic review. Dement Neuropsychol. 2019 Oct-Dec;13(4):415-421. doi: 10.1590/1980-57642018dn13-040008.

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Ullgren H, Tsitsi T, Papastavrou E, Charalambous A. How family caregivers of cancer patients manage symptoms at home: A systematic review. Int J Nurs Stud. 2018 May 29;85:68-79. doi: 10.1016/j.ijnurstu.2018.05.004. [Epub ahead of print]

Voutilainen A, Ruokostenpohja N, Välimäki T. Associations Across Caregiver and Care Recipient Symptoms: Self-Organizing Map and Meta-analysis. Gerontologist. 2018 Mar 19;58(2):e138-e149. doi: 10.1093/geront/gnw251.

Waligora KJ, Bahouth MN, Han HR. The Self-Care Needs and Behaviors of Dementia Informal Caregivers: A Systematic Review. Gerontologist. 2018 Jun 21. doi: 10.1093/geront/gny076. [Epub ahead of print]

Wang T, Molassiotis A, Chung BPM, Tan JY. Unmet care needs of advanced cancer patients and their informal caregivers: a systematic review. BMC Palliat Care. 2018 Jul 23;17(1):96. doi: 10.1186/s12904-018-0346-9.

Wilson E, Caswell G, Turner N, Pollock K. Managing medicines for patients dying at home: A review of family caregivers' experiences. J Pain Symptom Manage. 2018 Sep 11. pii: S0885-3924(18)30449-4. doi: 10.1016/j.jpainsymman.2018.08.019. [Epub ahead of print]

Wu B, Petrovsky DV, Wang J, Xu H, Zhu Z, Mcconnell ES, Corrazzini KN. Dementia Caregiver Interventions in Chinese Population: A Systematic Review. J Adv Nurs. 2018 Sep 27. doi: 10.1111/jan.13865. [Epub ahead of print]

Ying J, Wang Y, Zhang M, Wang S, Shi Y, Li H, Li Y, Xing Z, Sun J. Effect of multi-component interventions on competence of family caregivers of people with dementia: a systematic review. J Clin Nurs. 2018 Mar 1. doi: 10.1111/jocn.14326. [Epub ahead of print]

Zhu W, Jiang Y. A Meta-analytic Study of Predictors for Informal Caregiver Burden in Patients With Stroke. J Stroke Cerebrovasc Dis. 2018 Sep 26. pii: S1052-3057(18)30492-0. doi: 10.1016/j.jstrokecerebrovasdis.2018.08.037. [Epub ahead of print]


Arruda EH, Paun O. Dementia Caregiver Grief and Bereavement: An Integrative Review. West J Nurs Res. 2017 Jun;39(6):825-851. Epub 2016 Jul 13.

Chi NC, Demiris G. Family Caregivers' Pain Management in End-of-Life Care: A Systematic Review. Am J Hosp Palliat Care. 2017 Jun;34(5):470-485. Epub 2016 Mar 14.

Duggleby W, Tycholiz J, Holtslander L, Hudson P, Nekolaichuk C, Mirhosseini M, Parmar J, Chambers T, Alook A, Swindle J. A metasynthesis study of family caregivers' transition experiences caring for community-dwelling persons with advanced cancer at the end of life. Palliat Med. 2017 Jul;31(7):602-616. doi: 10.1177/0269216316673548. Epub 2016 Oct 25.

Finucane AM, Lugton J, Kennedy C, Spiller JA. The experiences of caregivers of patients with delirium, and their role in its management in palliative care settings: an integrative literature review. Psychooncology. 2017 Mar;26(3):291-300. Epub 2016 May 1.

Fu F, Zhao H, Tong F, Chi I. A systematic review of psychosocial interventions to cancer caregivers. Front Psychol. 2017 May 23;8:834. doi: 10.3389/fpsyg.2017.00834. eCollection 2017.

Ge L, Mordiffi SZ. Factors associated with higher caregiver burden among family caregivers of elderly cancer patients: A systematic review. Cancer Nurs. 2017 Nov/Dec;40(6):471-478. doi: 10.1097/NCC.0000000000000445.

Große J, Treml J, Kersting A. Impact of caregiver burden on mental health in bereaved caregivers of cancer patients: A systematic review. Psychooncology. 2017 Aug 14. doi: 10.1002/pon.4529. [Epub ahead of print]

Holtslander L, Baxter S, Mills K, Bocking S, Dadgostari T, Duggleby W, Duncan V, Hudson P, Ogunkorode A, Peacock S. Honoring the voices of bereaved caregivers: A Metasummary of qualitative research. BMC Palliat Care. 2017 Sep 6;16(1):48. doi: 10.1186/s12904-017-0231-y.

Larkin M, Milne A. What do we know about older former carers? Key issues and themes. Health Soc Care Community. 2017 Jul;25(4):1396-1403. doi: 10.1111/hsc.12437. Epub 2017 Feb 22.

Maltby KF, Sanderson CR, Lobb EA, Phillips JL. Sleep disturbances in caregivers of patients with advanced cancer: A systematic review. Palliat Support Care. 2017 Feb;15(1):125-140.Epub 2017 Jan 18.

Mansfield E, Boyes AW, Bryant J, Sanson-Fisher R. Quantifying the unmet needs of caregivers of people with dementia: a critical review of the quality of measures. Int J Geriatr Psychiatry. 2017 Mar;32(3):274-287. Epub 2016 Dec 16.

Mathews G, Johnston B. Palliative and end-of-life care for adults with advanced chronic obstructive pulmonary disease: a rapid review focusing on patient and family caregiver perspectives. Curr Opin Support Palliat Care. 2017 Dec;11(4):315-327. doi: 10.1097/SPC.0000000000000303.

Nicholas Dionne-Odom J, Hooker SA, Bekelman D, Ejem D, McGhan G, Kitko L, Strömberg A, Wells R, Astin M, Metin ZG, Mancarella G, Pamboukian SV, Evangelista L, Buck HG, Bakitas MA; IMPACT-HF National Workgroup. Family caregiving for persons with heart failure at the intersection of heart failure and palliative care: a state-of-the-science review. Heart Fail Rev. 2017 Feb 4. doi: 10.1007/s10741-017-9597-4. [Epub ahead of print]

Oh J, Kim JA. Supportive care needs of patients with amyotrophic lateral sclerosis/motor neuron disease and their caregivers: A scoping review. J Clin Nurs. 2017 Dec;26(23-24):4129-4152. doi: 10.1111/jocn.13945. Epub 2017 Aug 31.

O'Toole  MS, Zachariae R, Renna ME, Mennin DS, Applebaum A. Cognitive behavioral therapies for informal caregivers of patients with cancer and cancer survivors: A systematic review and meta-analysis. Psychooncology. 2017 Apr;26(4):428-437. doi: 10.1002/pon.4144. Epub 2016 May 5.

Rainsford S, MacLeod RD, Glasgow NJ, Phillips CB, Wiles RB, Wilson DM. Rural end-of-life care from the experiences and perspectives of patients and family caregivers: A systematic literature review. Palliat Med. 2017 Dec;31(10):895-912. doi: 10.1177/0269216316685234. Epub 2017 Jan 20.

Roydhouse JK, Wilson IB. Systematic review of caregiver responses for patient health-related quality of life in adult cancer care. Qual Life Res. 2017 Aug;26(8):1925-1954. doi: 10.1007/s11136-017-1540-6. Epub 2017 Mar 14.

Sutanto LL, Ying FM, Agarwal A, Lam M, Chow E, Henry BA. A scoping review of psychosocial interventions for informal caregivers of palliative cancer patients. J Pain Manage. 2017;10(1):23-30. [No Abstract Available].

Tanco K, Park JC, Cerana A, Sisson A, Sobti N, Bruera E. A systematic review of instruments assessing dimensions of distress among caregivers of adult and pediatric cancer patients. Palliat Support Care. 2017 Feb;15(1):110-124. Epub 2016 Mar 29.

Thomas T, Kuhn I, Barclay S. Inpatient transfer to a care home for end-of-life care: What are the views and experiences of patients and their relatives? A systematic review and narrative synthesis of the UK literature. Palliat Med. 2017 Feb;31(2):102-108. Epub 2016 Jul 28.

Wilson S, Toye C, Aoun S, Slatyer S, Moyle W, Beattie E. Effectiveness of psychosocial interventions in reducing grief experienced by family carers of people with dementia: a systematic review. JBI Database System Rev Implement Rep. 2017 Mar;15(3):809-839.


Applebaum AJ, Kryza-Lacombe M, Buthorn J, DeRosa A, Corner G, Diamond EL. Existential distress among caregivers of patients with brain tumors: a review of the literature Neurooncol Pract. 2016 Dec;3(4):232-244.

Bergin S, Mockford C. Recommendations to support informal carers of people living with motor neurone disease. Br J Community Nurs. 2016 Oct 2;21(10):518-524.

Bull MJ, Boaz L, Jermé M. Educating Family Caregivers for Older Adults About Delirium: A Systematic Review. Worldviews Evid Based Nurs. 2016 Jun;13(3):232-40. Epub 2016 Mar 10.

Chi NC, Demiris G. Family caregivers' pain management in end-of-life care: A systematic review. Am J Hosp Palliat Care. 2017 Jun;34(5):470-485. doi: 10.1177/1049909116637359. Epub 2016 Mar 14.

Chi NC, Demiris G, Lewis FM, Walker AJ, Langer SL. Behavioral and Educational Interventions to Support Family Caregivers in End-of-Life Care: A Systematic Review. Am J Hosp Palliat Care. 2016 Nov;33(9):894-908. Epub 2015 Jul 7.

Dharmawardene M, Givens J, Wachholtz A, Makowski S, Tjia J. A systematic review and meta-analysis of meditative interventions for informal caregivers and health professionals. BMJ Support Palliat Care. 2016 Jun;6(2):160-9. doi: 10.1136/bmjspcare-2014-000819. Epub 2015 Mar 26.

Doherty LC, Fitzsimons D, McIlfatrick SJ. Carers' needs in advanced heart failure: A systematic narrative review. Eur J Cardiovasc Nurs. 2016 Jun;15(4):203-12. doi: Epub 2015 Apr 28.

Farquhar M, Penfold C, Walter FM, Kuhn I, Benson J. What Are the Key Elements of Educational Interventions for Lay Carers of Patients With Advanced Disease? A Systematic Literature Search and Narrative Review of Structural Components, Processes and Modes of Delivery. J Pain Symptom Manage. 2016 Jul;52(1):117-130.e27. Epub 2016 Apr 23.

Feast A, Orrell M, Charlesworth G, Melunsky N, Poland F, Moniz-Cook E. Behavioural and psychological symptoms in dementia and the challenges for family carers: systematic review. Br J Psychiatry. 2016 May;208(5):429-34. Epub 2016 Mar 17.

Gardiner C, Brereton L, Frey R, Wilkinson-Meyers L, Gott M. Approaches to capturing the financial cost of family care-giving within a palliative care context: a systematic review. Health Soc Care Community. 2016 Sep;24(5):519-31. Epub 2015 Jun 22.

Jaffray L. Bridgman H. Stephens M. Skinner T. Evaluating the effects of mindfulness-based interventions for informal palliative caregivers: A systematic literature review. Palliat Med. 2016 Feb;30(2):117-31. doi: 10.1177/0269216315600331. Epub 2015 Aug 17.

Kavalieratos D, Corbelli J, Zhang D, Dionne-Odom JN, Ernecoff NC, Hanmer J, Hoydich ZP, Ikejiani DZ, Klein-Fedyshin M, Zimmermann C, Morton SC, Arnold RM, Heller L, Schenker Y. Association Between Palliative Care and Patient and Caregiver Outcomes: A Systematic Review and Meta-analysis. JAMA. 2016 Nov 22;316(20):2104-2114.

Latter S, Hopkinson JB, Richardson A, Hughes JA, Lowson E, Edwards D. How can we help family carers manage pain medicines for patients with advanced cancer? A systematic review of intervention studies. BMJ Support Palliat Care. 2016 Sep;6(3):263-75. Epub 2016 May 5.

Martín JM, Olano-Lizarraga M, Saracíbar-Razquin M. The experience of family caregivers caring for a terminal patient at home: A research review. Int J Nurs Stud. 2016 Dec;64:1-12. Epub 2016 Sep 14.

Michels CT, Boulton M, Adams A, Wee B, Peters M. Psychometric properties of carer-reported outcome measures in palliative care: A systematic review. Palliat Med. 2016 Jan;30(1):23-44. Epub 2015 Sep 25.

Morgan T, Ann Williams L, Trussardi G, Gott M. Gender and family caregiving at the end-of-life in the context of old age: A systematic review. Palliat Med. 2016 Epub 2016 Jan 26.

Petricone-Westwood D, Lebel S. Being a caregiver to patients with ovarian cancer: A scoping review of the literature. Gynecol Oncol. 2016 Oct;143(1):184-92. Epub 2016 Jul 25.

Piil K, Juhler M, Jakobsen J, Jarden M. Controlled rehabilitative and supportive care intervention trials in patients with high-grade gliomas and their caregivers: a systematic review. BMJ Support Palliat Care. 2016 Mar;6(1):27-34. Epub 2014 Jun 2.

Pozzebon M, Douglas J, Ames D. Spouses' experience of living with a partner diagnosed with a dementia: a synthesis of the qualitative research. Int Psychogeriatr. 2016 Apr;28(4):537-56. Epub 2016 Jan 11.

Slev VN, Mistiaen P, Pasman HR, Verdonck-de Leeuw IM, van Uden-Kraan CF, Francke AL. Effects of eHealth for patients and informal caregivers confronted with cancer: A meta-review. Int J Med Inform. 2016 Mar;87:54-67. Epub 2015 Dec 24.

Ussher Jane Maria, Perz, Janette, Hawkins Yasmin. Evaluating the efficacy of psycho-social interventions for informal carers of cancer patients: A systematic review of the research literature. Health Psychology Review. 2016 Mar;3(1):85-107. [No Abstract Available]

Wheelwright S, Darlington AS, Hopkinson JB, Fitzsimmons D, Johnson C. A systematic review and thematic synthesis of quality of life in the informal carers of cancer patients with cachexia. Palliat Med. 2016 Feb;30(2):149-60. doi: 10.1177/0269216315588743. Epub 2015 May 29.

Zheng Y, Head BA, Schapmire TJ. A Systematic Review of Telehealth in Palliative Care: Caregiver Outcomes. Telemed J E Health. 2016 Apr;22(4):288-94. Epub 2015 Sep 11.


Chi NC, Demiris G. A systematic review of telehealth tools and interventions to support family caregivers. J Telemed Telecare. 2015 Jan;21(1):37-44. Epub 2014 Dec 4.

Dharmawardene M, Givens J, Wachholtz A, Makowski S, Tjia J. A systematic review and meta-analysis of meditative interventions for informal caregivers and health professionals. BMJ Support Palliat Care. 2015 Mar 26. pii: bmjspcare-2014-000819.

Griffin JM, Meis LA, Greer N, MacDonald R, Jensen A, Rutks I, Carlyle M, Wilt TJ. Effectiveness of Caregiver Interventions on Patient Outcomes in Adults With Dementia or Alzheimer's Disease: A Systematic Review. Gerontol Geriatr Med. 2015 Jul 21;1:2333721415595789. doi: 10.1177/2333721415595789. eCollection 2015 Jan-Dec.

Kaltenbaugh DJ, Klem ML, Hu L, Turi E, Haines AJ, Hagerty Lingler J. Using web-based interventions to support caregivers of patients with cancer: a systematic review. Oncol Nurs Forum. 2015 Mar 1;42(2):156-64.

Lendon JP, Ahluwalia SC, Walling AM, Lorenz KA, Oluwatola OA, Anhang Price R, Quigley D, Teno JM. Measuring Experience With End-of-Life Care: A Systematic Literature Review. J Pain Symptom Manage. 2015 May;49(5):904-15.e1-3.

Morris SM, King C, Turner M, Payne S. Family carers providing support to a person dying in the home setting: A narrative literature review. Palliat Med. 2015 Jun;29(6):487-495. Epub 2015 Jan 29.

Reed M,Harding K. Do Family Meetings Improve Measurable Outcomes for Patients, Carers, or Health Systems? A Systematic Review. Australian Social Work. 2015;68(2):244-258. [No Abstract Available]

Woodman C, Baillie J, Sivell S. The preferences and perspectives of family caregivers towards place of care for their relatives at the end-of-life. A systematic review and thematic synthesis of the qualitative evidence. BMJ Support Palliat Care. 2015 May 19. pii: bmjspcare-2014-000794. [Epub ahead of print]


Coad J, Patel R, Murray S. Disclosing terminal diagnosis to children and their families: palliative professionals' communication barriers. Death Stud. 2014 May-Jun;38(5):302-7. Epub 2013 Sep 17.

Davies N, Maio L, Rait G, Iliffe S. Quality end-of-life care for dementia: What have family carers told us so far? A narrative synthesis. Palliat Med. 2014 Mar 13;28(7):919-930. [Epub ahead of print]

Griffin JM, Meis LA, MacDonald R, Greer N, Jensen A, Rutks I, Wilt TJ. Effectiveness of family and caregiver interventions on patient outcomes in adults with cancer: a systematic review. J Gen Intern Med. 2014 Sep;29(9):1274-82.Epub 2014 May 20.

Nevis I. Educational Intervention in End-of-Life Care: An Evidence-Based Analysis. Ont Health Technol Assess Ser. 2014 Dec 1;14(17):1-30. eCollection 2014.

Pottie CG, Burch KA, Thomas LP, Irwin SA. Informal caregiving of hospice patients. J Palliat Med. 2014 Jul;17(7):845-56.

Reigada C, Pais-Ribeiro JL, Novellas A. Educational programs for family caregivers in palliative care: A literature review. J Palliat Care Med. 2014;4:195. [No Abstract Available].

Stenberg U, Ekstedt M, Olsson M, Ruland CM. Living close to a person with cancer: a review of the international literature and implications for social work practice. J Gerontol Soc Work. 2014;57(6-7):531-55. Epub 2014 Jul 29.

Tong A, Cheung KL, Nair SS, Kurella Tamura M, Craig JC, Winkelmayer WC. Thematic synthesis of qualitative studies on patient and caregiver perspectives on end-of-life care in CKD.  Am J Kidney Dis. 2014 Jun;63(6):913-27.Epub 2014 Jan 7.

Ventura AD, Burney S, Brooker J, Fletcher J, Ricciardelli L. Home-based palliative care: a systematic literature review of the self-reported unmet needs of patients and carers. Palliat Med. 2014 May;28(5):391-402. Epub 2013 Nov 29.

Wittenberg-Lyles E, Parker Oliver D, Demiris G, Swarz J, Rendo M. YouTube as a tool for pain management with informal caregivers of cancer patients: a systematic review. J Pain Symptom Manage. 2014 Dec;48(6):1200-10. doi: 10.1016/j.jpainsymman.2014.02.015. Epub 2014 Apr 30.


Applebaum AJ, Breitbart W. Care for the cancer caregiver: a systematic review. Palliat Support Care. 2013 Jun;11(3):231-52. Epub 2012 Oct 10.

Aoun SM, Bentley B, Funk L, Toye C, Grande G, Stajduhar KJ. A 10-year literature review of family caregiving for motor neurone disease: moving from caregiver burden studies to palliative care interventions. Palliat Med. 2013 May;27(5):437-46. Epub 2012 Aug 20.

Chan D, Livingston G, Jones L, Sampson EL. Grief reactions in dementia carers: a systematic review. Int J Geriatr Psychiatry. 2013 Jan;28(1):1-17. doi: 10.1002/gps.3795. Epub 2012 Mar 8.

Dikkers MF, Dunning T, Savage S. Information needs of family carers of people with diabetes at the end of life: a literature review. J Palliat Med. 2013 Dec;16(12):1617-23. Epub 2013 Nov 12.

Moore G, Collins A, Brand C, Gold M, Lethborg C, Murphy M, Sundararajan V, Philip J. Palliative and supportive care needs of patients with high-grade glioma and their carers: a systematic review of qualitative literature. Patient Educ Couns. 2013 May;91(2):141-53.

Parker Oliver D, Albright DL, Washington K, Wittenberg-Lyles E, Gage A, Mooney M, Demiris G. Hospice caregiver depression: the evidence surrounding the greatest pain of all. J Soc Work End Life Palliat Care. 2013;9(4):256-71.

Peacock SC. The experience of providing end-of-life care to a relative with advanced dementia: an integrative literature review. Palliat Support Care. 2013 Apr;11(2):155-68. Epub 2012 Oct 23.

Sterckx W, Coolbrandt A, Dierckx de Casterlé B, Van den Heede K, Decruyenaere M, Borgenon S, Mees A, Clement P. The impact of a high-grade glioma on everyday life: a systematic review from the patient's and caregiver's perspective. Eur J Oncol Nurs. 2013 Feb;17(1):107-17. Epub 2012 May 31

Whittingham K, Barnes S, Gardiner C. Tools to measure quality of life and carer burden in informal carers of heart failure patients:A narrative review. Palliat Med. 2013 Jul;27(7):596-607. Epub 2013 Feb 26


Harding R, List S, Epiphaniou E, Jones H. How can informal caregivers in cancer and palliative care be supported? An updated systematic literature review of interventions and their effectiveness. Palliat Med. 2012 Jan;26(1):7-22. Epub 2011 Jul 7.

Hopkinson JB, Brown JC, Okamoto I, Addington-Hall JM. The effectiveness of patient-family carer (couple) intervention for the management of symptoms and other health-related problems in people affected by cancer: a systematic literature search and narrative review. J Pain Symptom Manage. 2012 Jan;43(1):111-42.

Melin-Johansson C, Henoch I, Strang S, Browall M. Living in the presence of death: an integrative literature review of relatives' important existential concerns when caring for a severely ill family member. Open Nurs J. 2012;6:1-12. Epub 2012 Feb 10.


Candy B, Jones L, Drake R, Leurent B, King M. Interventions for supporting informal caregivers of patients in the terminal phase of a disease. Cochrane Database Syst Rev. 2011 Jun 15;6:CD007617. doi: 10.1002/14651858.CD007617.pub2.

Kang X, Li Z, Nolan MT. Informal caregivers' experiences of caring for patients with chronic heart failure: systematic review and metasynthesis of qualitative studies. J Cardiovasc Nurs. 2011 Sep-Oct;26(5):386-94.

Meeker MA, Finnell D, Othman AK. Family caregivers and cancer pain management: a review. J Fam Nurs. 2011 Feb;17(1):29-60.

Remedios C, Thomas K, Hudson P. Psychosocial and bereavement support for family caregivers of palliative care patients: A review of the empirical literature. (896kb pdf) Melbourne: Centre for Palliative Care; 2011 Jan. 71p.

Schildmann EK, Higginson IJ. Evaluating psycho-educational interventions for informal carers of patients receiving cancer care or palliative care: Strengths and limitations of different study designs. Palliat Med. 2011 Jun;25(4):345-56. Epub 2011 Jan 12.

Washington KT, Meadows SE, Elliott SG, Koopman RJ. Information needs of informal caregivers of older adults with chronic health conditions. Patient Educ Couns. 2011 Apr;83(1):37-44. Epub 2010 May 7.

Williams AL, McCorkle R. Cancer family caregivers during the palliative, hospice, and bereavement phases: a review of the descriptive psychosocial literature. Palliat Support Care. 2011 Sep;9(3):315-25.


Funk L, Stajduhar K, Toye C, Aoun S, Grande G, Todd C. Part 2: Home-based family caregiving at the end of life: a comprehensive review of published qualitative research (1998-2008). Palliat Med. 2010 Sep;24(6):594-607. Epub 2010 Jun 24.

Hennings J, Froggatt K, Keady J. Approaching the end of life and dying with dementia in care homes: the accounts of families. Rev Clin Geront 2010;20(2):114-27.

Hudson PL, Trauer T, Graham S, Grande G, Ewing G, Payne S, Stajduhar KI, Thomas K. A systematic review of instruments related to family caregivers of palliative care patients. Palliat Med. 2010 Oct;24(7):656-68. Epub 2010 Jul 6.

Hudson PL, Remedios C, Thomas K. A systematic review of psychosocial interventions for family carers of palliative care patients. BMC Palliat Care. 2010 Aug 5;9:17. (200kb pdf)

Northfield S, Nebauer M. The caregiving journey for family members of relatives with cancer: how do they cope? Clin J Oncol Nurs. 2010 Oct 1;14(5):567-77.

Northouse LL, Katapodi MC, Song L, Zhang L, Mood DW. Interventions with family caregivers of cancer patients: meta-analysis of randomized trials. CA Cancer J Clin. 2010 Sep-Oct;60(5):317-39. Epub 2010 Aug 13.

Stajduhar K, Funk L, Toye C, Grande G, Aoun S, Todd C. Part 1: Home-based family caregiving at the end of life: a comprehensive review of published quantitative research (1998-2008). Palliat Med. 2010 Sep;24(6):573-93. Epub 2010 Jun 18.

Stenberg U, Ruland CM, Miaskowski C. Review of the literature on the effects of caring for a patient with cancer. Psychooncology. 2010 Oct;19(10):1013-25.


Bee PE, Barnes P, Luker KA. A systematic review of informal caregivers' needs in providing home-based end-of-life care to people with cancer. J Clin Nurs. 2009 May;18(10):1379-93. Epub 2009 Apr 8.

Boyle AH. An integrative review of the impact of COPD on families (147kb pdf). South Online J Nurs Res. 2009;9(3):6pp.

Caress AL, Chalmers K, Luker K. A narrative review of interventions to support family carers who provide physical care to family members with cancer. Int J Nurs Stud. 2009 Nov;46(11):1516-27. Epub 2009 Apr 28.

Caress AL, Luker KA, Chalmers KI, Salmon MP. A review of the information and support needs of family carers of patients with chronic obstructive pulmonary disease. J Clin Nurs. 2009 Feb;18(4):479-91.

Corry M, While A. The needs of carers of people with multiple sclerosis: a literature review. Scand J Caring Sci. 2009 Sep;23(3):569-88.

Goins RT, Spencer SM, Byrd JC. Research on rural caregiving. J Appl Gerontol. 2009 Apr;28(2):139-70.

Whalen KJ, Buchholz SW. The reliability, validity and feasibility of tools used to screen for caregiver burden: a systematic review. JBI Libr Syst Rev. 2009;7(32):1372-1429.


Anderson A, Kralik D. Palliative care at home: nurses, carers and subcutaneous medication management: 2006-2008. RDNS Research Unit. Adelaide. 2008 Apr. [No Abstract Available].

Convey V, Ede J, Sealey T. How are the carers being cared for? a review of the literature. Eur J Palliat Care. 2008;15(4):182-5.

Docherty A, Owens A, Asadi-Lari M, Petchey R, Williams J, Carter YH. Knowledge and information needs of informal caregivers in palliative care: a qualitative systematic review. Palliat Med. 2008 Mar;22(2):153-71.

Honea NJ, Brintnall R, Given B, Sherwood P, Colao DB, Somers SC, Northouse LL. Putting Evidence into Practice: nursing assessment and interventions to reduce family caregiver strain and burden. Clin J Oncol Nurs. 2008 Jun;12(3):507-16.

Kim Y, Given BA. Quality of life of family caregivers of cancer survivors: across the trajectory of the illness. Cancer. 2008 Jun 1;112(11 Suppl):2556-68.

Lowey, Susan E. Communication between the nurse and family caregiver in End-of-Life care: a review of the literature. J Hosp Palliat Nurs. 2008 Jan-Feb;10(1):35-45.

van der Meulen N, Jansen J, van Dulmen S, Bensing J, van Weert J. Interventions to improve recall of medical information in cancer patients: a systematic review of the literature. Psychooncology. 2008 Sep;17(9):857-68.


Burridge L, Winch S, Clavarino A. Reluctance to care: a systematic review and development of a conceptual framework. Cancer Nurs. 2007 Mar-Apr;30(2):E9-19.

Eagar K, Owen A,  Williams K, Westera A, Marosszeky N, England R, Morris D. Effective Caring: a synthesis of the international evidence on carer needs and interventions. Centre for Health Service Development (CHSD), University of Wollongong. 2007;114pp.

Hanratty B, Holland P, Jacoby A, Whitehead M. Financial stress and strain associated with terminal cancer: a review of the evidence. Palliat Med. 2007 Oct;21(7):595-607.

Hearson B, McClement S. Sleep disturbance in family caregivers of patients with advanced cancer. Int J Palliat Nurs. 2007 Oct;13(10):495-501.

Klassen A, Raina P, Reineking S, Dix D, Pritchard S, O’Donnell M. Developing a literature base to understand the caregiving experience of parents of children with cancer: a systematic review of factors related to parental health and well-being. Support Care Cancer. 2007 Jul;15(7):807-818.

Mason A, Weatherly H, Spilsbury K, Aksey H, Golder S, Adamson J, Drummond M, Glendinning C. A systematic review of the effectiveness and cost-effectiveness of different models of community based respite care for frail older people and their carers. Health Technol Assess. 2007 Apr;11(15):1-157, iii.

Parker SM, Clayton JM, Hancock K, Walder S, Butow PN, Carrick S, Currow D, Ghersi D, Glare P, Hagerty R, Tattersall MH. A systematic review of prognostic/end-of-life communication with adults in the advanced stages of a life-limiting illness: patient/caregiver preferences for the content, style, and timing of information. J Pain Symptom Manage. 2007 Jul;34(1):81-93. Epub 2007 May 25.


Hebert RS, Weinstein E, Martire LM, Schulz R. Religion, spirituality and the well-being of informal caregivers: A review, critique and research prospectus. Aging Ment Health 2006 Sep;10(5):497-520.

Kitrungrote L, Cohen MZ. Quality of life of family caregivers of patients with cancer: a literature review. Oncol Nurs Forum. 2006 May 3;33(3):625-32.

Mockford C, Jenkinson C, Fitzpatrick R. A review: carers, MND and service provision. Amyotroph Lateral Scler. 2006 Sep;7(3):132-41.

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Last updated 05 February 2024