Review collection - Families 

261 reviews


Liang HJ, Xiong Q, Remawi BN, Preston N. Taiwanese family members' bereavement experience following an expected death: A systematic review and narrative synthesis. BMC Palliat Care. 2024;23(1):14.

Llop-Medina L, Ródenas-Rigla F, Gallego-Valadés A, Garcés-Ferrer J. Factorial structure of quality of life, satisfaction with caregiving and caregiver burden in palliative care: A systematic review. Nurs Open. 2024;11(1).


Agrawal US, Sarin J, Bakhshi S, Garg R. Challenges and opportunities in providing palliative care services to children with a life-limiting illness: A systematic review. Natl Med J India. 2023 Sep-Oct;35(5):284-289. doi: 10.25259/NMJI_349_2022.

Chrastina J, Haroková M. End of Life in Boys and Young Men With Duchenne Muscular Dystrophy - The Perspective of Dying Men and Their Families: A Systematic Review and Thematic Synthesis of Qualitative Evidence. Omega (Westport). 2023 Jul 5:302228231186358. doi: 10.1177/00302228231186358. Epub ahead of print.

Coventry A, Gerdtz M, McInnes E, Dickson J, Hudson P. Supporting families of patients who die in adult intensive care: A scoping review of interventions. Intensive Crit Care Nurs. 2023 Oct;78:103454.

Cronin M, McLoughlin K, Foley T, McGilloway S. Supporting family carers in general practice: A scoping review of clinical guidelines and recommendations. BMC Prim Care. 2023;24(1):234.

Daudt HM, Spargo EL. Challenges and Facilitators for Psychosocial Support when Aging and Dying in Place: A Rapid Review of the Literature. Can J Aging. 2023 Mar;42(1):135-153. doi: 10.1017/S071498082200023X. Epub 2022 Jun 28.

Dehpour T, Koffman J. Assessment of anticipatory grief in informal caregivers of dependants with dementia: a systematic review. Aging Ment Health. 2023 Jan;27(1):110-123. doi: 10.1080/13607863.2022.2032599. Epub 2022 Feb 15.

Engel M, Brouwer MA, Jansen N, Leget C, Teunissen SC, Kars MC. The spiritual dimension of parenting a child with a life-limiting or life-threatening condition: A mixed-methods systematic review. Palliat Med. 2023 Jul 17:2692163231186173. doi: 10.1177/02692163231186173. Epub ahead of print.

Firouzkouhi M, Alimohammadi N, Abdollahimohammad A, Bagheri G, Farzi J. Bereaved Families Views on the Death of Loved Ones Due to COVID 19: An Integrative Review. Omega (Westport). 2023 Nov;88(1):4-19.

Fu C, Glasdam S, Stjernswärd S, Xu H. A Qualitative Systematic Review About Children's Everyday Lives when a Parent Is Seriously Ill with the Prospect of Imminent Death - Perspectives of Children and Parents. Omega (Westport). 2023 Jan 11:302228221149767. doi: 10.1177/00302228221149767. Epub ahead of print.

Fuglsang CMB, Johnsen EMW, Dieperink KB. How nurses can support families where a person with serious illness is living at home: A scoping review. Health Soc Care Community. 2023;2023:9595254.

Glover L, Dixon C, Kobylecki C, Eccles FJR. Parkinson's and the couple relationship: a qualitative meta-synthesis. Aging Ment Health. 2023 Jun 24:1-10. doi: 10.1080/13607863.2023.2227119. Epub ahead of print.

Govind N, Ferguson C, Phillips JL, Hickman L. Palliative care interventions and end of life care as reported by patients' post-stroke and their families: a systematic review. Eur J Cardiovasc Nurs. 2022 Nov 29:zvac112. doi: 10.1093/eurjcn/zvac112. Epub ahead of print.

Ham L, Slotman E, Burghout C, Raijmakers NJ, van de Poll-Franse LV, van Zuylen L, et al. Potentially inappropriate end-of-life care and its association with relatives’ well-being: A systematic review. Support Care Cancer. 2023;31(12).

Hayward JK, Gould C, Palluotto E, Kitson E, Fisher ER, Spector A. Interventions promoting family involvement with care homes following placement of a relative with dementia: A systematic review. Dementia (London). 2022 Feb;21(2):618-647. doi: 10.1177/14713012211046595. Epub 2021 Dec 11.

Hayes Bauer E, Schultz A, Brandt F, Smith AC, Bollig G, Dieperink KB. Patient and families' perspectives on telepalliative care: A systematic integrative review. Palliat Med. 2023:2692163231217146.

Hoff T, Trovato K, Kitsakos A. Hospice Satisfaction Among Patients, Family, and Caregivers: A Systematic Review of the Literature. Am J Hosp Palliat Care. 2023 Jul 19:10499091231190778. doi: 10.1177/10499091231190778. Epub ahead of print.

Hollins Martin CJ, Reid K. A scoping review of therapies used to treat psychological trauma post perinatal bereavement. J Reprod Infant Psychol. 2023;41(5):582-598.

Joost K, Washington K, Faurot M, Alexander RL, Craig KW, Tuller ER. Identifying the palliative care needs of patients and families in gynecologic surgical oncology: A scoping review. J Psychosoc Oncol. 2023 Feb 8:1-12. doi: 10.1080/07347332.2023.2174474. Epub ahead of print.

Kardosod A, Needham J, Coyne E. The experiences and needs of metastatic spinal cancer family caregivers at home: a systematic review. Support Care Cancer. 2023 Apr 29;31(5):310. doi: 10.1007/s00520-023-07777-5.

Lakhani J, Mack C, Kunyk D, Kung J, van Manen M. Considerations for Practice in Supporting Parental Bereavement in the Neonatal Intensive Care Unit-a Systematic Review. J Palliat Care. 2023 Feb 27:8258597231158328. doi: 10.1177/08258597231158328. Epub ahead of print.

Lamb CM, Ramer K, Amodu O, Groenenboom K. The meaning of dying and death for children, their carers, and families: A scoping review. BMC Palliat Care. 2023;22(1):1-15.

McAndrew NS, Gray TF, Wallace L, Calkins K, Guttormson J, Harding ES, Applebaum AJ. Existential distress in family caregivers: scoping review of meaning-making interventions. BMJ Support Palliat Care. 2023 Aug 21:spcare-2023-004448. doi: 10.1136/spcare-2023-004448. Epub ahead of print.

Mcpeake ML, Cook N, Mcilfatrick S, Hasson F. The experience of shared decision-making for patients with end-stage kidney disease undergoing haemodialysis and their families-A scoping review. J Clin Nurs. 2023 May 27. doi: 10.1111/jocn.16766. Epub ahead of print.

Neefjes V. Parental ethical decision making and implications for advance care planning: A systematic review and secondary analysis of qualitative literature from England and Wales, Germany, and the Netherlands. J Palliat Med. 2023;26(12):1728-1743.

O'Kane M, Gormley K, Isaac J. A palliative nursing strategy to enhance communication and support for patients and families in intensive care units. Int J Palliat Nurs. 2023 Apr 2;29(4):154-158. doi: 10.12968/ijpn.2023.29.4.154.

Polakova K, Ahmed F, Vlckova K, Brearley SG. Parents' experiences of being involved in medical decision-making for their child with a life-limiting condition: A systematic review with narrative synthesis. Palliat Med. 2023:2692163231214414.

Postavaru GI, Hamilton J, Davies S, Swaby H, Michael A, Swaby R, Mukaetova-Ladinska EB. The FATHER Model of Loss and Grief After Child's Life-Limiting Illness. Pediatrics. 2023 Jul 1;152(1):e2022059122. doi: 10.1542/peds.2022-059122.

Pun J, Chow JCH, Fok L, Cheung KM. Role of patients' family members in end-of-life communication: an integrative review. BMJ Open. 2023 Feb 21;13(2):e067304. doi: 10.1136/bmjopen-2022-067304.

Rajendran P, Jarasiunaite-Fedosejeva G, İsbir GG, Shorey S. Healthy siblings' perspectives about paediatric palliative care: A qualitative systematic review and meta-synthesis. Palliat Med. 2023:2692163231217597.

Sheehan S, Hanna JR, Drury A, McCance T, Semple CJ, O'Neill C. A Systematic Review of Educational Interventions to Equip Health and Social Care Professionals to Promote End-of-Life Supportive Care when a Parent with Dependent Children is Dying with Cancer. Semin Oncol Nurs. 2023 Jul 20:151474. doi: 10.1016/j.soncn.2023.151474. Epub ahead of print.

Silveira AO, Wernet M, Franco LF, Dias PLM, Charepe Z. Parents' hope in perinatal and neonatal palliative care: A scoping review. BMC Palliat Care. 2023;22(1):1-11.

Sjuls M, Ludvigsen MS, Robstad N, Fegran L. Fathers' experiences of living with a child with a progressive life-limiting condition without curative treatment options: A qualitative systematic review. J Adv Nurs. 2023 Sep 26.

Stephen A, Baguley F. The experience and support needs of adult family members who face a sudden adult death: A systematic review study. Bereavement. 2023;2.

Tirado PSM, García EG, Concejero LT. Nursing care in perinatal grief. A systematic and critical review of attitudes and knowledge in clinical practice. Enferm Clin (Engl Ed). 2023 Jul 19:S2445-1479(23)00048-6. doi: 10.1016/j.enfcle.2023.07.005. Epub ahead of print.

Valleggi A, Passino C, Emdin M, Murante AM. Differences in family caregiver experiences and expectations of end-of-life heart failure care across providers and settings: a systematic literature review. BMC Health Serv Res. 2023 May 3;23(1):429. doi: 10.1186/s12913-023-09241-w.

Walker W, Efstathiou N, Jones J, Collins P, Jennens H. Family experiences of in-hospital end-of-life care for adults: A systematic review of qualitative evidence. J Clin Nurs. 2023 May;32(9-10):2252-2269. doi: 10.1111/jocn.16268. Epub 2022 Mar 24.

Weiss CR, Baker C, Gillespie A, Jones J. Ambiguous loss in family caregivers of loved ones with cancer, a synthesis of qualitative studies. J Cancer Surviv. 2023 Apr;17(2):484-498. doi: 10.1007/s11764-022-01286-w. Epub 2022 Nov 18.

Yıldız M, Terzioğlu C, Ayhan F. Psychosocial interventions aimed at family members caring for patients with cancer in the palliative period: A systematic review. Int J Nurs Knowl. 2023 Mar 31. doi: 10.1111/2047-3095.12423. Epub ahead of print.

Zhu Y, Pei X, Chen X, Li T. Family Caregivers' Experiences of Caring for Advanced Cancer Patients: A Qualitative Systematic Review and Meta-synthesis. Cancer Nurs. 2023 Jul-Aug 01;46(4):270-283. doi: 10.1097/NCC.0000000000001104. Epub 2022 Dec 11.


Barrett L, Fraser L, Noyes J, Taylor J, Hackett J. Understanding parent experiences of end-of-life care for children: A systematic review and qualitative evidence synthesis. Palliat Med. 2023 Feb;37(2):178-202. doi: 10.1177/02692163221144084. Epub 2022 Dec 22.

Bennett HE, Duke S, Richardson A. Paediatric advance care planning in life-limiting conditions: scoping review of parent experiences. BMJ Support Palliat Care. 2022 Jun 3. doi: 10.1136/bmjspcare-2022-003544.

Bergersen EB, Larsson M, Olsson C. Children and adolescents' preferences for support when living with a dying parent - An integrative review. Nurs Open. 2022 Feb 13. doi: 10.1002/nop2.1187. Epub ahead of print.

Brekelmans ACM, Ramnarain D, Pouwels S. Bereavement support programs in the Intensive Care Unit: a systematic review. J Pain Symptom Manage. 2022 May 23:S0885-3924(22)00740-0. doi: 10.1016/j.jpainsymman.2022.05.008. Epub ahead of print.

Cheng G, Chen C. End-of-Life Needs of Dying Patients and Their Families in Mainland China: A Systematic Review. Omega (Westport). 2023 Feb;86(3):1019-1045. doi: 10.1177/0030222821997340. Epub 2021 Feb 24.

Cheng Q, Xu B, Ng MSN, Zheng H, So WKW. Needs assessment instruments for family caregivers of cancer patients receiving palliative care: a systematic review. Support Care Cancer. 2022 May 28. doi: 10.1007/s00520-022-07122-2. Epub ahead of print.

Crawley S, Sampson EL, Moore KJ, Kupeli N, West E. Grief in family carers of people living with dementia: A systematic review. Int Psychogeriatr. 2022 Jan 28:1-32. doi: 10.1017/S1041610221002787. Epub ahead of print.

D'Alton SV, Ridings L, Williams C, Phillips S. The bereavement experiences of children following sibling death: An integrative review. J Pediatr Nurs. 2022 Jun 1:S0882-5963(22)00118-X. doi: 10.1016/j.pedn.2022.05.006. Epub ahead of print.

Dehpour T, Koffman J. Assessment of anticipatory grief in informal caregivers of dependants with dementia: a systematic review. Aging Ment Health. 2022 Feb 15:1-14. doi: 10.1080/13607863.2022.2032599. Epub ahead of print.

Dorman J, Raffin Bouchal S, daSilva Curiel K, Miller M. Family experiences with palliative care in freestanding paediatric hospices: a scoping review. BMJ Support Palliat Care. 2022 Jun 1:bmjspcare-2021-003457. doi: 10.1136/bmjspcare-2021-003457. Epub ahead of print.

Effendy C, Kurianto E, Darmayanti ARI, Noviana U, Nurjannah I. Palliative Care Education to Enhance Informal Caregivers’ Skills in Caring for Patients with Cancer: A Scoping Review. Open Access Maced J Med Sci. 2022 Jan. 2;10(G):69-75.

Hamel MN, Beltran SJ. Factors that Contribute to Bereaved Parents' Perceptions of Neonatal Palliative Care: A Systematic Literature Review. Am J Hosp Palliat Care. 2022 Jul 6:10499091221113277. doi: 10.1177/10499091221113277. Epub ahead of print.

Hasdenteufel M, Quintard B. Psychosocial factors affecting the bereavement experience of relatives of palliative-stage cancer patients: a systematic review. BMC Palliat Care. 2022 Nov 30;21(1):212. doi: 10.1186/s12904-022-01096-y.

Hasdenteufel M, Quintard B. Dyadic Experiences and Psychosocial Management of Couples Facing Advanced Cancer: A Systematic Review of the Literature. Front Psychol. 2022 Jun 8;13:827947. doi: 10.3389/fpsyg.2022.827947.

Hui-Lin C, Ting G. The experiences, perceptions, and support needs among family caregivers of patients with advanced cancer and eating problems: An integrative review. Palliat Med. 2022 Feb 21:2692163211058598. doi: 10.1177/02692163211058598. Epub ahead of print.

Jessop M, Fischer A, Good P. Impact of expected parental death on the health of adolescent and young adult children: A systematic review of the literature. Palliat Med. 2022 May 5:2692163221092618. doi: 10.1177/02692163221092618. Epub ahead of print.

Jones K, Methley A, Boyle G, Garcia R, Vseteckova J. A Systematic Review of the Effectiveness of Acceptance and Commitment Therapy for Managing Grief Experienced by Bereaved Spouses or Partners of Adults Who Had Received Palliative Care. Illn Crisis Loss. 2022 Oct;30(4):596-613. doi: 10.1177/10541373211000175.

Kishino M, Ellis-Smith C, Afolabi O, Koffman J. Family involvement in advance care planning for people living with advanced cancer: A systematic mixed-methods review. Palliat Med. 2022 Jan 6:2692163211068282. doi: 10.1177/02692163211068282. Epub ahead of print.

Malhotra C, Huynh VA, Shafiq M, Batcagan-Abueg APM. Advance care planning and caregiver outcomes: intervention efficacy - systematic review. BMJ Support Palliat Care. 2022 Jul 4:bmjspcare-2021-003488. doi: 10.1136/spcare-2021-003488. Epub ahead of print.

Marco DJ, Thomas K, Ivynian S, Wilding H, Parker D, Tieman J, Hudson P. Family carer needs in advanced disease: systematic review of reviews. BMJ Support Palliat Care. 2022 Jun;12(2):132-141. doi: 10.1136/bmjspcare-2021-003299. Epub 2022 Jan 7.

Miller EM, Porter JE, Barbagallo MS. The Physical Hospital Environment and Its Effects on Palliative Patients and Their Families: A Qualitative Meta-Synthesis. HERD. 2022 Jan;15(1):268-291. doi: 10.1177/19375867211032931. Epub 2021 Aug 6.

Mulcahy Symmons S, Ryan K, Aoun SM, Selman LE, Davies AN, Cornally N, Lombard J, McQuilllan R, Guerin S, O'Leary N, Connolly M, Rabbitte M, Mockler D, Foley G. Decision-making in palliative care: patient and family caregiver concordance and discordance-systematic review and narrative synthesis. BMJ Support Palliat Care. 2022 Mar 22:bmjspcare-2022-003525. doi: 10.1136/bmjspcare-2022-003525. Epub ahead of print.

Patra L, Ghoshal A, Damani A, Salins N. Cancer palliative care referral: patients' and family caregivers' perspectives - a systematic review. BMJ Support Palliat Care. 2022 Nov 3:spcare-2022-003990. doi: 10.1136/spcare-2022-003990. Epub ahead of print.

Phoon J, Tan YP, Harding R. A Systematic Review and Narrative Synthesis of the Evidence Underpinning Theoretical Perspectives and Cultural Influences on Forgiveness in Palliative Care. J Palliat Med. 2022 Jun 20. doi: 10.1089/jpm.2021.0657. Epub ahead of print.

Russ V, Stopa L, Sivyer K, Jane Hazeldine, Tess Maguire. The Relationship Between Adult Attachment and Complicated Grief: A Systematic Review. Omega (Westport). 2022 May 29:302228221083110. doi: 10.1177/00302228221083110. Epub ahead of print.

Saad R, Abu-Saad Huijer H, Noureddine S, Sailian SD. Pediatric palliative care through the eyes of healthcare professionals, parents and communities: a narrative review. Ann Palliat Med. 2022 Oct;11(10):3292-3314. doi: 10.21037/apm-22-525. Epub 2022 Oct 17.

Singer J, Roberts KE, McLean E, Fadalla C, Coats T, Rogers M, Wilson MK, Godwin K, Lichtenthal WG. An examination and proposed definitions of family members' grief prior to the death of individuals with a life-limiting illness: A systematic review. Palliat Med. 2022 Feb 23:2692163221074540. doi: 10.1177/02692163221074540. Epub ahead of print.

Schoonover KL, Prokop L, Lapid MI. Valuable Informal Bereavement Support Strategies for Bereaved Parents of Stillborn, Young Children, and Adult Children: A Scoping Review. J Palliat Care. 2022 Mar 30:8258597211062762. doi: 10.1177/08258597211062762. Epub ahead of print.

Srivastava R, Srivastava S. Parental Perspective in Paediatric Palliative Care: A Systematic Review of Literature Using the PRISMA Method. Indian J Palliat Care. 2022 Apr-Jun;28(2):199-215. doi: 10.25259/IJPC_37_2021. Epub 2022 Mar 3.

van Kempen MM, Kochen EM, Kars MC. Insight into the content of and experiences with follow-up conversations with bereaved parents in paediatrics: A systematic review. Acta Paediatr. 2022 Jan 7. doi: 10.1111/apa.16248. Epub ahead of print.

Wickramasinghe LM, Yeo ZZ, Chong PH, Johnston B. Communicating with young children who have a parent dying of a life-limiting illness: a qualitative systematic review of the experiences and impact on healthcare, social and spiritual care professionals. BMC Palliat Care. 2022 Jul 12;21(1):125. doi: 10.1186/s12904-022-01007-1.

Yan H, Bytautas J, Isenberg SR, Kaplan A, Hashemi N, Kornberg M, Hendrickson T. Grief and bereavement of family and friends around medical assistance in dying: scoping review. BMJ Support Palliat Care. 2022 Sep 13:bmjspcare-2022-003715. doi: 10.1136/spcare-2022-003715. Epub ahead of print.


Benites AC, Rodin G, Leite ACAB, Nascimento LC, Dos Santos MA. 'The experience of spirituality in family caregivers of adult and elderly cancer patients receiving palliative care: A meta-synthesis'. Eur J Cancer Care (Engl). 2021 Feb 5:e13424. doi: 10.1111/ecc.13424. Epub ahead of print.

Bennett FB, Hadidi NN, O'Conner-Von SK. End-Of-Life Care Communication in Long-Term Care Among Nurses, Residents, and Families: A Critical Review of Qualitative Research. J Gerontol Nurs. 2021 Jul;47(7):43-49. doi: 10.3928/00989134-20210604-03. Epub 2021 Jul 1.

Boven C, Dillen L, Van den Block L, Piers R, Van Den Noortgate N, Van Humbeeck L. In-Hospital Bereavement Services as an Act of Care and a Challenge: An Integrative Review. J Pain Symptom Manage. 2021 Oct 22:S0885-3924(21)00590-X. doi: 10.1016/j.jpainsymman.2021.10.008. Epub ahead of print.

Chatland LE, Harvey C, Kelly K, Paradine S, Bhagat M, Hudson BF. Research participation in palliative medicine-benefits and barriers for patients and families: rapid review and thematic synthesis. BMJ Support Palliat Care. 2021 Aug 17:bmjspcare-2021-003093. doi: 10.1136/bmjspcare-2021-003093. Epub ahead of print.

Connolly T, Coats H, DeSanto K, Jones J. The experience of uncertainty for patients, families and healthcare providers in post-stroke palliative and end-of-life care: a qualitative meta-synthesis. Age Ageing. 2021 Feb 26;50(2):534-545. doi: 10.1093/ageing/afaa229.

Dittborn M, Turrillas P, Maddocks M, Leniz J. Attitudes and preferences towards palliative and end of life care in patients with advanced illness and their family caregivers in Latin America: A mixed studies systematic review. Palliat Med. 2021 Aug 2:2692163211029514. doi: 10.1177/02692163211029514. Epub ahead of print.

Dos Anjos C, Silva RMCRA, Pereira ER, Sampaio CEP, Silva MA, Carneiro ECDSP. Families experiencing palliative care for hospitalized children with cancer: an integrative review. Revista Enfermagem. 2021;29. doi: 10.12957/reuerj.2021.51932.

Ekberg S, Parry R, Land V, Ekberg K, Pino M, Antaki C, Jenkins L, Whittaker B. Communicating with patients and families about illness progression and end of life: a review of studies using direct observation of clinical practice. BMC Palliat Care. 2021 Dec 8;20(1):186. doi: 10.1186/s12904-021-00876-2.

Featherstone I, Hosie A, Siddiqi N, Grassau P, Bush SH, Taylor J, Sheldon T, Johnson MJ. The experience of delirium in palliative care settings for patients, family, clinicians and volunteers: A qualitative systematic review and thematic synthesis. Palliat Med. 2021 Mar 30:2692163211006313. doi: 10.1177/02692163211006313. Epub ahead of print.

Fisher V, Fraser L, Taylor J. Experiences of fathers of children with a life-limiting condition: a systematic review and qualitative synthesis. BMJ Support Palliat Care. 2021 Jun 17:bmjspcare-2021-003019. doi: 10.1136/bmjspcare-2021-003019. Epub ahead of print.

Galazzi A, Adamini I, Bazzano G, Cancelli L, Fridh I, Laquintana D, Lusignani M, Rasero L. Intensive care unit diaries to help bereaved family members in their grieving process: a systematic review. Intensive Crit Care Nurs. 2021 Aug 6:103121. doi: 10.1016/j.iccn.2021.103121. Epub ahead of print.

Gonella S, Mitchell G, Bavelaar L, Conti A, Vanalli M, Basso I, Cornally N. Interventions to support family caregivers of people with advanced dementia at the end of life in nursing homes: A mixed-methods systematic review. Palliat Med. 2021 Dec 30:2692163211066733. doi: 10.1177/02692163211066733. Epub ahead of print.

Harrison M, Gardiner C, Taylor B, Ejegi-Memeh S, Darlison L. Understanding the palliative care needs and experiences of people with mesothelioma and their family carers: An integrative systematic review. Palliat Med. 2021 Apr 8:2692163211007379. doi: 10.1177/02692163211007379. Epub ahead of print.

Hartley J, Bluebond-Langner M, Candy B, Downie J, Henderson EM. The Physical Health of Caregivers of Children With Life-Limiting Conditions: A Systematic Review. Pediatrics. 2021 Jun 21:e2020014423. doi: 10.1542/peds.2020-014423. Epub ahead of print.

Hui Z, Yang C, Lee DTF. Interventions for Family Members After Long-Term Care Placement of a Relative With Dementia: A Systematic Review and Meta-Analysis. Res Gerontol Nurs. 2021 Jan 1;14(1):43-52. doi: 10.3928/19404921-20200918-02. Epub 2020 Sep 23.

Ito Y, Tsubaki M, Kobayashi M. Families' experiences of grief and bereavement in the emergency department: A scoping review. Jpn J Nurs Sci. 2021 Sep 7:e12451. doi: 10.1111/jjns.12451. Epub ahead of print.

Jung MY, Matthews AK. A Systematic Review of Clinical Interventions Facilitating End-of-Life Communication Between Patients and Family Caregivers. Am J Hosp Palliat Care. 2021 Feb;38(2):180-190. doi: 10.1177/1049909120929323. Epub 2020 May 28.

Kustanti CY, Chu H, Kang XL, Huang TW, Jen HJ, Liu D, Shen Hsiao ST, Chou KR. Prevalence of grief disorders in bereaved families of cancer patients: A meta-analysis. Palliat Med. 2021 Dec 30:2692163211066747. doi: 10.1177/02692163211066747. Epub ahead of print.

Kustanti CY, Fang HF, Linda Kang X, Chiou JF, Wu SC, Yunitri N, Chu H, Chou KR. The Effectiveness of Bereavement Support for Adult Family Caregivers in Palliative Care: A Meta-Analysis of Randomized Controlled Trials. J Nurs Scholarsh. 2021 Mar;53(2):208-217. doi: 10.1111/jnu.12630. Epub 2021 Feb 5.

Kutluk T, Ahmed F, Cemaloğlu M, Aydın B, Şengelen M, Kirazli M, Yurduşen S, Sullivan R, Harding R. Progress in palliative care for cancer in Turkey: a review of the literature. Ecancermedicalscience. 2021 Nov 25;15:1321. doi: 10.3332/ecancer.2021.1321.

Magan KC, Hirschman KB, Starr LT, Meghani SH. Longitudinal Trajectories and Correlates of Post-Caregiving Depressive Symptoms in Former Caregivers of Persons With Alzheimer's Disease or a Related Dementia. Am J Hosp Palliat Care. 2021 Sep 3:10499091211042836. doi: 10.1177/10499091211042836. Epub ahead of print.

Majid U, Akande A. Managing Anticipatory Grief in Family and Partners: A Systematic Review and Qualitative Meta-Synthesis. The Family Journal. 2021 April. doi:10.1177/10664807211000715

Martina D, Lin CP, Kristanti MS, Bramer WM, Mori M, Korfage IJ, van der Heide A, van der Rijt CCD, Rietjens JAC. Advance Care Planning in Asia: A Systematic Narrative Review of Healthcare Professionals' Knowledge, Attitude, and Experience. J Am Med Dir Assoc. 2021 Feb;22(2):349.e1-349.e28. doi: 10.1016/j.jamda.2020.12.018. Epub 2021 Jan 7.

McNeil MJ, Baker JN, Snyder I, Rosenberg AR, Kaye EC. Grief and Bereavement in Fathers After the Death of a Child: A Systematic Review. Pediatrics. 2021 Mar 1:e2020040386. doi: 10.1542/peds.2020-040386. Epub ahead of print.

Michaels J, Chen C, Ann Meeker M. Navigating the caregiving abyss: A metasynthesis of how family caregivers manage end-of-life care for older adults at home. Palliat Med. 2021 Sep 3:2692163211042999. doi: 10.1177/02692163211042999. Epub ahead of print.

Miller EM, Porter JE, Barbagallo MS. The experiences of health professionals, patients, and families with truth disclosure when breaking bad news in palliative care: A qualitative meta-synthesis. Palliat Support Care. 2021:1-12. doi:10.1017/S1478951521001243.

Morrissette M. When Practice Becomes Personal: The Death of a Psychiatrist’s Parent. J Loss Trauma. 2021;26(7): 656-65. doi: 10.1080/15325024.2020.1866313

Nagelschmidt K, Leppin N, Seifart C, Rief W, von Blanckenburg P. Systematic mixed-method review of barriers to end-of-life communication in the family context. BMJ Support Palliat Care. 2021 Sep;11(3):253-263. doi: 10.1136/bmjspcare-2020-002219. Epub 2020 Aug 27.

Oakley S, Dunbar H, de Vries K. Parent-led strategies supporting personal well-being when caring for a child with a life-limiting condition: A scoping review. J Child Health Care. 2021 Aug 9:13674935211026122. doi: 10.1177/13674935211026122. Epub ahead of print.

Ortiz-Campoy S, Lirio-Romero C, Romay-Barrero H, Álvarez DM, López-Muñoz P, Palomo-Carrión R. The Role of Physiotherapy in Pediatric Palliative Care: A Systematic Review. Children (Basel). 2021 Nov 12;8(11):1043. doi: 10.3390/children8111043.

Parajuli J, Hupcey JE. A Systematic Review on Barriers to Palliative Care in Oncology. Am J Hosp Palliat Care. 2021 Jan 8:1049909120983283. doi: 10.1177/1049909120983283. Epub ahead of print.

Poveda-Moral S, Falcó-Pegueroles A, Ballesteros-Silva MP, Bosch-Alcaraz A. Barriers to Advance Care Planning Implementation in Health care: An Umbrella Review with Implications for Evidence-Based Practice. Worldviews Evid Based Nurs. 2021 Oct;18(5):254-263. doi: 10.1111/wvn.12530. Epub 2021 Sep 10.

Purrington J. Psychological Adjustment to Spousal Bereavement in Older Adults: A Systematic Review. Omega (Westport). 2021 Sep 1:302228211043702. doi: 10.1177/00302228211043702. Epub ahead of print.

Rait LI, Yeo NY, Abdelhamid YA, Showler L, Finnis ME, Deane AM. The impact of bereavement support on psychological distress in family members: a systematic review and meta-analysis. Crit Care Resusc. 2021 Jun;23(2):225-33. doi: 10.51893/2021.2.sr1

Saarinen J, Mishina K, Soikkeli-Jalonen A, Haavisto E. Family members' participation in palliative inpatient care: An integrative review. Scand J Caring Sci. 2021 Dec 27. doi: 10.1111/scs.13062. Epub ahead of print.

Shaohua L, Shorey S. Psychosocial interventions on psychological outcomes of parents with perinatal loss: A systematic review and meta-analysis. Int J Nurs Stud. 2021 Jan 12;117:103871. doi: 10.1016/j.ijnurstu.2021.103871. Epub ahead of print.

Sofronas M, Wright DK. Neuropalliative care: An integrative review of the nursing literature. Int J Nurs Stud. 2021 Jan 14;117:103879. doi: 10.1016/j.ijnurstu.2021.103879. Epub ahead of print.

Soikkeli-Jalonen A, Mishina K, Virtanen H, Charalambous A, Haavisto E. Supportive interventions for family members of very seriously ill patients in inpatient care: A systematic review. J Clin Nurs. 2021 Feb 22. doi: 10.1111/jocn.15725. Epub ahead of print.

Tan AJN, Tiew LH, Shorey S. Experiences and needs of parents of palliative paediatric oncology patients: A meta-synthesis. Eur J Cancer Care (Engl). 2021 May;30(3):e13388. doi: 10.1111/ecc.13388. Epub 2020 Dec 17.

Tezuka S, Kobayashi K. Parental experience of child death in the paediatric intensive care unit: a scoping review. BMJ Open. 2021 Dec 30;11(12):e057489. doi: 10.1136/bmjopen-2021-057489.

Vig PS, Lim JY, Lee RWL, Huang H, Tan XH, Lim WQ, Lim MBXY, Lee ASI, Chiam M, Lim C, Baral VR, Krishna LKR. Parental bereavement - impact of death of neonates and children under 12 years on personhood of parents: a systematic scoping review. BMC Palliat Care. 2021 Sep 4;20(1):136. doi: 10.1186/s12904-021-00831-1.

Wilson DM, Anafi F, Roh SJ, Errasti-Ibarrondo B. A Scoping Research Literature Review to Identify Contemporary Evidence on the Incidence, Causes, and Impacts of End-of-Life Intra-Family Conflict. Health Commun. 2021 Nov;36(13):1616-1622. doi: 10.1080/10410236.2020.1775448. Epub 2020 Jun 10.

Young K, Bowers A, Bradford N. Families' experiences of child and adolescent brain tumor: A systematic review and synthesis of qualitative research. Psychooncology. 2021 Jun 8. doi: 10.1002/pon.5745. Epub ahead of print.

Zhu S, Zhu H, Zhang X, Liu K, Chen Z, Yang X, Sun C, Xie W, Xu Q, Li W, Pang D, Cui Y, Wang H. Care needs of dying patients and their family caregivers in hospice and palliative care in mainland China: a meta-synthesis of qualitative and quantitative studies. BMJ Open. 2021 Nov 5;11(11):e051717. doi: 10.1136/bmjopen-2021-051717.


Areia NP, Góngora JN, Major S, Oliveira VD, Relvas AP. Support interventions for families of people with terminal cancer in palliative care. Palliat Support Care. 2020 Feb 26:1-9. doi: 10.1017/S1478951520000127. Epub ahead of print.

Backhaus R, Hoek LJM, de Vries E, van Haastregt JCM, Hamers JPH, Verbeek H. Interventions to foster family inclusion in nursing homes for people with dementia: a systematic review. BMC Geriatr. 2020 Oct 30;20(1):434. doi: 10.1186/s12877-020-01836-w.

Bradford N, Rolfe M, Ekberg S, Mitchell G, Beane T, Ferranti K, Herbert A. Family meetings in paediatric palliative care: an integrative review. BMJ Support Palliat Care. 2020 Jul 17:bmjspcare-2020-002333. doi: 10.1136/bmjspcare-2020-002333. Epub ahead of print.

Chen C, Michaels J, Meeker MA. Family Outcomes and Perceptions of End-of-Life Care in the Intensive Care Unit: A Mixed-Methods Review. J Palliat Care. 2020 Jul;35(3):143-153. doi: 10.1177/0825859719874767. Epub 2019 Sep 23.

Chi NC, Barani E, Fu YK, Nakad L, Gilbertson-White S, Herr K, Saeidzadeh S. Interventions to Support Family Caregivers in Pain Management: A Systematic Review. J Pain Symptom Manage. 2020 Apr 24:S0885-3924(20)30210-4. doi: 10.1016/j.jpainsymman.2020.04.014. Epub ahead of print.

Clancy M, Taylor J, Bradbury-Jones C, Phillimore J. A systematic review exploring palliative care for families who are forced migrants. J Adv Nurs. 2020 Aug 31. doi: 10.1111/jan.14509. Epub ahead of print.

Coventry A, Ford R, Rosenberg J, McInnes E. A qualitative meta-synthesis investigating the experiences of the patient's family when treatment is withdrawn in the intensive care unit. J Adv Nurs. 2020 Sep;76(9):2222-2234. doi: 10.1111/jan.14416. Epub 2020 Jul 20.

Fernández-Basanta S, Coronado C, Movilla-Fernández MJ. Multicultural coping experiences of parents following perinatal loss: A meta-ethnographic synthesis. J Adv Nurs. 2020 Jan;76(1):9-21. doi: 10.1111/jan.14211. Epub 2019 Oct 2.

Furtado-Eraso S, Escalada-Hernández P, Marín-Fernández B. Integrative Review of Emotional Care Following Perinatal Loss. West J Nurs Res. 2020 Sep 4:193945920954448. doi: 10.1177/0193945920954448. Epub ahead of print.

Havreng-Théry C, Giner-Perot J, Zawieja P, Bertin-Hugault F, Belmin J, Rothan-Tondeur M. Expectations and Needs of Families in Nursing Homes: An Integrative Review. Med Care Res Rev. 2020 Feb 26:1077558720907183. doi: 10.1177/1077558720907183. Epub ahead of print.

Kochen EM, Jenken F, Boelen PA, Deben LMA, Fahner JC, van den Hoogen A, Teunissen SCCM, Geleijns K, Kars MC. When a child dies: a systematic review of well-defined parent-focused bereavement interventions and their alignment with grief- and loss theories. BMC Palliat Care. 2020 Mar 12;19(1):28. doi: 10.1186/s12904-020-0529-z.

Lancel M, Stroebe M, Eisma MC. Sleep disturbances in bereavement: A systematic review. Sleep Med Rev. 2020 May 21;53:101331. doi: 10.1016/j.smrv.2020.101331. Epub ahead of print.

Mackintosh NJ, Davis RE, Easter A, Rayment-Jones H, Sevdalis N, Wilson S, Adams M, Sandall J. Interventions to increase patient and family involvement in escalation of care for acute life-threatening illness in community health and hospital settings. Cochrane Database Syst Rev. 2020 Dec 8;12:CD012829. doi: 10.1002/14651858.CD012829.pub2.

Malcolm C, Knighting K, Taylor C. Home-based end of life care for children and their families - a systematic scoping review and narrative synthesis. J Pediatr Nurs. 2020 Sep 16;55:126-133. doi: 10.1016/j.pedn.2020.07.018. Epub ahead of print.

Marshall S, Fearnley R, Bristowe K, Harding R. The perspectives of children and young people affected by parental life-limiting illness: An integrative review and thematic synthesis. Palliat Med. 2020 Nov 19:269216320967590. doi: 10.1177/0269216320967590. Epub ahead of print.

Mason TM, Tofthagen CS, Buck HG. Complicated Grief: Risk Factors, Protective Factors, and Interventions. J Soc Work End Life Palliat Care. 2020 Mar 31:1-24. doi: 10.1080/15524256.2020.1745726. Epub ahead of print.

Nagelschmidt K, Leppin N, Seifart C, Rief W, von Blanckenburg P. Systematic mixed-method review of barriers to end-of-life communication in the family context. BMJ Support Palliat Care. 2020 Aug 27:bmjspcare-2020-002219. doi: 10.1136/bmjspcare-2020-002219. Epub ahead of print.

Ohan JL, Jackson HM, Bay S, Morris JN, Martini A. How psychosocial interventions meet the needs of children of parents with cancer: A review and critical evaluation. Eur J Cancer Care (Engl). 2020 May 13:e13237. doi: 10.1111/ecc.13237. Epub ahead of print.

Polita NB, de Montigny F, Neris RR, Alvarenga WA, Silva-Rodrigues FM, Leite ACAB, Nascimento LC. The Experiences of Bereaved Parents After the Loss of a Child to Cancer: A Qualitative Metasynthesis. J Pediatr Oncol Nurs. 2020 Nov/Dec;37(6):444-457. doi: 10.1177/1043454220944059. Epub 2020 Jul 27.

Postavaru GI, Swaby H, Swaby R. A meta-ethnographic study of fathers' experiences of caring for a child with a life-limiting illness. Palliat Med. 2020 Dec 18:269216320979153. doi: 10.1177/0269216320979153. Epub ahead of print.

Ridley A, Frache S. Bereavement care interventions for children under the age of 18 following the death of a sibling: a systematic review. Palliat Med. 2020 Aug 17:269216320947951. doi: 10.1177/0269216320947951. Epub ahead of print.

Schofield G, Dittborn M, Huxtable R, Brangan E, Selman LE. Real-world ethics in palliative care: A systematic review of the ethical challenges reported by specialist palliative care practitioners in their clinical practice. Palliat Med. 2020 Dec 10:269216320974277. doi: 10.1177/0269216320974277. Epub ahead of print.

Thompson JH, Moser D. Experiences with end-of-life care with a left ventricular assist device: An integrative review. Heart Lung. 2020 Mar 18:S0147-9563(20)30085-6. doi: 10.1016/j.hrtlng.2020.02.046. Epub ahead of print.


Ainscough T, Fraser L, Taylor J, Beresford B, Booth A. Bereavement support effectiveness for parents of infants and children: a systematic review. BMJ Support Palliat Care. 2019 Oct 3. pii: bmjspcare-2019-001823. doi: 10.1136/bmjspcare-2019-001823. [Epub ahead of print]

Alyami HM, Chan RJ, New K. End-of-life care preferences for people with advanced cancer and their families in intensive care units: a systematic review. Support Care Cancer. 2019 May 17. doi: 10.1007/s00520-019-04844-8. [Epub ahead of print]

Anderson RJ, Bloch S, Armstrong M, Stone PC, Low JT. Communication between healthcare professionals and relatives of patients approaching the end-of-life: A systematic review of qualitative evidence. Palliat Med. 2019 Sep;33(8):926-941. doi: 10.1177/0269216319852007. Epub 2019 Jun 11.

Bakula DM, Sharkey CM, Perez MN, Espeleta HC, Gamwell KL, Baudino M, Delozier AM, Chaney JM, Matt Alderson R, Mullins LL. The Relationship Between Parent and Child Distress in Pediatric Cancer: A Meta-Analysis. J Pediatr Psychol. 2019 Jul 1. pii: jsz051. doi: 10.1093/jpepsy/jsz051. [Epub ahead of print]

Bosco A, Schneider J, Coleston-Shields DM, Sousa L, Orrell M. Dyadic construction of dementia: meta-ethnography and behaviour-process synthesis. Aging Ment Health. 2019 Jun;23(6):651-659. doi: 10.1080/13607863.2018.1450836. Epub 2018 Mar 15.

Chen C, Meier ST. Selecting the Best Instrument to Measure Family Perceptions of End-of-Life Communication in Intensive Care Units. Am J Hosp Palliat Care. 2019 Aug 7:1049909119867623. doi: 10.1177/1049909119867623. [Epub ahead of print]

Chong PH, Walshe C, Hughes S. Perceptions of a Good Death in Children with Life-Shortening Conditions: An Integrative Review. J Palliat Med. 2019 Jun;22(6):714-723. doi: 10.1089/jpm.2018.0335. Epub 2018 Dec 11.

Chung A, Collier A, Gott M. Community-led and/or focused initiatives to support family carers within a palliative care context: An integrative review. Palliat Med. 2019 Feb;33(2):250-256. doi: 10.1177/0269216318813813. Epub 2018 Dec 5.

Constantinou G, Garcia R, Cook E, Randhawa G. Children's unmet palliative care needs: a scoping review of parents' perspectives. BMJ Support Palliat Care. 2019 Jul 19. pii: bmjspcare-2018-001705. doi: 10.1136/bmjspcare-2018-001705. [Epub ahead of print]

Daneau S, Bourbonnais A, Legault A. Surrogates' end-of-life decision-making process in nursing homes for residents with a neurocognitive disorder: An integrative review. Int J Older People Nurs. 2019 Oct 15:e12274. doi: 10.1111/opn.12274. [Epub ahead of print]

Dias N, Hendricks-Ferguson VL, Wei H, Boring E, Sewell K, Haase JE. A Systematic Literature Review of the Current State of Knowledge Related to Interventions for Bereaved Parents. Am J Hosp Palliat Care. 2019 Dec;36(12):1124-1133. doi: 10.1177/1049909119858931. Epub 2019 Jul 3.

Gamondi C, Fusi-Schmidhauser T, Oriani A, Payne S, Preston N. Family members' experiences of assisted dying: A systematic literature review with thematic synthesis. Palliat Med. 2019 Jun 27:269216319857630. doi: 10.1177/0269216319857630. [Epub ahead of print]

Hanna JR, McCaughan E, Semple CJ. Challenges and support needs of parents and children when a parent is at end of life: A systematic review. Palliat Med. 2019 Jun 27:269216319857622. doi: 10.1177/0269216319857622. [Epub ahead of print]

Heckel L, Heynsbergh NL, Livingston PM. Are cancer helplines effective in supporting caregivers? A systematic review. Support Care Cancer. 2019 May 16. doi: 10.1007/s00520-019-04807-z. [Epub ahead of print]

Herbst FA, Gawinski L, Schneider N, Stiel S. Adult Child-Parent Dyadic Interactions at the End of Life: A Scoping Review. BMJ Support Palliat Care. 2019 Aug 7. pii: bmjspcare-2019-001894. doi: 10.1136/bmjspcare-2019-001894. [Epub ahead of print]

Isham L, Hewison A, Bradbury-Jones C. When Older People Are Violent or Abusive Toward Their Family Caregiver: A Review of Mixed-Methods Research. Trauma Violence Abuse. 2017 Jan 1:1524838017726425. doi: 10.1177/1524838017726425. [Epub ahead of print]

Meeker MA, McGinley JM, Jezewski MA. Metasynthesis: Dying adults’ transition process from cure‐focused to comfort‐focused care. J Adv Nurs. 2019 Feb 7. doi: 10.1111/jan.13970. [Epub ahead of print]

Pettifer A, Froggatt K, Hughes S. The experiences of family members witnessing the diminishing drinking of a dying relative: An adapted meta-narrative literature review. Palliat Med. 2019 Jul 1:269216319859728. doi: 10.1177/0269216319859728. [Epub ahead of print]

Pritty B, De Boos D, Moghaddam N. Factors influencing the transition experience of carers for persons with dementia, when the person with dementia moves into residential care: systematic review and meta-synthesis. Aging Ment Health. 2019 Apr 12:1-10. doi: 10.1080/13607863.2019.1602591. [Epub ahead of print]

Procter S, Ooi M, Hopkins C, Moore G. A review of the literature on family decision-making at end of life precipitating hospital admission. Br J Nurs. 2019 Jul 11;28(13):878-884. doi: 10.12968/bjon.2019.28.13.878.

Ribeiro AF, Martins Pereira S, Gomes B, Nunes R. Do patients, families, and healthcare teams benefit from the integration of palliative care in burn intensive care units? Results from a systematic review with narrative synthesis. Palliat Med. 2019 Jul 12:269216319862160. doi: 10.1177/0269216319862160. [Epub ahead of print]

Roest B, Trappenburg M, Leget C. The involvement of family in the Dutch practice of euthanasia and physician assisted suicide: a systematic mixed studies review. BMC Med Ethics. 2019 Apr 5;20(1):23. doi: 10.1186/s12910-019-0361-2.

Sales AP, da Silva TPS, Sougey EB, Filho JWSC. Psychopathological and Psychosocial Repercussions of Suicide in the Family. Curr Psychiatry Rev. 2019 Jan;15(1):3-10. doi:

Su Y, Yuki M, Hirayama K. The experiences and perspectives of family surrogate decision-makers: A systematic review of qualitative studies. Patient Educ Couns. 2019 Dec 16;S0738-3991(19)30555-5. doi: 10.1016/j.pec.2019.12.011. [Epub ahead of print].

Watson B, Tatangelo G, McCabe M. Depression and Anxiety Among Partner and Offspring Carers of People With Dementia: A Systematic Review. Gerontologist. 2019 Oct;59(5):e597-e610. doi:10.1093/geront/gny049.


Cresp SJ, Lee SF, Moss C. Substitute decision makers' experiences of making decisions at end of life for older persons with dementia: A systematic review and qualitative meta-synthesis. Dementia (London). 2018 Sep 25:1471301218802127. doi: 10.1177/1471301218802127. [Epub ahead of print]

Delmaczynska E, Newham R. To explore the prevalence and outcomes of advance care planning for patients with left ventricular assist devices: A review. J Clin Nurs. 2018 Dec 15. doi: 10.1111/jocn.14748. [Epub ahead of print]

Dutta O, Tan-Ho G, Choo PY, Ho AHY. Lived experience of a child's chronic illness and death: A qualitative systematic review of the parental bereavement trajectory. Death Stud. 2018 Oct 4:1-15. doi: 10.1080/07481187.2018.1503621. [Epub ahead of print]

Edwards HB, Ijaz S, Whiting PF, Leach V, Richards A, Cullum SJ, Cheston RI, Savović J. Quality of family relationships and outcomes of dementia: a systematic review. BMJ Open. 2018 Jan 21;8(1):e015538. doi: 10.1136/bmjopen-2016-015538.

Egilstrod B, Ravn MB, Petersen KS. Living with a partner with dementia: a systematic review and thematic synthesis of spouses' lived experiences of changes in their everyday lives. 2018 Feb 6:1-10. doi: 10.1080/13607863.2018.1433634. [Epub ahead of print]

Ekberg S, Bradford NK, Herbert A, Danby S, Yates P. Healthcare Users' Experiences of Communicating with Healthcare Professionals About Children Who Have Life-Limiting Conditions: A Qualitative Systematic Review. J Palliat Med. 2018 May 15. doi: 10.1089/jpm.2017.0422. [Epub ahead of print]

Etkind SN, Bone AE, Lovell N, Higginson IJ, Murtagh FEM. Influences on Care Preferences of Older People with Advanced Illness: A Systematic Review and Thematic Synthesis. J Am Geriatr Soc. 2018 May;66(5):1031-1039. doi: 10.1111/jgs.15272. Epub 2018 Mar 7.

Faccio F, Ferrari F, Pravettoni G. When a parent has cancer: How does it impact on children's psychosocial functioning? A systematic review. Eur J Cancer Care (Engl). 2018 Jul 23:e12895. doi: 10.1111/ecc.12895. [Epub ahead of print]

Fringer A, Hechinger M, Schnepp W. Transitions as experienced by persons in palliative care circumstances and their families - a qualitative meta-synthesis. BMC Palliat Care. 2018 Feb 5;17(1):22. doi: 10.1186/s12904-018-0275-7.

Górska S, Forsyth K, Maciver D. Living With Dementia: A Meta-synthesis of Qualitative Research on the Lived Experience. Gerontologist. 2018 May 8;58(3):e180-e196. doi: 10.1093/geront/gnw195.

Han HR, Floyd O, Kim K, Cudjoe J, Warren N, Seal S, Sharps P. Intergenerational Interventions for People Living with HIV and Their Families: A Systematic Review. AIDS Behav. 2018 Jul 20. doi: 10.1007/s10461-018-2223-1. [Epub ahead of print]

Hauskov Graungaard A, Roested Bendixen C, Haavet OR, Smith-Sivertsen T, Mäkelä M. Somatic symptoms in children who have a parent with cancer: A systematic review. Child Care Health Dev. 2019 Mar;45(2):147-158. doi: 10.1111/cch.12647.

Haylett WJ, Tilley DS. The Phenomenon of Bereaved Parenting: An Integrative Review of Literature. Omega (Westport). 2018 Dec 18:30222818819350. doi: 10.1177/0030222818819350. [Epub ahead of print]

Holdsworth K, McCabe M. The Impact of Dementia on Relationships, Intimacy, and Sexuality in Later Life Couples: An Integrative Qualitative Analysis of Existing Literature. Clin Gerontol. 2018 Jan-Feb;41(1):3-19. doi: 10.1080/07317115.2017.1380102. Epub 2017 Nov 21.

Hughes NM, Noyes J, Eckley L, Pritchard T. What do patients and family-caregivers value from hospice care? A systematic mixed studies review. BMC Palliat Care. 2019 Feb 8;18(1):18. doi: 10.1186/s12904-019-0401-1.

Kishita N, Hammond L, Dietrich CM, Mioshi E. Which interventions work for dementia family carers?: an updated systematic review of randomized controlled trials of carer interventions. Int Psychogeriatr. 2018 Jul 18:1-18. doi: 10.1017/S1041610218000947. [Epub ahead of print]

Kor PPK, Chien WT, Liu JYW, Lai CKY. Mindfulness-Based Intervention for Stress Reduction of Family Caregivers of People with Dementia: A Systematic Review and Meta-Analysis. Mindfulness. 2018 Feb;9(1):7-22.

Lalani N, Duggleby W, Olson J. Spirituality among family caregivers in palliative care: an integrative literature review. Int J Palliat Nurs. 2018 Feb 2;24(2):80-91. doi: 10.12968/ijpn.2018.24.2.80.

Lim RH, Sharmeen T. Medicines management issues in dementia and coping strategies used by people living with dementia and family carers: A systematic review. Int J Geriatr Psychiatry. 2018 Sep 30. doi: 10.1002/gps.4985. [Epub ahead of print]

Low JTS, Rohde G, Pittordou K, Candy B, Davis S, Marshall A, Stone P. Supportive and palliative care in people with cirrhosis: International systematic review of the perspective of patients, family members and health professionals. J Hepatol. 2018 Dec;69(6):1260-1273. doi: 10.1016/j.jhep.2018.08.028. Epub 2018 Sep 20.

Marzorati C, Renzi C, Russell-Edu SW, Pravettoni G. Telemedicine Use Among Caregivers of Cancer Patients: Systematic Review. J Med Internet Res. 2018 Jun 18;20(6):e223. doi: 10.2196/jmir.9812.

Monteiro AMF, Santos RL, Kimura N, Baptista MAT, Dourado MCN. Coping strategies among caregivers of people with Alzheimer disease: a systematic review. Trends Psychiatry Psychother. 2018 Jul-Sep;40(3):258-268. doi: 10.1590/2237-6089-2017-0065.

Morris L, Horne M, McEvoy P, Williamson T. Communication training interventions for family and professional carers of people living with dementia: a systematic review of effectiveness, acceptability and conceptual basis. Aging Ment Health. 2018 Jul;22(7):863-880. doi: 10.1080/13607863.2017.1399343. Epub 2017 Nov 10.

Morris S, Fletcher K, Goldstein R. The Grief of Parents After the Death of a Young Child. J Clin Psychol Med Settings. 2018 Nov 28. doi: 10.1007/s10880-018-9590-7. [Epub ahead of print]

Morrow A, Jacobs C, Best M, Greening S, Tucker K. Genetics in palliative oncology: a missing agenda? A review of the literature and future directions. Support Care Cancer. 2018 Mar;26(3):721-730. doi: 10.1007/s00520-017-4017-9. Epub 2017 Dec 16.

Nguyen H, Terry D, Phan H, Vickers J, McInerney F. Communication training and its effects on carer and care-receiver outcomes in dementia settings: A systematic review. J Clin Nurs. 2018 Oct 24. doi: 10.1111/jocn.14697. [Epub ahead of print]

Parekh R, Praetorius RT, Nordberg A. Carers’ Experiences in Families Impacted by Huntington’s Disease: A Qualitative Interpretive Meta-Synthesis. Br J Soc Work. 2018 Apr;48(3):675-92.

Pinquart M. Parenting stress in caregivers of children with chronic physical condition—A meta‐analysis. Stress Health. 2018 Apr;34(2):197-207. doi: 10.1002/smi.2780. Epub 2017 Aug 18.

Poyser CA, Tickle A. Exploring the experience of the disclosure of a dementia diagnosis from a clinician, patient and carer perspective: a systematic review and Meta-ethnographic synthesis. Aging Ment Health. 2018 Nov 15:1-11. doi: 10.1080/13607863.2018.1506747. [Epub ahead of print]

Thomas R, Phillips M, Hamilton RJ. Pain Management in the Pediatric Palliative Care Population. J Nurs Scholarsh. 2018 May 5. doi: 10.1111/jnu.12389. [Epub ahead of print]

Timmins F, Pujol N. The Role of Healthcare Chaplains in Resuscitation: A Rapid Literature Review. J Relig Health. 2018 Jun;57(3):1183-1195. doi: 10.1007/s10943-018-0604-4.

Ullgren H, Tsitsi T, Papastavrou E, Charalambous A. How family caregivers of cancer patients manage symptoms at home: A systematic review. Int J Nurs Stud. 2018 May 29;85:68-79. doi: 10.1016/j.ijnurstu.2018.05.004. [Epub ahead of print]

Waugh A, Kiemle G, Slade P. What aspects of post-traumatic growth are experienced by bereaved parents? A systematic review. Eur J Psychotraumatol. 2018 Aug 16;9(1):1506230. doi: 10.1080/20008198.2018.1506230. eCollection 2018.


Bergman AS, Axberg U, Hanson E. When a parent dies - A systematic review of the effects of support programs for parentally bereaved children and their caregivers. BMC Palliat Care. 2017 Aug 10;16(1):39. doi: 10.1186/s12904-017-0223-y.

Cagle JG, Bunting M, Kelemen A, Lee J, Terry D, Harris R. Psychosocial needs and interventions for heart failure patients and families receiving palliative care support: a systematic review. Heart Fail Rev. 2017 Feb 20. [Epub ahead of print]

Cahill PJ, Lobb EA, Sanderson C, Phillips JL. What is the evidence for conducting palliative care family meetings? A systematic review. Palliat Med. 2017 Mar;31(3):197-211. Epub 2016 Aug 19.

DeSanto-Madeya S, Safizadeh P. Family Satisfaction With End-of-Life Care in the Intensive Care Unit: A Systematic Review of the Literature. Dimens Crit Care Nurs. 2017 Sep/Oct;36(5):278-283. doi: 10.1097/DCC.0000000000000262.

Ellis SJ, Wakefield CE, Antill G, Burns M, Patterson P. Supporting children facing a parent's cancer diagnosis: a systematic review of children's psychosocial needs and existing interventions. Eur J Cancer Care (Engl). 2017 Jan;26(1). doi: 10.1111/ecc.12432. Epub 2016 Jan 18.

Fearnley R, Boland JW. Communication and support from health-care professionals to families, with dependent children, following the diagnosis of parental life-limiting illness: A systematic review. Palliat Med. 2017 Mar;31(3):212-222. Epub 2016 Jul 11.

Kuo SC, Sun JL, Tang ST. Trajectories of depressive symptoms for bereaved family members of chronically ill patients: a systematic review. J Clin Nurs. 2017 Dec;26(23-24):3784-3799. doi: 10.1111/jocn.13720. Epub 2017 Feb 23.

Mathews G, Johnston B. Palliative and end-of-life care for adults with advanced chronic obstructive pulmonary disease: a rapid review focusing on patient and family caregiver perspectives. Curr Opin Support Palliat Care. 2017 Dec;11(4):315-327. doi: 10.1097/SPC.0000000000000303.

Thorn H, Uhrenfeldt L. Experiences of non-specialist nurses caring for patients and their significant others undergoing transitions during palliative end-of-life cancer care: A systematic review. JBI Database System Rev Implement Rep. 2017 Jun;15(6):1711-1746. doi: 10.11124/JBISRIR-2016-003026.

Virdun C, Luckett T, Lorenz K, Davidson PM, Phillips J. Dying in the hospital setting: A meta-synthesis identifying the elements of end-of-life care that patients and their families describe as being important. Palliat Med. 2017 Jul;31(7):587-601. doi: 10.1177/0269216316673547. Epub 2016 Dec 8.


Bull MJ, Boaz L, Jermé M. Educating Family Caregivers for Older Adults About Delirium: A Systematic Review. Worldviews Evid Based Nurs. 2016 Jun;13(3):232-40. Epub 2016 Mar 10.

Morgan T, Ann Williams L, Trussardi G, Gott M. Gender and family caregiving at the end-of-life in the context of old age: A systematic review. Palliat Med. 2016 Epub 2016 Jan 26.

Morris JN, Martini A, Preen D. The well-being of children impacted by a parent with cancer: an integrative review. Support Care Cancer. 2016 Jul;24(7):3235-51. Epub 2016 Apr 14.

Noome M, Beneken Genaamd Kolmer DM, van Leeuwen E, Dijkstra BM, Vloet LC. The nursing role during end-of-life care in the intensive care unit related to the interaction between patient, family and professional: an integrative review. Scand J Caring Sci. 2016 Dec;30(4):645-661. doi: 10.1111/scs.12315. Epub 2016 Mar 17.

Pozzebon M, Douglas J, Ames D. Spouses' experience of living with a partner diagnosed with a dementia: a synthesis of the qualitative research. Int Psychogeriatr. 2016 Apr;28(4):537-56. Epub 2016 Jan 11.

Singer AE, Ash T, Ochotorena C, Lorenz KA, Chong K, Shreve ST, Ahluwalia SC. A Systematic Review of Family Meeting Tools in Palliative and Intensive Care Settings. Am J Hosp Palliat Care. 2016 Sep;33(8):797-806. Epub 2015 Jul 26.


Azzani M, Roslani AC, Su TT. The perceived cancer-related financial hardship among patients and their families: a systematic review. Support Care Cancer. 2015 Mar;23(3):889-98. Epub 2014 Oct 22.

Carolan CM, Smith A, Forbat L. Conceptualising psychological distress in families in palliative care: Findings from a systematic review. Palliat Med. 2015 Jul;29(7):605-632. Epub 2015 Mar 23.

Gerhardt CA, Lehmann V, Long KA, Alderfer MA. Supporting Siblings as a Standard of Care in Pediatric Oncology. Pediatr Blood Cancer. 2015 Dec;62 Suppl 5:S750-804.

Hinkle LJ, Bosslet GT, Torke AM. Factors associated with family satisfaction with end-of-life care in the ICU: a systematic review. Chest. 2015 Jan;147(1):82-93.

Lord K, Livingston G, Cooper C. A systematic review of barriers and facilitators to and interventions for proxy decision-making by family carers of people with dementia. Int Psychogeriatr. 2015 Aug;27(8):1301-12. Epub 2015 Apr 14.

Reed M, Harding K. Do Family Meetings Improve Measurable Outcomes for Patients, Carers, or Health Systems? A Systematic Review. Australian Social Work. 2015;68(2):244-258. [No abstract available]

Staccini L, Tomba E, Grandi S, Keitner GI. The evaluation of family functioning by the family assessment device: a systematic review of studies in adult clinical populations. Fam Process. 2015 Mar;54(1):94-115.Epub 2014 Aug 25.


Benbow SM, Sharman V. Review of family therapy and dementia: twenty-five years on. nt Psychogeriatr. 2014 Dec;26(12):2037-50. Epub 2014 Jul 15.

Coad J, Patel R, Murray S. Disclosing terminal diagnosis to children and their families: palliative professionals' communication barriers. Death Stud. 2014 May-Jun;38(5):302-7.Epub 2013 Sep 17.

Fosse A, Schaufel MA, Ruths S, Malterud K. End-of-life expectations and experiences among nursing home patients and their relatives-A synthesis of qualitative studies. Patient Educ Couns. 2014 Oct;97(1):3-9. doi: 10.1016/j.pec.2014.05.025. Epub 2014 Jun 12.

Griffin JM, Meis LA, MacDonald R, Greer N, Jensen A, Rutks I, Wilt TJ. Effectiveness of family and caregiver interventions on patient outcomes in adults with cancer: a systematic review. J Gen Intern Med. 2014 Sep;29(9):1274-82.Epub 2014 May 20.

Melin-Johansson C, Axelsson I, Jonsson Grundberg M, Hallqvist F. When a child dies: parents' experiences of palliative care-an integrative literature review. J Pediatr Nurs. 2014 Nov-Dec;29(6):660-9. doi: 10.1016/j.pedn.2014.06.009. Epub 2014 Jun 26.

Robb SL, Hanson-Abromeit D. A review of supportive care interventions to manage distress in young children with cancer and parents. Cancer Nurs. 2014 Jul-Aug;37(4):E1-26.

Visser M, Deliens L, Houttekier D. Physician-related barriers to communication and patient- and family-centred decision-making towards the end of life in intensive care: a systematic review. Crit Care.2014 Nov 18;18(6):604.


Clute MA, Kobayashi R. Are children's grief camps effective? J Soc Work End Life Palliat Care. 2013;9(1):43-57.

Petriwskyj A, Parker D, Robinson A, Gibson A, Andrews S, Banks S. Family involvement in decision making for people with dementia in residential aged care: a systematic review of quantitative and qualitative evidence. JBI Database System Rev Implement Rep. 2013 July;11(7):131-282.

Phillips JL, West PA, Davidson PM, Agar M.Phillips JL, West PA, Davidson PM, Agar M. Does case conferencing for people with advanced dementia living in nursing homes improve care outcomes: Evidence from an integrative review? Int J Nurs Stud. 2013 Aug;50(8):1122-35. Epub 2012 Nov 28.

Van Humbeeck L, Piers RD, Van Camp S, Dillen L, Verhaeghe ST, Van Den Noortgate NJ. Aged parents' experiences during a critical illness trajectory and after the death of an adult child: A review of the literature. Palliat Med. 2013 Jul;27(7):583-95.Epub 2013 Apr 11.


Brereton L, Gardiner C, Gott M, Ingleton C, Barnes S, Carroll C. The hospital environment for end of life care of older adults and their families: an integrative review. J Adv Nurs. 2012 May;68(5):981-93.

de Graaff FM, Mistiaen P, Devillé WL, Francke AL. Perspectives on care and communication involving incurably ill Turkish and Moroccan patients, relatives and professionals: a systematic literature review. BMC Palliat Care. 2012 Sep 18;11(1):17. 

Hubbard G, McLachlan K, Forbat L, Munday D. Recognition by family members that relatives with neurodegenerative disease are likely to die within a year: a meta-ethnography. Palliat Med. 2012 Mar;26(2):108-22.

Hopkinson JB, Brown JC, Okamoto I, Addington-Hall JM. The effectiveness of patient-family carer (couple) intervention for the management of symptoms and other health-related problems in people affected by cancer: a systematic literature search and narrative review. J Pain Symptom Manage. 2012 Jan;43(1):111-42.

Krattenmacher T, Kühne F, Ernst J, Bergelt C, Romer G, Möller B. Parental cancer: factors associated with children's psychosocial adjustment--a systematic review. J Psychosom Res. 2012 May;72(5):344-56. Epub 2012 Mar 14.

Kühne F, Krattenmacher T, Beierlein V, Grimm JC, Bergelt C, Romer G, Möller B. Minor children of palliative patients: a systematic review of psychosocial family interventions. J Palliat Med. 2012 Aug;15(8):931-45.

Melin-Johansson C, Henoch I, Strang S, Browall M. Living in the presence of death: an integrative literature review of relatives' important existential concerns when caring for a severely ill family member. Open Nurs J. 2012;6:1-12. Epub 2012 Feb 10.

Shields CG, Finley MA, Chawla N, Meadors WP. Couple and family interventions in health problems. J Marital Fam Ther. 2012 Jan;38(1):265-80.


Aho AL, Astedt-Kurki P, Tarkka MT, Kaunonen M. Development and implementation of a bereavement follow-up intervention for grieving fathers: an action research. J Clin Nurs. 2011 Feb;20(3-4):408-19. doi: 10.1111/j.1365-2702.2010.03523.x. Epub 2010 Oct 14.

Billings JA.The end-of-life family meeting in intensive care part I: Indications, outcomes, and family needs. J Palliat Med. 2011 Sep;14(9):1042-50.

Long KA, Marsland AL. Family adjustment to childhood cancer: a systematic review. Clin Child Fam Psychol Rev. 2011 Mar;14(1):57-88.


Alderfer MA, Long KA, Lown EA, Marsland AL, Ostrowski NL, Hock JM, Ewing LJ. Psychosocial adjustment of siblings of children with cancer: a systematic review. Psychooncology. 2010 Aug;19(8):789-805.

Niemelä M, Hakko H, Räsänen S. A systematic narrative review of the studies on structured child-centred interventions for families with a parent with cancer. Psychooncology. 2010 May;19(5):451-61.

White C, Hardy J. What do palliative care patients and their relatives think about research in palliative care?-a systematic review. Support Care Cancer. 2010 Aug;18(8):905-11. Epub 2009 Aug 25.


Adams E, Boulton M, Watson E. The information needs of partners and family members of cancer patients: a systematic literature review. Patient Educ Couns. 2009 Nov;77(2):179-86. Epub 2009 Apr 29.

Boyle AH. An integrative review of the impact of COPD on families (147kb pdf). South Online J Nurs Res. 2009;9(3):6pp.

Haour-Knipe M. Families, children, migration and AIDS. AIDS Care. 2009 Aug;21(Supp 1):43-8.

Mattila E, Leino K, Paavilainen E, Åstedt-Kurki P. Nursing intervention studies on patients and family members: a systematic literature review. Scand J Caring Sci. 2009 Sep;23(3):611-22.

Meeker MA, Jezewski MA. Metasynthesis: withdrawing life-sustaining treatments: the experience of family decision-makers. J Clin Nurs. 2009 Jan;18(2):163-73.

Prchal A, Landolt MA. Psychological interventions with siblings of pediatric cancer patients: a systematic review. Psychooncology. 2009 Dec;18(12):1241-51.

Ryan T. End-of-life care for people with dementia: a thematic review of familial involvement, practices and beliefs. Int J Disabil Hum Dev. 2009 Jan-Mar;8(1):15-20. No abstract available.


Bowden G, Bliss J. Does using a hospital bed have an impact on the meaning of home? Br J Community Nurs. 2008 Dec;13(12):556, 558-62.

Hudson P, Quinn K, O'Hanlon B, Aranda S. Family meetings in palliative care: multidisciplinary clinical practice guidelines. BMC Palliat Care. 2008 Aug 19;7:12.

Mayland CR, Williams E, Ellershaw JE. How well do current instruments using bereaved relatives’ views evaluate care for dying patients? Palliat Med. 2008 Mar;22(2):133-44.


Kettl P. Helping families with end-of-life care in Alzheimer's disease. J Clin Psychiatry. 2007 Mar;68(3):445-50.

Kirchhoff KT, Faas AI. Family support at end of life. AACN Adv Crit Care. 2007 Oct-Dec;18(4):426-35.

Willis L, Demiris G, Oliver DP. Internet use by hospice families and providers: a review. J Med Syst. 2007 Apr;31(2):97-101.


Andershed B. Relatives in end-of-life care--part 1: a systematic review of the literature the five last years, January 1999-February 2004. J Clin Nurs. 2006 Sep;15(9):1158-69.

Kirou-Mauro A, Harris K, Sinclair E, Selby D, Chow E. Are family proxies a valid source of information about cancer patients' quality of life at the end-of-life? a literature review. Journal of Cancer Pain & Symptom Palliation. 2006;2(2): 23-33.


Howell D, Brazil K. Reaching common ground: a patient-family-based conceptual framework of quality EOL care. J Palliat Care. 2005 Spring;21(1):19-26.

Meeker MA, Jezewski MA. Family decision making at end of life. Palliat Support Care. 2005 Jun;3(2):131-42.


Davies R. New understandings of parental grief: literature review. J Adv Nurs. 2004 Jun;46(5):506-13.


Rowa-Dewar N. Do interventions make a difference to bereaved parents? a systematic review of controlled studies. Int J Palliat Nurs. 2002 Sep;8(9):452-7.

Last updated 05 February 2024