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Resources

Most modules include information about helpful website resources. Here is a full list for your convenience.

 

Your role as a DSP

Disability services supported decision making: A quick reference guide for disability support workers (770kb pdf)
A guide to support people with intellectual disability to make decisions.

Living well: Using person centred thinking tools with people who have a life limiting illness (598kb pdf)
A demonstration of how person-centred planning tools can be applied to end of life.

When I die (634kb pdf)
An example of a completed end of life book from the UK.

Dying Matters: My funeral wishes (679kb pdf)
A checklist to help people plan their funerals.

My end of life choices book (116kb word) 
A template document to write down end of life choices from Australia.


Handy teaching skills

Handy teaching skills (117kb pdf)
Name and brief description of each of the 10 teaching skills presented in the TEL module Handy teaching skills.


Dying

The dying process (725kb pdf)
A resource designed for the general community that explains what happens during the dying process.

The Books Beyond Words series
Books designed for people with intellectual disability that include only pictures. This allows you to make the story relevant to the client. Topics include ‘Am I Going to Die’ and ‘When I Die’.


Death

Breaking bad news
This website contains information and guidelines for caregivers of people with intellectual disability about how to break bad news.

The Books Beyond Words series
Books designed for people with intellectual disability that include only pictures. This allows you to make the story relevant to the client. Topics include ‘Am I Going to Die’, ‘Getting on with Cancer’ and ‘Anne has Dementia’.


Loss, grief and mourning

Grief and loss (751kb pdf)
An easy read document about grief and loss developed by NSW Health. The full resource, which includes the pages on grief and loss, is also available in Arabic, Chinese, Dinka, Korean and Vietnamese here.

Making a difference toolkit- End of life healthcare
A collection of resources from the UK designed for people with intellectual disability and caregivers.

Grief and bereavement
Resources from Connectability Canada to support a client who is grieving, such as creating a book of memories and planning for the anniversary of a death.

Helping people with intellectual disabilities cope with loss (341kb pdf)
Tips and resources for caregivers to assist people with intellectual disability cope with loss.

PicTTalk: Keele University
PC compatible software designed by and for people with intellectual disability that can be used to facilitate conversations about illness, life, the impacts of illness, and the future.


Bequeathing

Wills for people with intellectual disability
A fact sheet about making a will, published by the Intellectual Disability Rights Service in Australia.

An easy to read guide to making a will (320kb pdf)
An example from Ireland about will making, designed for people with intellectual disability.


Funeral wishes

My funeral wishes: Get peace of mind by planning ahead (989kb pdf)
Information about the kinds of wishes that some people make for their funeral.

When I die (634kb pdf)
An example of a completed plan, including a section on funeral wishes.

My funeral wishes (679kb pdf)
A checklist to help people plan their funerals.


Care when dying

Living well: Using person centred thinking tools with people who have a life limiting illness (598kb pdf) 
Document designed for people who are dying, including those with intellectual disability.

Appoint an enduring guardian: NSW Government
Information and short videos designed for the general community.


Organ and tissue donation

Donate Life
Includes information about donating organs and tissues in Australia.

Australian Organ Donor Register
A webpage where you can sign up for the Australian Organ Donor Register.
 

Artwork is by and in memoriam: Derek Coyle (1960-2014), an artist supported by Sunshine’s Community Access Program Art Studio

 

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This project is supported by funding from the Australian Government Department of Health under the Public Health and Chronic Disease Grant Program.

 

We would like to acknowledge the traditional custodians of this land and pay our respect to elders past, present and emerging.